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Articles
Recent Media Coverage of AS
& Related Articles
We will list the current media coverage for the
last 30 days at the beginning of this page as well as in our section
below. This will be updated on the first day of every
month.
A.S.P.I.R.E.S. does not endorse these
articles. We share them with you for informational purposes
only.
7-31-2007
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Are Vaccinations Safe for Your Kids?
- Meet Lynn and her son Jeremy. Jeremy has autism, a
disabling brain affliction. But at 18 months old, he had a
10-word vocabulary and was growing normally. Then two days
after he received a shot for diphtheria, whooping cough, and
tetanus, he was in the hospital. Lynn said, "He was
hospitalized two days after the shot and he was running a
fever of 103. And he was so hot that the nurse that was
standing there could feel the heat radiating off his body."
For the last 29 years, Jeremy has not spoken an intelligible
word. Cases like this are not uncommon -- 4,500
families are suing the government because they believe
vaccines caused their child's autism. Since the 1980s,
critics have questioned the safety and effectiveness of
vaccines. Government health officials and most doctors
insist the benefits are large and the problems exaggerated.
"The risks are far greater to your child of not getting
immunized than any kind of speculative potential
relationship between the vaccine and the development of
autism," said Irwin Redlener, MD, Columbia University.
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Autism Diet Recipes Made Available Online to
Parents - As autism
rates continue to soar in the United States (1 in 150
children, according to the latest CDC statistics), many
parents and healthcare providers are searching for the most
effective ways to treat and manage the disorder. Perhaps the
most popular of all biomedical treatments includes the
Gluten Free, Casein Free (GFCF) Diet, a strict regimen that
calls for the elimination of all gluten and casein proteins
from an individual’s diet. As a result, an autism support
website has made free recipes available for parents who wish
to implement the popular diet. "This diet has made a
big difference for our son," said Gary Greaves, owner of
AutismKey.com and father of a child with autism spectrum
disorder. "Ever since we’ve eliminated gluten and
casein from the menu, there’s been a marked improvement in
social interaction and language," he added. Known by
some as the "Autism Diet," the GFCF Diet is also utilized by
people with allergies and other disorders, such as Celiac
Disease. However, the diet is largely popular within the
autistic community. "We’ve decided to share our
recipes, so that others might benefit. Recipes to items such
as ice cream, banana bread and tapioca pudding are all
available on our website," Greaves noted.
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Gender Bias and Autism Dads
- Christopher, a member of the About.com autism community,
is an autism dad who is deeply involved in his son's life.
He made this comment on a previous blog: Have you ever been
treated like a second-rate member of an IEP or school
meeting? Of course, right? But how about a second-rate
parent? Have you ever had to say, “Umm, I’m here too” or
“Hey, I’m also the parent” when the faculty (in my case, all
or predominately female) ignore you completely and speak to
the other parent without acknowledging your existence. Or
even worse, have you ever endured the cruel “Dad” jokes,
when these so-called professionals assume the mother does
all of the dirty work (cooking, cleaning, shopping, taking
care of the child, therapies, researching, fighting school
districts, etc.) while you escape to the normalcy of your
9-5?This comment rang surprisingly true to me - having heard
almost the same thing from my own husband, Peter. Peter, who
is self-employed and often a part of IEP meetings, field
trips, and other "momlike" activities, has often commented
on feeling that he's overlooked or ignored. Just as often,
therapists and teachers will call, get him on the phone, and
ask for me. |
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How far should we let embryo selection go?
- MPs and peers have called for the relaxation of rules on
the creation of "saviour siblings" - babies born from
specifically selected embryos to provide tissue to treat
older brothers or sisters - in a move that has angered
"pro-life" campaigners. Currently the law allows embryo
selection only to ensure a genetic match for existing
siblings with life-threatening conditions, but members of a
parliamentary committee want to broaden this to include
non-life-threatening conditions such as autism. "Saviour
siblings" are created when parents use IVF to produce a
number of embryos, then select the one which matches the
tissue of their existing child. Do you think the rules
regarding "saviour siblings" should be relaxed so that
doctors can attempt to treat a wider range of conditions?
Would you use this technology if it were made available?
Isn't it sensible to do what we can to treat serious
illnesses such as autism? |
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Law enforcement gets a lesson on autism
awareness - SALEM
The county will be providing training on autism to personnel
in law enforcement, corrections and fire and EMS disciplines
to help them to better understand how to deal with those
with the disability. The county-wide program will
provide training to municipality emergency response
employees to be able to correctly identify an individual
with autism, how to respond to an autistic individual's
needs during a crisis, and how to communicate. The
announcement was made by Freeholder David T. Lindenmuth,
Chair of the county's Public Safety Committee. "People
with autism can often have accompanying learning
disabilities, but everyone with the condition shares a
difficulty in making sense of the world around them,"
Lindenmuth said. "Dealing effectively with individuals
who may suffer from this relatively unknown disability, as
well as being able to begin to recognize the
characteristics, is paramount for those charged with the
responsibility to protect and serve the public."
Autism is a lifelong development disability that affects the
way a person communicates and relates to people around them.
Children and adults with autism have difficulty relating to
others in a meaningful way. Autism affects their capacity to
understand other people's emotional expressions.
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Love conquers autism at dinner
- Focusing on the theme Love Conquers All, more than 250
joined in as the Parents Loving Children Through Autism
Foundation conducted its fifth annual appreciation
acknowlegment dinner at the Radisson at Lackawanna Station
hotel. Their version of “In My Child’s Eyes” highlighted the
musical entertainment performed by Maria Fay and Cheryl
Ellsworth. Tara McHale presented a PowerPoint presentation
as a tribute to the children living through autism to Celine
Dion’s “Because You Loved Me.” Kathleen Walsh, president,
had the honor of honoring those who provided outstanding
contributions to the children, including Chris Remick, woman
of the year, clinical director for autism, Northeast
Regional Center for Autism Spectrum Disorders at Friendship
House; Linda Kusy, teacher appreciation award, Old Forge
NEIU; Megan Arduino, student of the year, Jefferson Center;
Eric DeLuccie, sibling of the year, Dunmore Elementary
Center; and Joseph Diskin, youth of the year, Abington
Heights High School. Angel Awards were presented to
community leaders who have provided support to make big
things possible for children living with autism.
