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National News

Save the date!  June 7, 2005  CALL IN DAY FOR President Bush, Laura Bush and Congress after 12 noon - Eastern Time. - Unlocking Autism and the National Vaccine Information Center are asking for your support from your home and work on June 7th for a call in/fax in day to Washington, DC.  The last call/fax in on April 28th, started by Lynn Notgrass, was so successful, that the White House was in contact with us by 8:45am central time to ask us to have people stop calling.  We told them that we had talked to parents for years and that they could talk to them for that day. ...Read more.

Musical by Neil Simon Celebrates Temple Grandin  - "Temple",  music by Norman Durkee, book and Lyrics by Silvia Peto (March 2- April 1, 2006).  Based on the real life of a girl who did not speak until she was three but grew up — despite her autism — to achieve success, a doctorate and more, "this world premiere musical celebrates the determined ingenuity of a miraculous spirit through the true story of Temple Grandin." By Ernio Hernandez

President Bush: GET THE MERCUCRY OUT OF VACCINES. April 28, 2005 is National Call  Day.  President Bush's comment line is 202-456-1111 / Switch board 202-456-1414. Please join us on April 28, 2005 for a national call President Bush Day and tell him to "GET THE MERCURY OUT OF VACCINES." Also, ask him to identify assistance for our children who have been injured. We need our insurance companies to pay for our tests, doctor visits and chelation to help our children get well. Please make our message heard loud and clear and we can only do that if we all come together. Please forward to everyone you know to help with this issue. Family and friends can also call.  An Open Letter from Unlocking Autism and how YOU can help!

"Two states passed bans of mercury in vaccines in 2004:  California and Iowa.  Seven additional states had ongoing mercury ban legislation in 2004: Kentucky, Minnesota, Missouri, Nebraska, New York, Pennsylvania, and Rhode Island.  Four other states are pursuing legislation into 2005: Illinois, Massachusetts, North Carolina, and Ohio. As 2005 starts, Mercury Ban representatives in the following 23 states are actively pursuing legislation to ban mercury in vaccines: Alabama, Arizona, Colorado, Connecticut, Delaware, Florida, Georgia, Hawaii, Kansas, Maryland, Maine, Michigan, Mississippi, New Jersey, Nevada, Oklahoma, Tennessee, Texas, Utah, Virginia, Vermont, Wisconsin, and Wyoming." 

French Company Reports Autism Gene Isolation Using AGRE Samples - IntegraGen, a personalised medicine company based in France, has been using samples from US families, provided by the Autism Genetics Resource Exchange (AGRE), to investigate the genetics of autism. Researchers at IntegraGen have discovered twelve genes associated with autism and the first results of this work are submitted for publication. Most of these genes affect two major gene networks, one regulating synaptic transmission in the cerebellum and the other involved in axonic transport. The Company is developing a genetic test for autism that might help with diagnosing the condition. The test is currently undergoing extensive clinical validation and is expected to be available in 2006. Earlier and more accurate diagnosis of autism in young children will allow direct interventional therapy to be given at the earliest possible age, when it is of greatest potential benefit.

Oregon Health Science University to Take  Child Away from Mother / OHSU threatens to take an autistic child from his mother. Her crime?  Seeking medical treatment for her son.

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Update on activist response request - 2/11/2005

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Update on activist response request - 2/17/2005

'A work in progress' - Jerry Newport pauses momentarily when, over the phone, you give him your birthdate. He takes a deep breath and in a casual voice says you were born on a Sunday, you've lived for 10,809 days, 259,416 hours 15,564,960 minutes and 933,897,600 seconds - to the nearest day. For good measure, he adds that you are 172 days older than his wife's youngest child, and 755 days younger than her eldest. By now, he's used to the predictable stunned reaction he gets to his human abacus party trick by Jennifer Parks

ASA Launches New Comprehensive Online Directory Of Programs and Services for the Autism Community - The Autism Society of America today launched a one-of-a-kind, nationwide online directory to help the 1.5 million American families affected by autism find the vital services they need in their own communities. The directory -- AutismSource -- offers, for the first time in one convenient place, the gamut of resources families require to help their children, such as physicians, psychologists, speech, occupational and behavioral therapists, schools, camps, training programs, government agencies, and much more.

“Every day, 50 families in America find out that their child has some form of autism, and they urgently need to know where they can go for help. AutismSource provides these families with a state-of-the-art directory that is easy to use and full of valuable resources that will help them get the services their child needs,” ASA Board Chair Lee Grossman said.

“As the prevalence of autism continues to grow, so too does the demand for professionals and services specializing in autism. ASA, which has been the #1 resource for the autism community for almost 40 years, developed AutismSource to answer this urgent need,” ASA President and CEO Rob Beck said.

AutismSource features more than 3,000 resources with listings in all 50 states and the capability to continuously expand. ASA continues to add programs and users can recommend resources to be added by following the prompts on the site.

To learn more or to access the directory, visit the ASA homepage (http://www.autism-society.org)  and click on the AutismSource logo.



