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ASPIRES
Recent Media Coverage of AS & Related Articles
We
will list the current media coverage for the last 30 days at the
beginning of this page as well as in our section below. This will be
updated on the first day of every month. A.S.P.I.R.E.S.
does not endorse these articles. We share them with you for
informational purposes only.
05-30-2009
 |
12 percent increase in autism
cases in 30 years: study
- Recent study revealed that many
children suffering from autism are often not
diagnosed. Researchers also found that number of
the children suffering from autism has increased
12 fold in the last 30 years. Research
team lead by Professor Baron-Cohen studied
Cambridge school registers of children with
special educational
needs.
Data analysis
showed 1 per cent of children affected by
autism. Questionnaire given to parents confirmed
41 new cases. Data
analysis revealed that including
undiagnosed cases, one in 64 children suffer
from autism which is 1.5 per cent of the
population. This means that nearly 500,000 to
750,000 children suffer from autism.
|
 |
A window on the fetus -
The placenta - or afterbirth - has long been
regarded by obstetricians and midwives as an
afterthought. The dark reddish-blue or maroon
gob about 22 centimeters in diameter and
weighing about half a kilo connects the
developing embryo/fetus to the wall of the
uterus and provides it with nutrients from its
mother while removing fetal waste to be
eliminated by the mother's kidneys. Tiny blood
vessels branch out over its surface and form a
network covered by a thin layer of epidermal
cells, thus forming finger-shaped structures
called chorionic villi.
|
 |
Can a harmless UFO obsessive stricken by autism
be saved from 70 years in a brutal
American jail? The fate of
self-confessed 'bumbling computer nerd' and UFO
spotter Gary McKinnon - who faces extradition to
the U.S. and a possible 70-year prison sentence
after hacking into 97 military and Nasa
computers - hangs in the balance. In just
a few days, this softly-spoken 43-year- old, who
suffers from Asperger's Syndrome (a form of
autism), will go to the High Court in London for
a judicial review that might allow him to appeal
again against his extradition. This will be his
last chance to stop the British Government
sending him for trial in the U.S., where, if
found guilty, he could spend what's left of his
life in a maximum security jail in New Jersey.
McKinnon's crime was to hack into U.S. military
computers in a naive attempt to unearth secrets
about the existence of alien life. It was
thoughtless technological vandalism, certainly.
Yet in an astonishingly heavy-handed campaign,
the U.S. authorities have sought to have
McKinnon extradited using an agreement to aid
the prosecution of terror suspects. His case
hasn't gone unnoticed. |
 |
Card to help police and autism sufferers - A
JOINT scheme to improve communications between
police and people with autistic conditions was
launched this week. The link-up between
the Durham force and the National Autistic
Society aims to assist when police and those
with an autism disorder, or related conditions,
like Asperger’s Syndrome, come into contact.
More than 1,000 laminated cards, each the size
of a credit card, are being distributed by the
society in the North-East. The Autism
Alert Card carries a help-line number for the
NAS as well as personal details. On the
reverse, it lists how their behaviour might be
affected by their condition, as they may have
difficulty communicating or might appear to be
anxious if the situation in which they find
themselves is unfamiliar. |
 |
Custom Ornament Company Launches Suncatchers
/ Rhode Island Manufacturer, ChemArt
Company adds new capability to custom ornament
and keepsakes into their already robust keepsake
capabilities. - ChemArt proudly
announces the launch of suncatchers into their
already robust keepsake and custom ornament
capabilities. ChemArt is continuously
striving for new techniques that set them apart
from others in the photochemical etching and
metal forming business. A natural extension
beyond custom Christmas ornaments, the
suncatcher takes the product off the tree and
allows for use as broader year-round accents in
the home or office. "Ornaments, as we have shown
over the years, can be many things - keepsakes,
mementos, souvenirs, commemoratives, etc…,"
commented Deb Parkinson, Vice President of Sales
and Marketing for ChemArt. |
 |
Daddys Lanka offers new hope for Autism
sufferers - Autism is a childhood neuro
developmental disorder, which involves the
psychological and social development of the
child. Autism can be identified by three major
domains of involvement, namely, Social
Communication, Social Interaction and Restricted
Repetitive and Stereo-typed Interest, Behaviour
and Activities. The Social Communication
domain includes poor or delayed development of
speech or loss of speech which may me associated
with the repetition of words referred to as
'Echolalia'. Social Interaction domain includes
a child's lack of the basic social interaction
capabilities which include such capabilities
like joint attention, the child's level of play
and poor eye contact etc. |
 |
David Kirby's Autism One Presentation: Metals,
Myelin & Mitochondria Pathways to Autism? -
Managing Editor's Note: Click HERE to
see the entire presentation in a printable Word
doc. Due to the number of slides, we've
broken the presentation into three separate
posts to speed up loading the post onto your
computer. This is part 1 of 4.
Part 1
Part 2
Part 3
Part 4 By David Kirby
|
 |
DOCTORS WARN: AVOID GENETICALLY MODIFIED FOODS
- On May 19th, the American Academy of
Environmental Medicine (AAEM) called on
“Physicians to educate their patients, the
medical community, and the public to avoid GM
(genetically modified) foods when possible and
provide educational materials concerning GM
foods and health risks.”[1]
They called for a moratorium on GM foods,
long-term independent studies, and labeling.
AAEM’s position paper stated, “Several animal
studies indicate serious health risks associated
with GM food,” including infertility, immune
problems, accelerated aging, insulin regulation,
and changes in major organs and the
gastrointestinal system.
They conclude,
“There is more than a casual association between
GM foods and adverse health effects. There is
causation,” as defined by recognized
scientific criteria. “The strength of
association and consistency between GM foods and
disease is confirmed in several animal studies.”
|
 |
Family farewell 'unique person' - The foster
parents of a fatal hit-and-run victim who was
successfully managing Asperger's Syndrome say
they feel no malice towards the driver.
Michael Ritchie, 24, was knocked down while
walking on a footpath near his West Auckland
home last week. He was rushed to Auckland
Hospital by ambulance but died of his injuries
two days later. A 20-year-old woman was charged
with traffic offences. She appeared in the
Waitakere District Court and was remanded on
bail until June 24. Police spokesman Kevin
Loughlin said Michael's death was still being
investigated and the driver was likely to face
further charges. |
 |
Forever Darling Presents Fashion for Autism
Speaks - Forever Darling Three Fashion Show
Announces Event Date: September 10, 2009
An inspiring evening where fashion and art come
together to support local businesses, designers
and a great cause. The Forever Darling Fashion
Show is an innovative annual fashion event that
recognizes and promotes Denver’s fashion
designers, jewelry designers, artists,
hairstylists and local businesses while raising
money for a deserving charity. This year’s
event, Forever Darling Three, will be held from
5:00-11:00 p.m. on Thursday, September 10, 2009,
at Mile High Station in Denver, 2027 W. Lower
Colfax Ave. The event begins at 5:00 p.m. with a
fashion market and “to-die-for” dessert
tastings. The fashion show starts at 8:00 p.m.
|
 |
Germany's Robert Koch Institute is Questioning
the effectiveness of the HPV vaccines. -
All
around the world concerns are mounting about the
effectiveness and the safety of the HPV
vaccines. Whilst many of our Governments refuse
to listen to public concern and ignore the ever
increasing numbers of children who have had
adverse reactions to the Gardasil and Cervarix
vaccines, in Germany their concerns are
at last being looked at and examined carefully.
The Robert Koch Institute in Germany which makes
recommendations on the public funding of
vaccines, is reviewing its vaccination programme
after 13 experts called for a reassessment of
its HPV vaccination programme and an end to
"misleading information" about the effectiveness
of the jab. |
 |
Girl Raises Awareness With Autism Walk In UA
- A fifth-grade girl at Upper Arlington
organized
a walk for autism at Tremont Elementary School.
Eleven-year-old Tina Hohman wants her classmates
to know what autism is and that children with
autism can go to school and play just like other
children. Tina’s brother Thomas has autism
and joined his sister and mother on the walk
around school property. Tina and her
friends at Tremont Elementary School in Upper
Arlington came up with the idea of a walk
and took their idea to the principal and Tina’s
mom. Mary Lynn Bates says she’s proud of
her daughter and agrees more people need to know
about the condition. The Hohmans say one in 150
children has autism. They say more funding is
needed for treatment and research. They would
also like to see more private insurance
companies cover therapies for children with
autism. |
 |
Many autism cases are 'undiagnosed' -
Cambridge researchers have recently reported
that for
every three children with autism and related
disorders two others remain undiagnosed.
Autism is the most common developmental disorder
characterized by impaired social interaction,
problems with verbal and nonverbal
communication, and unusual, repetitive or
severely limited activities and interests.
Better recognition
of the condition by both parents and doctors,
wider and more accurate diagnostic criteria are
accounted responsible for the recent increase in
the number of autistic cases. Latest
reports have revealed that about one percent of
school-aged children have an autistic spectrum
disorder, indicating that the prevalence of the
disease has increased by 12 times in the past 30
years. |
 |
IPod application gives voice to boy with autism
- Rather than buying a pricey text-to-speech
device for her 7-year-old son with autism,
Leslie Clark bought him an iPod Touch and
downloaded an application called
Proloquo2Go that allows him to play
prerecorded phrases to people and his service
dog. But one autism advocate expresses concern
about relying on technology. "If we could get
children to talk without using technology, that
would be our preference," said Ronald Leaf,
director of Autism Partnership.
USA TODAY (05/28) |
 |
Matthew battled through adversity during hard
times - A KEEN musician and charity
fund-raiser
has received the Rochdale Childer Award for his
hard work in the face of adversity. Matthew
Rowden of Rochdale, a Year 13 pupil at Rishworth
School, Ripponden, coped with the sudden death
of his father when he was in lower school and he
was diagnosed with Asperger’s Syndrome, an
autism spectrum disorder. Matthew sings
regularly for his parish church choir, he enjoys
charity work and his support for his school is
‘both unstinting and unfailingly enthusiastic’.
As well as being a member of the school choir he
sings with four others outside of school. He has
been a valuable member of the Rishworth Singers
throughout his school life and he has
accompanied them on a number of musical tours,
including to Prague, Venice and Lake Garda and
the highlight was singing in a mass at St Mark's
in Venice. |
 |
Meet Ella: Sister Warrior
- This little
cutie is named Ella.
She raised $310 this Spring
for
TACA on
behalf
of her brother with autism.
I recently wrote about the book, Boy Alone, a memoir
about having a brother
with autism. I hope sweet
Ella
faces easier choices when
she grows up. |
 |
School's sensory room helps disabled students
- In this room, unlike anywhere else in his
life, Eric Kercado, who is profoundly deaf and
has limited vision, is in control. Sitting in
front of a small fan, 6-year-old Eric presses a
big round button turning the air on and off, on
and off. He smiles as the breeze hits his face.
He sinks into a color-changing pool filled with
clear plastic balls that vibrate to music, which
makes him shake his arms and grunt with
excitement. |
 |
What will it take?
-
Nevada became the
12th state to pass autism insurance mandates.
New Mexico, Montana and Utah also passed
legislation in 2009. Connecticut and New Jersey
aren't far behind. Our legislators say,
"Oklahoma is unique from other states regarding
the uninsured." Florida, Louisiana, Arizona and
Texas all have high uninsured rates. All have
passed autism insurance legislation and all are
red states. |
05-27-2009
 |
A home for art - It's not the British
Museum. It's not the Louve. It's not even The
Rooms. It's 74 Quidi Vidi Rd .,
home to the city's newest art gallery, and to
Vanessa Mary Wade, its creator. Wade has made
her second-floor apartment a place where artists
can display their work, officially opening her
doors to the public on May 23. The gallery is
available to anyone who wants to exhibit their
work, but Wade says it's a good opportunity for
less experienced artists who are too intimidated
to show their art to a bigger audience. "I kind
of want it to help people who haven't done a
show before," she said. "To help them get a foot
in the door, even if it's a small show in an
apartment." Opening night featured work by Teri
Tulk, the first time she let the public see her
paintings. She took up art after her
four-year-old son was diagnosed with autism.
Tulk spends four hours a day at home supervising
her son's therapy. "It gives me a little more
confidence," said Tulk, who sold three of her
pieces on opening night. "It introduces me to
the art world and what to expect. It's kind of
down low, but out there at the same time. "I
just picked it up as a hobby. It's not something
I was trained to do, so to have stuff out there
is pretty interesting." Tulk added she was
nervous to show people her work, something Wade
said is common among new artists.
|
 |
Abuse of students cited in lawsuit -
Attorneys for the families of special-needs
students allegedly abused by a city teacher
filed a petition Wednesday for a class-action
complaint against the teacher and members of the
Board of Education on behalf of what they
believe may be a large number of victims. “The
number of children who were abused may be in the
hundreds,” said attorney James Sullivan of
Howard, Kohn, Sprague & FitzGerald in
HartfordThe complaint was filed in United States
District Court, District of Connecticut in
Hartford, and names Michelle Campbell, a teacher
at Chamberlain Elementary School, for allegedly
using unreasonable force, unlawful restraint and
physical, psychological and emotional abuse
against special-needs students dating back to
1999. Within three other counts in the lawsuit,
it alleges civil rights violations, negligent
infliction of emotional distress and breach of
fiduciary duty, all against Superintendent Doris
Kurtz, Chamberlain Principal Jane Perez and the
Board of Education of the Consolidated School
District of New Britain.. |
 |
DA: Missing Pa. mom, girl found at Disney World
- A suburban mother who claimed she and her
daughter had
been
abducted and stuffed in a car trunk is in
custody in Florida after the pair were found at
Disney World, wherethey had flown hours after
the mother reporting their abduction, a
prosecutor said Wednesday. Bonnie Sweeten, 38,
of Feasterville, will be charged with false
reports and identity theft, both misdemeanors,
Bucks County District Attorney Michelle Henry
said. "We're pleased to be able to announce that
she's in custody and more importantly that her
9-year-old daughter is safe," Henry said. Henry
told reporters that Sweeten borrowed a
co-worker's driver's license and presented it as
her own when she bought an airline ticket and
flew to Orlando, Fla., then checked into the
Grand Floridian Hotel with her daughter, Julia
Rakoczy. The two were taken into custody at the
hotel Wednesday evening, Henry said.
|
 |
Gene mutation increases risk for autism,
caffeine and electronic media may cause kids to
fall asleep in class - Researchers say they
have discover a genetic mutation that greatly
increases the risk for autism. Children's
Hospital of Philadelphia researchers tested
thousands of children from around the country.
They found a particular genetic mutation in
about 65 percent of children with autism.
|
 |
In Rare Disorder, a Familiar Protein Disrupts
Gene Function - An
international team of scientists studying a rare
genetic disease discovered that a bundle of
proteins with the long-established function of
keeping chromosomes together also plays an
important role in regulating genes in humans.
When gene regulation is disrupted in the
multisystem genetic disease Cornelia deLange
syndrome (CdLS), children may suffer missing
hands or fingers, mental retardation, growth
failure, cleft palate, heart defects, and other
impairments. For families and patients, better
knowledge of how those genes perturb normal
development may enable researchers to design
better diagnostic tests for the disease, and
also provide targets for eventual treatments.
The study appeared May 26 in the online journal
Public Library of Science Biology (PloS
Biology). The study leader was Ian D. Krantz,
M.D., a specialist in pediatric genetics at The
Children's Hospital of Philadelphia, where he
directs a unique full-service clinic for
children with CdLS. |
 |
Lessons from the vaccine-autism wars
- Researchers long ago rejected the theory that
vaccines cause autism, yet many parents don't
believe them. Can scientists bridge the gap
between evidence and doubt? This week, the
open-access journal PLoS Biology
investigates why the debunked vaccine-autism
theory won't go away. Senior science
writer/editor Liza Gross talks to medical
anthropologists, science historians, vaccine
experts, social scientists, and pediatricians to
explore the factors keeping the dangerous notion
alive—and its proponents so vitriolic.
Pediatrician Paul Offit has made it his mission
to set the record straight: vaccines don't cause
autism. But he won't go on Larry King Live—where
he could reach millions of viewers—or anyplace
celebrity anti-vaccine crusaders like Jenny
McCarthy appear. ''Every story has a hero,
victim, and villain,'' he explains. ''McCarthy
is the hero, her child is the victim—and that
leaves one role for you.'' |
 |
'Lexie's Law' would fix bad ruling - State
Sen. Jorge Luis Garcia, D-Tucson,
claims Republicans are "pandering" to
corporations ("Republicans' pandering is hurting
those in need," Opinions, Saturday). But, in
truth, the governor and the Legislature are
working to rescue our state's most vulnerable
kids with legislation named after my daughter,
Lexie. This is legislation that would fix a
wrongly decided Arizona Supreme Court decision.
A proposed corporate-tax credit would create
scholarships that Lexie (who has autism,
cerebral palsy and mild mental retardation) and
others like her desperately need. The program
allows private charitable organizations to ask
for contributions from corporations to fund
private-school scholarships. Corporations that
contribute are eligible for a dollar-for-dollar
tax credit against their income taxes.
|
 |
Living with Music: A Playlist by Francisco X.
Stork - The young-adult novelist
Francisco X. Stork is the author ,
most recently, of
“Marcelo in the Real World.”
Music plays an important role in “Marcelo in the
Real World.” Marcelo Sandoval, the 17-year-old
protagonist, hears music no one else can — part
of an autism-like condition that no doctor has
been able to identify. What’s the internal music
like? Marcelo cannot describe it. “Does it sound
like regular music? Does it have a melody?”