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New Theory about Autism Roots
- A new theory explaining the genetic underpinnings of
autism states that in some families, a male
child could have as high as a 50 percent risk of developing
the disorder. In work that may one day lead to earlier
detection of children at risk of developing autism, a team
of scientists has devised a genetic model for the enigmatic
disorder. The two-tiered theory integrates families with one
or more autistic children. An estimated one in every
150 children born in the U.S. develops autism, according to
the Centers for Disease Control and Prevention (CDC); it is
four times more prevalent in boys than in girls. The
condition is characterized by cognitive deficiencies and
symptoms ranging from antisocial (not responding to one's
name and / or avoiding eye contact) to obsessive, repetitive
behavior. The most popular theory about its genesis is that
there are flaws in several genes passed down through
generations of a family that culminate to predispose a child
to the disorder, especially if exposed to certain
environmental factors such as toxic chemicals or a lack of
oxygen at birth. |
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Research Finds Pesticides Could Cause Autism
- “We want
to emphasize that this is exploratory research,” said Dr.
Mark Horton, director o f
the California Department of Public Health. “We have found
very preliminary data that there may be an association. We
are in no way concluding that there is a causal relationship
between pesticide exposure of pregnant women and autism."
Department researchers examined birth records and pesticide
data from 1996 to 1998. They found 29 Central Valley women
who lived within 500 meters -or 547 yards- of fields that
had been sprayed with organochlorine pesticides during their
first trimester. Eight of those women, or 28 percent, had
children with autism. That was six times greater than the
rate for mothers who did not live near the fields.
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Second Life offers virtual freedoms
- In dreamy utopian visions of the future, people can fly,
teleport and create what they want from thin air. In the
virtual world of Second Life, utopian dreams (virtually)
come true. Second Life is an online interactive 3-D graphic
virtual world where each player is represented by an avatar
- a virtual person, animal or any other being imaginable. An
avatar (called an "av" in virtual parlance) can walk, drive,
teleport, fly; chat with or instant message other avs; and
build stationary or animated 3-D virtual objects. Building a
new world every day Originally intended, in part, as a fun
environment for people to learn graphics and animation
skills, Second Life equips each avatar with everything it
needs to get creative in the virtual world. Tutorials
embedded in a virtual place called Help Island show how to
use the avatar's toolbar to craft anything - spacecraft,
clothing, houses, furniture, giant sculptures, weapons,
animals, trees, lakes - from a few basic three-dimensional
objects. These basic building blocks - for example, spheres,
cubes and cones - are called primitives, or prims for short.
Building - the term for creating new objects - is permitted
in designated areas called sandboxes. "Sandboxes in
general are good for watching and learning from builders,"
said Iron Vulture, an av in Second Life. "I come here to
watch builders, practice with the build tools and chat. A
sandbox is basically a spot to build and mess with scripts."
On Help Island, one can also learn to use scripts - command
codes - to animate objects and avatars. |
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StemCellPatents.com Applauds Stem Cell Clinic
for Autism Publication
-
www.StemCellPatents.com (
www.stemcellpatents.com ), an organization dedicated to
dissemination of stem cell patent information, congratulates
the Institute of Cellular Medicine
www.cellmedicine.com
for publishing the first peer reviewed paper describing a
novel approach for utilizing stem cell therapy for the
treatment of autism. "The published proposal to
leverage mesenchymal stem cells to ameliorate the intestinal
inflammatory state found in the majority of autistic
children, combined with administration of ex vivo expanded
CD34 cells for overcoming hypoperfusion in various areas of
the brain is of great interest to the stem cell community,"
said Dr. Zhaohui Zhong, Chairman of StemCellPatents.com.
The paper entitled "Stem Cell Therapy for Autism" was
published in the June issue of the Journal of Translational
Medicine and is freely available at:
www.translational-medicine.com/content/pdf/1479-5876-5-30.pdf
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Study discovers link between increased white
matter and poor motor ...
/ In contrast to the children with autism, TD children
showed a significant correlation in the opposite direction,
with increased white matter volume predicting better motor
skills (lower PANESS scores). The correlation in children
with ADHD was considerably different from the children with
autism and similar to the TD group. -
A study published in the August issue of the
journal Brain demonstrates, for the first time, an
association between increased white matter volume and
functional impairment in children with autism. Findings from
researchers at the Kennedy Krieger Institute in Baltimore,
Md. reveal that in children with autism, increased white
matter volume in the motor region of the brain predicts
poorer motor skills. Conversely, in typically developing
children, increased white matter volume predicts improved
motor skills, with a similar association observed in
children with attention deficit/hyperactivity disorder
(ADHD). The relationship between increased white matter
volume and functional impairment, which appears to be
specific to autism, may be representative of global patterns
of brain abnormality in autism that not only contribute to
motor dysfunction, but also to deficits in socialization and
communication that define the disorder.
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Taking Autism to the Airwaves
- "It's always like, every single time, a clash between good
and evil." That's how Alex Moshenko
described his passion, professional wrestling, when I
interviewed him two years ago. And when his birthday rolled
around that year, we decided to arrange a little surprise
for the WWE's biggest fan. I thought Alex was going to faint
he was so elated about his special meeting with WWE
Superstar "Batista". "I don't know what to say except thank
you so much! I want to hug you! Thank you, 2 On-Your-Side,
yeah!" beemed Alex. And when the day came for Alex to meet
his idol, face to face, he didn't shrink away from the
opportunity to do a little impromptu interview. "First of
all," Al said, "How do you get in such good shape? I mean,
you're buff!" Batista seemed a little surprised at the
question but smiled and answered, "I've been an athlete all
my life, participating in one sport of another." Two years
later, Alex says that interview back in 2005 is what really
inspired him to do a radio talk show about wrestling.
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'We're not peadophiles!' - hospital patient
- ...But Mr Fairbanks, who comes from Barnsley, said his
experience at Milton Park had largely been a positive one.
He said he had been voluntarily placed there in July last
year, with his place funded by social services.
