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Articles

Recent Media Coverage of AS & Related Articles

We will list the current media coverage for the last 30 days at the beginning of this page as well as in our section below.  This will be updated on the first day of every month.  A.S.P.I.R.E.S. does not endorse these articles.  We share them with you for informational purposes only.

7-31-2007

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Are Vaccinations Safe for Your Kids? - Meet Lynn and her son Jeremy. Jeremy has autism, a disabling brain affliction. But at 18 months old, he had a 10-word vocabulary and was growing normally. Then two days after he received a shot for diphtheria, whooping cough, and tetanus, he was in the hospital.  Lynn said, "He was hospitalized two days after the shot and he was running a fever of 103. And he was so hot that the nurse that was standing there could feel the heat radiating off his body."  For the last 29 years, Jeremy has not spoken an intelligible word.  Cases like this are not uncommon -- 4,500 families are suing the government because they believe vaccines caused their child's autism.  Since the 1980s, critics have questioned the safety and effectiveness of vaccines. Government health officials and most doctors insist the benefits are large and the problems exaggerated.  "The risks are far greater to your child of not getting immunized than any kind of speculative potential relationship between the vaccine and the development of autism," said Irwin Redlener, MD, Columbia University. 

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Autism Diet Recipes Made Available Online to Parents - As autism rates continue to soar in the United States (1 in 150 children, according to the latest CDC statistics), many parents and healthcare providers are searching for the most effective ways to treat and manage the disorder. Perhaps the most popular of all biomedical treatments includes the Gluten Free, Casein Free (GFCF) Diet, a strict regimen that calls for the elimination of all gluten and casein proteins from an individual’s diet. As a result, an autism support website has made free recipes available for parents who wish to implement the popular diet.  "This diet has made a big difference for our son," said Gary Greaves, owner of AutismKey.com and father of a child with autism spectrum disorder.  "Ever since we’ve eliminated gluten and casein from the menu, there’s been a marked improvement in social interaction and language," he added.  Known by some as the "Autism Diet," the GFCF Diet is also utilized by people with allergies and other disorders, such as Celiac Disease. However, the diet is largely popular within the autistic community.  "We’ve decided to share our recipes, so that others might benefit. Recipes to items such as ice cream, banana bread and tapioca pudding are all available on our website," Greaves noted.

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Gender Bias and Autism Dads - Christopher, a member of the About.com autism community, is an autism dad who is deeply involved in his son's life. He made this comment on a previous blog: Have you ever been treated like a second-rate member of an IEP or school meeting? Of course, right? But how about a second-rate parent? Have you ever had to say, “Umm, I’m here too” or “Hey, I’m also the parent” when the faculty (in my case, all or predominately female) ignore you completely and speak to the other parent without acknowledging your existence. Or even worse, have you ever endured the cruel “Dad” jokes, when these so-called professionals assume the mother does all of the dirty work (cooking, cleaning, shopping, taking care of the child, therapies, researching, fighting school districts, etc.) while you escape to the normalcy of your 9-5?This comment rang surprisingly true to me - having heard almost the same thing from my own husband, Peter. Peter, who is self-employed and often a part of IEP meetings, field trips, and other "momlike" activities, has often commented on feeling that he's overlooked or ignored. Just as often, therapists and teachers will call, get him on the phone, and ask for me.

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How far should we let embryo selection go? - MPs and peers have called for the relaxation of rules on the creation of "saviour siblings" - babies born from specifically selected embryos to provide tissue to treat older brothers or sisters - in a move that has angered "pro-life" campaigners. Currently the law allows embryo selection only to ensure a genetic match for existing siblings with life-threatening conditions, but members of a parliamentary committee want to broaden this to include non-life-threatening conditions such as autism. "Saviour siblings" are created when parents use IVF to produce a number of embryos, then select the one which matches the tissue of their existing child. Do you think the rules regarding "saviour siblings" should be relaxed so that doctors can attempt to treat a wider range of conditions? Would you use this technology if it were made available? Isn't it sensible to do what we can to treat serious illnesses such as autism?

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Law enforcement gets a lesson on autism awareness - SALEM The county will be providing training on autism to personnel in law enforcement, corrections and fire and EMS disciplines to help them to better understand how to deal with those with the disability.  The county-wide program will provide training to municipality emergency response employees to be able to correctly identify an individual with autism, how to respond to an autistic individual's needs during a crisis, and how to communicate. The announcement was made by Freeholder David T. Lindenmuth, Chair of the county's Public Safety Committee.  "People with autism can often have accompanying learning disabilities, but everyone with the condition shares a difficulty in making sense of the world around them," Lindenmuth said.  "Dealing effectively with individuals who may suffer from this relatively unknown disability, as well as being able to begin to recognize the characteristics, is paramount for those charged with the responsibility to protect and serve the public."  Autism is a lifelong development disability that affects the way a person communicates and relates to people around them. Children and adults with autism have difficulty relating to others in a meaningful way. Autism affects their capacity to understand other people's emotional expressions.

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Love conquers autism at dinner - Focusing on the theme Love Conquers All, more than 250 joined in as the Parents Loving Children Through Autism Foundation conducted its fifth annual appreciation acknowlegment dinner at the Radisson at Lackawanna Station hotel. Their version of “In My Child’s Eyes” highlighted the musical entertainment performed by Maria Fay and Cheryl Ellsworth. Tara McHale presented a PowerPoint presentation as a tribute to the children living through autism to Celine Dion’s “Because You Loved Me.” Kathleen Walsh, president, had the honor of honoring those who provided outstanding contributions to the children, including Chris Remick, woman of the year, clinical director for autism, Northeast Regional Center for Autism Spectrum Disorders at Friendship House; Linda Kusy, teacher appreciation award, Old Forge NEIU; Megan Arduino, student of the year, Jefferson Center; Eric DeLuccie, sibling of the year, Dunmore Elementary Center; and Joseph Diskin, youth of the year, Abington Heights High School. Angel Awards were presented to community leaders who have provided support to make big things possible for children living with autism.