Marcelo’s doctor asks. “It is the feelings of
music without the sounds.” That’s as precise as
Marcelo can get. Every work of fiction
is to some extent autobiographical. Music has
always been for me a symbol of the
inexpressible. It is not simply that a word like
“happiness” or “sorrow” can never convey the
inarticulate richness of our feelings. It is
also that sometimes it is through music that we
perceive wholeness. Marcelo describes it this
way: “When the internal music is there, Marcelo
is one of the seeds. The music is the rest of
the watermelon.” As Marcelo immerses
himself in the real world, his ability to hear
the internal music diminishes and he is forced
to “find the right notes” by learning how to
improvise. Marcelo is fortunate to befriend
Jasmine, a co-worker who also happens to be a
jazz pianist and who encourages him to trust his
moral sense that “the right note sounds right
and the wrong note sounds wrong.” Marcelo, who
up to meeting Jasmine has been interested only
in classical music, is introduced to jazz, which
becomes a symbol of his need to go beyond the
classical, structured concepts of right and
wrong toward a greater acceptance of the new and
sometimes jarring combinations of notes that
life offers. Here are some of the musical pieces
that were incorporated into the novel or that
were meaningful to me as I wrote it.
|
 |
Olmsted on Autism: How to Completely Miss
the Story - The New York Times published a
piece over the Memorial Day weekend that must
have been painful to write – they now realize
they had the Watergate scandal handed to them on
a silver platter four decades ago and just plain
missed it. “The Watergate break-in eventually
forced a presidential resignation and turned two
Washington Post reporters into pop-culture
heroes. But almost 37 years after the break-in,
two former New York Times journalists have
stepped forward to say that The Times had the
scandal nearly in its grasp before The Post did
— and let it slip.” |
 |
One in Twenty Children Contract Whooping Cough
if not Vaccinated - According to a study
released by Kaiser Permanente Colorado's
Institute for Health Research Wednesday, one in
20 children who are not vaccinated against
whooping cough catch the disease. The report,
which surveyed 751 children enrolled in Kaiser
Permanente of Colorado, also found that in
children who are vaccinated against the disease,
only one in 500 came down with it. According to
the authors of the report, the results show a
continued need to "further understand why
parents refuse immunizations and to develop
strategies for conveying the risks and benefits
of immunizations to parents more effectively."
|
 |
Police search for missing boy near Polson Pier
- An intensive search was underway Wednesday for
a missing 16 -year-old
from Peterborough. Between 45 and 50 police
officers were involved in the search for Mason
MacPhail. He was last seen around 9:30 p.m.
Tuesday at the Sound Academy, formerly The
Docks, at Polson Pier where he had been to an
all-ages concert with friends. Police studied
surveillance video from the club and said he was
seen on the tape inside the building and in the
parking lot. Police on horseback were searching
in the Beach neighbourhood, east of Polson Pier,
while the marine unit is checking the water near
the pier and the shipping lanes. His mother said
the last she heard from her son was a text
message Tuesday night asking to be picked up at
a specific spot in Peterborough where his
friends were to drop him off. He never showed
up. Police and his family are worried about his
safety because he has a mild form of autism --
MacPhail has Aspergers Syndrome -- which makes
it difficult for him to determine direction plus
he's not familiar with Toronto other than the
Eaton Centre. |
 |
Scientists reaching consensus on how brain
processes speech - Neuroscientists feel they
are much closer to an accepted unified theory
about how the brain processes speech and
language, according to a scientist at Georgetown
University Medical Centre who first laid the
concepts a decade ago and who has now published
a review article confirming the theory. In the
June issue of Nature Neuroscience, the
investigator, Josef Rauschecker, PhD, and his
co-author, Sophie Scott, PhD, a neuroscientist
at University College, London, say that both
human and non-human primate studies have
confirmed that speech, one important facet of
language, is processed in the brain along two
parallel pathways, each of which run from lower-
to higher-functioning neural regions.
|
 |
Study: Parents' vaccine refusals lead to
resurgence of whooping cough - One in 20
children who skipped the pertussis childhood
vaccine developed whooping cough, compared with
one in 500 vaccinated children, according to a
study in Pediatrics. The lead researcher
said the disease's recent resurgence has come
about because more parents are choosing not to
vaccinate their children. Studies and anecdotal
evidence show parents fear a connection between
vaccines and autism and other disorders.
USA TODAY (05/26)
Disability Scoop (05/26)
National Public Radio (05/26)
|
 |
Top 10 Tips for Parenting an Autistic
Child - Raising a developmentally different
child is a challenge for most parents. The
challenge begins when parents first learn that
their child is not “normal.” For some parents,
this occurs at or before the child’s birth. For
others, their child, who appeared “typical” at
birth and even for several months or years
thereafter, suddenly develops problems that are
not so “typical.” In either case, once
parents learn – or even suspect – that their
child is developmentally challenged, a natural
period of mourning and sadness occurs, for them
and also for their family members. The fact that
family members (i.e., grandparents, siblings,
uncles, aunts), and even close friends are
affected is very important to consider, because
these people are part of the parents’ usual
support system. They may have a difficult time
responding to the grieving parents because they,
too, are dealing with their own pain and loss.
|
 |
The question "Do vaccines cause brain damage?"
finally answered - May 26, 2009, Fort
Collins, CO. Canadian physician,
Dr. Andrew Moulden BA, MA, MD, PhD, and
leader of the
Canadian Action Party will join radio talk
show host, Leslie Botha, safe vaccine advocate
and researcher,
Cynthia Janak and
Dr. Judi Gerstung on
Holy Hormones Honey the Greatest Story Never
Told! on community radio,
KRFC FM 88.9, Monday, June 1 from 6 to 7 pm
MST. The show will be audio streamed via the
KRFC web site. For the past seven months,
the popular talk show has focused on the dangers
of Gardasil, Childhood Immunizations and the
Anthrax vaccine that has been linked to the Gulf
War syndrome. The hosts have interviewed
parents, and medical experts as they strive to
share information about the dangerous and toxic
adjuvants that are used in the vaccine serums as
preservatives and additives. After months of
research and combing FDA, CDC and myriads of
pharmaceutical documents, Janak and Botha
discussed the link between vaccines with toxic
compounds, and neurological damage. In February,
on a show titled: "Gardasil Girls Give the
Silent Faces of Autism a Voice," and with
documentation in hand, they announced that the
Gardasil vaccine and childhood immunizations
were responsible for brain damage.
|
 |
Why Generation Rescue shouldn't be on the IACC
- I have been very critical of the lobbying
efforts of Generation Rescue. I have found their
actions to be far from helpful in the struggle
to obtain quality research for people with
autism. One issue I haven’t covered is the fact
that Generation Rescue has been lobbying hard
for a seat on the Interagency Autism
Coordinating Committee (IACC). The IACC, as you
might guess, coordinates research efforts
amongst various government agencies. They do
this by creating a “strategic plan” which puts
forth initiatives that should be funded. For
example, one “short term goal” listed on the
Strategic Plan is: |
05-26-2009
 |
A Memory for Faces, Extreme Version -
Jennifer Jarett never forgets a face. A few
years ago, shortly after she moved to New York
City, one of her friends pointed out a young man
standing on the other side of the room at a
party. Ms. Jarett took one look and said, “Oh, I
know who he is — I went to Hebrew school with
him in fourth grade.” At the time, Ms.
Jarett, who is now 38, had not seen the boy in
nearly two decades, since they were both
children. |
 |
Asperger's Diagnoses May Redefine What Is Normal
- Instead of looking for cures for those with
autism spectrum disorders, some think society
should value their special gifts. Can We
Learn Acceptance? Although more adults have been
diagnosed with Asperger's syndrome in recent
years, some experts, as well as those who have
the autism spectrum disorder, contend that a
cure is not necessary. Rather, acceptance of
different personality traits is in order, they
claim. |
 |
ChARM demos first online app for autism
treatment - Zoho is perhaps best known for
its range of free online productivity and
collaborative tools – Zoho Office – which
competes with Google Docs, but most recently the
company has donated its development platform and
resources to the treatment of autism with the
newly launched ChARMTracker. What
ChARMTracker does is provide an online tool
– the first of its kind – for parents of
children with autistic spectrum disorders (AUD),
enabling them to gather and track information on
treatments, and dietary and health conditions. |
 |
Conference discusses whether diet can 'heal'
autism - For the parents of children with
autism, social and communicative symptoms are
complicated with physical problems like
constipation, diarrhea, digestive pain and gas.
Can putting a child on a special diet really
reduce or even eliminate autism though?“We know
that kids with autism have nutrient
deficiencies,” said San Francisco-based Julie
Matthews, a certified nutrition consultant and
author of “Nourishing Hope for Autism,” at
international nonprofit Autism One’s conference
at the Westin O’Hare last weekend. “When we
[develop] an autism diet, we want to focus on
getting good nutrition in.” |
 |
Dolphin therapists replaced by
robot doubles /
Seriously. We're not making this up - Were
the
sardine bills too high? Or is it just another
ploy by our soon-to-be mechanised overlords to
enslave a whole new generation of human
children? Whatever the reason, the writing
is on the swimming pool wall for the dolphins
that work with special needs children in the
interactive
splash-fest known as Dolphin Human Therapy (DHT). |
 |
Healthy Difference on 'Today's THV at 5':
Vaccinations - In Tuesday's Healthy
Difference, a new study on vaccines,
particularly the whooping cough vaccine. There
has been concern that the risks outweigh the
benefits, but according to a new study, the case
for having your child vaccinated is a little
stronger. Jennifer Luria's two-year-old
twins started their vaccinations but she became
concerned when Benjamin started having seizures.
Jennifer stopped his shots even though there's
no evidence the vaccines caused the seizures.
Jennifer says, "My mother and pediatrician,
people I trust say are you insane of course you
vaccinate your kid. It's a public health risk
not to vaccinate your kids." |
 |
In Rare Disease, a Familiar Protein Disrupts
Gene Function - An international team of
scientists studying a rare genetic disease
discovered that a bundle of proteins with the
long-established function of keeping chromosomes
together also plays an important role in
regulating genes in humans. The finding that
cohesin, a protein complex, dysregulates gene
expression may improve diagnosis of the
multisystem genetic disease Cornelia de Lange
syndrome. |
 |
Is lurpon just a chemical restraint? - Since
it was first proposed by Mark and David Geier,
Lupron therapy for autism has been criticized
heavily. Do a google search—if your results are
like mine, the first hit is a blog post by
Kathleen Seidel “Playing
with Fire“. Ms. Seidel has done much to
expose the questionable methods used by the
Geiers to promote Lupron as a therapy for
autism. Her
list of Lupron links is quite valuable for
anyone considering this therapy. Top amongst
those is a
blog post by Prometheus at the
Photon
in the Darkness blog, exposing the
questionable science behind the supposed
testosterone/mercury connection. |
 |
Mothers' talk is key to kids' social skills,
study says - Mothers often get blamed for
the way their children turn out, and a new study
gives additional weight to that accusation.
Mothers have opportunities to teach empathy
every day, psychologists say. Research from the
United Kingdom shows that the way mothers talk
to their children at a young age influences
their social skills later in childhood.
The study, funded by the Economic and Social
Research Council, found that children whose
mothers often talked to them about people's
feelings, beliefs, wants and intentions
developed better social understanding than
children whose mothers did not. |
 |
Portrait of a modern-day kindergarten classroom
- The bell rings… the teacher opens the door to
up to 22 four and five year old children who
look at her with eyes that expect the love and
support they need to reach their full potential.
Their parents look at her with high hopes for a
quality education. The teacher wants all of this
for each of the little ones placed in her care
and she vows to do her best. Then the year
starts… (Please note that this description has
been a typical class configuration in what would
be classified as three separate “typically
middle class” rather than “inner city
designated” urban schools for at least the past
6 of my 15 year career. It is also a relatively
moderate description – I have experienced more
challenging configurations…): |
 |
Simplifying The Sibling Relationship -
Recently we brought you
Scoop Essentials: Inside The
World Of Siblings, a conversation about what
it means to be the sibling of a person with a
developmental disability. Now, Don Meyer,
director of the
Sibling Support Project answers your
questions about how to promote positive sibling
interactions and what to do when resentment
creeps into the sibling dynamic.
My 16-year-old
son (gifted/ADHD) is filled with anger and
resentment toward his 11-year-old brother who
has a co-morbid dx of bipolar, ADHD, GAD, SID,
learning disabilities and most recently
Asperger’s. While my special needs child may be
11, he is more like a 6 or 7-year-old. No matter
how much progress he has made my 16-year-old has
no tolerance for him. He is his biggest trigger!
I tried last year to get him some therapy but
the therapist was not a match and now he refuses
to speak with anyone. I realize my 16-year-old
has been through hell and back with me and his
brother but feel there has to be something more
I can do. Any suggestions? — Stacy, 48 |
 |
The Artist Formerly Known as Severely Autistic:
Sam Debold Wows the Crowd at Autism One -
Managing Editor's Note: On Saturday night at the
Autism One dinner, young Sam Debold turned on
the charm (and every tear duct in the room) with
his muscial performance. Here is Dr. Andrew
Wakefield's introduction of Sam. You can see
Sam's complete performance, including the
intro, on the other side of the post jump. Just
click down. Ladies and Gentlemen, I
have just a very, very small role tonight and
that is to introduce someone that I first met
some years ago in Detroit. He’s a Red Wings
fan. And a when I met Sam Debold through my
great friend Vicky Debold, his mother, Sam was
profoundly autistic. And back then when I knew
very little about this disease, I wondered quite
what the prospects for Sam were. And I’ve been
following his progress over the years and Sam
has been doing extremely well. |
 |
Web site an aid to autistic children - After
nine years creating video games, Ben Throop
recently launched a Web site he says helps
educate children with learning disabilities,
specifically autism. More than 2,700 users
have created picture cards containing either
photos, symbols or plain text from a site called
Mrs. Riley (www.MrsRiley.com).
Animals, vegetables, school supplies and other
images are among about 3,000 symbols available
that can be placed onto a variety of template
sizes. |
 |
Why the anti-vaccine movement even exists? And
how it got started? - An article that is
likely to make the rounds of the science/medical
blogosphere (and get the anti-vaccer trolls out
of the woodwork): Researchers long ago
rejected the theory that vaccines cause autism,
yet many parents don't believe them. Can
scientists bridge the gap between evidence and
doubt?Writes Liza Gross in the latest Feature
article in PLoS Biology:
A Broken Trust: Lessons from the Vaccine-Autism
Wars: |
 |
You are neurodiverse…. - We don’t all think
the same way. We just don’t. There is a
“diversity” in our thought processes. Our
neurology. So, I find it interesting when people
talk about “those neurodiverse” or in some other
way try to make it an “us vs. them” subject. As
Jake and Elwood said, Some things that
make us all the same. You, me them, everybody,
everybody. In this case, it is our
differences that make us the same. Everybody is
neurodiverse. Everybody’s mind thinks just a
little different from anyone else’s on this
planet. And, that is what makes us all
neurodiverse. The problem comes up when we move
from “Neurodiverse” to the “Neurodiverisity
movement”. |
05-25-2009
 |
A controversial treatment for autism is
giving desperate parents hope for their
children. The testosterone-related treatment is
condemned by some people and praised by others. |
 |
Autism, ADD and Risperdal: CBS news clip alert
- If you missed this information, you may want
to view this CBS news segment. There evidently
are drug side effects to the commonly prescribed
pharmaceutical, Risperdal....commonly prescribed
for certain autism symptoms, ADD and bi-polar
disorder. If you know of anyone's child who is
being prescribed this medication, or may be
considering it, the following is information you
may want to pass on. |
 |
Autism / OP ED ~
Ref: Growing Old With Autism by
Karl Taro Greenfeld - NY Times - This
article just breaks my heart. It is so true. My
elder son is high-functioning autistic, now in
his mid-forties. When he was a child there was
very little awareness of, or advocacy for,
autism. In fact, we could not even get the staff
of Bradley Hospital (a psychiatric hospital for
children) even to use the word "autism." "We do
not put labels on things" they smugly told us.
It was, and continues to be, an unending,
frustrating, heartbreaking struggle against
professional hubris and ignorance, and societal
indifference. When he turned eighteen he
made the instant transition from being a
troubled child, with some level of state
funding, and thus an object of tsk-tsk pity, to
being a troubled adult with an intractable
long-term disability and no umbrella of
protective legislation. |
 |
Autistic-like could mean SPD: Catch it in early
childhood - Autistic, autism-like, hyper
active,
asperger's syndrome... what do all of these
terms have in common? They carry an element of
fear and uncertainty for parents of children who
have behaviors that "just do not feel right" to
them, and are attempting to field through the
potential diagnoses for their children.
Initially my thought was to begin this series
with the study of A. Jean Ayers and the history
of SI, sensory integration, but it has been
brought to my attention that SI has actually
evolved into an extended mode of thought called
SP or sensory processing, ergo we will take this
trajectory of topic in an attempt to provide the
most current and meaningful information as
quickly as possible. |
 |
Bernie Marcus Speaks Out on Autism and Autism
Case - As interest in the Stefan Ferrari
case gains national attention with website
commentaries and hundreds of emails, one of the
country's leading benefactors of bringing
awareness and care to children with
autism--Bernie Marcus is speaking out. Mr.
Marcus is the Founder of the Marcus Institute
and Autism Center and the Co-Founder of Autism
Speaks. His Center has already treated
more than 30,000 children with autism---one of
the first of those was Stefan Ferrari. His
outrage about what happened to Stefan was
intense. |
 |
Do we live in a blame the parent culture?
Vaccines vs SBS. - In the USA at the end of
last year
premature twins were born, one of which was very
weak and ill with many health problems. For days
his little life hung in the balance as he fought
off one infection after another, through
problems in the womb he had very poor weight
gain and continued with poor feeding problems.
Despite these problems however, not only was he
given a huge cocktail of drugs but also his 1st
Hepatitis B shot. Due to anaemia he was given a
blood transfusion and his condition remained
critical. Within days despite bloody stools and
still losing weight, the 2nd Hep B shot was
given and a day later he was discharged. Within
just 10 mins of being home he stopped breathing.