Previously, he had spent six years at a residential special
school in Shrewsbury for pupils with Asperger's syndrome - a
form of autism usually without the associated learning
disabilities, but which is marked by difficulties with
communicating and interacting with others. Mr Fairbanks said
he has "high functioning" Asperger's syndrome, meaning he is
of above average intelligence. He said: "I can talk to
people a lot more easily now and socialise a lot more
easily, and relate to peoples' personalities a lot more
easily. It's really helped me, this last year." Mr
Fairbanks said his only gripe with Milton Park is that the
on-site day centre is closed at the weekend and after 8pm in
the week. He added: "There's nowhere we can go at the
weekends. Patients are bored and they might go out to get up
to mischief - that might be the case." Mr Fairbanks is
planning to start an Asperger's syndrome support group. He
can be contacted at
didyickle@aol.com
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07-26-2007
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Author focuses on 'new autism'
- Here's what Dr. Bryan Jepson thought he knew about autism
six years ago: that it was a rare,
genetic, developmental, untreatable brain disorder. But
that's the "old autism," he says. Bryan Jepson Jepson, who
graduated from the University of Utah School of Medicine in
1995, says what he knew about autism then he mostly learned
from the movie "Rain Man." Later, in 2001, his lovable,
happy 18-month-old baby began to change — to "fade away," as
Jepson puts it. The toddler no onger wanted to be read to,
wouldn't look his parents in the eye and liked to spin in
circles in the middle of the floor. A child psychiatrist
told Jepson and his wife, Laurie, "Prepare yourself for the
time when Aaron will need to be institutionalized. Forget
experimental therapies." Instead, Laurie Jepson took to the
Internet. And before long, her husband — who categorizes
himself as a "mainstream" physician — was deep in medical
literature about the biochemistry of autism. Soon he was
convinced that autism is a complex metabolic disease that
has as much to do with the gut as it does with the brain.
Bryan Jepson, who is now director of medical services at
Thoughtful House Center for Children in Austin, Texas, is
back in Utah this week to talk about his new book, "Changing
the Course of Autism: A Scientific Approach for Parents and
Physicians." On Saturday, he will speak at a free workshop
sponsored by Porter's Hope, a Utah-based company that
assists the families of children diagnosed with autism. "All
of a sudden, there's an explosion of autistic kids," Jepson
says. As recently as 1980, autism was rare, with a rate of
about 1 in 5,000. Now, he says, it's 1 in 160. |
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Congressman who listens – To the Editor - Finally, a
member of Congress who understands that Congress’ spending
priorities should be in sync with the priorities of the
American taxpayers who foot the bill. Last week, our very
own Congressman Scott Garrett passed through the House of
Representatives an amendment transferring funds from a
program that has been rated as a failure and recommended for
extinction and put those funds into increased medical
research for autism and cancer.
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A Mind for Sociability - Humans are highly social, but
we don't get pally with just anybody. Before forming
relationships with other people ,
we normally size them up to see how trustworthy they are. A
new study suggests that this behavior stems from an
evolutionary reorganization in a part of the brain
responsible for detecting other people's emotions. The
amygdala, a small, almond-shaped area deep within our
brains, appears to be essential in helping us read the
emotions of others. Research shows that the structure is
crucial for detecting fear, but scientists have also found
evidence that it can help spot a wide variety of mental
states (ScienceNOW, 7 April 2006). Last year, for example,
scientists noted that the amygdalas of patients with autism,
which is characterized by decreased social interaction and
an inability to understanding the feelings of others, have
fewer nerve cells, especially in a subdivision called the
lateral nucleus.
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Authorities investigate RT Autism Foundation officer - A
former officer of RT Autism Awareness Foundation Inc., a
Rochester nonprofit organization, is being investigated by
police as the group performs an internal audit of its
finances. "A criminal investigation is under way of a
former officer," said Brad Trahan, co-founder. "The board
has requested an internal audit of the finances and books."
While he could not comment on the nature of the
investigation or name the person being investigated, Trahan
did stress that the foundation is financially stable. "If
and when" someone is charged with a crime, Trahan said he
could discuss the issue more fully. The foundation's
attorney, Dave Pederson, referred questions to the Rochester
Police Department.
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Autism group probes why children love Thomas the Tank Engine
- The simple stories and clear facial expressions of the
Thomas the Tank Engine characters have made them a favourite
among children with autism, according to a study by the U.K.
National Autistic Society. Thomas the Tank Engine, written
in 1943 by Rev. Wilbert Vere Awdry, is a perennial favourite
among all the under-four set, especially for boys who love
trains. Thomas the Tank Engine, in a 1998 promotional photo
for Thomas & Friends. His easy-to-read expressions appeal to
autistic children. (Canadian Press) But it appears to have
particular appeal to autistic children, with 58 per cent of
parents in an April 2007 survey reporting that Thomas was
the first children's character their child enjoyed.
|
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Author focuses on 'new autism' - Here's what Dr. Bryan
Jepson thought he knew about autism six years ago: that it
was a rare, genetic, developmental, untreatable brain
disorder. But that's the "old autism," he says. Bryan
Jepson Jepson, who graduated from the University of
Utah School of Medicine in 1995, says what he knew about
autism then he mostly learned from the movie "Rain Man."
Later, in 2001, his lovable, happy 18-month-old baby began
to change — to "fade away," as Jepson puts it. The toddler
no longer wanted to be read to, wouldn't look his parents in
the eye and liked to spin in circles in the middle of the
floor A child psychiatrist told Jepson and his wife,
Laurie, "Prepare yourself for the time when Aaron will need
to be institutionalized. Forget experimental therapies."
Instead, Laurie Jepson took to the Internet. And before
long, her husband — who categorizes himself as a
"mainstream" physician — was deep in medical literature
about the biochemistry of autism. Soon he was convinced that
autism is a complex metabolic disease that has as much to do
with the gut as it does with the brain. |
 |
Autism risk factor linked to moms, age - Autism, a
developmental disorder, may more likely be carried by
mothers and dependent on parental age, according to U.S.
researchers. Researchers at Cold Spring Harbor Laboratory
and Albert Einstein College of Medicine analyzing the
incidence of autism found a previously unrecognized pattern
pointing to a spontaneous germ-line mutation model of
disease acquisition. The study, published in the
Proceedings of the National Academy of Sciences, indicates
parents, especially women -- who acquire the mutation but do
not exhibit severe symptoms of the disorder -- have a 50
percent chance of passing the mutation on to their children.
Sons often show the most severe symptoms.