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New Theory about Autism Roots -  A new theory explaining the genetic underpinnings of autism states that in some families, a male child could have as high as a 50 percent risk of developing the disorder. In work that may one day lead to earlier detection of children at risk of developing autism, a team of scientists has devised a genetic model for the enigmatic disorder. The two-tiered theory integrates families with one or more autistic children.  An estimated one in every 150 children born in the U.S. develops autism, according to the Centers for Disease Control and Prevention (CDC); it is four times more prevalent in boys than in girls. The condition is characterized by cognitive deficiencies and symptoms ranging from antisocial (not responding to one's name and / or avoiding eye contact) to obsessive, repetitive behavior. The most popular theory about its genesis is that there are flaws in several genes passed down through generations of a family that culminate to predispose a child to the disorder, especially if exposed to certain environmental factors such as toxic chemicals or a lack of oxygen at birth.

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Research Finds Pesticides Could Cause Autism  - “We want to emphasize that this is exploratory research,” said Dr. Mark Horton, director of the California Department of Public Health. “We have found very preliminary data that there may be an association. We are in no way concluding that there is a causal relationship between pesticide exposure of pregnant women and autism." Department researchers examined birth records and pesticide data from 1996 to 1998. They found 29 Central Valley women who lived within 500 meters -or 547 yards- of fields that had been sprayed with organochlorine pesticides during their first trimester. Eight of those women, or 28 percent, had children with autism. That was six times greater than the rate for mothers who did not live near the fields.

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Second Life offers virtual freedoms - In dreamy utopian visions of the future, people can fly, teleport and create what they want from thin air. In the virtual world of Second Life, utopian dreams (virtually) come true. Second Life is an online interactive 3-D graphic virtual world where each player is represented by an avatar - a virtual person, animal or any other being imaginable. An avatar (called an "av" in virtual parlance) can walk, drive, teleport, fly; chat with or instant message other avs; and build stationary or animated 3-D virtual objects. Building a new world every day Originally intended, in part, as a fun environment for people to learn graphics and animation skills, Second Life equips each avatar with everything it needs to get creative in the virtual world. Tutorials embedded in a virtual place called Help Island show how to use the avatar's toolbar to craft anything - spacecraft, clothing, houses, furniture, giant sculptures, weapons, animals, trees, lakes - from a few basic three-dimensional objects. These basic building blocks - for example, spheres, cubes and cones - are called primitives, or prims for short. Building - the term for creating new objects - is permitted in designated areas called sandboxes.  "Sandboxes in general are good for watching and learning from builders," said Iron Vulture, an av in Second Life. "I come here to watch builders, practice with the build tools and chat. A sandbox is basically a spot to build and mess with scripts." On Help Island, one can also learn to use scripts - command codes - to animate objects and avatars.

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StemCellPatents.com Applauds Stem Cell Clinic for Autism Publication - www.StemCellPatents.com  ( www.stemcellpatents.com ), an organization dedicated to dissemination of stem cell patent information, congratulates the Institute of Cellular Medicine  www.cellmedicine.com   for publishing the first peer reviewed paper describing a novel approach for utilizing stem cell therapy for the treatment of autism.  "The published proposal to leverage mesenchymal stem cells to ameliorate the intestinal inflammatory state found in the majority of autistic children, combined with administration of ex vivo expanded CD34 cells for overcoming hypoperfusion in various areas of the brain is of great interest to the stem cell community," said Dr. Zhaohui Zhong, Chairman of StemCellPatents.com.  The paper entitled "Stem Cell Therapy for Autism" was published in the June issue of the Journal of Translational Medicine and is freely available at: www.translational-medicine.com/content/pdf/1479-5876-5-30.pdf

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Study discovers link between increased white matter and poor motor ... /  In contrast to the children with autism, TD children showed a significant correlation in the opposite direction, with increased white matter volume predicting better motor skills (lower PANESS scores). The correlation in children with ADHD was considerably different from the children with autism and similar to the TD group. - A study published in the August issue of the journal Brain demonstrates, for the first time, an association between increased white matter volume and functional impairment in children with autism. Findings from researchers at the Kennedy Krieger Institute in Baltimore, Md. reveal that in children with autism, increased white matter volume in the motor region of the brain predicts poorer motor skills. Conversely, in typically developing children, increased white matter volume predicts improved motor skills, with a similar association observed in children with attention deficit/hyperactivity disorder (ADHD). The relationship between increased white matter volume and functional impairment, which appears to be specific to autism, may be representative of global patterns of brain abnormality in autism that not only contribute to motor dysfunction, but also to deficits in socialization and communication that define the disorder.

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Taking Autism to the Airwaves - "It's always like, every single time, a clash between good and evil." That's how Alex Moshenko described his passion, professional wrestling, when I interviewed him two years ago. And when his birthday rolled around that year, we decided to arrange a little surprise for the WWE's biggest fan. I thought Alex was going to faint he was so elated about his special meeting with WWE Superstar "Batista". "I don't know what to say except thank you so much! I want to hug you! Thank you, 2 On-Your-Side, yeah!" beemed Alex. And when the day came for Alex to meet his idol, face to face, he didn't shrink away from the opportunity to do a little impromptu interview. "First of all," Al said, "How do you get in such good shape? I mean, you're buff!" Batista seemed a little surprised at the question but smiled and answered, "I've been an athlete all my life, participating in one sport of another." Two years later, Alex says that interview back in 2005 is what really inspired him to do a radio talk show about wrestling.