He was rushed back to the hospital but because
he was crying and seemed fine the doctor advised
that in premature babies it was normal to have
periodic breathing and again discharged this
baby. |
 |
Early childhood SPD: New movie out!
Autistic-like...preview it here - For those
of you who are
coming along with me on the SPD discovery
experience, I have received an exciting video
preview titled, Autistic-like. I was very
excited to receive this compilation of anecdotal
documentation and therapist/parent feedback in
the form of a case study of a young man named
Graham. Please be sure to visit the web site
after viewing this clip where you can access
information regarding screenings of the movie,
who the filmmakers are, news releases about the
movie and how you can actually buy the DVD. This
movie by Erik Linthorst is a "must watch" by any
parent struggling with sensory issues. The
reviews are rave, and it is sure to touch your
heart and potentially give you hope. |
 |
Embarrassed by autism? - How does it feel to
the be the parent - or sibling - of the kid who
takes the short bus? Who flicks his fingers in
the air... flaps his hands... and seems
oblivious of the odd looks his actions provoke?
How does it feel to be the parent of a child who
looks normal, is clearly bright, but who
dissolves into tears at the slightest
provocation? What's it like to watch your
brother or sister delightedly tune in to baby
shows, play with baby toys, and act like a
toddler - in front of your friends? Bottom line,
autism can be embarrassing. |
 |
Finding day care difficult for parents of
autistic kids - When Lori Geiger
enrolled her autistic son in day care three
years ago, she hoped that interacting with
children his age, he would improve his social
development. For a while, it helped. But Nicky,
who is now 4, became increasingly curious as he
grew in size, and keeping an eye on him became
more of a challenge at the child-care center.
“He was all over the place; he was exploring,
going in the toilet area, climbing on the
tables,” said the Mount Airy mother of three.
“The teachers couldn’t keep up with him.” While
the staff loved her son, they lacked the
training to work with a special needs child, so
last fall Geiger made the decision to pull Nicky
out of day care. |
 |
Foster unveils legislation for miliary benefits
- Flanked by a military family, Congressman Bill
Foster said Monday he plans to pursue
legislation that would allow them and all other
such families with special needs children to
collect a greater chunk of family survivor
benefits. The proposed bill would allow
military personnel to designate pension
contributions for trust funds for the benefit of
family members with special needs. Nonmilitary
government workers already are currently
entitled to set up such "blind trusts" which
would keep dependents from being barred from
also collecting Social Security disability
benefits, Foster said. |
 |
IRPW'S Yomin Postelnik Launches Autism Health
and Wellness Magazine - In April, IRPW and
company president Yomin Postelnik launched a new
magazine, Autism Health and Wellness. The
magazine is designed to explore health issues
and promote advocacy for the special needs
community. Postelnik has previously developed
several programs for teens with autism and has
worked closely with the South Florida non-profit
community since 2004. The magazine is an
extension of www.AutismHealthandWellness.com,
which has been a lead online advocate for Autism
issues, advocacy and information since last year
and which has developed a significant presence
on Twitter and other online networks. |
 |
Joanie Garro speaks to parents about writing IEP
goals - Thursday, May 21, Joanie Garro, MA,
BCBA, CT spent over two hours with parents, at
the
United Way offices in Clear Lake, as she
worked with them on how to write appropriate
goals for their special needs kids' Individual
Education Programs. Garro has been a classroom
teacher, special education teacher, professional
advocate and certified therapist as well as a
speaker in the local area for over 20 years. |
 |
Micro-Lending for Autism Treatment
Lend4Health.org Needs Your Vote! - The
biomedical treatment micro-lending site
Lend4Health has
been selected by a panel of five judges to be
one of 10 finalists in the "Designing for Better
Health" competition sponsored by the Robert Wood
Johnson Foundation and hosted by Ashoka's
Changemakers website. Online, public voting is
currently open through
May 28, 2009.
The top three entries with the most votes will
each win $5,000. Winners will be announced on
June 1. |
 |
Sensory
room a hit with disabled students - In this
room, unlike anywhere else in his life, Eric
Kercado, who is profoundly deaf and has limited
vision, is in control. Sitting in front of a
small fan, 6-year-old Eric presses a big round
button turning the air on and off, on and off.
He smiles as the breeze hits his face. He sinks
into a color-changing pool filled with clear
plastic balls that vibrate to music, which makes
him shake his arms and grunt with excitement.
This is the new sensory room at Hollywood Park
Elementary, part classroom, part indoor
playground. Special-education teachers hope
spots like this will help calm anxious kids and
stimulate nonresponsive ones during the school
day. |
 |
Starvation murder trial: girl was autistic -
A COURT has heard how the parents of a
seven-year-old girl, who allegedly died from
starvation, cancelled or did not turn up for a
number of specialist medical appointments and
that the child was given unprescribed medication
to help her sleep. The girl, whose parents are
on trial in East Maitland Supreme Court, was
found dead in a bedroom of the family's Hawks
Nest home on November 3, 2007. The court has
previously heard the girl died from starvation
and neglect. The married couple, a 47-year-old
man and a 35-year-old woman who cannot be
identified for legal reasons, have pleaded not
guilty to one count each of murder. |
 |
The Autism Community Needs to Learn a Lesson
- As is accepted by most rational people,
autism is a largely genetic difference,
albeit with a likely environmental component.
Over the last 10 years or so a seemingly
increasingly irrational desire to blame
vaccines for causing autism has been coupled
with a similarly irrational ‘cure at all cost’
mentality. The subsequent parent driven engine
has resulted in
autistic
kids being exposed to shysters, snake
oil salesman and out and out quacks selling
their own version on dangerous exploitation. |
 |
Thomas the Tank Engine a valuable autistic aid
- THOMAS the Tank Engine is coming to the rescue
again. After countless episodes averting
disaster on the fictional island of Sodor,
Thomas and his railway friends have a real-life
mission to help autistic children. A survey of
parents in the UK has found Thomas, James,
Gordon, Percy and all the other engines on the
Sodor railway have a particular appeal to
children with autism. This may be because they
have very clear facial expressions, Autism
Spectrum Australia (Aspect) says. So it's joined
forces with Thomas and Friends' owners, HiT
Entertainment, to use them in games and
promotions. |
 |
Top-five dairy-free Websites: no. 2 - No. 2
on my list is a site called Free from Market.
Where
else can you find allergen free, gluten free,
low protein, low carbohydrate and vegan
groceries, plus antibiotic-free grass-fed meats,
pharmaceutical grade supplements, chemical free
household cleaners, natural health and beauty
products, high tolerance air purifiers, and
dust-mite-repellant linens. |
05-24-2009
 |
Autism Mothers! - Here are some of the
autism mothers... Autism File style at the
Autism One dinner and auction.
|
 |
Autism: tests to discuss with your doctor if you
suspect your your child is autistic - I am
not a medical expert. I
am simply a parent who has been there, done that
as far as dealing with autism and getting the
right diagnosis and treatment for my kids.
This is a great article about diagnosing autism,
what a treatment team is, and how they work
together. If you feel like your child might
be autistic, I urge you to do your homework as a
parent.
This is a great on line assessment for children.
Also, be sure to ask your child’s doctor about
the following tests to make sure that there is
not another medical issue going on with your
child in addition to autism. In Georgia,
Emory University has an excellent pediatric
neurology department. Also, the
Marcus Autism center at Emory is very good.
However, the waiting list is quite long. |
 |
Autistic artist draws dinosaurs for book -
Now 18, Thomas' illustrations are the core of
the book, "Dinosaurs Through My Eyes." It's the
sub-title that might raise an eyebrow:
"Pre-historic illustrations from an austistic
mind." What Thomas lacks in verbal
communication, he relates in his drawings --
especially dinosaurs. "It's amazing what he can
draw," said Chris of Wisconsin Rapids. A
divorced dad, Chris has been raising Thomas and
his brother, Ben, 12, since the boys moved to
Wisconsin Raids in 2007. He has two other
children, Peter, 22, and Elizabeth, 20. Thomas
isn't comfortable around many people, and social
situations can be challenging. Those challenges
were leading Thomas on a downward spiral --
until he came to live with his dad. Chris
credits the staff at Lincoln High School in
Wisconsin Rapids for Thomas' successes. "Lincoln
saved his life," Chris said. "I can't tell you
how grateful I am to the staff there." |
 |
ChARM (Children's Autism Recovery Map) Treatment
Tracking Software from Silicon Valley-Based
MedicalMine to Be Unveiled At Autism One
Conference in Chicago May 24, 2009 -
MedicalMine, Inc. announced today that
ChARMTracker, a web-based application for autism
treatment : management, will debut nationally on
Sunday, May 24, at the Autism One Conference in
Chicago. ChARM is the first internet-based
system available in the market that enables
parents to gather, track and visualize complete
and comprehensive information they collect on
their children as they work to treat conditions
that are often present in kids with this
diagnosis – for example, gastrointestinal and
immunological issues or chronic infections.
MedicalMine, a chronic illness management
company, has more than 600 families worldwide
using ChARMTracker with the number of users
increasing daily. |
 |
David Kirby Live at Autism One - Here's
David Kirby presenting Metals, Myelin &
Mitochondria: Pathways to Autism?
|
 |
Dear President Obama, please help autistic
adults - Dear President Obama, My name is
Paul Morris and I am a 21 year old guy who is
high-functioning autistic. I was non-verbal
until the age of 5. Now that I am looking for
work and living with roommates, I am worried
about my life. It's going poorly for autistic
adults because the funding is over. I want you
to create programs for autism spectrum
disorders. Today, you donate lots of money to
autism. |
 |
Early childhood: Autism, PDD and sensory
integration - As the friend of a young man
diagnosed with Autism, it is interesting to
observe the controversy in media coverage
regarding blame and chastisement of “what or
who” is responsible for the explosion of
autistic like symptoms among our children. These
theories I will leave to others more expert in
divining the origin, but as a supportive friend
and an educator, my personal question is, “Okay,
for these children…what do I do now?” |
 |
Ernie Els: I want to find the causes of autism
/
Ernie Els: I want to find the causes of autism
- To the outside world he seems to have it all.
He is one of the world’s great golfers, has a
multimillionaire’s lifestyle, lives with his
young family in beautiful houses in England,
South Africa and the United States, and travels
the world in his private jet. But one day, two
years ago, the world fell in on Ernie Els — or
so he thought at the time. The South African was
told by doctors that his son, Ben, who was 5 at
the time, was autistic. And life for Els and his
wife Liezl was about to change for ever.
|
 |
Family faces uncertainty in dealing with autism
- With all the questions swirling around about
the causes and treatment of autism, Tim and Rose
Ziegeweid of Eau Claire know this much for sure:
Their only child didn't say her first words
until three weeks after starting an alternative
therapy to remove mercury from her body.
Sheryl Ziegeweid, diagnosed with autism at 18
months, was 7 years old at the time. The
Ziegeweids also recall Sheryl's development
taking a step backward after receiving infant
immunizations at 6 and 12 months - regression
they attribute to a form of mercury in those
shots. |
 |
Families of autistic children bond - Chad
Millner's autistic son, Gareth, can be a
handful, making it difficult for the West Jordan
dad to get out much with the kids, especially
without the help of his wife. But on
Saturday, Millner strolled through Tanner Plaza
at Westminster College as Gareth, 5, and his
twin sister, who is not autistic, remained
occupied by students coordinating an array of
activities at a free event for families affected
by autism. "A lot of people don't realize
how difficult it is to take an autistic child
places," Millner said. "Something like this is
so nice because both of them are having fun and
I'm not all stressed out." Science has yet
to discover the cause of autism, which can lead
to unusual or repetitive behavior, problems
communicating and difficulty with social
interactions. |
 |
Families praise passage of autism bill -
It's cost years of heartache and literally
millions of dollars for thousands of families
affected by autism. Next week, everything will
finally change. Colorado Governor
Bill Ritter is expected to sign Senate Bill 244
into law on Tuesday, June 2nd. The bill creates
a law requires health insurance companies to
cover assessment, diagnosis and treatment of
autism. That treatment includes
Applied Behavioral Analysis (ABA). When begun at
an early age, ABA can literally save families as
much as $2 million over the course of the
lifetime of someone with autism. On average,
families touched by autism spend close to $3.5
million for treatment when they don't have
access to ABA. |
 |
Graduating class of four overcame adversity
together - Donnie was feeling pretty good
about his two upcoming
graduation ceremonies. Leaning back in a chair,
he spun his black fedora on his finger and said,
“Yeah, I’m going to walk with my sister at my
other school and then I’ve got this one.” Across
the table, Matt looked thrown. He turned to the
teacher. “I don’t have anybody to walk with me,”
Matt, 20, told the woman. Donnie, 19, stopped
spinning the hat. “I’ll walk with you,” he said.
“A friend shouldn’t walk alone. Not for
graduation.” Tight, these two. They comprise
exactly one half of the 2009 graduating class of
the Rainbow Center for Communicative Disorders |
 |
Inexpensive home therapies for autism -
There are quite a few inexpensive at home helps
for your autistic child. A good place to start
is turning off the TV. I was amazed at the
difference when I took the TV out of the
playroom and my sons didn’t get to perseverate.
Though it was harder at first, they started
understanding the value of being in our world
more. This is the hardest home tip! Also, a
weighted blanket is a great thing to have
for TV time and during bedtime routines. |
 |
No More Meltdowns book review - I was
sorting through a stack of things and came
across several educational
books someone sent me to review. The first is
No More Meltdowns by Jed Baker, Ph.D. The
book cover states that it offers positive
strategies for managing and preventing
out-of-control behavior. The first thing I
noticed was that the book is actually readable.
This is essential, since most people reading it
will be exhausted parents who are desperate to
find a solution for their children's behavior.
The chapters are divided into three sections:
The Problem, The Solution and Plans for the Four
Types of Meltdown Situations. Two forms, a
general calming plan form and a prevention plan
form, are included in the book and help parents
tailor what they've learned to their children's
situations. |
 |
Parent advocacy vs. school districts 0 For
most parents the school year is nearing an end
and fun summer
activities are the only things on the list for
the next three months. But, for many parents;
the parents who have a child that needs extra
support in school through an IEP (Individual
Education Plan), they will spend their summer
learning educational law, tearing their hair out
trying to understand the IDEA, Procedural
Safeguards, 504 Plans, LEA restrictions, Least
Restrictive Environment, NOREPP, and Extended
School Year requirements. Sounds like a foreign
language, doesn’t it? Well, it is. You need a
glossary of educational terms. Whether the
child has a severe disability such as blindness,
deafness, low-functionality of autism or mental
retardation OR simply is ADHD, dyslexic, or
Aspergers, it is a labyrinth of educational law
driving the appropriateness and effectiveness of
education that the child will receive. In fact,
it is that latter, those with minimal support
needed, that seem to have the bigger fight. Of
course, you would think that the school district
would be a tremendous source of information and
help steer through the maze of state regulations
when in actuality the school representatives
stand to guard the district funds like knights
protecting the queen’s treasures. |
 |
Platinum record producer on hunger strike for
autism - In the landscape of
autism-advocating celebrities so familia r
to mainstream America, and mainstream media –
Jenny McCarthy, Amanda Peet, Toni Braxton, etc.
– trotting their children out into the spotlight
like a never-ending circus show – there is
another celeb who’s doing it all differently.
And it should be no surprise it’s different,
because he himself has Asperger’s, a form of
autism, and sees the world differently. This man
is Michael Buckholtz – the platinum record
producer, behind such artists as MC Hammer. This
self-taught multi-instrumentalist, song-writer,
producer is currently nearing the end of a
30-day hunger strike to draw national media
attention to his cause. And his cause is
two-fold. |
 |
Senior with Asperger syndrome wows Berean
Christian School grads - The valedictorian
at Berean Christian School enjoys strategy
games, catches the TV show MythBusters when he
can, maintains a dry sense of humor and plans to
study computer science in college. He has tested
at a near-genius IQ level, according to his
parents. And oh, by the way, Bradley Andrews has
Asperger syndrome. |
 |
Social skills or academics - which matters most
for kids on the the autism spectrum?- When
Tom (my 12-year-ol d
with high functioning autism) was in public
school, I was appalled at how little he was
taught. The level of expectation was so low that
he could easily be passed from grade to grade
without being challenged to read so much as a
single novel or write more than a single
paragraph. In fourth grade, Tom's autism
support class read only the material included in
a Harcourt textbook. While other kids his age
were reading full length novels, building
dioramas, writing book reports and making oral
presentations, he was filling out worksheets
about the contents of a picture book. He had
almost no science, geography, or social studies
at all. In short, he was ignorant. |
 |
Some Millionaires Still Giving When It Hurts
- Norfolk, Virginia—Millionaire Marc Hrisko
knows something about intense and stressful
situations. Before the 33-year old author, real
estate investor, and national speaker for Robert
Kiyosaki’s “Rich Dad, Poor Dad” events hit it
big, Hrisko served as a medic and firefighter
making just $40,000 a year to run into blazing
buildings. What he learned from that experience,
says Hrisko, is that as danger increases, so,
too, should a person’s willingness to serve
others. |
 |
Testosterone-related treatment for autism stirs
controversy / Some parents see benefits
from Lupron, a drug used to chemically castrate
sex offenders and for endometriosis and prostate
cancer. But mainstream experts condemn the
protocol, marketed by 2 doctors. - Desperate
to help their autistic children, hundreds of
parents nationwide are turning to an unproven
and potentially damaging treatment: multiple
high doses of a drug sometimes used to
chemically castrate sex offenders. The
therapy is based on a theory, unsupported by
mainstream medicine, that autism is caused by a
harmful link between mercury and testosterone.