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Clinics combat outbreak in measles scare - The move came
after GP surgeries were inundated with requests by parents
wanting their
children immunised following the diagnosis of 13 cases of
measles in Hackney. The latest outbreak brings the total
number of cases in the borough to 39 since May. However,
health experts said they were not shocked by the outbreak.
"The only surprise is that we haven't had a bigger outbreak
sooner," said Dr Gabrielle Laing, consultant community
paediatrician for City and Hackney Teaching Primary Care
Trust.
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Free Parent Training Series Sponsored By POAC - Free
Parent Training Series Sponsored By POAC - POAC, Parents of
Autistic Children, a non-profit organization, is offering a
free series of workshops designed to help participants gain
an understanding of how to model and introduce appropriate
behavioral and academic supports for children with
developmental disabilities. If you are a parent or a teacher
of a child with autism, PDD, Down syndrome or any
developmental disability, and need help in the area of
language development and problem behavior, come to this
series. This training is currently taking place in Morris,
Ocean and Monmouth counties. For further information and to
find the location nearest you, please visit us at
www.poac.net |
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I was victim of sexual advance: court - A 16-year-old
male who allegedly stabbed a man to death near the Narrabeen
shops on Sydney's northern beaches has been refused bail
after claiming he was the victim of a "sexual advance'' in a
public toilet. The youth, who lives with his parents,
pleaded not guilty at Bidura Children's Court in Sydney
today after he was arrested yesterday afternoon for
murdering a 35-year-old Narrabeen local, Gerard Fleming, on
June 16. Mr Fleming, who had a mild form of autism called
Asperger's syndrome, died from two stab wounds to his upper
body. He was found sitting on a bus stop seat on Pittwater
Road, Narrabeen, shortly before midnight, police facts
tendered to the court state.
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Kevin Bacon's SixDegrees.org and Hanes to Award Six $10000
Grants -
This is
the second time SixDegrees.org is offering matching grants.
The winners of a first competition earlier this year
included Ali Edwards, an Oregon mother of an autistic boy
who inspired 2,455 people to contribute nearly $60,000 for
Autism Speaks. The stories of all the winners are at
Six Degrees web site.
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MMR doctor gave boy ‘unethical’ spinal tap - INVASIVE
medical procedures carried out by Royal Free doctors on
young children were unnecessary and unethical, an inquiry
has heard. Dr Andrew Wakefield subjected a four-year-old boy
to a colonoscopy, MRI scan and a lumbar puncture - otherwise
known as a spinal tap - during his controversial research
into the measles mumps and rubella (MMR) jab. It is claimed
Dr Wakefield used the results to link the jab with autism in
a 1998 study carried out at the Royal Free medical school.
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PedMed: Multi-drug use questioned - Be it a sign of a
growing dependency on drug treatments or increasing
incidence of coexisting pediatric illnesses, the number of
children taking multiple medications is rising at rates some
deem unhealthy. The National Center for Health Statistics
reports some 3 million tykes and teens under 18 were taking
three or more prescription drugs during the study month in
2002. In some cases, youngsters suffer simultaneous
conditions, so-called comorbidities, which call for separate
medicines. For example, studies show up to one in five
children newly diagnosed with type 2 diabetes may also have
a psychiatric condition, including depression,
attention-deficit/hyperactivity disorder, autism,
developmental delay, schizophrenia and bipolar disorder.
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Parents take different paths to abate ADHD - Some local
residents have taken treatment for their children's ADHD
into their own hands, sometimes leaving doctors out of the
process entirely. ADHD, or attention deficit hyperactive
disorder, is a range of behaviors such as consistent
inattention, hyperactivity or impulsiveness that interferes
with normal life, school and social activities
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Quebec police probe drowning of autistic boy, 6 - Quebec
provincial police are investigating how a six-year-old
autistic boy drowned while he was supposed to be under
constant supervision at a beach on Lac Saint-Joseph, about
50 kilometres north of Quebec City. The body of Lucas
Beaupré was found Wednesday afternoon under an inflatable
floating trampoline on the lake. Witnesses said Beaupré had
been missing for almost two hours before lifeguards were
notified, and he was not wearing a life-jacket. Beaupré was
at the lake under the supervision of a day camp run by his
hometown, L'Ancienne-Lorette, a western suburb of Quebec
City. |
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Rain woman -
It has been a decade since Sigourney Weaver appeared in her
final incarnation as Ellen Ripley in
Alien: Resurrection. During that
suspenseful series, the tall, composed actress displayed
natural authority as she battled hordes of aliens. That
self-assuredness came in handy with her portrayal of
high-functioning autistic Linda in
Snow
Cake Not since Dustin Hoffman in
Rain Man has a character with autism
been so endearing. In fact, can we remember another
Hollywood film about the subject? "I don't think there has
been," says Weaver, who researched intensely for the role.
"If anything, I think there's an avoidance of the issue.
Rain Man was 20 years ago. One of the things that I've heard
constantly from people on the autism spectrum is they're so
tired of people referring to
Rain Man
- as if one movie would define the disorder for decades to
come. |
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Teen bailed over Fleming murder - A teenage boy charged
in connection to the murder of Narrabeen man Gerard Fleming
last month will be back at school on Monday after he was
freed on bail this morning. The 16-year-old youth was
charged with being an accessory after the murder of
35-year-old Mr Fleming on June 16 and for concealing
knowledge of the killing from police. The police charge
sheet says the boy 'received, harboured, maintained and
assisted'' Mr Fleming's alleged killer. The youth was led
into Bidura Children's Court, which held his father, mother
and younger brother, wearing a blue hooded sweatshirt and
black-and-white check pants.
|
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Vaccinations: the debate
- Vaccinating our children is a routine part of protecting
them from illness in childhood - but a new book
queries whether it is worth the risk. Dr Andrew Wakefield,
who challenged the safety of the MMR vaccine because of
fears over a possible link to autism, is currently fighting
to save his career. Meanwhile the Government insists
vaccines are essential and save millions of lives. The
result is that many parents are anxious and confused about
the best course of action. And now another doctor, Dr
Richard Halvorsen, raises his concerns - warning that the
Government "misleads us about vaccines". |
07-21-2007
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Accident Prone? Scientists Link Brain Function To Knee Injuries
- A torn
anterior cruciate ligament (ACL) is among an athlete's
most-dreaded injuries, often requiring surgery and months of
rehab, as has been the case with Philadelphia Eagles quarterback
Donovan McNabb. While being tackled in football or hurtling into
an embankment on an icy ski course can tear this major knee
ligament, most athletes actually “do themselves in”--they don't
collide with a person or object, they end up injuring themselves
when they land off-balance during a jump or run. But why?