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'We're not peadophiles!' - hospital patient - ...But Mr Fairbanks, who comes from Barnsley, said his experience at Milton Park had largely been a positive one.  He said he had been voluntarily placed there in July last year, with his place funded by social services.  Previously, he had spent six years at a residential special school in Shrewsbury for pupils with Asperger's syndrome - a form of autism usually without the associated learning disabilities, but which is marked by difficulties with communicating and interacting with others. Mr Fairbanks said he has "high functioning" Asperger's syndrome, meaning he is of above average intelligence. He said: "I can talk to people a lot more easily now and socialise a lot more easily, and relate to peoples' personalities a lot more easily. It's really helped me, this last year."  Mr Fairbanks said his only gripe with Milton Park is that the on-site day centre is closed at the weekend and after 8pm in the week.  He added: "There's nowhere we can go at the weekends. Patients are bored and they might go out to get up to mischief - that might be the case."  Mr Fairbanks is planning to start an Asperger's syndrome support group. He can be contacted at didyickle@aol.com 

07-26-2007

bullet Author focuses on 'new autism' - Here's what Dr. Bryan Jepson thought he knew about autism six years ago: that it was a rare,Bryan Jepson genetic, developmental, untreatable brain disorder. But that's the "old autism," he says. Bryan Jepson Jepson, who graduated from the University of Utah School of Medicine in 1995, says what he knew about autism then he mostly learned from the movie "Rain Man." Later, in 2001, his lovable, happy 18-month-old baby began to change — to "fade away," as Jepson puts it. The toddler no onger wanted to be read to, wouldn't look his parents in the eye and liked to spin in circles in the middle of the floor. A child psychiatrist told Jepson and his wife, Laurie, "Prepare yourself for the time when Aaron will need to be institutionalized. Forget experimental therapies." Instead, Laurie Jepson took to the Internet. And before long, her husband — who categorizes himself as a "mainstream" physician — was deep in medical literature about the biochemistry of autism. Soon he was convinced that autism is a complex metabolic disease that has as much to do with the gut as it does with the brain. Bryan Jepson, who is now director of medical services at Thoughtful House Center for Children in Austin, Texas, is back in Utah this week to talk about his new book, "Changing the Course of Autism: A Scientific Approach for Parents and Physicians." On Saturday, he will speak at a free workshop sponsored by Porter's Hope, a Utah-based company that assists the families of children diagnosed with autism. "All of a sudden, there's an explosion of autistic kids," Jepson says. As recently as 1980, autism was rare, with a rate of about 1 in 5,000. Now, he says, it's 1 in 160.
bullet Congressman who listens – To the Editor - Finally, a member of Congress who understands that Congress’ spending priorities should be in sync with the priorities of the American taxpayers who foot the bill. Last week, our very own Congressman Scott Garrett passed through the House of Representatives an amendment transferring funds from a program that has been rated as a failure and recommended for extinction and put those funds into increased medical research for autism and cancer.
bullet A Mind for Sociability - Humans are highly social, but we don't get pally with just anybody. Before forming relationships with other peopleA brain's region of the amygdala, we normally size them up to see how trustworthy they are. A new study suggests that this behavior stems from an evolutionary reorganization in a part of the brain responsible for detecting other people's emotions. The amygdala, a small, almond-shaped area deep within our brains, appears to be essential in helping us read the emotions of others. Research shows that the structure is crucial for detecting fear, but scientists have also found evidence that it can help spot a wide variety of mental states (ScienceNOW, 7 April 2006). Last year, for example, scientists noted that the amygdalas of patients with autism, which is characterized by decreased social interaction and an inability to understanding the feelings of others, have fewer nerve cells, especially in a subdivision called the lateral nucleus.
bullet Authorities investigate RT Autism Foundation officer - A former officer of RT Autism Awareness Foundation Inc., a Rochester nonprofit organization, is being investigated by police as the group performs an internal audit of its finances.  "A criminal investigation is under way of a former officer," said Brad Trahan, co-founder. "The board has requested an internal audit of the finances and books." While he could not comment on the nature of the investigation or name the person being investigated, Trahan did stress that the foundation is financially stable.  "If and when" someone is charged with a crime, Trahan said he could discuss the issue more fully.  The foundation's attorney, Dave Pederson, referred questions to the Rochester Police Department.
bullet Autism group probes why children love Thomas the Tank Engine - The simple stories and clear facial expressions of the Thomas the Tank Engine characters have made them a favourite among children with autism, according to a study by the U.K. National Autistic Society. Thomas the Tank Engine, written in 1943 by Rev. Wilbert Vere Awdry, is a perennial favourite among all the under-four set, especially for boys who love trains. Thomas the Tank Engine, in a 1998 promotional photo for Thomas & Friends. His easy-to-read expressions appeal to autistic children.  (Canadian Press) But it appears to have particular appeal to autistic children, with 58 per cent of parents in an April 2007 survey reporting that Thomas was the first children's character their child enjoyed.
bullet Author focuses on 'new autism' - Here's what Dr. Bryan Jepson thought he knew about autism six years ago: that it was a rare, genetic, developmental, untreatable brain disorder. But that's the "old autism," he says.  Bryan Jepson      Jepson, who graduated from the University of Utah School of Medicine in 1995, says what he knew about autism then he mostly learned from the movie "Rain Man." Later, in 2001, his lovable, happy 18-month-old baby began to change — to "fade away," as Jepson puts it. The toddler no longer wanted to be read to, wouldn't look his parents in the eye and liked to spin in circles in the middle of the floor   A child psychiatrist told Jepson and his wife, Laurie, "Prepare yourself for the time when Aaron will need to be institutionalized. Forget experimental therapies."  Instead, Laurie Jepson took to the Internet. And before long, her husband — who categorizes himself as a "mainstream" physician — was deep in medical literature about the biochemistry of autism. Soon he was convinced that autism is a complex metabolic disease that has as much to do with the gut as it does with the brain.