60 MINUTES TO AIR PIECE ON JERRY NEWPORT AND MARY MEINEL ON SEPT. 29TH.

Eight years ago, "60 Minutes" introduced viewers to Jerry Newport and Mary Meinel, both of whom have a form of autism known as Asperger's Syndrome.  Mary and Jerry had fallen in love and married after meeting at a support group. What's happened to the couple since then is the subject of "When Jerry Met Mary," reported by correspondent Lesley Stahl, which can be seen on 60 Minutes this coming Wednesday, September 29, at 8PM EST.

"ASPERGER SYNDROME: A WORLD APART"  What is it like for parents who can't connect with their child?  On Friday, October 1st, 2004.  The Jane Pauley Show, we go inside the minds of children with Asperger Syndrome - a neurobiological disorder affecting as many as 1 in 300 children - in hopes of helping parents recognize the symptoms, and find solutions that can help their children lead full, productive lives."

Mothers Wanted!  Hello! My name is Judy, I have a 20-year old daughter named Jill who has autism, and I am writing a book about Mother's of children with Autism. The title of this book is Autism Today  ~ Heartfelt Thoughts from Mothers.

 

My goal in writing this book is to share what all of us as mothers of children with autism know -that we are not alone. Also, to bring some comfort in the similarities we share in raising our children with autism, and allow others a heartfelt look into "our world".

 

I would love to hear from those of you who are interested in participating in this project.  For more information, please email me at  autism_today@yahoo.com or call me at 913-706-6404. Thanks! 

 

 

9/14 NATIONAL CALL-IN DAY-FOR MONEY FOLLOWS THE PERSON/ FAMILY
OPPORTUNITY ACT
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ACTION ALERT - September 14, 2004 for Money Follows the Person/ Family Opportunity Act Congress has returned! They will be in session for only one month. There is much business to be conducted. If disability advocates want to be on their agenda, we must make a concerted, forceful push to get there.

PEOPLE Magazine is looking for a family who has a child affected by thimerosal in vaccines, that has a younger child  who they then did not vaccinate. Call People Magazine's reporter, Diane Herbst,  at 973-783-3466 or cell 973-698-7787.  Herbst writes, "We are looking to do a story on autism  and the link with vaccinations, particularly in light of the recent Columbia University data." Joanne Fowler is the  editor at People who is interested in this. Please forward this post to other families that might know a family that meets these requirements.

Dan Marion announces Child Net Network for Autism ...Read more.

Examining Autism - CBS News Sunday Examines Autism, "The problem has reached such proportions that the federal government recently convened the first National Autism Summit. Though the overall picture is gloomy, one encouraging finding has emerged, according to Nancy Wiseman of the advocacy group First Signs: Clear, early and intensive intervention can profoundly impact the quality of life for every child and family at risk."

Autism on the rise - "The developmental disability is increasing both nationally and globally. The Center for Disease Control and Prevention estimated last year that autism affects one in 250 children. The Autism Society of America estimates that the incidence of the disorder is rising by 10 percent to 17 percent a year and in the next decade the number of Americans diagnosed with autism will rise from 1.5 million today to 4 million," by Beth Quimby

Dylan's 5K Run & Walk For Autism Sept. 12 / Weather Watch 12 Meteorologist Lance Hill Celebrity Chair - "On Sept. 12, Dylan's Run & Walk for Autism will benefit autism research and the Autism Society of Southeastern Wisconsin."

UNLOCKING AUTISM asked the CANDIDATES of the 2004 PRESIDENTIAL ELECTION WHERE THEY STAND ON 7 AUTISM ISSUES. Click on the names below to find out who responded.  BUSH -or- Kerry  ASPIRES does not endorse any political candidate.  We bring you this for informational purposes only.

LAKE NORMAN AUTISM/ASPERGER'S SUPPORT GROUP: Parent-to-parent support for parents of children who are autistic or have Asperger syndrome. Details: Jackie Murray at (704) 655-8628 or Crystle Furin at (704) 799-6737.

Understanding ADHD - To help patients, families and caregivers better understand attention-deficit/hyperactivity disorder (ADHD)  and dispel some common myths about the condition; Shire US  Inc. will host the sixth annual ADHD Experts on Call on  Monday, August 9, 2004 from 8 A.M. to midnight EDT. This  year, the host of ABC’s Extreme Makeover: Home Edition, Ty  Pennington, who was diagnosed with ADHD as a child, will  talk about his own experience managing the disorder, and  answer calls along with some of the nation’s top ADHD  authorities at the toll-free telephone hotline,  1-888-ASK-ADHD (1-888-275-2343).
 
The hotline is designed to provide "live" access to  English and Spanish speaking experts including physicians, school nurses, educators, and advocates who can answer  questions regarding the disorder. In addition, a  confidential, one-on-one on-line forum will be available at http://www.ADHDExpertsOnCall.com throughout the day.

Miss New Jersey, Erica Scanlon, is not only beautiful and talented, she also has a sister with autism. Ms. Scanlon's platform for the Miss America pageant is "autism."
If crowned Miss America her rein can make a difference for the autism community.