Children with autism have too much of the
hormone, according to the theory, and a drug
called Lupron can fix that. |
 |
The Others: Siblings and Autism - Once a
week, I try to watch one of my husband’s ‘must
see’ television shows with him. I don’t like to
watch “LOST” on my own since it’s got some
freaky twists and turns in the plot and an eerie
violin playing in the background for those cliff
hanger scenes. I’ve come to enjoy the storyline
but still have an unsettling feeling toward the
characters that play the Others. They usually
show up out of nowhere with an air about them
that causes one either to distrust them or run
like heck away from them. I want to get to know
them better, but the creators of the show keep
them hidden in the background of the main
characters’ lives more often than not. Lately
some days, I feel like my own neurotypical (NT)
children are my own set of Others: characters
in my life who through no fault of their own
remain in the background. |
 |
You are neurodiverse…. - We don’t all think
the same way. We just don’t. There is a
“diversity” in our thought processes. Our
neurology. So, I find it interesting when
people talk about “those neurodiverse” or in
some other way try to make it an “us vs. them”
subject. As Jake and Elwood said. Some
things that make us all the same. You, me them,
everybody, everybody. In this case, it is
our differences that make us the same. Everybody
is neurodiverse. Everybody’s mind thinks just a
little different from anyone else’s on this
planet. And, that is what makes us all
neurodiverse The problem comes up when we
move from “Neurodiverse” to the “Neurodiverisity
movement”. |
 |
Vacationing with your Autistic child -
Summer is here and it's time to start planning
family vacations. This can be hard to do in most
circumstances but planning a vacation around an
Autistic child can be especially stressful. We
braved a mini-vacation this weekend and found it
to be very draining. There were three adults on
this trip and it took all of us to care for
Maddie and her little brother. The key to making
it a successful vacation is pre-planning and we
thought we had done a pretty good job. We made
sure we packed things that were familiar to
Maddie so that the transition would be as calm
and comfortable for her as possible. Even with
her favorite foods, blanket, pillow and her
special toys, we still experienced a few
tantrums and some tense moments. It was
exhausting at times. We could have used a little
more rest and relaxation. |
 |
Vaccine preventable diseases: tetanus -
Vaccinations seem to cause some controversy in
the United States whether it is the
moral/ethical/political issues surrounding
Gardasil or the supposed link between childhood
vaccines and autism. However one thing is clear,
vaccinations have made some of the most common
and devastating diseases practically
non-existent in this country. In my opinion,
vaccinations are the most successful use of
immunological principles to human health
worldwide. Vaccinations in simple terms
are to introduce various
antigenic materials, depending on the
vaccine, to produce an immune response or
antibodies in human or animals. |
05-23-2009
 |
Asperger's Diagnoses May Redefine What Is Normal
- Instead of looking for cures for those with
autism spectrum disorders, some think society
should value their special gifts. Can We
Learn Acceptance? Although more adults
have been diagnosed with Asperger's syndrome in
recent years, some experts, as well as those who
have the autism spectrum disorder, contend that
a cure is not necessary. Rather, acceptance of
different personality traits is in order, they
claim. An essay in The New York Times
"Modern Love" column illustrates the coming of
age, so to speak, of an adult with Asperger's
syndrome. In his essay, David Finch discussed
his struggle to learn how to empathize, and
explored his wife's ability to approach his
behavioral differences with patience and
acceptance. |
 |
Coping with the challenges facing autistic
children - Lack of educational institutions
drives a group of parents to establish new
center. Head of Action in Autism Liza Aziz
knows better than anybody the challenges of
raising an autistic child. The Glenmore,
Durban, mother of three’s youngest child, Tariq,
was diagnosed with au- tism in 2003 when he was
just three years old. When a school turned
away Tariq, claiming he could not be educated,
Aziz together with a group of parents of
autistic children started Action in Autism six
years ago. |
 |
Growing Old With Autism - IN mid-2007, I set
off to meet with geneticists, epidemiologists
and doctors who specialize in researching and
treating autism. I was seeking a novel therapy
for my 42-year-old autistic younger brother
Noah. I was also looking to discover how
heightened awareness of autism — it is now among
the most financially successful and mediagenic
diseases ever, with hundreds of millions of
dollars a year going to research, and regular
press coverage — might have resulted in new and
innovative programs for adult autistics like
Noah. |
 |
Missing Allentown Teenager Found in Bethlehem
- A teenage girl who disappeared six days ago is
now safe and sound. Police say 16 year old
Courtney Neve was found today. Police say she
was staying at a friend's house in Bethlehem,
after disappearing Sunday night. Neve, who has
Autism and Asperger's Disease, is now back with
her foster mother in Allentown. Police say they
are investigating to try and find out how and
when Neve got to her friend's place.
|
 |
'People-person' brain area found -
Scientists say they have located the brain areas
that may determine how sociable a person is.
Warm, sentimental people tend to have more brain
tissue in the outer strip of the brain just
above the eyes and in a structure deep in the
brain's centre. These are the same zones that
allow us to enjoy chocolate and sex, the
Cambridge University experts report in the
European Journal of Neuroscience.
|
 |
Police release murdered woman's name, cause of
death - Investigators Saturday released the
name of a West Valley City woman who was
murdered in her own home. She is Kimberly Hain,
33. Police also released a cause of
death. Preliminary autopsy results show Hain was
killed by blunt force trauma to her head and
face. Investigators still have no
solid suspects or persons of interest in her
murder. Her body was discovered early
Friday morning by her two young children. Their
father is a nurse who works a night shift. When
he got home, he called 911. Police
interviewed him and the children Friday. They
ran into difficulties with the kids due to their
age and autism. Officers say the husband was
cooperative. |
 |
Senior with Asperger syndrome wows Berean
Christian School grads - The valedictorian
at Berean Christian School enjoys strategy
games, catches the TV show MythBusters when he
can, maintains a dry sense of humor and plans to
study computer science in college. He has tested
at a near-genius IQ level, according to his
parents. And oh, by the way, Bradley
Andrews has Asperger syndrome.
Writing a valedictory address to be delivered
Friday night was no small feat for someone who
takes social rules very literally. He was so
honest in his first draft that he discussed not
only things he appreciated about his classmates,
but also detailed incidents in which he felt
misunderstood or personally betrayed. A second
draft took a gentler approach. |
 |
Two Brothers, Battling Autism / By Review
Suki Casanave / BOY ALONE
A Brother's Memoir By Karl Taro Greenfeld
Harper. 355 pp. $25.99 - Noah Greenfeld sits
huddled on the floor, rocking and humming. He
twiddles his fingers incessantly, or flaps his
hands near his ears. He does not speak; he
rarely responds when spoken to. He can smile
like an angel and devours his favorite foods.
But mostly he is a heartbreaking mystery, a
being trapped in his own world, unable to care
for himself and largely unaware, it seems, of
his surroundings. He is a "Boy Alone." It turns
out, though, that the title of Karl Taro
Greenfeld's memoir about life with Noah, his
severely autistic younger brother, applies just
as accurately to the author himself.
|
05-22-2009
 |
Controversial autism treatment may harm
children, some experts say - Some parents of
children with autism are using a controversial
drug based on a unconfirmed theory that autism
is tied to a connection between mercury and
testosterone. Some call Lupron -- which is
sometimes used on sex offenders -- a miracle
drug, but critics say it is based on bad
research and could affect puberty and physical
development.
Chicago Tribune (05/21) |
 |
Help for mental illness -
BACKGROUND: According to the
National Institute of Mental Health, about
57
million Americans suffer from a form of mental
illness. About 6 percent of adults in the United
States have a severely disabling mental disorder
each year. Some of the more well-known mental
health disorders include schizophrenia,
depression, anxiety disorder, bipolar disorder,
autism, attention deficit hyperactivity disorder
(ADHD), Alzheimer's, social phobia, panic
disorder, anxiety disorder and post traumatic
stress disorder (PTSD). HOW ARE THEY
DIAGNOSED? In the United States, mental
disorders are diagnosed based on the
Diagnostic and Statistical Manual of Mental
Disorders, fourth edition (DSM-IV).
Basically, doctors diagnose patients by symptom
clusters. Daniel Amen, M.D., medical director of
the Amen Clinics in Newport Beach, Calif., says
it's an outdated method. "We basically diagnose
people like we did in 1840 when Lincoln got
depressed," he told Ivanhoe. Researchers are
still looking for reliable, objective ways to
diagnose mental illnesses.
|
 |
Helping Autistic Teens Make Friends - During
the first week of class, the
teens' eyes were
downcast, their responses were mumbled and eye
contact was almost nonexistent. By Week
12, though, these same
kids were talkative, responsive and engaged.
That's the result of a special class designed at
UCLA to help teens with
autism spectrum disorders (ASD) learn to
interact appropriately with their peers. ASD
includes a range of pervasive developmental
disorders characterized by problems with
communication and socialization; it's estimated
that one in 150
children born in the United States has some
form of ASD. In a study appearing in the April
edition of the Journal of Autism and
Developmental Disorders , UCLA clinical
instructor of psychiatry Elizabeth Laugeson and
colleagues report that in comparison with a
control group, the treatment group taking the
class significantly improved their overall
social skills and interactions with their peers. |
 |
Missing Girl Case Draws Police Review -
Police in Allentown are launching an internal
review
after Fox 29 uncovered what may have been a
costly error in the early stages of an
investigation. At stake is the safety of a
teenaged girl who is mentally impaired. When the
girl went missing Sunday night, Allentown police
did not immediately begin searching for her,
reported Fox 29's Claudia Gomez. Two and a half
days passed before they launched a ground
search. The reason for the mistake is not clear.
It may have been an error in judgment by the
first responding police officer, a language
barrier or both. Courtney Neve is a girl in
trouble. She has no money, no resources, and the
mental capacity of a child much younger than her
16 years. Courtney has been missing now for five
long days. |
 |
Olmsted on Autism: Welcome to Illinois -
Managing Editor's Note: When my Mia was 8 years
old, we took her to a ped. endocrinologist with
concerns about early puberty. She also had a
severe seizure disorder. The endo, a Fellow from
Dartmouth working at University Hospitals of
Cleveland did the routine tests. Blood, x-ray
of the hand bones. Mia was just on the cusp of
what would be called "precocious puberty." He
offered me Lupron straight away. I asked, "What
will Lupron do to her seizure disorder?" He had
no idea. In fact, he kept saying, "The social
stigma of a girl getting her period in third
grade..." And I kept responding, "But she has
autism and the social stigma is a non-starter.
This is at best a convenience issue for Mom."
He wanted her on Lupron but couldn't give me any
facts as to how it would affect her overall
health, beside her breasts disappearing and her
underarm hair falling out. I declined the
Lupron out of fear for what it would do to Mia's
seizures. Mainstream docs prescribe this
drug every day, to children. |
 |
Simon Baron-Cohen: Ali G's smarter cousin and
Britain's leading expert on autism -
George Osborne, the Shadow Chancellor, once
amused journalists at a Conservative fringe
meeting by regaling them with tales of his
ability to retain odd facts. Perhaps, one of
them asked, he was "faintly autistic"? Referring
in turn to a much-touted rumour that had been
doing the Westminster rounds, Osborne replied:
"We're not getting on to Gordon Brown yet."
Osborne was blasted from all sides because he
seized on the word "autistic" to deliver a cheap
jibe. He tried to argue that he was merely
caught on the hop because someone had just
suggested that he showed autistic traits
himself. But no dice. Nick Hornby, the writer
whose first son was diagnosed with the brain
development disorder, spoke for many when he
declared: "George Osborne doesn't seem to have
noticed that most people over the age of eight
no longer use serious and distressing
disabilities as a way of taunting people." |
 |
Stimulating growth of neurons in brain - UB
researchers have identified a new mechanism that
plays a central role in adult brain stem cell
development and prompts brain stem cells to
differentiate into neurons. Their
discovery, known as Integrative FGFR1 Signaling
(INFS), has fundamentally challenged the
prevailing ideas of how signals are processed in
cells during neuronal development. The INFS
mechanism is considered capable of repopulating
degenerated brain areas, raising possibilities
for new treatments for Parkinson’s disease,
Alzheimer’s disease and other neurodegenerative
disorders, and may be a promising anti-cancer
therapy. |
 |
Essayist: Vaccines under scrutiny - again
The Center for Disease control reported 503, 282
measles cases in the United States in 1962. In
1998: 67 cases, most due to importation from
unprotected countries with measles related death
rate totaling between one and five percent.
Vaccines, injections of less virulent or
inactive viruses that promote the development of
an immune response, have directly contributed to
decline in mortality rates associated with
infectious disease. Unlike previous generations,
Americans of the twenty-first century are
virtually free from infectious diseases such as
polio, mumps, measles, rubella, human papilloma
virus, hepatitis, and a host of other diseases.
Sick days are no longer taken in response to a
debilitating case of smallpox, but more likely
due to the discomfort of a common cold. |
 |
Gluten free is going mainstream, Chicago style
- You have been reading the articles about
gluten, the signs, the symptoms, but may be in
denial that you just may have Celiac or a gluten
sensitivity. Most people are scared to make the
change because it means....no more goodies,
right? From dedicated grocery aisles to gluten
free menus and bakeries, gluten free is becoming
popular and it is here to stay. Let's take a
tour around Chicago looking at some of the
popular restaurants, bakeries, chefs and meals
to go. |
 |
In her new book, Sue Palmer examines how
contemporary living is harming boys' development
and offers a solution - WHEN Sue Palmer's
marriage broke up, it was her daughter who
insisted she moved back to her beloved
Edinburgh. "She said to me: 'You really ought to
shift. You need to go back to Scotland'," Sue
laughs. "I said, 'I would love to, but it's such
a big hassle.' I was so busy at the time." Busy
is something of an understatement – Sue's book
Toxic Childhood was just about to hit the
shelves and its warning about how modern life is
failing today's children was hitting a nerve
with educationalists and the general public up
and down the cADVERTISEMENTountry. |
 |
Musings on the intersection of science,
medicine, and culture - It would certainly
seem so.
Alternative autism "experts" have
a long history of dehumanizing autistic kids.
But the Geiers take it one step further. The
father-son team is
chemically castrating autistic children. And
what do they have to say about this?
...the Geiers focus on issues most likely to
disturb parents, such as aggressive behavior and
excessive masturbation. "With
masturbating there is a degree of normal, and
then there is autism. Parents will say: 'He will
hump pillows, he will hump your leg,' " David
Geier told doctors at Eisenstein's office. He
made similar statements on the same visit to
about 60 parents of autistic children. In
an autistic teenager, high testosterone will
lead to dangerous aggression, Mark Geier said,
mentioning an autistic Ohio teen accused of
killing his mother. "They are incredibly strong.
They can hurt you," he said. "You have to
respect that these kids are on massive
testosterone." |
 |
Suspect won't talk to adults - A 20-year-old
man who allegedly sexually assaulted two young
girls in Newbury, one of them on videotape, is
incompetent to stand trial because he talks only
to children, not adults, and therefore can't
consult with his lawyer, a judge ruled
yesterday. But Robert Derderian, who
experts believe suffers from autism or selective
mutism and possibly Asperger's syndrome, will be
evaluated for involuntary commitment to the
state hospital because he poses a danger to
others, Judge Carol Ann Conboy said.
|
 |
The law into their own hands - It takes a
lengthy run of misfortune for a family to
appropriate Murphy's Law for themselves.
But there have been many times the Fowlers of
Conder have felt the adage that what can go
wrong, will go wrong should be called Fowler's
Law. Six years ago mother Liz suffered
renal failure, almost killing her and consigning
her to daily dialysis as she waits for a donated
kidney. She worries that day won't come
and that she'll be hooked up to machines each
night until she dies. |
 |
The Paved Mind - I’ve been thinking about an
observation Temple Grandin makes in her book
“Animals in Translation.” She suggests that the
purpose of the big human brain isn’t to gather
sensory data about the world around it but to
filter it out. Humans don’t have raw access to
the input from our senses the way animals do,
Ms. Grandin argues. We see in patterns,
abstractly — just what we expect to see. This
sounds like a critique of human perception. But
it’s simply her observation of how humans work,
from the perspective of her own autism.
|
 |
UCLA study identifies genetic factor in autism
- Findings from a recent UCLA study were
consoling on at least one front for Torrance
mother Laura Weiss: There's not much she could
have done to prevent the autism that struck her
two sons. "You always kind of wonder as a
mother, did I do something wrong? Could I have
handled my pregnancy differently?" said Weiss,
who participated in the study, one of the
largest genetic projects of its kind.
"It's nice to have some proof that it's not your
fault." Research from the study, published
this week in the journal Molecular Psychiatry,
showed a common gene variant was present in a
majority of the autistic children - a variant
that is inherited from both parents.
Scientists say this variant is common in
families where multiple siblings have autism,
particularly male siblings. Autism affects boys
four times more often than girls and, in the
broader spectrum of developmental disorders,
boys are nearly 10 times more likely to be
diagnosed than girls. |
 |
Vaccines unrelated to Autism, so why the
Controversy? - The
Association
for Science in Autism Treatment has just
published a fine overview of the Autism/Vaccine
controversy. After a brief review of the many
studies researching the vaccine/autism link (in
short: no link can be found), the paper dives
into a deeply interesting aspect of this issue:
Why does the controversy still rage, when the
scientific evidence is overwhelming?
Understanding the controversy will help us shift
the debate back to the important issues: how do
we best provide services, and where should
research dollars be spent? Follow me below
the fold... |
 |
What it's like inside the autistic mind - In
my first article I talked about what it feels
like to be
autistic. I now would like for you to imagine
for a moment what these kids are like inside
their head. Have you ever gotten upset
when your child constantly doesn't listen to
directions or doesn't come when called? Turns
out, we speak a foreign language to them. And in
return, they sometimes do not speak in a way we
can understand them. I actually realized one
day, during much fighting over lunchtime, that I
had experienced what my sons little brain was
going through. |
 |
Why my child with autism will never return to
public school - redux - A few months ago, I
wrote a blog entitled "Why
my child with autism will NOT go back to public
school." In it, I described the frustration
of a special needs parent meeting. I wrote
about the lowered expectations for our kids. I
laid out the ways in which the IEP process
undermines parent/teacher trust. And I
explained why I felt that control over your own
child's educational process is so valuable. |
05-21-2009
 |
Autism in Britain costs about $43 billion -
The annual costs of autism spectrum disorder in
Britain is more than $42 billion a year,
researchers estimate. The study, published
in the Journal Autism, said the cost of
supporting children with autism spectrum
disorder was estimated to be $4.2 billion per
year. The cost of carrying for adults with the
disorder was put at $39 billion annually.
|
 |
Autism Risk Gene Identified -
Scientists
have discovered a new clue as to why Autism
affects more boys than girls. The current
estimate is that four times as many boys than
girls are on the affected with "classic autism."