bullet Autism risk factor linked to moms, age -  Autism, a developmental disorder, may more likely be carried by mothers and dependent on parental age, according to U.S. researchers.  Researchers at Cold Spring Harbor Laboratory and Albert Einstein College of Medicine analyzing the incidence of autism found a previously unrecognized pattern pointing to a spontaneous germ-line mutation model of disease acquisition.  The study, published in the Proceedings of the National Academy of Sciences, indicates parents, especially women -- who acquire the mutation but do not exhibit severe symptoms of the disorder -- have a 50 percent chance of passing the mutation on to their children. Sons often show the most severe symptoms.
bullet Clinics combat outbreak in measles scare - The move came after GP surgeries were inundated with requests by parents wanting their children immunised following the diagnosis of 13 cases of measles in Hackney. The latest outbreak brings the total number of cases in the borough to 39 since May.  However, health experts said they were not shocked by the outbreak.  "The only surprise is that we haven't had a bigger outbreak sooner," said Dr Gabrielle Laing, consultant community paediatrician for City and Hackney Teaching Primary Care Trust.
bullet Free Parent Training Series Sponsored By POAC - Free Parent Training Series Sponsored By POAC - POAC, Parents of Autistic Children, a non-profit organization, is offering a free series of workshops designed to help participants gain an understanding of how to model and introduce appropriate behavioral and academic supports for children with developmental disabilities. If you are a parent or a teacher of a child with autism, PDD, Down syndrome or any developmental disability, and need help in the area of language development and problem behavior, come to this series. This training is currently taking place in Morris, Ocean and Monmouth counties. For further information and to find the location nearest you, please visit us at www.poac.net
bullet I was victim of sexual advance: court - A 16-year-old male who allegedly stabbed a man to death near the Narrabeen shops on Sydney's northern beaches has been refused bail after claiming he was the victim of a "sexual advance'' in a public toilet. The youth, who lives with his parents, pleaded not guilty at Bidura Children's Court in Sydney today after he was arrested yesterday afternoon for murdering a 35-year-old Narrabeen local, Gerard Fleming, on June 16. Mr Fleming, who had a mild form of autism called Asperger's syndrome, died from two stab wounds to his upper body. He was found sitting on a bus stop seat on Pittwater Road, Narrabeen, shortly before midnight, police facts tendered to the court state.
bullet Kevin Bacon's SixDegrees.org and Hanes to Award Six $10000 Grants - This is the second time SixDegrees.org is offering matching grants. The winners of a first competition earlier this year included Ali Edwards, an Oregon mother of an autistic boy who inspired 2,455 people to contribute nearly $60,000 for Autism Speaks. The stories of all the winners are at Six Degrees web site.
bullet MMR doctor gave boy ‘unethical’ spinal tap - INVASIVE medical procedures carried out by Royal Free doctors on young children were unnecessary and unethical, an inquiry has heard. Dr Andrew Wakefield subjected a four-year-old boy to a colonoscopy, MRI scan and a lumbar puncture - otherwise known as a spinal tap - during his controversial research into the measles mumps and rubella (MMR) jab. It is claimed Dr Wakefield used the results to link the jab with autism in a 1998 study carried out at the Royal Free medical school.
bullet PedMed: Multi-drug use questioned - Be it a sign of a growing dependency on drug treatments or increasing incidence of coexisting pediatric illnesses, the number of children taking multiple medications is rising at rates some deem unhealthy. The National Center for Health Statistics reports some 3 million tykes and teens under 18 were taking three or more prescription drugs during the study month in 2002.  In some cases, youngsters suffer simultaneous conditions, so-called comorbidities, which call for separate medicines.  For example, studies show up to one in five children newly diagnosed with type 2 diabetes may also have a psychiatric condition, including depression, attention-deficit/hyperactivity disorder, autism, developmental delay, schizophrenia and bipolar disorder.
bullet Parents take different paths to abate ADHD - Some local residents have taken treatment for their children's ADHD into their own hands, sometimes leaving doctors out of the process entirely. ADHD, or attention deficit hyperactive disorder, is a range of behaviors such as consistent inattention, hyperactivity or impulsiveness that interferes with normal life, school and social activities
bullet Quebec police probe drowning of autistic boy, 6 - Quebec provincial police are investigating how a six-year-old autistic boy drowned while he was supposed to be under constant supervision at a beach on Lac Saint-Joseph, about 50 kilometres north of Quebec City. The body of Lucas Beaupré was found Wednesday afternoon under an inflatable floating trampoline on the lake. Witnesses said Beaupré had been missing for almost two hours before lifeguards were notified, and he was not wearing a life-jacket.  Beaupré was at the lake under the supervision of a day camp run by his hometown, L'Ancienne-Lorette, a western suburb of Quebec City.
bullet Rain woman - It has been a decade since Sigourney Weaver appeared in her final incarnation as Ellen Ripley in Alien: Resurrection. During that suspenseful series, the tall, composed actress displayed natural authority as she battled hordes of aliens. That self-assuredness came in handy with her portrayal of high-functioning autistic Linda in Snow Cake  Not since Dustin Hoffman in Rain Man has a character with autism been so endearing. In fact, can we remember another Hollywood film about the subject? "I don't think there has been," says Weaver, who researched intensely for the role. "If anything, I think there's an avoidance of the issue. Rain Man was 20 years ago. One of the things that I've heard constantly from people on the autism spectrum is they're so tired of people referring to Rain Man - as if one movie would define the disorder for decades to come.
bullet Teen bailed over Fleming murder - A teenage boy charged in connection to the murder of Narrabeen man Gerard Fleming last month will be back at school on Monday after he was freed on bail this morning. The 16-year-old youth was charged with being an accessory after the murder of 35-year-old Mr Fleming on June 16 and for concealing knowledge of the killing from police. The police charge sheet says the boy 'received, harboured, maintained and assisted'' Mr Fleming's alleged killer. The youth was led into Bidura Children's Court, which held his father, mother and younger brother, wearing a blue hooded sweatshirt and black-and-white check pants.
bullet Vaccinations: the debate - Vaccinating our children is a routine part of protecting them from illness in childhood - but a new book queries whether it is worth the risk. Dr Andrew Wakefield, who challenged the safety of the MMR vaccine because of fears over a possible link to autism, is currently fighting to save his career. Meanwhile the Government insists vaccines are essential and save millions of lives. The result is that many parents are anxious and confused about the best course of action. And now another doctor, Dr Richard Halvorsen, raises his concerns - warning that the Government "misleads us about vaccines".