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Autism study offers hope - His mother suspected that there
was something wrong, almost from the start. As an infant, Joshua
Huffman kept to himself, didn't babble like most babies do,
didn't respond to his name when called. Three years later,
Joshua is a whirlwind of activity who can put together puzzles
with ease, race around his Clarksville house with older brother
Zachary and even tell his brother, in very clear language, to go
to timeout. Joshua was part of a study at Baltimore's Kennedy
Krieger Institute that revealed that half of children with
autism can be diagnosed not long after the first birthday -
nearly two years earlier than it has been reliably diagnosed
before. Researchers, who still don't know exactly what causes
autism, know this much: Early diagnosis leads to earlier
intervention, which they hope can change the course of an
autistic child's life, as happened with Joshua.
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Autistic boy not welcome in music store - As an autistic
savant, Ryan Morales has an extraordinary talent for music -- he
can play the piano by ear; he has an encyclopedic knowledge of
Broadway trivia, and he loves to go to his local music store to
look at the drums. But the owner of Lane Music Center blocked
the 13-year-old boy and his caregiver from entering the New Dorp
Lane shop this week because, the store owner said, Ryan's
behavior makes him feel uncomfortable. "I'm sorry, I'm not
going to let you in," owner Alan Wilcov reportedly told Ryan's
caregiver, Oluwaseun Cole, whose job it is to take Ryan on walks
through the community to familiarize him with the social rituals
of everyday life. "I just can't let him in," Cole said Wilcov
had told him on Wednesday afternoon.
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Bush Will Veto Mercury Ban Bill
- President Bush
is to veto a bill that would ban mercury in flu vaccines for
children despite its known links to autism and other
neurological disorders and despite the fact that he pledged in
2004 to support such a move when campaigning for re-election.
The White House stated on Tuesday that President Bush would veto
the FY 2008 HHS-Labor-Education Appropriations Bill because of
the cost and "objectionable provisions" such as a measure to ban
the use of childhood flu vaccines that contain thimerosal, a
mercury-based preservative, a press release from Autism advocacy
group Safe Minds on the PRNewswire-USNewswire states. Bush is
calling for an amendment that would remove the children's safety
provision from the bill. Alex Jones
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Defeating fear with fun - Camp helps autistic kids learn to
try new things, improve social skills At first, it looks like a
typical childhood game of Duck Duck Goose, giggling and all.
But there is therapy going on here.
The children at play have autism,
a brain development disorder that impairs communication and
social interaction. The game's basic concepts - sitting with
others in a circle, touching people on the head, and running
around the circle - can overstimulate the brains of autistic
children. |
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Self-injury common among teens - U.S. researchers found
teens often engage in non-suicidal self-injury -- biting self,
cutting/carving skin, hitting self and burning skin.
Non-suicidal self-injury, or NSSI, is defined as the direct
destruction of body tissue without conscious suicidal intent,
according to lead author Elizabeth Lloyd-Richardson, of The
Miriam Hospital and The Warren Alpert Medical School of Brown
University, in Providence, R.I. Nearly half of the 633 high
school students in the South and Midwest, who voluntarily and
anonymously completed a survey administered by the researchers,
said they did some form of NSSI.
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Demonstrators voice disatisfaction with court system
/
Protester: 'You shouldn't have
to battle the courts' - …
Debby Rabold demonstrated in
support of her son, Aaron Rabold, 25, of Saylorsburg, an
autistic man she said was wrongfully convicted of attempted
murder. Aaron Rabold, who reportedly stabbed his sister-in-law
in the face as she slept, was sentenced in August 2005 to 14 to
28 years in state prison. Debby Rabold said her son's attorney
has filed an appellate brief on his behalf in state Supreme
Court. "Aaron's autism was never explored in depth and other
details were never brought out that would have affected the
outcome of his trial," she said. "And now that he's in prison,
he's not getting the appropriate help he needs. He's being
drugged out of his mind and placed in solitary confinement.
"Our court system leaves a lot to be desired in how it treats
some people," she said. |
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New health fears over big surge in autism'. The article
revealed details of an unpublished report by the Autism Research
Centre (ARC) at Cambridge University which showed that a
statistical analysis of autism prevalence among primary
schoolchildren in Cambridgeshire had produced a figure that as
many as 1 in 58 children could be suffering from forms of the
disorder. This figure is nearly double the presently accepted
prevalence of autism of 1 in 100. The news report also said that
two of the authors of the report believed that in a small number
of cases the triple measles, mumps and rubella (MMR) vaccine
could be linked to the incidence of autism The news report has
been the subject of a number of comments since its publication.
Critics have said that The Observer should not have published
figures from a report that had not been finalised, that we
failed to detail other figures from the report that showed a
lower prevalence of autism, that we did not reveal the links
between one of the authors, Dr Carol Stott, and Dr Andrew
Wakefield, who has made controversial claims of a link between
autism and the MMR vaccine, and that we did not accurately
reflect the views of another of the authors, Dr Fiona Scott, on
the possible links between MMR and autism. There are a number of
points in The Observer report that should be clarified: The
status of the report.... UK |
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Science Tools: Brain Cell Imaging - The brain of a mammal is
one of the most complex things in the universe. But studying
brains has become easier thanks to some complicated, hi-tech
equipment. In this ScienCentral Web Extra video we take a visit
to the Tonegawa Lab at MIT's Picower Institute for Learning and
Memory. to see their two-photon microscope and electrophysiology
lab.
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Sleep helps Huntington's disease sufferers - Mice with the
genetic mutation that causes Huntington's disease showed marked
improvements after they were given drugs for sleep, found a
British study. Researchers at the University of Cambridge found
that daily treatments of Alprazolam or chloral hydrate -- two
different sedative drugs -- enabled the mice to develop a
regular sleep pattern and improved their cognitive function --
their ability to understand and act on information. The
Cambridge University neuroscientists conducting the research say
mice with Huntington's disease have abnormal circadian rhythms;
their daily sleeping and waking cycles are disrupted and
irregular.