Boys out number girls ten to one on the autism
spectrum as a whole. The Autism Genetic Resource
Exchange (AGRE) has provided on one possible way
to detect a child's risk of autism. Researchers
from Univerity of California at Los Angeles
(UCLA) reported this finding in the journal,
Molecular Psychiatry, |
 |
Baby's First Shots -
I will admit, getting
immunization shots were not high on my list. I
am not excited
about shots, how is a itty bitty little baby
going to feel? There has also been some
controversy over the whole Immunization thing -
are they necessary, can they cause autism? I
have gotten lots of advise pro and con from my
local moms, and it is hard to decide what to do.
Wait for awhile, or follow the doctor's orders?
I did some research and this is what I found
out. During your baby’s first couple
months, she will need to get some immunization
shots. Most parents chose to start immunizations
around 3 months of age and correlate getting the
shots with a pediatrician’s visit. You can read
more at: www.cdc.gov/vaccines/spec-grps/infants/parent-questions.htm.
Getting shots are no fun for anyone of any age,
and it’s hard on new parents to see their baby
in pain. |
 |
BBC News Features Autism Mom Protest - BBC
News covered Allison Edward's protest in front
of Parliament. You can see our own John Stone at
the end of the 2 minute clip
HERE. |
 |
Critics Say Lupron Is No Miracle Cure For Autism
- No one can fault the parents of autistic
children for seeking a cure for their kids.
Unfortunately, as the Chicago Tribune
reports, some are turning in desperation to
a drug usually prescribed for men battling
prostate cancer. The medicine,
called
Lupron, inhibits production of the hormone
testosterone. Supporters of its controversial
and unproved use for autism base their approach
on a purported link between mercury,
testosterone and the developmental disorder.
|
 |
Greenfield: computer games will make you fat
- Baroness Susan Greenfield has stated that
social- networking
sites and computer games can alter the brain and
increase the risk of autism, in an interview
with Cherwell. The director of the Royal
Institution and a Professor of Pharmacology at
Lincoln college attracted media attention in
February after an address to the House of Lords
in which she argued that "real-life
conversations ... require a sensitivity to voice
tone, body language and perhaps pheromones. None
of these skills are required chatting on a
social networking site."
Elaborating for Cherwell, she
explained, "What I'm saying is that we know the
environment alters the brain, and so if the
environment changes and we spend more time in
two dimensions, the brain will change too." |
 |
I am horrified and outraged! Inhumane teachers
abuse special needs students - My
local news reported two separate stories within
Tuesday night’s broadcast: An eleven
year-old boy named Stephan, who is autistic and
non-verbal, was physically and verbally abused
at school. He came home with bruises covering
his legs from knee to hip. A teacher and
an aide were arrested for duct taping an
autistic student to a chair and barricading a
blind student under a desk. Last week, I
posted a diary, "Disgusting! Fight Club abuse of
mentally ill by state school staff." WTF
is going on here? This diary has gotten too big,
so I’m going to post it in two parts. Tonight’s
will cover the these two cases. Tomorrow’s will
speak to lack of federal or state agencies that
collect this type of data; an alarming number of
alleged incidents of student abuse across the
country that have been uncovered in a new
federal investigation; and what each of us can
do to help. |
 |
Miracle at Sea - Walt Marino, ’84, doesn’t
sweat the small stuff anymore – not after he
and his son spent a terrifying night treading
water in the open ocean. By Judy Creel,
’05, Pegasus magazine. Chilled, broken
hearted and utterly exhausted, Walt Marino, ’84,
knew his life might end at any moment. As he
floated alone in the darkness, drifting in the
shark-infested waters for hours on end, one
thought kept him going: He couldn’t let his
daughter lose her brother and her father on the
same night. |
 |
No Jail Time For Man Who Beat Boy During
Exorcism - A Paoli man convicted of battery
and criminal confinement after trying to
exorcise demons from a 14-year-old boy with
autism was sentenced to house arrest on
Thursday. Monroe Circuit Judge Teresa
Harper sentenced Edward Uyesugi to three years
in jail, with all but six months suspended. He
will serve those six months under house arrest
at parents' home in Orange County. |
 |
Seroquel Lawsuit Uncovers Documents Suggesting
Intention to ... - According to internal
AstraZeneca documents obtained during the
litigation over side effects of Seroquel,
which has been linked to an increased risk of
diabetes and other injuries, the drug maker
discussed intentions to promote the medication
for off-label uses.
Seroquel is an atypical-antipsychotic which
was approved for treatment of schizophrenia in
1997. Although a new extended release version
was approved last year for treatment of bipolar
disorders, Seroquel has been widely prescribed
off-label for a variety of conditions that
AstraZeneca never established were safe and
effective, such as treatment of anxiety,
obsessive compulsive disorders, dementia,
insomnia and autism. |
 |
Social Deficits in Autism - Researchers at
the University of Washington in Seattle have
discovered an increased pattern of brain
activity in the amygdalas of adults with autism
that may be linked to the social deficits that
typically are associated with the disorder.
Previous research at the UW and elsewhere has
shown that abnormal growth patterns in the
amygdala are commonly found among young children
diagnosed with autism [The American Journal
of Psychiatry, 166: 467 - 475]. |
05-20-2009
 |
Are we facing a measles epidemic? - Hundreds
of children have been hit by the worst outbreak
of measles in more than 10 years with 160 cases
reported in Wales and four nursery school
children needing hospital treatment.
Continued fears over the safety of the MMR jab
has meant many parents are failing to vaccinate
their kids against this childhood infection.
As a result, some experts predict that an
epidemic of this highly contagious – and
sometimes fatal – disease is only a matter of
time. - UK |
 |
Autism and Testosterone - I think it is
important to voice a scientific view that
differs markedly from that of Simon Baron-Cohen
of the Cambridge Autism Research Unit who has,
according to recent media reports, been calling
for a debate on pre-natal screening for autism.
Several aspects need to be taken into account in
this important matter: Is the issue of elevated
testosterone in autism valid? Is elevated
testosterone specific to autism? What are the
consequences for individuals with autism and
future families contemplating pregnancy,
particularly in light of recent media coverage
depicting autism as a serious debilitating
condition? What other issues in autism are being
overlooked with the endorsement of this
speculative hypothesis? |
 |
BBC News Features Autism Mom Protest - BBC
News covered Allison Edward's protest in front
of Parliament. You can see our own John Stone at
the end of the 2 minute clip
HERE. |
 |
Bravo Age of Autism - Yep, you read that
correctly. In a
recent blog post on the Age of Autism blog,
Dr Lorene E.A. Amet wrote about “Testosterone
and Autism”. While much of the piece seems to be
fighting a straw man (the theme is that Simon
Baron-Cohen wants to use testosterone to screen
for autism prenatally—without a link to the
story or a quote from SBC,
I found this difficult to wade through). But, as
part of her piece, Dr. Amet wrote: ... |
 |
Caring for Yourself When Your Child has Autism
- A child’s diagnosis with an Autism
Spectrum
Disorder
(ASD) is rarely a complete surprise. It is a
parent’s unease, after all, which usually leads
to appointments with experts and a formal
diagnosis. You’d think that would lessen the
impact of hearing someone official declare that
your child has an ASD…but it rarely does.
Something about that official declaration makes
it all real, dashing faint hopes that your
suspicions about your child were wrong. It is
natural to feel grief, denial, anger, despair,
and fear –all at once, and by turns. Relief may
be mixed in, if you have been fighting to get
someone to acknowledge that something is wrong,
and have been unable to get needed services
until they do. |
 |
Craigslist sues So. Carolina attorney general
- This post has been updated. See below for
details. Craigslist said
Wednesday it is suing South Carolina's attorney
general over the threat of criminal charges
against the Web site and its executives.
In the lawsuit filed in federal court,
Craigslist says it is "seeking declaratory
relief and a restraining order" connected to
accusations by Henry McMaster, the state's
attorney general, that the classified ad site
has not adequately removed "advertisements for
prostitution and graphic pornographic material."
In a
blog post Wednesday morning, Craigslist CEO
Jim Buckmaster said that the charges are
egregious: In addition to being
unwarranted by the facts, legal experts agree
that the charges threatened represent an
unconstitutional prior restraint on free speech,
and are clearly barred by federal law (sec 230
CDA). |
 |
Do we really need autism therapists? - With
the explosion of autism diagnoses, there has
been
an explosion in the number of autism therapists
and experts available. There are autism
therapists and experts for virtually every part
of the body and every conceivable type of
intervention. To name just a few - ... |
 |
Documentary about Asperger's still touching,
changing lives - When I first saw Marianne
Kaplan's documentary The Boy Inside three years
ago, I remember thinking, "What a brave, strong
woman. What a hard life." Kaplan, a local
filmmaker, took an unrelentingly honest look at
what it's like to be the parent of a child with
Asperger's syndrome. |
 |
Experimental Stem Cell Treatment for Autism
- Alex Patterson was diagnosed with autism at
age two and speaks just a few words. He’s now
three, and he’s full of energy and life.
"No language…a lot of repetitive behavior," said
his mother Elizabeth Patterson. She questions
the diagnosis. "I'm still living in denial,” she
said. “I believe there's more to him than that.”
Patterson learned that doctors in Peru are using
stem cells from umbilical cords of newborn
infants to treat brain injuries, so she
researched it. |
 |
Gene Gives Clues to Why Autism More Common in
Boys - A new gene variant that may increase
the risk of autism, particularly in boys, has
been identified by U.S. researchers.
Analysis of the DNA of 1,046 members of families
with at least two sons affected by autism
revealed that a variant of the gene CACNA1G,
located on chromosome 17, was consistently
associated with autism, the researchers
reported. This variant of the gene, which helps
move calcium between cells, is present in about
40 percent of the population. |
 |
Genetically Modified Foods Pose Huge Health Risk
- This week, the American Academy of
Environmental Medicine (AAEM) called on
“Physicians to educate their patients, the
medical community, and the public to avoid GM
(genetically modified) foods when possible and
provide educational materials concerning GM
foods and
health risks.” They called for a moratorium
on GM foods, long-term independent studies, and
labeling. AAEM’s position paper stated, “Several
animal studies indicate serious health risks
associated with GM
food,” including infertility, immune
problems, accelerated aging, insulin regulation,
and changes in major organs and the
gastrointestinal system. They conclude, “There
is more than a casual association between GM
foods and adverse health effects. There is
causation,” as defined by recognized scientific
criteria. “The strength of association and
consistency between GM foods and disease is
confirmed in several animal studies.”
|
 |
Jenny McCarthy's Son was Never Autistic? - A
provocative
piece in the National Post suggests
that very thing. It is not even
certain that her child ever had
autism; neurologists have pointed out that
her description of the symptoms, and recovery,
are more consistent with a rare disorder,
Landau-Kleffner Syndrome. Ms. McCarthy may thus
be trumpeting a “cure” for a disease of which
she has no parental experience. More
than a little interested I tracked down
this Letter
to Neurology Today. In After
Vaccine-Autism Case Settlement, MDs Urged to
Continue Recommending Vaccines (June 5), Dawn
Fallik correctly cites Jenny McCarthy as a
celebrity fanning the flames of the
vaccine-autism link. McCarthy also makes parents
think that autism can be cured with unproven
treatments – as she claims is the case with her
son – documented in her much publicized book,
Louder than Words: A Mother’s Journey in Healing
Autism (Dutton 2007). |
 |
Lawsuit says too many psychiatric drugs killed
boy - Amid a wide-ranging debate over the
proper use of mental health drugs on troubled
children, the mother of a disabled boy who died
in 2007 is claiming in a lawsuit the boy was
overdosed by a cocktail of psychiatric drugs,
including two powerful anti-psychotics.
Martha Quesada, the mother of 12-year-old Denis
Maltez, filed a wrongful death and medical
malpractice lawsuit Monday in Miami-Dade circuit
court, claiming Denis' psychiatrist, Dr. Steven
L. Kaplan, and the now-shuttered Rainbow Ranch
group home overmedicated Denis and failed to
properly monitor his condition. |
 |
New Clue Into Autism Disparity / New
findings provide possible insight into why
autism affects more boys than girls. - A new
clue may help unlock the mystery of why autism
affects more boys than it does girls. As
reported by TIME, researchers have identified a
gene that may help lead to understanding why
there is a disparity. |
 |
New Software Helps In Treatment Of Autism -
A high-tech resource developed in the Bay Area
is helping parents of autistic children to share
information on treating autism, and it's already
making an impact. Elizabeth Horn and Zack
Nelson's 15-year-old daughter Sophia is
autistic. "You're just shattered," Horn said.
"Incurable, untreatable. Life long condition.
These things were utterly and completely
horrifying to me." Autism also hit hard in the
Vembu family, 10-year-old Siddharth was
diagnosed when he was five. "He had language,
but it wasn't developing at a normal rate," said
Sridhar Venbu, the boy's father. But in
the two families, autism was not accepted as
incurable. Maybe it was their high-tech, can-do
attitudes. Both fathers are CEO's of software
companies. One mother is an engineer while the
other is a filmmaker whose documentary on autism
has been seen around the world. |
 |
Outrage And Action Over Autistic Child's Alleged
Abuse - There's outrage over the story of an
11-year-old boy with Autism. A judge said the
boy was injured at school by an adult. The
reaction received after the story aired Monday
night in Atlanta has been unprecedented. People
are demanding answers from the system that
educated 11-year-old Stefan Ferrari. As of
Tuesday afternoon, Metro North officials
announced they had removed Stefan Ferrari's
teacher from the classroom. |
 |
'People-person' brain area found /
Scientists say they have located the brain areas
that may
determine how sociable a person is. - Warm,
sentimental people tend to have more brain
tissue in the outer strip of the brain just
above the eyes and in a structure deep in the
brain's centre. These are the same zones
that allow us to enjoy chocolate and sex, the
Cambridge University experts report in the
European Journal of Neuroscience. The work
suggests that some people may get a similar buzz
from being sociable. It could also lead to
new insights into psychiatric disorders where
difficulties in social interaction are
prominent, such as autism or schizophrenia. |
 |
Scientists discover area of brain that makes a
"people person" - Cambridge University
researchers have discovered that whether someone
is a "people-person" may depend on their brain
structure: the greater the concentration of
brain tissue in certain parts of the brain, the
more likely they are to be a warm, sentimental
person. The research was published in the
European Journal of Neuroscience on Tuesday.
Researchers from the Cambridge Department of
Psychiatry, in collaboration with Oulu
University, Finland, examined the relationship
between personality and brain structure in 41
male volunteers. |
05-18-2009
 |
A Neurodiversity FAQ - Following Ari
Ne’eman’s interview in Newsweek being published
yesterday, a storm of blog posts about him,
autism and neurodiversity in general have
appeared. There is a series of comments on the
Newsweek forum featuring that bastion of idiocy
and bigotry, John Best and sadly, even someone I
respect a great deal, Jonathan Mitchell, has
stooped to equating autism with sexual abusers.
With that in mind, I want to re-post (with
slight edits) an old post of mine about what I
see neurodiversity as. |
 |
Advances In Autism Research Worry Self-Advocates
- While identifying the genetic causes of autism
is an exciting prospect for researchers and
parents alike, some people with the disorder
worry that too much knowledge could make them
part of a dying breed. The concern,
self-advocates say, is that research could
produce a genetic test for autism leading some
parents to choose not to have babies likely to
have the disorder. This scenario is currently
playing out with parents who learn their babies
are likely to have Down syndrome, for example.
But autism represents a large spectrum and those
like Ari Ne’e-man, founder of the Autistic
Self-Advocacy Network, are on a mission to show
the world that autism isn’t a bad thing that
must be cured. |
 |
Art galleries and the autistic eye - There
aren't too many 12-year-old patrons of the arts
out
there, but our son Tom is one of them. It's
probably a symptom of the autism LOL! We
wandered into a local art gallery today, where
an acquaintance of mine paints and sells
landscapes and portraits. Tom admired all the
paintings, but zeroed in on the one on the
right. Mind you, there was no label on the
canvas. "Oh,:" said Tom, "That's the
cranberry bog at Wing Pond." "How did you know
where it was?" asked the painter (there are many
bogs around here). "There's a pump house at Wing
Pond," Tom explained, "and it looks just like
that." Honestly, who but a kid on the autism
spectrum would have memorized the shape and size
of the pump house on a cranberry bog - and then
recognized it in an oil painting? |
 |
Autism doesn't stop teen - Sal Madrigal
demonstrates how determination and drive can
lead to
success, despite the obstacles he has faced.
Madrigal has suffered from autism since he was
four years old, and yet has worked hard to make
it through his senior year of high school with a
3.2 GPA. "He attends regular classes like
everyone else and goes to study skills for that
extra time to finish his work and studies,"
Madrigal's mother Marissa said. Along with
his scholastic achievements, Madrigal is also a
state wrestler and has played on the varsity
football team. "I have taught Sal at Caldwell
High School for the past four years," Madrigal's
social studies teacher Eloise Slyke said.
|
 |
Autism is not a death sentence - Patrick
Speech and Language Centre is a school for
autistic children. In this interview, the
Proprietress, Mrs Dotun Akande, tells CHINYERE
FRED-ADEGBULUGBE some of the challenges she
faces as a parent of an autistic child Have you
had any personal experience with autism?