07-21-2007

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Accident Prone? Scientists Link Brain Function To Knee Injuries - A torn anterior cruciate ligament (ACL) is among an athlete's most-dreaded injuries, often requiring surgery and months of rehab, as has been the case with Philadelphia Eagles quarterback Donovan McNabb. While being tackled in football or hurtling into an embankment on an icy ski course can tear this major knee ligament, most athletes actually “do themselves in”--they don't collide with a person or object, they end up injuring themselves when they land off-balance during a jump or run. But why?

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Autism study offers hope - His mother suspected that there was something wrong, almost from the start. As an infant, Joshua Huffman kept to himself, didn't babble like most babies do, didn't respond to his name when called. Three years later, Joshua is a whirlwind of activity who can put together puzzles with ease, race around his Clarksville house with older brother Zachary and even tell his brother, in very clear language, to go to timeout. Joshua was part of a study at Baltimore's Kennedy Krieger Institute that revealed that half of children with autism can be diagnosed not long after the first birthday - nearly two years earlier than it has been reliably diagnosed before. Researchers, who still don't know exactly what causes autism, know this much: Early diagnosis leads to earlier intervention, which they hope can change the course of an autistic child's life, as happened with Joshua.

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Autistic boy not welcome in music store - As an autistic savant, Ryan Morales has an extraordinary talent for music -- he can play the piano by ear; he has an encyclopedic knowledge of Broadway trivia, and he loves to go to his local music store to look at the drums.  But the owner of Lane Music Center blocked the 13-year-old boy and his caregiver from entering the New Dorp Lane shop this week because, the store owner said, Ryan's behavior makes him feel uncomfortable.  "I'm sorry, I'm not going to let you in," owner Alan Wilcov reportedly told Ryan's caregiver, Oluwaseun Cole, whose job it is to take Ryan on walks through the community to familiarize him with the social rituals of everyday life. "I just can't let him in," Cole said Wilcov had told him on Wednesday afternoon.

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Bush Will Veto Mercury Ban Bill - President Bush is to veto a bill that would ban mercury in flu vaccines for children despite its known links to autism and other neurological disorders and despite the fact that he pledged in 2004 to support such a move when campaigning for re-election. The White House stated on Tuesday that President Bush would veto the FY 2008 HHS-Labor-Education Appropriations Bill because of the cost and "objectionable provisions" such as a measure to ban the use of childhood flu vaccines that contain thimerosal, a mercury-based preservative, a press release from Autism advocacy group Safe Minds on the PRNewswire-USNewswire states. Bush is calling for an amendment that would remove the children's safety provision from the bill. Alex Jones

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Defeating fear with fun - Camp helps autistic kids learn to try new things, improve social skills  At first, it looks like a typical childhood game of Duck Duck Goose, giggling and all.  But there is therapy going on here. The children at play have autism, a brain development disorder that impairs communication and social interaction.  The game's basic concepts - sitting with others in a circle, touching people on the head, and running around the circle - can overstimulate the brains of autistic children.

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Self-injury common among teens - U.S. researchers found teens often engage in non-suicidal self-injury -- biting self, cutting/carving skin, hitting self and burning skin.  Non-suicidal self-injury, or NSSI, is defined as the direct destruction of body tissue without conscious suicidal intent, according to lead author Elizabeth Lloyd-Richardson, of The Miriam Hospital and The Warren Alpert Medical School of Brown University, in Providence, R.I.  Nearly half of the 633 high school students in the South and Midwest, who voluntarily and anonymously completed a survey administered by the researchers, said they did some form of NSSI.

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Demonstrators voice disatisfaction with court system  / Protester: 'You shouldn't have to battle the courts' - … Debby Rabold demonstrated in support of her son, Aaron Rabold, 25, of Saylorsburg, an autistic man she said was wrongfully convicted of attempted murder. Aaron Rabold, who reportedly stabbed his sister-in-law in the face as she slept, was sentenced in August 2005 to 14 to 28 years in state prison. Debby Rabold said her son's attorney has filed an appellate brief on his behalf in state Supreme Court. "Aaron's autism was never explored in depth and other details were never brought out that would have affected the outcome of his trial," she said. "And now that he's in prison, he's not getting the appropriate help he needs. He's being drugged out of his mind and placed in solitary confinement.  "Our court system leaves a lot to be desired in how it treats some people," she said.

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New health fears over big surge in autism'. The article revealed details of an unpublished report by the Autism Research Centre (ARC) at Cambridge University which showed that a statistical analysis of autism prevalence among primary schoolchildren in Cambridgeshire had produced a figure that as many as 1 in 58 children could be suffering from forms of the disorder. This figure is nearly double the presently accepted prevalence of autism of 1 in 100. The news report also said that two of the authors of the report believed that in a small number of cases the triple measles, mumps and rubella (MMR) vaccine could be linked to the incidence of autism The news report has been the subject of a number of comments since its publication. Critics have said that The Observer should not have published figures from a report that had not been finalised, that we failed to detail other figures from the report that showed a lower prevalence of autism, that we did not reveal the links between one of the authors, Dr Carol Stott, and Dr Andrew Wakefield, who has made controversial claims of a link between autism and the MMR vaccine, and that we did not accurately reflect the views of another of the authors, Dr Fiona Scott, on the possible links between MMR and autism. There are a number of points in The Observer report that should be clarified: The status of the report.... UK

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Science Tools: Brain Cell Imaging - The brain of a mammal is one of the most complex things in the universe. But studying brains has become easier thanks to some complicated, hi-tech equipment. In this ScienCentral Web Extra video we take a visit to the Tonegawa Lab at MIT's Picower Institute for Learning and Memory. to see their two-photon microscope and electrophysiology lab.

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Sleep helps Huntington's disease sufferers - Mice with the genetic mutation that causes Huntington's disease showed marked improvements after they were given drugs for sleep, found a British study.  Researchers at the University of Cambridge found that daily treatments of Alprazolam or chloral hydrate -- two different sedative drugs -- enabled the mice to develop a regular sleep pattern and improved their cognitive function -- their ability to understand and act on information.  The Cambridge University neuroscientists conducting the research say mice with Huntington's disease have abnormal circadian rhythms; their daily sleeping and waking cycles are disrupted and irregular.