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Some say family should factor in deportation of immigrants
- As
immigration authorities get caught up on a backlog of
deportation cases, immigrant advocates say the personal
situations and community ties of those here illegally should be
considered in an attempt to avoid splitting up families. In
Minnesota, the recent arrests of two mothers of young children
sparked public protests and pleas for clemency. "I don't
understand it," said Nixon Avendano, of St. Michael, whose wife,
Sara, was deported last month. "Why deport a mother of five kids
who has never been in trouble with the law? She's worked. Paid
taxes. They (immigration agents) should be focusing on
terrorism."
|
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Oregon
families say state falls behind on special needs students
- Nearly every area
associated with education got a significant budget boost from
the Oregon Legislature this year, from pre-kindergarten programs
to the state's seven universities. Except, that is, for a
fairly obscure regional program that serves an estimated 8,000
or so families across Oregon whose children are autistic, or
struggle with orthopedic problems, or were born deaf, blind or
both. The ranks of such families are small, but growing
fast, by 20 percent in the last two years alone. And their
voices, they thought, were loud — but apparently not loud
enough. Now, the program in question, which is
collectively run by eight regional education cooperatives to
provide local teachers the training and support on how to work
with special-needs kids, is facing a funding plateau.
Lawmakers put $31.8 million into the program, a $1 million
increase, but still about $4 million short of the funding
request from State Schools Superintendent Susan Castillo.
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Police Get New Tool To Find Missing People
- Police
say they have a new tool to use during the search for a missing
person. The tool is an armband placed on the wrists of people
with diseases like Alzheimer's and autism. If that person where
ever to wonder off, police can use the band to locate them. It's
called Project Lifesaver. It's a nation-wide non-profit program
supported by organizations like the National Sheriff's
Association. The Fayette County Sheriff's Department is one of
10 counties in West Virginia working with the program.
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The battered hummer that symbolises a divided nation - A
quiet Washington suburb has become the focus of America’s
climate change schism after an act of vandalism by environmental
activists. With the sun going down on Brandywine Street and the
lawn sprinklers hissing gently in the background, worried groups
of neighbours are talking quietly about a shocking act of
domestic terrorism that has occurred on their doorsteps. They
chat on the porches of their clapboard colonial-style houses in
the dappled early evening light. Some have just returned from
the nearby Whole Foods organic store and one worried-looking
family pulls up in a Prius. Children pour out carrying musical
instruments after attending their lesson.
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Theater aids teen emotional development - A U.S. study found
that adolescents' emotional skills were strengthened through a
high school theater program. The development of "emotional
intelligence" is important to adult work and family life, but
many young people arrive in adulthood with incomplete emotional
skills, according to lead author Reed W. Larson, of the
University of Illinois, Urbana-Champaign. The preliminary
findings, published in the journal Child Development, suggest
that under the right conditions, adolescents can strengthen
their emotional skills via youth programs and schools that
provide conditions that facilitate emotional learning. The
researchers conducted open-ended interviews and observations to
gain an in-depth understanding of one setting -- a high school
theater program. Ten teenagers were interviewed every two weeks
over a three-month period while the theater group rehearsed a
musical.
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What's Your Opinion About Autism Speaks' "Know the Signs" Ads?
- Last
week, I appeared on a web radio program for PreschoolRock.com.
To enhance the show, the hosts played a number of Autism Speaks'
audio announcements called "know the signs." Intending to help
parents identify autism in their child, here is how they
describe the disorder: …
Today,
Autism Speaks announced that
Starbucks will be putting "Know the Signs" on their cups:
Starbucks is now featuring special autism awareness cups as
part of its “The Way I See It” program. The cups feature a
message from Autism Speaks founder Bob Wright urging parents to
learn the signs of autism and act early if they suspect their
child is experiencing a developmental delay. The message appears
on “venti” hot cups. The first one was spotted at a Starbucks on
Wilshire Boulevard in Los Angeles, just two blocks from the
Autism Speaks Los Angeles office. Look for it to appear in your
local Starbucks soon. |
07-18-2007
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Burt Bacharach: The popfather
-/After a tragic start to his year, legendary tunesmith Burt
Bacharach is finally coming to Auckland to
play his pop classics. - It's inevitable really. You get the
warning from the star's people about no questions about his personal
life. But once in interview, it's hard to get the star off his
personal life and back on to what made him a star. That's what
happens when Burt Bacharach, God of timeless sophisticated pop,
comes on the line for our 20-minute interview. The chat starts with
a gentle enough inquiry. One about what keeps the man - whose
timeless 1960s hits with lyricist Hal David made them second only to
Lennon and McCartney as last century's greatest songwriting
partnership - still touring. Almost immediately the gravelly voiced
Bacharach is addressing the tragic reason why his Auckland concert
was postponed earlier this year - his eldest daughter Nikki by
second wife Angie Dickinson committed suicide, having struggled all
her life with Asperger's syndrome, a form of autism. |
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Children’s antipsychotic drug use scrutinised
- A world-first nationwide study of children’s treatment with
“atypical antipsychotic” drugs is providing new insights into why
they are being prescribed and what adverse reactions can result.
The Intensive Medicines Monitoring Programme (IMMP) study
investigated the safety and use of the drugs in all
under-16-year-olds in New Zealand prescribed them between April and
July in 2003. Adverse reactions in the children were monitored until
the end of November 2004 and doctors were surveyed on what
particular diagnoses and symptoms prompted the prescriptions.
Co-author Dr Mira Harrison-Woolrych says this is the first study
anywhere to paint a comprehensive, real-life picture of how the
increasingly-prescribed second-generation antipsychotics are being
used in children. Their findings appear in the latest edition of the
international journal, Drug Safety. |
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Dad's plea for help with autistic son
/ TEARS filled Wally Hannam'seyes yesterday as he described
watching his autistic teenage son ``pacing like a caged animal'' in
Geelong's Swanston Centre. - The Belmont father said his
16-year-old son Chris had been in the psychiatric care centre for
two weeks, after he began hallucinating and became agitated. But he
said his much-loved teenage child did not belong in a facility
designed to provide acute psychiatric care for adults. ``It's so
inappropriate for Chris to be there,'' Mr Hannam said yesterday,
``But he's stuck there. `He's been there now for 13 nights.'' Mr
Hannam is campaigning to have Chris moved to a facility for young
people, where medical staff were used to caring for people with
autism. He was horrified to learn there wasn't a bed available
anywhere in Victoria in a facility that could provide for Chris'
needs _ his autism and his mental illness. `The
seclusion room where he is at now is driving him out of his skull,
because he's locked up,'' he said, ``He doesn't understand. ``With
autism, you need structure, you need routine, you need quiet.
