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Nancy Mandell
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Writings by members of
ASPIRES
Copyright © 2003 ASPIRES
All Rights Reserved
These materials are
copyright by their authors. ASPIRES has
extended a blanket copyright to them for purposes of their re-publication on
this web site page. Individuals wishing to copy or further distribute these
writings must contact the
list owner of ASPIRES for
explicit written permission regarding further use.
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Being Real |
I have been pondering my
life lately. Since I discovered myself as an Aspie, I have become overjoyed
and delighted in my self-discovery. My life up until the mid-forties was
confusing and misunderstood. I have been to many therapists. I was
misdiagnosed and felt like an alien from Venus. I was diagnosed Borderline
Personality Disorder and ADD, Anxiety Disorder. None of these diagnoses
quite fit the full picture. I do show many ADD traits. I get easily
distracted but can hyper-focus on my interests. I could always see the
beauty and absorb emotions around me. Yet, I felt left out in the ordinary
world. I wanted to become real for such a long time.
I tried living my life as authentically as possible. In my 30’s I was a
caseworker for child abuse. I excelled working one on one with teenagers and
parents. I took on my cases and treated my families as intensely as I would
my own.
I heard stories of betrayal and unhealthy lifestyles. I was deeply involved
in my families’ lives and took on their pain. Becoming a mom at the age of
35 with a daughter and again at 37 with my Aspie son made me realize that I
could not emotionally continue in the abuse field. I cared too much and took
on too much of the energy of the families I wanted to help. I still desired
an outlet for my need to help and nurture others. I became a volunteer for 4
years with hospice. I found my true calling in life! I loved the honesty and
sharing that was natural between my patient and myself. When a person is
going through the dying process, there is no time for game playing or small
talk. I became very quiet and centered. I loved the simplicity of our
relationship. I could just BE … I could hold the hand of a person in
transition and feel totally connected on the deepest level. I had to give
up hospice after my son started struggling in kindergarten. I found out I
had only enough energy to deal with his school situation and advocacy work.
Later in life, I hope to go back into hospice work.
As an Aspie, I have such a NEED for justice. I have always been for the
underdog. Seeing a child in pain, or anybody struggling or in despair causes
in me the need to help. Aspies are supposed to be cold based on some
diagnosticians’ standards. I know that my son is not emotionally cold nor
are my Aspie adult friends.
I asked Tony Attwood if an Aspie could be a caretaker. He said, "Most
certainly." This helped me to see that I was indeed a true Aspie. My need
for righting the wrongs and cruelties of the world is enormous. I need to be
involved in society as a person who creates change when there is pain or
fear. I started a support group this past year. My desire has been to help
parents understand their sensitive children. The world is so hard for us as
Aspies to live in. The loud noises, the smells, the pressure to be like
everybody else can be draining. We need to accommodate our children’s
sensitivities and provide a safe haven for them to flourish. As parents, we
need to teach others about making accommodations for the gentlest souls on
our planet. Aspies have so
much to offer the world. Each Aspie is unique and intelligent in their own
right. I felt compelled to become a role model helping other parents with
Aspie children to understand how different and sensitive our makeup is
composed of. Making allowances and understanding the differences can help
Aspies contribute their gifts to the world. An Aspie raised with
understanding and love will share great gifts with humanity.
If a person just met or even knew me for a while, I could "pass" as NT (neuro-typical).
Yet when I allow myself to be me, with all my flair and drama, I am viewed
as "different." I am not a typical middle-aged mom. I am a little more
intense and driven. I take on the world with zest and can see life through
the innocence of a child.
Living as an Aspie is a privilege and a pleasure. I can embrace life and
feel the depths of happiness and sorrow! Each event can be felt and
experienced with an understanding that few people experience. If I give
myself permission to have lots of down time, take naps, eat properly,
accept my idiosyncrasies, I do much better emotionally. I have more to give
my family and my Aspie community. I am learning to not absorb so much of
other people’s (NT’s) energy. I am trying to share who I am … sharing my
knowledge of Asperger’s learning differences and special ed. Trying to teach
people that we are all unique and beautiful in our own ways.
I love the Aspie need for learning everything we possibly can on favorite
subjects. I love the intensity of feelings and the depth of my feelings. I
like it best when I give myself permission to be ME, real and strong. Not a
wimpy, frightened girl who has pretended all my life to be NORMAL. I no
longer wish NORMAL. I embrace my Aspieness. I want to share my joy of being
Me.
© Nancy Mandell 2003
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