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Some say family should factor in deportation of immigrants - As immigration authorities get caught up on a backlog of deportation cases, immigrant advocates say the personal situations and community ties of those here illegally should be considered in an attempt to avoid splitting up families. In Minnesota, the recent arrests of two mothers of young children sparked public protests and pleas for clemency. "I don't understand it," said Nixon Avendano, of St. Michael, whose wife, Sara, was deported last month. "Why deport a mother of five kids who has never been in trouble with the law? She's worked. Paid taxes. They (immigration agents) should be focusing on terrorism."

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Oregon families say state falls behind on special needs students - Nearly every area associated with education got a significant budget boost from the Oregon Legislature this year, from pre-kindergarten programs to the state's seven universities.  Except, that is, for a fairly obscure regional program that serves an estimated 8,000 or so families across Oregon whose children are autistic, or struggle with orthopedic problems, or were born deaf, blind or both.  The ranks of such families are small, but growing fast, by 20 percent in the last two years alone. And their voices, they thought, were loud — but apparently not loud enough.  Now, the program in question, which is collectively run by eight regional education cooperatives to provide local teachers the training and support on how to work with special-needs kids, is facing a funding plateau.  Lawmakers put $31.8 million into the program, a $1 million increase, but still about $4 million short of the funding request from State Schools Superintendent Susan Castillo.

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Police Get New Tool To Find Missing People - Police say they have a new tool to use during the search for a missing person.  The tool is an armband placed on the wrists of people with diseases like Alzheimer's and autism. If that person where ever to wonder off, police can use the band to locate them. It's called Project Lifesaver. It's a nation-wide non-profit program supported by organizations like the National Sheriff's Association.  The Fayette County Sheriff's Department is one of 10 counties in West Virginia working with the program.

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The battered hummer that symbolises a divided nation - A quiet Washington suburb has become the focus of America’s climate change schism after an act of vandalism by environmental activists.  With the sun going down on Brandywine Street and the lawn sprinklers hissing gently in the background, worried groups of neighbours are talking quietly about a shocking act of domestic terrorism that has occurred on their doorsteps.  They chat on the porches of their clapboard colonial-style houses in the dappled early evening light. Some have just returned from the nearby Whole Foods organic store and one worried-looking family pulls up in a Prius. Children pour out carrying musical instruments after attending their lesson.

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Theater aids teen emotional development - A U.S. study found that adolescents' emotional skills were strengthened through a high school theater program.  The development of "emotional intelligence" is important to adult work and family life, but many young people arrive in adulthood with incomplete emotional skills, according to lead author Reed W. Larson, of the University of Illinois, Urbana-Champaign.  The preliminary findings, published in the journal Child Development, suggest that under the right conditions, adolescents can strengthen their emotional skills via youth programs and schools that provide conditions that facilitate emotional learning.  The researchers conducted open-ended interviews and observations to gain an in-depth understanding of one setting -- a high school theater program. Ten teenagers were interviewed every two weeks over a three-month period while the theater group rehearsed a musical.

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What's Your Opinion About Autism Speaks' "Know the Signs" Ads? - Last week, I appeared on a web radio program for PreschoolRock.com. To enhance the show, the hosts played a number of Autism Speaks' audio announcements called "know the signs." Intending to help parents identify autism in their child, here is how they describe the disorder: … Today, Autism Speaks announced that Starbucks will be putting "Know the Signs" on their cups:  Starbucks is now featuring special autism awareness cups as part of its “The Way I See It” program. The cups feature a message from Autism Speaks founder Bob Wright urging parents to learn the signs of autism and act early if they suspect their child is experiencing a developmental delay. The message appears on “venti” hot cups. The first one was spotted at a Starbucks on Wilshire Boulevard in Los Angeles, just two blocks from the Autism Speaks Los Angeles office. Look for it to appear in your local Starbucks soon.

07-18-2007

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Burt Bacharach: The popfather -/After a tragic start to his year, legendary tunesmith Burt Bacharach is finally coming to Auckland toBurt Bacharach play his pop classics. - It's inevitable really. You get the warning from the star's people about no questions about his personal life. But once in interview, it's hard to get the star off his personal life and back on to what made him a star. That's what happens when Burt Bacharach, God of timeless sophisticated pop, comes on the line for our 20-minute interview. The chat starts with a gentle enough inquiry. One about what keeps the man - whose timeless 1960s hits with lyricist Hal David made them second only to Lennon and McCartney as last century's greatest songwriting partnership - still touring. Almost immediately the gravelly voiced Bacharach is addressing the tragic reason why his Auckland concert was postponed earlier this year - his eldest daughter Nikki by second wife Angie Dickinson committed suicide, having struggled all her life with Asperger's syndrome, a form of autism.

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Children’s antipsychotic drug use scrutinised -  A world-first nationwide study of children’s treatment with “atypical antipsychotic” drugs is providing new insights into why they are being prescribed and what adverse reactions can result.  The Intensive Medicines Monitoring Programme (IMMP) study investigated the safety and use of the drugs in all under-16-year-olds in New Zealand prescribed them between April and July in 2003. Adverse reactions in the children were monitored until the end of November 2004 and doctors were surveyed on what particular diagnoses and symptoms prompted the prescriptions. Co-author Dr Mira Harrison-Woolrych says this is the first study anywhere to paint a comprehensive, real-life picture of how the increasingly-prescribed second-generation antipsychotics are being used in children. Their findings appear in the latest edition of the international journal, Drug Safety.