Yes, my second son was diagnosed of autism at 18
months and we just didn‘t know what to do until
he was about two when we met someone, a doctor
who told us that he had autism. And that‘s was
the first time I ever heard of the word, autism.
|
 |
Autistic twin boys find fit on dance floor -
Carson and Connor McGee love being on stage. The
7-year-old
twins' faces light up as they perform their
dance routine in front of a crowd. Carson
particularly seems to enjoy the penguin move in
his tap routine, flailing his arms and legs in
unison to the music. Connor opens his mouth wide
as he pretends to hold a microphone and lip
syncs to the music. His eyes become little slits
lost in a grin. Unknown to the people watching
them, both Carson and Connor have autism.
"Nobody (at the competition) besides (people
from) their studio was aware of their
disability," said Jennifer McGee, the boys'
mother. "But we know how far they have come and
how hard they have had to work to do what they
did." |
 |
FDA Broadens Approval for Antipsychotic Drug
Risperdal to Treat Bipolar Disorder - An
injectible form of Risperdal Consta, a drug
previously approved to treat schizophrenia and
bipolar mania, may now be used for patients with
bipolar I disorder, the Food and Drug
Administration said. The FDA broadened its
approvals for the drug made by Janssen
Pharmaceuticals, a division of Johnson &
Johnson. The pill form of Risperdal Consta was
already approved as a standalone schizophrenia
treatment and for use in conjunction with
lithium or valproate. It also is used to treat
autism. |
 |
Federal autism bill proposed; more sweeping than
failed state bill - Proposed federal
legislation designed to improve the quality of
life for people with autism would raise the
premium costs on insurance plans to cover the
disorder, not just insurance companies like the
bill that failed in the state Legislature this
year, supporters said Monday. “This is a
fabulous bill,” said Diana Varady, president of
the Arkansas Autistic Children’s Support Group
and a member of the legislative task force
created in 2007 to look at how the state deals
with people with autism. “The federal proposal
is a little more comprehensive,” Varady said,
adding that if it does not appear to have
widespread congressional support her group
likely will ask the Legislature next year to
reconsider the legislation that passed the
Senate but failed in the House. The Autism
Treatment Acceleration Act of 2009, filed last
week by U.S. Reps Mike Doyle, D-Pa., and Chris
Smith, R-N.J., is a companion bill of the same
name introduced in the Senate in April. |
 |
Monkey See, Monkey Really Do - The old adage
"monkey see, monkey do" applies not only to
mimicking movements, but also to following gaze
— monkeys quickly look in a particular direction
if they see other monkeys looking that way.
Now, scientists think they have found the area
of the brain responsible for this mirroring
behavior. Neurons in the lateral
intraparietal area (LIP), a part of the brain
associated with attention, fired both when
monkeys looked in a particular direction and
when they saw pictures of other monkeys looking
in that same direction, said researchers at Duke
University Medical Center in North Carolina.
This finding suggests that controlling one's
attention and interpreting someone else's
attention may involve the same neurons. The
finding likely applies to humans because our
brains are so similar to those of monkeys, and
"the same brain areas have reacted in people and
in monkeys in gaze-following studies [using
brain imaging]," said Michael Platt, a Duke
professor and senior author of the study.
|
 |
Next ArticleSeattle Eastside Parenting Examiners
Mom sues W. Virginia and says that
vaccinating her child is a sacrilege -
Jennifer Workman is taking on the state of West
Virginia in an attempt to have her 6-year-old
daughter exempt from mandatory vaccinations
before she starts public school. Workman is
suing the state and says that vaccinating goes
against her religious beliefs and that to
vaccinate would be a sacrelige. West Virginia is
one of two states left that does not allow
religion to be used as an exemption from
vaccinations. Oh, and Workman also has a
14-year-old daughter that has autism, which
Workman believes is caused by vaccines. Workman
describers her faith as Bapticostal, a blending
of Baptist and Pentecostal religions. She has
admitted she is concerned her 6-year-old will
get autism from the vaccines and stated in her
filing that she "sincerely believe that (it) is
wrong to immunize and that it is a sacrilege.'' |
 |
Mother Records Autistic Child's Alleged Abuse
- Stefan is an 11-year-old boy with Autism. A
judge ruled he was physically and verbally
abused at school. He is an Atlanta Public
School student but because of his special needs,
he goes to schools run by a state agency called
Metro North. They line the outside of each leg
-- bruises from knee to hip. A judge has ruled a
school employee caused these injuries to
11-year-old Stefan Ferrari the day before
pictures were taken. Stefan cannot speak.
He has Autism, and is non-verbal. |
 |
Organic Gourmet's Vegetable Seasoning Stock
Concentrate (Gluten-Free Bouillon) - We
tried
out Organic Gourmet’s Vegetable Seasoning Stock
Concentrate, which is a gluten-free and
organic. It dissolved easily in the hot water
and the first thing we noticed was the array of
colors from the organic herbs and vegetables.
The taste of the broth was delicious—it had a
natural broth taste without too much sodium—not
something that I would associate with a stock
concentrate. It had an excellent flavor with
the right balance of herbs and was not
overpowering. The convenience of this product
will open up many new doors in your kitchen—I
can’t wait to get started using it! |
 |
Original "Rain Man" Visits Zanesville - He
became a household name after actor Dustin
Hoffman portrayed his life in the movie "Rain
Man" His real name is Kim Peek but most people
know him as "Rain Man" and today he was in
Zanesville and New Concord. It was all part of a
class assignment Muskingum College Graduate
Student Trisha Holmes was conducting. She
brought Kim Peek and his father Fran Peek to
Zanesville to deliver the message they have
given countless times to millions. "Learning to
recognize and respect differences in others,
treat them as much as they want them to treat
you, so we can have a better world to live in.
And you don't have to be handicapped to be
different, everybody is different" Says Kim. |
 |
National Autism Association Provides Funds to
Law Enforcement Agencies in Staunton, Virginia
and Summit County, Utah for Project Lifesaver
Equipment - The National Autism Association
(NAA) announced today it has awarded grants to
two more law enforcement agencies for Project
Lifesaver Equipment through the organization's
FOUND Program. Staunton,
Virginia Police Department and
Summit County Utah Sheriff's
Department will both receive grants for
$6800 for the equipment, which includes
five wristbands for children with autism at high
risk for wandering. FOUND was developed by NAA
to counter the rise in wandering-related deaths
among children with autism spectrum disorders. |
 |
New Device Aids Autistic Boy's Communication
- Brady Stacy likes to be busy and loves the
activity of school. During a recent school day
he hopped up and down, showing obvious
excitement about going outside for an art
project, and was first to volunteer to find the
green square on the board during circle time.
But school presents some challenges for Brady,
9, who is in third grade, because he is autistic
and has limited speech capabilities. |
 |
Nowra to get autism service / The New
South Wales Government has announced funding for
an autism assessment service at Nowra on the
mid-south coast. - The town is one of 15
around the state to share in more than $600,000
in funding for the program which is expected to
assess about 300 children. Autism Spectrum
Australia will use the money to operate a number
of two-day clinics over three years. Minister
for Disability Services, Paul Lynch, says the
program is about diagnosing the illness as soon
as possible. |
 |
Obama Administration to Spend Millions Cleaning
up Lead Hazards - After touring the
Esperanza Community Housing Corporation in South
Central Los Angeles on Friday, Vice President
Joe Biden announced the US Department of Housing
and Urban Development (HUD) will make nearly
$100 million in Recovery Act funding available
to clean up lead-based paint and other health
and safety hazards from low-income homes. The
monies will go to 53 programs in 20 states and
the District of Columbia. As part of his
announcement Biden said, "It is unacceptable
that some 40 percent of homes in this country
still contain lead-based paints, the majority of
which are in low-income areas where homes have
not been renovated in decades." Continuing,
Biden said, "These are our children, our next
generation – and thanks to the Recovery Act, we
are investing in their future by reducing lead
paint in their homes, educating their families
about its abundant hazards and improving the
safety of the communities they grow up in." |
 |
Schools worry over autism support /
Educational institutions in Wales are "not
meeting the
needs"
of young people with autism, a study suggests.
- A report by the Welsh assembly's cross-party
autism group (CPAG) revealed 75% of schools feel
there is a lack of adequate local help
available. Some 58% described further
education provision in Wales as inadequate.
The National Autistic Society Cymru said the absence of support for
autistic young people and their families was
"sometimes devastating". |
 |
Sheriff's Detectives Searching For Missing
Disabled Katy Man - Sheriff’s deputies and
detectives are looking for a developmentally
disabled 22-year-old Katy man who has been
missing since at least Monday morning. Maxwell
“Maxey” Duncan’s family reported him missing
after his mother woke at about 8 a.m. and
couldn’t find him in their Creek Ranch home.
“Maxwell’s safety and welfare is a concern
particularly since he suffers from Asperger’s
Disease,” a Fort Bend County Sheriff’s Office
statement said. “As a result of this disease,
Maxwell has difficulty communicating with
others. If he is located or confronted, he
kindly responds well to the name ‘Maxey.’” |
 |
The Slippery Slope From Fear to Panic -
Could a reason for the panicky reaction to the
swine
flu outbreak be that it diverted our
attention, however briefly, from the devastating
effects of the global financial crisis, not to
mention the myriad chronic health issues that
threaten millions of lives? Or is it
simply human nature to overreact to threats over
which we have little control? “The fact is that
we love to be scared,” argue two British
statisticians, Simon Briscoe and Hugh Aldersey-Williams,
in “Panicology,” published in the United States
this year by Skyhorse Publishing. Witness the
immense popularity of disaster movies and
thrillers. “But there are serious
emotional, social and economic costs to panic,”
Mr. Briscoe, a London-based economist for The
Financial Times, said in an interview. “We’d be
a lot happier if we insisted that people prove
their case before making dire pronouncements. We
shouldn’t be
wasting time worrying about a lot of stupid
things,” and should focus instead on hazards we
can do something about. |
 |
Therapy dogs cut disabilities down to size -
'Ovelle, get your lunch." Ovelle walks to a
refrigerator, pulls it open and gets her lunch
bag. She gives it to Julia Gambassi, who puts it
on a table. "Plates, Ovelle." Ovelle sets the
table with paper plates and sits down to wait
for her lunch of beans, apples and carrots.
Nothing special -- except that Ovelle is a dog.
She's helping Julia and her 7-year-old twin
sister, Claire, learn to eat, walk and talk. And
it's working. Born with a sensory motor
disorder, the girls have come far since they
joined the Jump Start program at St. Alphonsus
Rehabilitation Services in Boise at age 3. |
 |
This teen cook's one rapid riser / He's
folded a lot of achievement into his 17 years
and plans
to be a super chef one day - Matt Woodthorpe
has already achieved more than most people his
age. At 17, he has finished his Level 2 chef
training while maintaining an apprenticeship at
the Sheraton Wall Centre -- all before
graduating from Surrey's Tamanawis Secondary. "I
just want to get it done and over with," he said
of the accomplishment. "I never really
understood I was so far ahead of anyone else in
cooking. When I did do my Level 2, there were
guys in there who were 30-, 40-year-olds. I
didn't know it was a big deal." While he may
shrug it off, Woodthorpe has undertaken a lot
for someone who has Asperger's syndrome, a mild
form of autism. Working as a chef has helped him
break out of his shell, gain the confidence
needed to take control in the kitchen and has
even boosted his academic work. |
 |
Trial starts for mother accused of leaving
disabled son to die - A jury trial began
Monday for a Bloomfield woman charged with
failing to aid her mentally retarded adult son,
who was found dead after allegedly rotting in
his own waste for an extended period of time.
dying on the bathroom floor of the family's
Bloomfield home covered in human feces, dirt and
garbage, the District Attorney's Office alleges. |
 |
U46 study: Filled to brink, still growing -
To meet rising enrollment figures, an advisory
group is
urging School District U46 to develop a plan to
address the influx -- whether that means buying
more land for future school sites, changing
program locations or adjusting boundaries.
However, U46 spokesman Tony Sanders said the
district's plans are in limbo until its
"long-term capital planning study," which is to
address capacity issues and look at alternatives
to temporary classrooms, is completed this
summer. "They were horizontal," their father,
Ron Gambassi, said. "That was the only position
they could be in. They went from that to sitting
and now walking with walkers and being close to
walking independently. Ovelle has been a big
part of that." |
5-17-2009
 |
A Neurodiversity FAQ - Following Ari
Ne’eman’s interview in Newsweek being published
yesterday, a storm of blog posts about him,
autism and neurodiversity in general have
appeared. There is a series of comments on the
Newsweek forum featuring that bastion of idiocy
and bigotry, John Best and sadly, even someone I
respect a great deal, Jonathan Mitchell, has
stooped to equating autism with sexual abusers.
With that in mind, I want to re-post (with
slight edits) an old post of mine about what I
see neurodiversity as. |
 |
Children in stores sometimes autistic - The
behavior of some children in the store where
letter writer Cherie Anderson works describes
the way my 3-year-old grandson occasionally acts
("Stores no place for unruly children," Letters,
Friday). I guess we could get him a little
T-shirt that says, "This is how autism looks."
|
 |
Dawns light obscures the HPV vaccine debate in
the House of Commons. - As European
elections loom, Ms Dawn Primarolo's position, as
Minister of State for the Department of Health
is possibly nearing an end, unlike the dreadful
adverse reactions suffered by the 9 British
girls who have been severely affected by the HPV
vaccine Cervarix, that she has authorised to be
used in this country against Cervical Cancer. A
few days ago MP Crispin Blunt fought bravely
against the Minister who is well known for her
stubbornness, in a debate in the House of
Commons for his constituent Rebecca Ramagge. Ms
Dawn Primarolo ,is the same minister who was so
stubborn that in the anti-poll tax campaign she
refused to pay her own poll tax assessment. At
one point just as she was on the verge of being
imprisoned for non-payment of the poll tax a
well-wisher paid off her debt, or as one
reporter remarked and I quote 'Or as the
cynics suggested, arranged for some stooge to
pay it on her behalf rather than see the inside
of HMP Pucklechurch. |
 |
Dr. Bob Sears Reports Merck to Bring Back
Separate M/M/R - Looks like Merck is
listening to parents who demanded the return of
monovalent M/M/R vaccines. Including those of us
at
AGE OF AUTISM. I received official
word from a Merck representative that the
company plans to resume production of the
separate M-M-R component vaccines. They
anticipate these becoming available in 2011 (no
actual month specified). Read more
HERE.Dr. Bob Sears reports: |
 |
Eyes wide open - Five minutes into meeting
Gemma Ward, I start measuring the centimetres
between her eyes. It could be five centimetres,
it could be seven, but her eyes are so wide set,
it's like being drawn into the twilight zone.
Her fame as the hot new covergirl of the world's
best-known magazines (she's appeared on 24 Vogue
covers around the world) has recently been
overshadowed by her association with Heath
Ledger - the two Perth expats were seeing each
other just before the actor died. Ward,
20, initially asked for no personal questions
during the interview - her grief about Ledger is
still raw. Instead, Ward wants to talk about her
career shift into films and the Australian movie
The Black Balloon in which she stars. (It has
already won the Crystal Bear for best feature at
the Berlin Film Festival). But it's obvious that
Ledger was a big influence on Ward's approach to
her fledgling film career. Speaking directly of
Ledger for the first time since his death, Ward
says: "I think he operated from the heart. |
 |
Facing life on the street - Rhonda Williams
lost her job in October, her home in March.
But because of potential budget cuts looming
over the city's United Way agencies, her
situation could worsen this summer. Starting
July 1, Williams and her two daughters, ages 10
and 13, could spend most of their daytime hours
on the street. The family now lives in the
Salvation Army's Center of Hope. But the agency
faces up to a 40 percent cut in its United Way
dollars. Under its “worst case” plan to deal
with the cuts, the Salvation Army would lock the
doors of its shelter after breakfast, putting
families like the Williamses out on their own
from 8 a.m. to 5 p.m. |
 |
Of mice and mothering: Clinic researchers find
brain chemical serotonin may be an influence
/
Case Western Reserve University
neuroscientists find that serotonin impacts
mothering behavior
in mice. - The newborn mice in Evan Deneris'
neuroscience lab were dying, and no one knew
why. The fingertip-sized pups, bald and ruddy
pink, like pencil erasers, seemed healthy at
birth. They were helpless, tumbling blindly
around their sawdust-lined cages. They had no
problems feeding, though. After the babies
suckled, Deneris and his Case Western Reserve
University colleagues could see milk in their
bulging little bellies, beneath the translucent
skin. But within three or four days, they
were all dead -- every baby mouse, in every
litter. Doctoral student Jessica
Lerch-Haner spotted the crucial clue. It was the
nests. Mouse mothers normally are meticulous
about their nests, since they hold the furless
babies together and keep them warm. |
 |
MY DOWN TIME WITH ... Maia Chung-Smith -
Maia Chung-Smith is a former journalist, who
now dedicates her life to
working
with the Autism and Disabilities Foundation that
she began a year ago. Though journalism
was her first love, working with those affected
by autism and other disabilities is more
fulfilling. The foundation began as a result of
her son, Quinn Garren James Smith, who was born
with autism nine years ago. Since the foundation
began, Chung-Smith has raised over $3 million to
assist persons living with the disease. |
 |
Parents claim special school 'targeted' over
public stance - PARENTS OF more than 30
autistic children at a special school say they
are being deliberately excluded from talks
involving the Department of Education over
establishing applied behaviour analysis (ABA)
schools on a permanent basis. Barnacoyle
Parents’ Group say their ABA school – based in
St Catherine’s special school in Co Wicklow – is
being targeted because of the public stance
taken by parents in highlighting the need for
specialised education in the area. |
 |
Parents helped through autism maze /
Parents of children with autism are being shown
how to find the services they need at a workshop
in Hobart today. - The Federally-funded
sessions aim to help parents gain a better
understanding of their child's condition and
introduce them to other parents in a similar
situation. Facilitator Rose Clark has a
21-year-old son with a moderate autism disorder. |
 |
Police probing alleged abuse at Rishon Letzion
special needs school - Police are
investigating allegations that autistic students
at the Shkamim school for children with special
needs in Rishon Letzion have been abused and
neglected by the school's staff. The complaints,
made by several parents, allege that children
are pulled by the hair, pushed and verbally
abused. Some 70 children, with varying
degrees of autism, attend the school, which has
a staff of about 35 employees, including
teachers and aides. Most of the complaints
relate to the aides, whom some parents allege
are not properly supervised. |
 |
'You are the gift' / If each act of
kindness could lead to another, just imagine the
possibilities. - ROCK HILL A man who
rescued Amy Sturkey on the highway would take
nothing in return, so
Amy is paying her good fortune forward – all the
way to Cambodia and a monk she met while
watching for the moon to rise over a
12th-century temple. Amy, who is 44 and works as
a physical therapist in Charlotte, had never
heard of “Pay It Forward” until after her wreck
on Interstate 95 the Sunday after Thanksgiving.