Collusion seen after release of flawed vaccine-autism report - America's leading scientific organization investigating the risks that mercury-containing medical products pose to our children-has posted the results of an investigative analysis of several authors relied upon for the flawed Institute of Medicine (IOM) report issued last week attempting to purport a lack of evidence to the mercury-vaccine-autism link in Pharmaceutical News

Report rejects childhood vaccines as a cause of autism - A pivotal report issued today by the Institute of Medicine (IOM) rejects childhood vaccines as a cause of autism. The findings, based on reviews of current scientific evidence, are a significant affirmation of vaccine safety, according to the American Academy of Pediatrics (AAP) in Child Health News

California Autism Numbers Decrease Causing Some in Boise to Wonder... by Linda Patton

The Beach Center on Disability announces the arrival of the inaugural issue of its e-newsletter. The quarterly newsletter will feature an area of research at the Beach Center that concerns children with disabilities, their families, and their service providers. This first issue features research, articles, staff interviews, groups, books, and tips on disability policy, including the challenges that families of children with disabilities face when advocating for their child’s legal rights.

This promises to be an excellent resource for families and professionals. When you visit the link be sure to scroll down to the left where you can sign up to receive the e-newsletter on a subscription basis. The subscription is free.

Dennis Debbaudt's Autism Risk & Safety Newsletter - 2nd Summer 2004 Edition! July 2004

The Autism Epidemic Awareness Fund Demands Presidential Action. - Families and friends Are Taking the Fight to End the Autism Epidemic to the Ballot Box. We’re Calling on Both Presidential Candidates to Commit to Doubling Federal Autism Research Funding.  Join the Fight. Contribute What You Can to Our “Double The Funds” Campaign. Your Support will Enable Us to Run a Nationwide Television Ad Challenging Both Candidates to Take the “Double the Funds Pledge."  What you can do.

The Autism Epidemic Awareness Fund Demands Presidential Action. - Families and friends Are Taking the Fight to End the Autism Epidemic to the Ballot Box. We’re Calling on Both Presidential Candidates to Commit to Doubling Federal Autism Research Funding.  Join the Fight. Contribute What You Can to Our “Double The Funds” Campaign. Your Support will Enable Us to Run a Nationwide Television Ad Challenging Both Candidates to Take the “Double the Funds Pledge."  What you can do.

MassMutual Sponsors Disability Awareness Night & Honors Contributions Made By, and On Behalf Of, 54 Million Americans With Disabilities - Massachusetts Mutual Life Insurance Company (MassMutual) in conjunction with Exceptional Parent Magazine and the Chicago White Sox will sponsor Disability Awareness Night tonight when the White Sox meet the Anaheim Angels at US Cellular Field, Chicago. Exceptional Parent Magazine will donate 250 game tickets to several local disability organizations on behalf of Mass Mutual's Chicago agency headed by David Pearre II, who has a special needs child.

In celebration of April – National Autism Awareness Month, Voices of Safety International (VOSI), www.voicesofsafety.com, invites readers to learn about the major cause of this devastating illness that currently affects 1 in 150 school age children. In 1990 the autism rate was 1 in 10,000 school age children therefore autism currently is a worldwide epidemic which is not being adequately addressed by any government that has ties to the pharmaceutical and medical industries. ...read more  [Press Release]

Oregon Health Science University to become one of 5 Autism Medical Treatment Centers - OHSU has agreed to become one of 5 medical treatment centers in the nation that will be established to treat children with Autism following an accepted medical protocol that has been nationally recognized as effective in treating children with Autism that suffer from gastro-intestinal, absorption and other related issues. ...Their Autism Proposal can be read at http://www.autismnwaf.org/harvardproposal.htm 

April 21 - 23, 2004 - The Power of 1.5 - Political Autism Conference, Washington, DC. 3 Million Parents, 6 Million Grandparents, Millions and Millions of Siblings, Aunts, Uncles, Cousins, Therapists, Teachers, Family and Friends. Equals: 1 BIG voting block! Let's make 2004 "our" year!

Government Mapping Out a Strategy to Fight Autism  - Nov 19, 2003
" The need is enormous. According to federal education officials, in 1992-93, fewer than 20,000 of the nation's nearly five million special-education students, ages 6 to 21, were considered autistic. Ten years later, nearly 120,000 of six million special-education students had autism. That does not count the 19,000 children 3 to 5 receiving autism services under federal law, or those younger whose numbers have not been tallied. Nobody knows the cause of the surge, although epidemiologists... (Ocala Star-Banner, FL).

Autism Summit Conference  - Nov 17, 2003
A national conference focusing on the Federal government's role in biomedical autism research, early screening and diagnosis, and improving access to autism services will be held November 19-20, 2003, at the Washington Convention Center in Washington, DC. The summit will provide a public forum to disseminate, evaluate, and integrate the latest science-based autism information among Federal, academic, and community participants. A major goal of the summit is to develop an information exchange... (New York Jewish Times, NY).

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"We each have our own way of living in the world, together we are like a symphony.
Some are the melody, some are the rhythm, some are the harmony
               It all blends together, we are like a symphony, and each part is crucial.
We all contribute to the song of life."
...Sondra Williams

We might not always agree; but TOGETHER we will make a difference.

 

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