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Dad's plea for help with autistic son / TEARS filled Wally Hannam'seyes yesterday as he described watching his autistic teenage son ``pacing like a caged animal'' in Geelong's Swanston Centre. - The Belmont father said his 16-year-old son Chris had been in the psychiatric care centre for two weeks, after he began hallucinating and became agitated. But he said his much-loved teenage child did not belong in a facility designed to provide acute psychiatric care for adults. ``It's so inappropriate for Chris to be there,'' Mr Hannam said yesterday, ``But he's stuck there. `He's been there now for 13 nights.'' Mr Hannam is campaigning to have Chris moved to a facility for young people, where medical staff were used to caring for people with autism. He was horrified to learn there wasn't a bed available anywhere in Victoria in a facility that could provide for Chris' needs _ his autism and his mental illness.   `The seclusion room where he is at now is driving him out of his skull, because he's locked up,'' he said, ``He doesn't understand. ``With autism, you need structure, you need routine, you need quiet.  `But yesterday, there were patients in there hitting the walls, banging to doors, screaming. `It's an appalling situation.''

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Dark side to shots - IIs there is a dark side to immunization -- what would they be?  If the immunizations were so wonderful and safe, why would the manufacturers of immunizations want total immunity against lawsuits-which they have consistently requested from Congress and received.  This is the first cause for suspicion that the immunizations aren't safe or why would they need to be totally protected from lawsuits? These immunizations are a total profit to the big pharmaceutical companies.  There are 33 doses of nine different vaccines that our children are requested to take before attending school. There have been no studies done to address the issue of multiple dose affects on the babies or infants that are taking them.  A new privately-funded survey finds vaccinated U.S. children have a significantly higher risk of neurological disorders -- including autism -- than unvaccinated children; 2.5 times higher for vaccinated boys between the ages of 4-17.

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Easing The Autism Stigma - When Matthew Nadler sang his bar mitzvah portion, the Hebrew rang clearly through the air and no one in the sanctuary could keep from crying. Matthew stood on the bima, confident, pitch-perfect and proud, “a real mensch,” as his father, Allen, later described him.  But after the service, Matthew and his family didn’t adjourn to the typical party full of teenage friends and food.  Matthew has autism and, now 15, looks much younger. Though the handsome, blue-eyed teen is quick to pick up a dropped pencil, offer a drink or say “thank you,” he has trouble making eye contact, conversing or fitting into many social situations, and as a result finds it difficult to make friends with peers his age. For Matthew’s parents, the shock of his diagnosis quickly turned to education for themselves and their son. They found the best services and became advocates for autistic children, ultimately, accepting Matthew’s limitations while embracing the joy he brings them.  “Like a poker game, this is the hand I was dealt,” says Allen Nadler of his son’s autism. “But unlike a poker game where I could fold my hand, this is a hand I have to play.” Matthew Nadler is part of a rapidly growing population in the New York metropolitan area and throughout the country with autism, a diagnosis that has been exploding in recent years and is estimated to affect approximately 1 in 150 children in the United States today, according to the Centers for Disease Control and Prevention.

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Family wins plea for fence variance - Seven-year-old Molly St. Claire soon will be able to safely play in her own backyard. Molly has severe autism, which prompted her parents to ask the village earlier this year to bend its rules restricting installation of fences. After listening to their story, the village board decided this week to do just that. The St. Claire family has a playset in the backyard of their Hilltop Lane home. However, without a fence to ensure that she does not wander off the property and onto a nearby three-way intersection, Molly has not been able to really enjoy the playset or explore the backyard. Village ordinances allow fences only around swimming pools, dog runs, patios or decks. In 1998, the board approved a barrier-type fence in the rear yards of homes that abut Randall Road.

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Gene Identified For Crohn's Disease In Children - Pediatrics researchers have identified a gene variant that raises a child's risk of Crohn's disease, a chronic and painful condition attributed to inflammation of the gastrointestinal tract. The research reinforces previous results by German researchers, who found the same gene variant associated with the adult form of Crohn's disease. Researchers from The Children's Hospital of Philadelphia and The University of Pennsylvania reported their results in a letter in the August issue of the journal Gut.  "Because Crohn's disease is complex, with multiple genes interacting with each other and with environmental factors, it's important to sort out specific genes and to replicate previous findings," said the study's first author, Robert N. Baldassano, M.D., director of the Center for Pediatric Inflammatory Bowel Disease at Children's Hospital. "There are different types of Crohn's disease, so classifying types by genetic profiles may help us select the most appropriate treatments for each patient."  The study compared the genomes of 143 children with Crohn's disease to genomes of 282 matched control subjects. The study team found that 64 percent of children with Crohn's disease had a specific variant form of the gene ATG16L1, compared with 52 percent of the healthy children. The odds ratio for children with the gene variant was 1.62 compared to control children, meaning that those who have the variant were 62 percent more likely to have Crohn's disease than children with the more common allele. A separate test that analyzed trios (a Crohn's patient and both parents) also found an association between the ATG16L1 gene variant and disease symptoms. This finding strengthened the results of the pediatric case-control study.

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Gotta Sing, Gotta Dance - Eleven years ago, when Elaine Hall adopted a toddler boy from a Russian orphanage, she didn't know anything about autism. Today, she is in the vanguard of helping children with this increasingly widespread condition--known for derailing the ability to communicate--find unprecedented ways to emote and connect through the performing arts.  The Miracle Project, launched by Hall just three years ago, is already making headlines. An award-winning documentary about the program, 'Autism: The Musical,' premiered last spring at the Tribeca Film Festival in New York. It follows the lives of five autistic kids and their families, including Hall and her son, Neal, now 13, throughout the staging of a 'Miracle Project' production. HBO acquired the film and plans to air it next year after a limited run in theatres.  'I always believed in the potential for this program but our initial workshop was truly a 'leap of faith,'' says Hall, who lives in Santa Monica. Many of her students and volunteers are residents of Pacific Palisades.

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It's Like This... Autism And Vaccines - I am the queen of analogies. It's part of my writing and speaking style. If you ask me for directions I'll tell you to "Take a left at the elementary school that looks like a prison." When an email acquaintance asks what I look like I'll say, "My hair is like snakes, my eyes are the size of dinner plates, and I'm as curvy as a Q-tip.Yesterday, though, I met my match. I have a new job editing a site for autism news. And one of our writers sent me a post that just blew me away. You can read it here. Nancy Hokkanen came up with one of the greatest analogies ever to describe the autism and vaccine controversy and how it feels to us parents of kids with autism. She compared it to the Catholic Church's cover up of decades of sexual abuse.