`But yesterday, there were patients in there hitting the walls,
banging to doors, screaming. `It's an appalling situation.''
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Dark side to shots
- IIs there is a dark side to immunization -- what would they be?
If the immunizations were so wonderful and safe, why would the
manufacturers of immunizations want total immunity against
lawsuits-which they have consistently requested from Congress and
received. This is the first cause for suspicion that the
immunizations aren't safe or why would they need to be totally
protected from lawsuits? These immunizations are a total profit to
the big pharmaceutical companies. There are 33 doses of nine
different vaccines that our children are requested to take before
attending school. There have been no studies done to address the
issue of multiple dose affects on the babies or infants that are
taking them. A new privately-funded survey finds vaccinated
U.S. children have a significantly higher risk of neurological
disorders -- including autism -- than unvaccinated children; 2.5
times higher for vaccinated boys between the ages of 4-17.
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Easing The Autism Stigma
- When Matthew Nadler sang his bar mitzvah portion, the Hebrew rang
clearly through the air and no one in the sanctuary could keep from
crying. Matthew stood on the bima, confident, pitch-perfect and
proud, “a real mensch,” as his father, Allen, later described him.
But after the service, Matthew and his family didn’t adjourn to the
typical party full of teenage friends and food. Matthew has
autism and, now 15, looks much younger. Though the handsome,
blue-eyed teen is quick to pick up a dropped pencil, offer a drink
or say “thank you,” he has trouble making eye contact, conversing or
fitting into many social situations, and as a result finds it
difficult to make friends with peers his age. For Matthew’s parents,
the shock of his diagnosis quickly turned to education for
themselves and their son. They found the best services and became
advocates for autistic children, ultimately, accepting Matthew’s
limitations while embracing the joy he brings them. “Like a
poker game, this is the hand I was dealt,” says Allen Nadler of his
son’s autism. “But unlike a poker game where I could fold my hand,
this is a hand I have to play.” Matthew Nadler is part of a rapidly
growing population in the New York metropolitan area and throughout
the country with autism, a diagnosis that has been exploding in
recent years and is estimated to affect approximately 1 in 150
children in the United States today, according to the Centers for
Disease Control and Prevention.
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Family wins plea for fence variance
- Seven-year-old Molly St. Claire soon will be able to safely play
in her own backyard. Molly has severe autism, which prompted her
parents to ask the village earlier this year to bend its rules
restricting installation of fences. After listening to their story,
the village board decided this week to do just that. The St. Claire
family has a playset in the backyard of their Hilltop Lane home.
However, without a fence to ensure that she does not wander off the
property and onto a nearby three-way intersection, Molly has not
been able to really enjoy the playset or explore the backyard.
Village ordinances allow fences only around swimming pools, dog
runs, patios or decks. In 1998, the board approved a barrier-type
fence in the rear yards of homes that abut Randall Road.
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Gene Identified For Crohn's
Disease In Children -
Pediatrics researchers have identified a gene variant that raises a
child's risk of Crohn's disease, a chronic and painful condition
attributed to inflammation of the gastrointestinal tract. The
research reinforces previous results by German researchers, who
found the same gene variant associated with the adult form of
Crohn's disease. Researchers from The Children's Hospital of
Philadelphia and The University of Pennsylvania reported their
results in a letter in the August issue of the journal Gut.
"Because Crohn's disease is complex, with multiple genes interacting
with each other and with environmental factors, it's important to
sort out specific genes and to replicate previous findings," said
the study's first author, Robert N. Baldassano, M.D., director of
the Center for Pediatric Inflammatory Bowel Disease at Children's
Hospital. "There are different types of Crohn's disease, so
classifying types by genetic profiles may help us select the most
appropriate treatments for each patient." The study compared
the genomes of 143 children with Crohn's disease to genomes of 282
matched control subjects. The study team found that 64 percent of
children with Crohn's disease had a specific variant form of the
gene ATG16L1, compared with 52 percent of the healthy children. The
odds ratio for children with the gene variant was 1.62 compared to
control children, meaning that those who have the variant were 62
percent more likely to have Crohn's disease than children with the
more common allele. A separate test that analyzed trios (a Crohn's
patient and both parents) also found an association between the
ATG16L1 gene variant and disease symptoms. This finding strengthened
the results of the pediatric case-control study. |
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Gotta
Sing, Gotta Dance
- Eleven years ago, when Elaine Hall adopted a toddler boy from a
Russian orphanage, she didn't know
anything about autism. Today, she is in the vanguard of helping
children with this increasingly widespread condition--known for
derailing the ability to communicate--find unprecedented ways to
emote and connect through the performing arts. The Miracle
Project, launched by Hall just three years ago, is already making
headlines. An award-winning documentary about the program, 'Autism:
The Musical,' premiered last spring at the Tribeca Film Festival in
New York. It follows the lives of five autistic kids and their
families, including Hall and her son, Neal, now 13, throughout the
staging of a 'Miracle Project' production. HBO acquired the film and
plans to air it next year after a limited run in theatres. 'I
always believed in the potential for this program but our initial
workshop was truly a 'leap of faith,'' says Hall, who lives in Santa
Monica. Many of her students and volunteers are residents of Pacific
Palisades. |
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It's Like This... Autism And Vaccines
- I am the queen of analogies. It's part of my writing and speaking
style. If you ask me for directions I'll tell you to "Take a left at
the elementary school that looks like a prison." When an email
acquaintance asks what I look like I'll say, "My hair is like
snakes, my eyes are the size of dinner plates, and I'm as curvy as a
Q-tip.Yesterday, though, I met my match. I have a new job editing a
site for autism news. And one of our writers sent me a post that
just blew me away. You can read it
here. Nancy Hokkanen came up with one of the greatest analogies
ever to describe the autism and vaccine controversy and how it feels
to us parents of kids with autism. She compared it to the Catholic
Church's cover up of decades of sexual abuse. |
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‘I worried about bills and feeding my children – not
life in my 60s’ - At the
age of 52, Carolynn Cruickshank-Gray is pacing her work
commitments carefully so that she doesn't burn out in the next 15
years. She will be among the first group of women - those born after
April 6, 1955 - who will have to work until the age of 65 before
becoming eligible for a state pension. In fact, she expects to be
working well beyond the age of 65 to make ends meet. The only
private pension provision she has is a total of about £5000 in the
pension funds of two small companies where she worked for a couple
of years. That is no comfort: quite the opposite. "My big fear is
that if I should be on my own in my old age, this tiny pension will
have the effect of taking me just above benefit levels," she says
from her home in Lochgelly, which is the base for her contract work.
