A
message from Cure Autism Now co-founder
Jonathan Shestack:
“The autism community is
wired, networked and organized
like never before. Many of
our children have no voice,
but we can speak on their
behalf. Please help us send
this message to President Bush
and Senator Kerry.”
To the families and
friends of people with autism:
It doesn’t matter
if the autistic person you care about is
three or 30, can’t say a word or can’t
stop talking about the train schedule.
Making sure they get what they need,
that the world is not cruel, that they
get a chance at fulfillment and
productivity is a full-time job. You
are busy. We get it. We are too.
That is why we only
come to you when we really think it
matters. We came to you to help pass
the Children’s Health Act of 2000, you
rallied around the cause, and the
legislation was passed in record time.
We think
it really counts this time, too. We are
facing an extraordinary crisis that
calls for extraordinary action.
The numbers of
people affected by autism keep rising
and rising. It is getting worse, not
better. Autism is causing more
heartbreak, not less and it is costing
more and more money. And yet the
federal research commitment – which was
never sufficient to begin with – is now
dangerously failing to keep pace with
the problem.
In fact, autism
research is at the risk of becoming less
funded over the next few years.
The federal
government is currently spending about
$50 million dollars a year on a problem
that costs the nation closer to $50
billion in direct costs and lost wages –
yes,
BILLION.
Over the next 15
years, a million more people with autism
will grow up. Their parents will become
older and less able to care for them.
The responsibility for these people will
fall on the system. The system will
crash. Even if you don’t have a child
with autism, this should make you take
notice.
If you
are responsible for leading the greatest
and wealthiest nation on earth, you
really better pay attention.
We know that it
doesn’t matter if you are rich or poor;
black or white; Democrat or Republican.
You cannot run from autism. You cannot
hide from it. There is no pill or
prayer to protect your children or your
neighbor’s children from autism. The
only way to avoid autism is to fix it.
The way to fix it is through medical
research.
Last year,
scientists sponsored by the National
Institutes of Health (NIH) wrote a
roadmap for autism (
http://www.nimh.nih.gov/autismiacc/CongApprCommRep.pdf
). It was an ambitious, sometimes
brilliant document. It was a
step-by-step plan to find treatments,
preventions and for some even a cure for
autism in ten years time.
But then
the NIH failed to commit a single extra
dollar to making that plan a reality