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‘I worried about bills and feeding my children – not life in my 60s’ - At the age of 52, Carolynn Cruickshank-Gray is pacing her workCAUGHT OUT: Carolynn Cruickshank-Gray with her daughter and grandchildren commitments carefully so that she doesn't burn out in the next 15 years. She will be among the first group of women - those born after April 6, 1955 - who will have to work until the age of 65 before becoming eligible for a state pension. In fact, she expects to be working well beyond the age of 65 to make ends meet. The only private pension provision she has is a total of about £5000 in the pension funds of two small companies where she worked for a couple of years. That is no comfort: quite the opposite. "My big fear is that if I should be on my own in my old age, this tiny pension will have the effect of taking me just above benefit levels," she says from her home in Lochgelly, which is the base for her contract work.

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Misconduct hearing starts in Britain - Uptake of the measles, mumps and rubella (MMR) vaccine plummeted in Britain after doctor and researcher Andrew Wakefield suggested in 1998 that it could be linked to autism —suggestion that made huge waves in the media and with the public. Subsequent studies have ruled out a link between MMR and autism, and the majority of medical opinion now firmly rejects Wakefield's hypothesis. This week, Wakefield stands before a hearing at the General Medical Council (GMC) — the body that regulates doctors in the United Kingdom.- Uptake of the measles, mumps and rubella (MMR) vaccine plummeted in Britain after doctor and researcher Andrew Wakefield suggested in 1998 that it could be linked to autism — a suggestion that made huge waves in the media and with the public. Subsequent studies have ruled out a link between MMR and autism, and the majority of medical opinion now firmly rejects Wakefield's hypothesis. This week, Wakefield stands before a hearing at the General Medical Council (GMC) — the body that regulates doctors in the United Kingdom. Who is being charged with what? a

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MMR doctor ‘not paediatrically qualified’MMR doctor ‘not paediatrically qualified’ - Vulnerable children were subjected to “inappropriate and invasive” tests by doctors who were in breach of “some of the most fundamental rules in medicine”, a hearing was told yesterday.  Dr Andrew Wakefield, who sparked the MMR controversy, did not have paediatric qualifications and had not worked as a clinical doctor for several years when he ordered the tests, the General Medical Council’s fitness to practice panel was told.  His role was as a research doctor and he had no right to investigate the children, who did not undergo proper neurological or psychiatric assessments beforehand, it heard.

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NDP outraged over McGuinty's $2.4 million broken promise - NDP MPP Shelley Martel is outraged that the McGuinty government spent $2.4 million on lawyers to fight parents of children with autism in court, instead of providing IBI treatment that Dalton McGuinty
promised them. "It's scandalous that Dalton McGuinty squandered $2.4 million of public money on lawyers in a cynical attempt to break an election promise made to children with autism. That money could have funded IBI treatment for 50 children for a year," said Martel. Martel said Dalton McGuinty should never have dragged parents and their vulnerable children through the courts, at great expense to the public and the families, just so he could break a promise. "It's appalling that Dalton McGuinty's priority was to waste millions of dollars of public money fighting parents in court, instead of providing children with autism with the treatment they needed," said Martel.

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Patient's brother sues company that managed Oakwood - A Kentucky man is suing the company that formerly managed the Communities at Oakwood, saying that the company failed to protect his disabled brother who sustained multiple injuries, including a broken nose, at the facility. The lawsuit, filed Monday in U.S. District Court in Frankfort, alleges that, for more than a year, Tim Cox, 29, who suffers from autism and other disorders, was beaten and restrained on multiple occasions at the Somerset facility. This is the third lawsuit filed in federal court against Liberty Healthcare that accuses the company of failing to stop ongoing abuse of residents at Oakwood, the state's largest home for the mentally disabled. Liberty oversaw management of Oakwood from November 2005 to November 2006.

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Pesticides and Schools: a "Tragic" Health Hazard - Pesticides in schools are a pervasive, unnecessary health hazard, said Marc Lame, an entomologist and professor in Indiana University's School of Public and Environmental Affairs. "Over 80 percent of schools in America are applying pesticides on a regular basis, whether they have a pest problem or not," he said. "This is tragic not only because of the well-documented link between pesticides and health problems in children, such as asthma and neurological disorders, but also because pesticides generally do not work in a preventive manner in the school environment. Applying pesticides does not prevent pests from coming in, so using them when pests are not present does nothing other than expose children and staff to toxic chemicals."* Background: The most widely used insecticides are nerve poisons, which cause nerves to fire in an uncontrolled manner and disrupt endocrine (hormone) systems, Lame said. Prolonged exposure to these chemicals can result in similar effects on the human nervous system, with symptoms ranging from vomiting to severe breathing problems. Although research is limited, these endocrine disrupting pesticides are suspected in problems ranging from ADHD to autism to infertility, Lame said. Exposure during childhood carries the greatest risk. "The thing to remember is that it is not just a question of children being smaller than adults and getting more exposure pound-for-pound. The even more serious issue is that their nervous systems are still developing, so they are especially susceptible to nerve poisons," he said. * Solution: Lame said pest problems are better managed with an integrated approach that involves recognition and remediation of conditions that attract pests or allow pests to enter facilities. "It's common sense pro-action rather than toxic reaction," he said. Lame serves as a consultant for schools and environmental health agencies around the country, helping them implement such programs through a process known as Integrated Pest Management (IPM). He is also the author of a book on pest management in schools, A Worm in the Teacher's Apple: Protecting America's School Children from Pests and Pesticides (Authorhouse, 2005).

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Pitt Psychologist Explores Early Indicators for Autism in Infants - Researchers have proven that babies who have an older sibling with autism have an elevated risk of developing an autism spectrum disorder (ASD) themselves. Now, University of Pittsburgh associate professor of psychology Jana Iverson is looking for early identifiers for ASD in babies younger than age two who have an older sibling with autism. She will be looking at patterns of vocal, motor, and communicative skills and how they may vary in infants with ASD over a five-year period.