A tractor-trailer sideswiped her Honda, and her
car spun out of control into a bridge and came
to a stop facing in the wrong direction. The
truck sped off. Amy was four hours from home,
traffic was heavy and it was raining.
|
 |
WU engineers develop ultrasound cell phone -
Everyone knows cell phones can pinpoint your
location by GPS signals, record photos and
video, browse the Internet and keep your
schedule. They even can make phone calls.
But now, thanks to engineers at Washington
University, cell phones can scan your insides.
Computer engineers David Zar and David Richard
have invented a combination ultrasound and
high-end smart phone — a super-portable device
to scan the body using sound waves. The new
device, adapted from existing portable
ultrasounds, will provide a cheaper and more
portable alternative to ultrasounds typically
limited to hospitals. In a world where 70
percent of the population does not have access
to medical imaging, Zar said, he and his partner
expect the device to permanently change the
current medical and global computer landscape.
|
05-16-2009
 |
Asperger's theory does
about-face /
Rather than ignoring others, researchers
think spectrum sufferers care too much - A
groundbreaking study suggests people with
autism-spectrum disorders such as Asperger's do
not lack empathy – rather, they feel others'
emotions too intensely to cope. People
with Asperger's syndrome, a high functioning
form of autism, are often stereotyped as distant
loners or robotic geeks. But what if what looks
like coldness to the outside world is a response
to being overwhelmed by emotion – an excess of
empathy, not a lack of it? This idea
resonates with many people suffering from
autism-spectrum disorders and their families. It
also jibes with the "intense world" theory, a
new way of thinking about the nature of autism. |
 |
Author: Adults with autism need help too -
When children with low-functioning autism grow
up, they continue to need intensive support,
writes Karl Taro Greenfeld, whose 42-year-old
brother was institutionalized because of the
degree of his maladaptive behaviors. While
funding has poured into research for earlier
diagnoses and children with autism, too little
attention has been paid to adults with the
disorder, writes Greenfeld, author of a book
about his experience.
TIME (05/25) |
 |
Autistic children rehearse for life with drama
therapy - At the first rehearsal, the little
boy with
thick curly hair looked lost — not so much
frightened as off balance. He sat at the far
edge of chattering children and covered his
ears. • Nine kids had come to Ruth Eckerd Hall
last September to learn to act. They'd signed up
to work all year on a play. About half of them
looked ready for anything. The other half, among
them the curly-haired boy, looked numb. It was
unclear if they had voices at all. One boy, as
soon as his mom left the room, crawled under a
table. • Ben had the big head of curly hair. He
favored bright stripes on his T-shirts and liked
to go around in his white socks. He stayed close
to his nanny, who was always whispering
something in his ear. He had a sweetly soulful,
melodious look about him, as though he heard an
inner song. • But he kept his ears covered and
didn't say a word. |
 |
Autism's lonely questions /
Without
better research, Oregon families will keep
exhausting themselves looking for answers
- If any medical condition warrants more
attention and research, it is autism. The
uncertainty surrounding this common brain
disorder takes a terrible toll on families --
especially in Oregon, where diagnosed autism
rates are higher than the national average.
It is a condition characterized by questions
rather than answers: Who will help us? Will I
ever connect again with my child? How much hope
should we have? Do any treatments work, and what
if we can't afford any of them? No family
should have to face these questions alone.
About 1 in 150 children in the United States has
an autism spectrum disorder, according to the
Centers for Disease Control and Prevention. The
rate in Oregon is considerably higher. Some
estimates based on school data peg the number as
high as 1 in 87. |
 |
Debunking myths about early intervention for
children with autism - The idea that early
diagnosis and intensive intervention are
critical for children with autism only makes
parents more anxious, writes Michael Fitzpatrick
"Guilt-induced hyperactivity" is how one mother
on an autism bulletin board describes her
"obsessive research" and quest for treatments
for her son. "Everything I was reading was
saying that early intervention was crucial if he
was to stand a chance of an independent life.
"Similar themes recur in parental accounts. One
mother writes of a "race against time", another
of desperately trying to pull her child through
a "window of opportunity".
|
 |
Erasing Autism
/
Scientists are closing in
on the genes linked to autism. So why is Ari
Ne'eman so worried?
By Claudia Kalb
| NEWSWEEK - It's spring in Washington, and Ari
Ne'e-man, with his navy suit and leather
brief-caseon wheels, is in between his usual
flurry of meetings. Ne'eman is a master
networker, a guy you'd think was born in a
campaign office and bred in the halls of the
Capitol. He's fluent in policy-speak and
interacts seamlessly with high-level officials
(he's just had lunch with the acting vice chair
of the Equal Employment Opportunity Commission)
and inquisitive reporters alike. He's formal but
sociable and has a well-timed sense of humor. He
also has a problem with velvet. I knew this
about Ne'eman—he'd mentioned it when we first
started talking more than a year ago—but now, in
a D.C. coffee shop, he gets into the sensory
details. His father used to drive a car that had
fuzzy velvet-like cushioning, and it made
Ne'eman crazy to sit in it. "I'd wince because
I'd think about how it would feel to get that
under your fingernails," he says. I think I see
him shudder at the memory. |
 |
Gwyneth Paltrow says shampoo causes cancer. Is
she right? - The claim: The actress
believes that using shampoo could lead to
cancer, after reading research about what she
calls the 'environmental toxins' allegedly found
in these products. She said on her
website: 'Foetuses, infants and toddlers are
unable to metabolise toxins the way that adults
are, and we are constantly filling our
environments with chemicals that may or may not
be safe. The research is troubling; the
incidence of diseases in children such as
asthma, cancer and autism have shot up
exponentially.' |
 |
Jazmine Starkey speaks about her experience on
the autism spectrum ... - Jazmine Starkey
has more than the average teenage challenges as
a Grade 9 student attending Sir Guy Carleton
Secondary School in Nepean. The
15-year-old spoke about her experiences with
autism trying to make friends and fit in during
elementary school to students at Our Lady of
Peace Elementary School on May 5. “Things
have not come easy to me,” Jazmine says. “I had
difficulty with math, organizing my bag or
making friends, but I’m getting better.” |
 |
Key Pathway to Reactivate Myelin Repair
Identified - Researchers have identified a
key
pathway that could lead to new
therapies
to repair nerve cells' protective coating
stripped away as a result of autoimmune diseases
such as
Multiple
Sclerosis
(MS). An article
reporting their findings will appear in the May
13 online edition of the
Journal of
Neuroscience
|
 |
Lee County teen shares her passion for the stage
- It was special day for a group of special
needs children in Lee County who put on their
dancing shoes and took to the stage. A year of
hard work came to a close during the Stage of
Dreams recital. Six children with
disabilities ranging from autism to down
syndrome performed everything from tap and
ballet to cheer leading. Stage of Dreams was
started by a Lee County teenager who volunteered
her own time, talent and resources to be able to
share her passion with them. |
 |
Modern Love Somewhere Inside, a Path to Empathy
- IT wasn’t working, any of it. Our third year
of marriage threatened to be our last. I’d
become cynical and withdrawn, obsessive and
preoccupied, dismissive and unhelpful. “I
don’t know when things got bad,” Kristen said,
wiping away tears. “I feel like I’ve lost you
and I don’t know what will bring you back.”
In reality she hadn’t lost me. She’d found me.
The facade of semi-normalcy I’d struggled to
maintain was falling away, revealing the person
I’d been since childhood. I didn’t even know
what was wrong with me, though my wife, a speech
pathologist who works with autistic children,
had her suspicions. Even so, it would be another
two years before she would put all the pieces
together and attach a name to what was ruining
our marriage: Asperger’s syndrome. |
 |
New Support Group in Portland, Oregon Focuses on
Helping Partners and Spouses of Adults with
Asperger Syndrome / Dr. Kathy Marshack,
is launching a new support group, "Asperger
Syndrome: Partners and Family of Adults with ASD,"
in Portland, OR. In addition to providing a
safe, supportive place to share their
experiences, Dr. Marshack sees this group as a
forum to learn more, through books, films and
guest speakers. - Licensed
psychologist, Dr. Kathy Marshack, is launching a
new support group, "Asperger Syndrome: Partners
and Family of Adults with ASD," in Portland, OR.
This is not a therapy group, rather a place for
people to learn from others and to share their
story about the often frustrating and isolating
life of loving an adult with Asperger Syndrome
Disorder (ASD). In addition to providing
therapy to families dealing with ASD, Dr.
Marshack is the author of "Life with a Partner
or Spouse with Asperger Syndrome: Going over the
Edge?" (Autism, Asperger Publishing Co. 2009).
Marshack explains what motivated her to start
this group, "After I posted the first chapter of
my new book on my website, I was completely
overwhelmed by the huge response from people
around the world looking for guidance and
support on how to navigate a relationship with a
partner with Asperger Syndrome."
|
 |
What are the right goals for a child with
autism? - I've been doing a fair amount of
research,
recently, on various different types of
therapies for kids with autism. What I'm
noticing is that each seems to have its own
version of autistic "core deficits," and each
seems to have its own idea of appropriate goals.
Looking at research into Applied Behavior
Analysis, I notice that the standards of success
have a lot to do with whether or not a child can
be included "successfully" in a typical
classroom. To me, this ideal raises some real
philosophical questions: |
 |
Who Needs Jenny Craig? Just Think of Your
Bacteria Laden Food. - The New York Times
reports
HERE that food companies can not guarantee
that the food you buy is safe and not infected
with pathogens. Next time you sit down to a
calorie laden chicken pot-of-crap pie, think of
this article. My niece had salmonella poisoning
as a toddler. It almost killed her. |
05-14-2009
 |
A moral framework for genetic testing -
Today’s meeting of the Human Genetics Commission
consultative panel was both informative and
reassuring. Informative because some of the
leading professionals gave of their time to
brief us on three issues – screening children
for genetic disorders, pre-conception genetic
screening and pre-implantation genetic
diagnosis. It was reasssuring because the Panel
showed a good grasp of the issues and was very
much aware of the ethical dilemmas that can
arise and the need for guidelines. The HGC is
keen to hear those concerns and see that they
are included in representations to government
agencies and law makers. |
 |
Another Nail in the Coffin for the Thimerosal-Autism
thesis - On Friday Maryland's highest court,
confirming
its intermediate appellate court, made it
more difficult for plaintiffs to qualify as
expert witnesses in future vaccine cases -- this
is yet another thimerosal suit against Wyeth.
Jamarr Blackwell is both autistic and mentally
retarded. His parents sued, claiming that his
disabilities were caused by thimerosal-containing
vaccines administered when he was a baby. They
had FIVE expert witnesses to support their
theory of causation. |
 |
Autism and The Associated Press / The
social factors of satisfactory treatment are
even more
important than the financial. Autism patients
are frequently social pariahs whether they want
to be or not. - The Oregonian, May 10, 2009,
had another AP article this one by Lindsey
Tanner about a “cure” for Autism. For
those who don’t know, Autism is a very mean
disease and the layman or new parent would
consider the child crazy because they certainly
do compulsively weird things and apparently
cannot communicate by speaking or paying ANY
attention to parents or even highly skilled
Autism specialists which are usually specially
trained psychologists. The article states that
standard long-term behavioral therapy requires
30 to 40 hours of treatment per week for many
years. I don’t know how much psychologists get
paid for these 30 to 40 hours per week but I
have a friend with two Autistic children and
they racked up $75,000 in costs in one year.
They went bankrupt. I have written about
this problem before, see
Autism, Ritalin and Cannabis and
Autism, ADD, ADHD and Marijuana Therapy here
at Salem-News.com. |
 |
Autism, Gastrointestinal Dysfunction - A
study led by researchers at the University of
Southern California (USC) in Los Angeles, and
Vanderbilt University in Nashville, TN, have
identified a specific gene variant that links
increased genetic risk for autism with
gastrointestinal (GI) conditions [Pediatrics,
123(3): 1018-1024]. The findings suggest
that disrupted signaling of the MET gene may
contribute to a syndrome that includes autism
and co-occurring gastrointestinal dysfunction,
according to principal investigator Pat Levitt,
PhD, director of the Zilkha Neurogenetic
Institute at the Keck School of Medicine of USC
and chair-designate of the Department of Cell
and Neurobiology. |
 |
Autism: Nature or Nurture? - In the life of
a Larimer County mother, a typical morning
begins in the same fashion as most mornings
before: she wakes her two children, prepares
breakfast for the family, and clears the dishes
before dropping her oldest son off at preschool.
Upon arriving home, she gathers some paperwork
and swoops her 15-month-old son off to the
pediatrician to receive his latest round of
vaccinations. At 2 am the next morning however,
his mother rushes him to the emergency room
after she finds him in his crib wracked with a
fit of seizures and suffering from a 104-degree
fever. Within weeks of the incident, her happy,
bubbly, normal child begins to recede into the
confines of his own world. He now has difficulty
communicating with and showing even simple
affection to her and his father, and begins to
exhibit unusual behaviors such as verbal and
action repetition. This is the nightmare no
parent should have to face, yet it is one
documented by hundreds of parents of children
with Autism across America. |
 |
Autism spectrum can be difficult for some to see
- April is National Autism Awareness Month.
According to the Autism Society of America,
autism is a complex developmental disability
affects a person's ability to communicate and
interact with others.1.5 million Americans are
living with the effects of autism spectrum
disorder and the prevalence of autism has risen
to 1 in every 150 American children. A
Florida kindergarten teacher recently asked her
pupils to vote on whether a 5-year-old boy
should be removed from the classroom. The
misbehaving child, who was in the process of
being tested for autism, was ousted by a 14-2
count; he spent the day in the nurse's office. |
 |
Autistic Boy, 3, Left Alone On School Bus -
Parents are asking questions after a
three-year-old boy with autism was left on a
school bus by himself in a Woodland bus depot on
Wednesday. The young boy fell asleep on
the bus taking him to a Davis preschool, and the
bus driver, a substitute from the Woodland
Unified School District, didn't check the bus
before leaving it. "The substitute driver
was in a hurry and had to run into the office
real quick," said John Huston of the Woodland
Unified School District. |
 |
'Ben X' showing at library May 21 - Decorah
Public Library is hosting a free public
screening of the award-winning, unrated Belgian
film "Ben X" Thursday, May 21, at 6:30 p.m. in
the second floor Mezzanine Gallery. About
the film: "Ben is a bit different. His life is
full of strange rituals, and a mild form of
autism prevents normal communication with
others. As a result, he often seems to be living
in another universe- while he is a courageous
hero in the computer gaming world that consumes
him, Ben is tormented by classmates and ignored
by apathetic teachers in his daily life. As the
bullies' relentless attacks push him over the
edge and out of control, his online dreamgirl,
Scarlite, steps in to help him devise a perfect
plan to make them pay for their persecution.
Director Nic Balthazar's dazzling debut blends
fantasy and harsh social realism to create an
unforgettable film." |
 |
Brain Scans Show How Humans 'Hear' Emotion -
What's in a word? Emotion, especially if it's
said with inflection. Now, Swiss
scientists report that they can detect a
person's sense of the emotion behind a word by
"reading" the brain as it processes sounds from
the world around it. The findings could
lead to better understanding of mental illnesses
that affect how people interpret the emotions of
others, such as autism and schizophrenia, said
study co-author Patrik Vuilleumier, a researcher
at
University Hospital
of Geneva. |
 |
Can Children Recover from Autism? - Autism
is a disease that affects many Americans but
little is known about it. Today there is more
and more research being done to find ways to
cope with the illness and to bring more
awareness into American homes. The most recent
research has shown that approximately 10 percent
of children that suffer from the autism could
actually recover. One of the people who
proved this is possible is Leo Lytel. He was
diagnosed with autism as a small child, but by
the age of 9 he had overcome the disorder.
Lytel’s progress is part of a growing study that
suggests at least 10 percent of children with
autism can “recover” from it; however, most of
the recoveries occur after years of undergoing
intensive behavioral therapy. |
 |
Can Humans 'Hear' Emotion? - Actors will
tell you that vocal inflection is the key to
bringing
emotion and meaning to a scene. Scientists have
been tapping into this concept. In
a study that appears in the
May 14 issue of Current Biology,
Swiss scientists discovered that they can “read”
whether a person is able to interpret emotions
from spoken words. For the
experiment, they presented people with
pseudowords spoken in anger, joy, relief, and
sadness, as well as with no emotion.
Simultaneously, the subjects' brains were
scanned with a fMRI. They were able to show that
the subjects each registered the emotional
information in a specific part of the brain.