|
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Misconduct hearing starts in Britain -
Uptake of the measles, mumps and
rubella (MMR) vaccine plummeted in Britain after doctor
and researcher Andrew Wakefield suggested in 1998 that it could be
linked to autism —suggestion that made huge waves in the media and
with the public. Subsequent studies have ruled out a link between
MMR and autism, and the majority of medical opinion now firmly
rejects Wakefield's hypothesis. This week, Wakefield stands before a
hearing at the General Medical Council (GMC) — the body that
regulates doctors in the United Kingdom.- Uptake of the measles,
mumps and rubella (MMR) vaccine plummeted in Britain after doctor
and researcher Andrew Wakefield suggested in 1998 that it could be
linked to autism — a suggestion that made huge waves in the media
and with the public. Subsequent studies have ruled out a link
between MMR and autism, and the majority of medical opinion now
firmly rejects Wakefield's hypothesis. This week, Wakefield stands
before a hearing at the General Medical Council (GMC) — the body
that regulates doctors in the United Kingdom. Who is being charged
with what? a |
 |
MMR doctor ‘not paediatrically qualified’MMR doctor
‘not paediatrically qualified’
- Vulnerable children were subjected to
“inappropriate and invasive” tests by doctors who were in breach of
“some of the most fundamental rules in medicine”, a hearing was told
yesterday. Dr Andrew Wakefield, who sparked the MMR
controversy, did not have paediatric qualifications and had not
worked as a clinical doctor for several years when he ordered the
tests, the General Medical Council’s fitness to practice panel was
told. His role was as a research doctor and he had no right to
investigate the children, who did not undergo proper neurological or
psychiatric assessments beforehand, it heard. |
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NDP outraged over McGuinty's $2.4 million broken
promise - NDP MPP Shelley
Martel is outraged that the McGuinty government spent $2.4 million
on lawyers to fight parents of children with autism in court,
instead of providing IBI treatment that Dalton McGuinty
promised them. "It's scandalous that Dalton McGuinty squandered $2.4
million of public money on lawyers in a cynical attempt to break an
election promise made to children with autism. That money could have
funded IBI treatment for 50 children for a year," said Martel.
Martel said Dalton McGuinty should never have dragged parents and
their vulnerable children through the courts, at great expense to
the public and the families, just so he could break a promise. "It's
appalling that Dalton McGuinty's priority was to waste millions of
dollars of public money fighting parents in court, instead of
providing children with autism with the treatment they needed," said
Martel. |
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Patient's brother sues company that managed Oakwood
- A Kentucky man is suing the company that formerly managed the
Communities at Oakwood, saying that the company failed to protect
his disabled brother who sustained multiple injuries, including a
broken nose, at the facility. The lawsuit, filed Monday in U.S.
District Court in Frankfort, alleges that, for more than a year, Tim
Cox, 29, who suffers from autism and other disorders, was beaten and
restrained on multiple occasions at the Somerset facility. This is
the third lawsuit filed in federal court against Liberty Healthcare
that accuses the company of failing to stop ongoing abuse of
residents at Oakwood, the state's largest home for the mentally
disabled. Liberty oversaw management of Oakwood from November 2005
to November 2006. |
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Pesticides and Schools: a "Tragic" Health Hazard
- Pesticides in schools are a pervasive, unnecessary health hazard,
said Marc Lame, an
entomologist and professor in Indiana University's School of Public
and Environmental Affairs. "Over 80 percent of schools in America
are applying pesticides on a regular basis, whether they have a pest
problem or not," he said. "This is tragic not only because of the
well-documented link between pesticides and health problems in
children, such as asthma and neurological disorders, but also
because pesticides generally do not work in a preventive manner in
the school environment. Applying pesticides does not prevent pests
from coming in, so using them when pests are not present does
nothing other than expose children and staff to toxic chemicals."*
Background: The most widely used insecticides are nerve poisons,
which cause nerves to fire in an uncontrolled manner and disrupt
endocrine (hormone) systems, Lame said. Prolonged exposure to these
chemicals can result in similar effects on the human nervous system,
with symptoms ranging from vomiting to severe breathing problems.
Although research is limited, these endocrine disrupting pesticides
are suspected in problems ranging from ADHD to autism to
infertility, Lame said. Exposure during childhood carries the
greatest risk. "The thing to remember is that it is not just a
question of children being smaller than adults and getting more
exposure pound-for-pound. The even more serious issue is that their
nervous systems are still developing, so they are especially
susceptible to nerve poisons," he said. * Solution: Lame said pest
problems are better managed with an integrated approach that
involves recognition and remediation of conditions that attract
pests or allow pests to enter facilities. "It's common sense
pro-action rather than toxic reaction," he said. Lame serves as a
consultant for schools and environmental health agencies around the
country, helping them implement such programs through a process
known as Integrated Pest Management (IPM). He is also the author of
a book on pest management in schools, A Worm in the Teacher's Apple:
Protecting America's School Children from Pests and Pesticides (Authorhouse,
2005). |
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Pitt Psychologist Explores Early
Indicators for Autism in Infants
- Researchers have proven that babies who have an older sibling with
autism have an elevated risk of developing an autism spectrum
disorder (ASD) themselves. Now, University of Pittsburgh associate
professor of psychology Jana Iverson is looking for early
identifiers for ASD in babies younger than age two who have an older
sibling with autism. She will be looking at patterns of vocal,
motor, and communicative skills and how they may vary in infants
with ASD over a five-year period. | | |