"Correct interpretation of emotion in the voice
is highly important—especially in a modern
environment where visual emotional signals are
often not available," for instance, when people
talk on the phone, said Thomas Ethofer, M.D., of
the University of Geneva in Switzerland. |
 |
Charity to Benefit from Children's Murder
Mystery - Sue Birch, the author of "Dead
Puzzling" a newly published children's murder
mystery, is donating half her royalties to the
National Autistic Society. When her son was
diagnosed with Asperger's Syndrome Sue says the
NAS in Leicester gave him incredible support and
offered him the chance to lead an almost normal
life. The charity enabled him to attend
mainstream college courses and enjoy an active
social life. "At just sixteen Michael was
not allowed to stay on at school because his
academic qualifications weren't good enough,"
Sue recalls. "The only option offered to us at
the time was a place in a special needs centre
which meant he would have to live a long way
from home. It seemed very cruel at the time to
separate a boy with such complex needs from his
family, so when the NAS gave him the chance to
continue with his education and stay at home we
jumped at the chance." The Vaccine Safety
Working Group (VSWG
HERE) of the National Vaccine Advisory
Committee released its draft report
HERE on April 14 making 17 general and 15
specific research recommendations to improve
vaccine safety research at CDC. Although
written in polite bureaucrat-eze, the report is
a stunning denunciation of poorly performing and
inadequate CDC five-year vaccine safety research
agenda
HERE conducted by CDC’s Immunization Safety
Office (ISO). CDC conceded on page 33 that
“[u]sually simultaneous vaccination is
incompletely studied at time of licensure.” The
draft agenda also admitted on page 17: “Little
is known about the immune gene expression
changes that occur after vaccination; even less
is known about immune genes expressed during an
[adverse event following immunization].” |
 |
Comments Due Today: Support
Researching the Health of Unvaccinated Children!
-
Reminder:
Comments in Support of Vax/Unvax Research
Program and Other Gaps in Vaccine Safety Science
are due by 5:00 EDT on Wednesday, and should be
submitted electronically to
vaccinesafetyRFI@hhs.gov.
Written responses should be addressed to
National Vaccine Program Office, U.S. Department
of Health and Human Services, 200 Independence
Avenue, SW., Room 715-H, Washington, DC 20201,
Attention: Vaccine Safety RFI.
|
 |
Conquering Autism, One Family at a Time: Part 1
- Many local parents are beginning to get some
help from several new efforts to help them
understand Autism and provide their child with
the appropriate therapy. Children are
being diagnosed with Autism at an alarming rate.
And for parents raising a child with Autism,
life can be frustrating and exhausting.
But many local parents are beginning to get some
help from several new efforts to help them
understand Autism and provide their child with
the appropriate therapy. "We had concerns
from an early age.... she was, not acting like
other kids," said Guy and Tracy Berg whose
3-year old daughter Riley is Autistic.
Statistics vary - but the CDC or the Center of
Disease Control most recent statistics show, 1
in every 150 kids is diagnosed with an Autism
Spectrum Disorder. Many families have no
idea their child is Autistic, they're seeking
diagnoses for other issues. |
 |
Conquering Autism, One Family at a Time: Part 2
- Being told your child is Autistic can be heart
wrenching -- just imagine -- someone telling you
that your son or daughter's life is going to be
more challenging than your life was, and that
there's not much you can do change the
diagnosis. According to the Center of
Disease Control hundreds of thousand of young
children are considered to be diagnosed with an
Autism Spectrum Disorder. And being told
your child is Autistic can be heart wrenching --
just imagine -- someone telling you that your
son or daughter's life is going to be a little
bit more challenging than your life was, and
that there's not much you can do change the
diagnosis. But it's what parents do after
the diagnosis that's important. |
 |
David Kirby In Huffington Post: The Discover
Magazine Chris Mooney Article - Read and
comment on David Kirby's Huffington Post piece
HERE. The following letter was
sent to the editors at Discover Magazine last
week, regarding a recent article on vaccines and
autism. The magazine claimed that the debate is
over, but ignored the fact that federal and
private support of research into a possible
association continues. |
 |
Diagnosing autism too late? Do girls get
shortchanged? - New research from a Wash U.
professor in the school of social work suggests
children — particularly girls — get diagnosed
with autism several years too late.
“Timely identification and diagnosis of an
autism spectrum disorder (ASD) can impact a
child’s development and is the key to opening
the door to the services and therapies available
to children with autism,” says Paul Shattuck,
Ph.D., assistant professor at the George Warren
Brown School of Social Work at Washington
University in St. Louis. “Unfortunately, our
research shows that the average age of autism
diagnosis is nearly six years old, which is
three to four years after diagnosis is
possible.” |
 |
Different look for autism awareness - May is
Autism Awareness Month and Autism Queensland
has launched a new look Dress Differently Day to
raise funds and awareness of the condition that
now affects one in 160 Australian children aged
between 6 and 12 years. This year, the
annual Dress Differently Day will be held on
Friday, May 29. People with Autism experience
the world differently every day, often
struggling to communicate or socialise with
others, process information or adapt to their
environment. Dress Differently Day allows
those of us who take such skills for granted to
experience the world differently for a day. As
the name suggests, participants are encouraged
to dress in a different way to step out of their
comfort zone for a day. |
 |
Earlier help needed for Asperger's, Norwich
conference told - Cases of autism are on the
increase, an expert on Asperger syndrome told a
conference in Norwich today. Tony Attwood, an
author and psychologist specialising in the
condition, said that 71pc of children and
teenagers with Asperger syndrome are teased and
bullied. He said they need to be helped at an
early stage, even if their diagnosis is not
clear. He said the reason for the rise in cases
of autism is because it is now recognised that a
person with another disability, such as Down's
syndrome, can also have autism. Mr
Attwood, who lives in Australia, was speaking at
a conference in Norwich organised by Asperger
East Anglia and City College Norwich.
|
 |
Games Use May Infantilise Brain / A
study has indicated that extensive playing of
games, use
of the internet, and use of social networking
sites could be "infantilising" the brain. -
The quote comes via the Daily Mail from Baroness
Susan Greenfield, the director of the Royal
Institution, who also believes that the use of
all three
may be linked to obesity. The gist is
that when something goes wrong on a computer
game you keep playing, while in real life, if
you fall out of a tree (to use the example
given) you learn not to repeat the mistake.
Apparently, they also make other forms of
risk-taking more appealing, such as eating too
much, or eating the wrong foods, which is where
the obesity link comes in. |
 |
Govt. sued over disability funding at
faith-based schools - When she attended
United Synagogue Day School from Grade 1 to
Grade 5, her parents had to pay for services
such as an itinerant teacher to help her, and
for amenities such as carpeting in classrooms to
absorb extraneous sounds like footsteps.
Blustein, who has a cochlear implant, now
attends a public school, where those costs are
taken care of by the provincial government. Max
Greenberg, 13, has a learning disability. The
Associated Hebrew Schools Grade 7 student said
he needs more time than his peers to write and
to process information that he reads. |
 |
Helping adults with autism - Jessica Wang
once held a steady job in JP Morgan's cafeteria.
Butafter the September 11th terrorist attacks,
she was out of work. Living with
Asperger's, a syndrome included in the range of
autism spectrum disorder, she found it hard to
find new employment for several years.
"I was miserable that I had that learning
disability," she recalled. "I kept blaming
myself that there must be something wrong with
me mentally." Wang
says she was finally able to start turning
things around with the help of Job Path, an
organization with the mission of helping people
with developmental disabilities find employment,
educational opportunities, live independently if
they can, and become involved in their
communities. |
 |
Holocaust survivor inspires Lyndon School
students with optimism - West Roxbury - A
crowd of hushed students in the auditorium of
the Patrick Lyndon Pilot School listened
attentively as they learned lessons of tolerance
and understanding from Gerda Weissmann Klein, a
survivor of the Jewish Holocaust of the 1930s
and ’40s. Born in Bielsko, Poland, in
1924, Klein was 15 when the Nazis invaded her
homeland, forcing her and her family into hiding
in the ghettos. After three years of hiding,
Klein and her family were captured and brought
to concentration camps. |
 |
Is Whooping Cough Making a Comeback? - About
a month ago I blogged on the
current state of the MMR vaccine.
Professionals are finding measles outbreaks
among people already vaccinated. Sometimes even
two MMR vaccines are not enough to provide
immunity. Now one of my collegues has whooping
cough. She has of course been vaccinated but
rumors are that whooping cough is making a
comeback and that one shot just isn't enough.
Why are these diseases, which were once thought
to be eradicated in this part of the world
suddenly reappearing? |
 |
Man with autism, ADHD graduates from college
- Clayton Tauscher, who has autism and ADHD,
graduated with a history major from the
University of Tennessee despite his
disabilities; he plans to pursue a doctorate.
"Seeing his hard work, his perseverance and how
he stuck to everything, I'm just so proud of
that," said Clayton's mother, Darla Tauscher,
who has become a special educator. "God put
wonderful teachers in his path and just put the
right people there for him every year," she
said.
WBIR-TV (Knoxville, Tenn.) (05/08)
|
 |
Math and autism - help on the way - Thanks
so much to the readers who've mentioned the word
"dyscalculia!" I plugged the term into Google
(and made a few phone calls) and found a
professional who specializes in math-related
learning issues. He comes highly recommended -
and we're scheduled for an evaluation this
Friday. Fingers crossed - because at this
point, I'm thinking we're getting nowhere on
math concepts. For example, we used cuisinaire
rods like the ones on the right to help Tom
discern "greater" and "lesser." Even this year,
he literally needed to hold the "3" rod up next
to the "4" rod to decide which is bigger. |
 |
Md. High Court Dismisses Expert Testimony in
Autism Vaccine Suit - In the court of public
opinion, the debate over whether vaccines
containing thimerosal, a mercury-based
preservative, have caused "autistic-spectrum
disorders" in some children remains unsettled.
Scientific studies showing no discernible link
between the vaccines and autism (the
Centers for Disease Control and Prevention
says "the weight of the evidence indicates that
vaccines are not associated with autism")
haven't stopped a vocal movement against
vaccination. But when it comes to case law, drug
manufacturers are clearly winning the fight.
(Here's our story, for instance, on
a trio of test-case rulings against
plaintiffs claiming a link by the U.S. Court of
Federal Claims.) The latest blow to plantiffs'
efforts came Friday, when Maryland's highest
court
delivered an opinion in a thimerosal suit
against Wyeth that will likely make it more
difficult for plaintiffs to qualify expert
witnesses in future vaccine cases. |
 |
MomTV Announces First LIVE Streaming Show by
Moms for Moms with the Penny Pinching Diva /
MomTV is a member of the NewBaby.com Family
Where Moms Can Create and Share Video along with
Watching and Hosting LIVE Streaming Video Shows
- May 13, 2009 Ft. Lauderdale, FL. MomTV.com,
the first streaming video destination site for
Moms to create, share, and learn via video and
streaming video and part of the NewBaby.com
family, has announced its first LIVE weekly show
with host Shynea Hunter from the popular mom
blog, “Penny Pinching Diva” on Thursday, May
14th at 9 PM EST. |
 |
'My disabled brother has twice been a victim but
the police can't do anything’- A SISTER has
claimed police officers said they couldn’t
prosecute her vulnerable brother’s attackers,
because his evidence wouldn’t stand up in court.
Ceri Storm, 16, who suffers from autism and has
a mental age of eight, was beaten up by a group
of young men on Saturday. But despite
being able to give clear descriptions of the
attackers, Ceri’s family claim officers said the
boy’s evidence wouldn’t be enough to convict his
attackers. Ceri’s sister, Vicci, of Barry,
said her brother just wants to be like everyone
else, but is being treated differently because
of his disabilities. She said: “Just because
he’s special needs doesn’t mean he can’t be
treated like any normal person, if anything he
should be helped more. |
 |
NAKMAS helps adults with Asperger's - The
chair of a martial arts group has backed
initiatives
to raise awareness of sufferers of autism
spectrum disorders such as Asperger's syndrome
and help them enjoy activities such as karate.
Joe Ellis, the chair of National Association of
Karate and Martial Art Schools (NAKMAS), who has
Asperger's himself, recently spoke about the
therapeutic effects of the sport at the launch
of the National Autistic Society (NAS) Northern
Ireland's I Exist campaign. He said: "Those with
Asperger's syndrome have obsessions and some
aspects of life can be difficult for those with
the condition. Martial arts have helped me
mentally and physically become more focused." |
 |
NAMI Magazine Cover Features President Obama
- The 2009 spring issue of the NAMI Advocate
Magazine features a cover story about two
conversations Matt Kunz of the
National Alliance on Mental Illness (NAMI) had
with President Barack Obama on
the mental health needs of America's veterans.
The cover photo shows Obama sitting at a picnic
table in a park in
Billings, Montana talking with Matt, his wife Sandy and
their infant daughter during the 2008 campaign.
Inside the issue, Kuntz shares the conversation
he had with the President aboard the Inaugural
train, where he presented him with a religious
medal to help him through hard times, and one to
Mrs. Obama to protect their family. |
 |
NAMI offers info on childhood mental illnesses
- A class for families of children with a mental
illness has been announced. Sponsored by NAMI
Missouri and the Missouri Department of Mental
Health, the free course that will begin June 13,
2009 and continue for three consecutive
Saturdays will cover the effects of ADHD, OCD,
bipolar disorder, PTSD, depression, autism and
other disorders on children and their families.
|
 |
Orrick Wins Dismissal by Maryland's Highest
Court of Expert Witness Testimony in Autism
Vaccine Suit - In the court of public
opinion, the debate over whether vaccines
containing thimerosal, a mercury-based
preservative, have caused "autistic-spectrum
disorders" in some children remains unsettled.
Scientific studies showing no discernible link
between the vaccines and autism (the CDC says
"the weight of the evidence indicates that
vaccines are not associated with autism")
haven't stopped a vocal movement against
vaccination. But when it comes to case
law, drug manufacturers are clearly winning the
fight. (Here's our story, for instance, on a
trio of test-case rulings against plaintiffs
claiming a link by the U.S. Court of Federal
Claims.) The latest blow to plantiffs' efforts
came Friday, when Maryland's highest court
delivered an opinion in a thimerosal suit
against Wyeth that will likely make it more
difficult for plaintiffs to qualify expert
witnesses in future vaccine cases. |
 |
Parents' fears for kids who 'see things
differently' - ONE of the biggest worries
for Charles and
Ingrid
du Toit, of Walmer in Port Elizabeth, is where
their severely autistic 15-year-old son will
spend his days after he completes his schooling.
Jamie needs to be continually stimulated and
kept busy and as working parents they will not
be able to do this. “Jamie needs a strict
routine and he needs everything in his life to
be planned. He needs to be constantly taught
things and he needs someone who understands how
to teach them to him,” said Ingrid, an
occupational therapist. Jamie attends Quest
School, the only school in the Eastern Cape for
pupils with autism, where he stays in the hostel
and returns home for weekends, holidays and each
Wednesday. |
 |
Researchers Identify Pathway to Reactivate
Myelin Repair - Researchers have identified
a key pathway that could lead to new therapies
to repair nerve cells’ protective coating
stripped away as a result of autoimmune diseases
such as multiple sclerosis. An article appears
in the May 13 online edition of the Journal of
Neuroscience. The research may also lead to new
therapies for autism, Alzheimer's disease, and
perinatal brain injury. |
 |
Sending Your Child with Autism to College /
Six essential tips for preparing young adults
on
the spectrum for college. -
Claire LaZebnik: I cried every day during
freshman orientation week when I went to
college. Not for any specific reason, mind you
-- I just felt overwhelmed. I was 15 minutes
away from my hometown but a world away from
being home. I didn't know very many people, and
it felt like everyone else was making new
friends more easily than I was. I couldn't find
my way around this strange new place and I
didn't think I'd ever feel comfortable there. In
the end, of course, I had a perfectly happy
college
experience, but I remember those early feelings
of terror and wonder how much harder the
transition will be for my son, who has autism,
and who's planning to go to college the year
after next. |
 |
Should a genetic test be developed to identify
autism in the womb? - In recent months, the
possibility of a genetic test to identify autism
in the womb has come up several times. No such
test is likely to be available anytime soon -
but the research that would allow such a test is
in process. The world of autism is filled
with complex and controversial issues. In my
opinion, though, this question is among the most
difficult. For some, the idea of an in-utero
test for autism is intriguing, offering as it
does the possibility of therapeutic intervention
from the moment of birth. For others, the idea
is terrifying, as it raises the possibility that
parents would choose to abort a fetus identified
as autistic. |
 |
Teen tells cops he killed mom's boyfriend in
defense of attack - A 14-year-old boy who
police said stabbed his mother's boyfriend to
death as the man attacked them early Wednesday
has been released to his mother as the
investigation continues, Detroit Police said.
Julius Wiseman, 31, was drunk when he returned
to his girlfriend's home in the 15000 block of
Manning at 1:45 a.m. and began hitting the
32-year-old woman and her son, police said.
The boy told investigators that he grabbed a
knife and stabbed the man to protect them,
Detroit Police spokesman Alan Quinn said.
The boy's name was not released because he is a
minor and is not charged with a crime. |
 |
The most gratifying experience of our lives
- A COUPLE who foster special needs children
have spoken out about the challenges and rewards
of caring for vulnerable youths. Andrew
and Nicola Wilkins, aged 42 and 34, have gone
public with their story as Foster Care Fortnight
launched on Monday aiming to address a 10,000
UK-wide shortage of carers. |
 |
Things you need to know about autism -
ROUGHLY 67 million people worldwide are affected
by autism. Autism is the fastest- growing
serious developmental disability in the world
and has increased tenfold in the past decade.
More children will be diagnosed with autism this
year than with diabetes, cancer and Aids
combined. It is now considered to affect 1 in
158 children under the age of six, making it by
far the most prevalent of all childhood
neurological disabilities. Boys are four
times more likely than girls to have autism.
40% of people with autism never speak or
understand the verbal word. Even those who do
have speech, often still have severe problems
understanding the normal process of reciprocal
communication. |
 |
W.Va. Mom Seeks Immunization Exemption - A
West Virginia mother is asking a federal judge
to force education officials to enroll her
daughter in public school without the required
immunizations. Jennifer Workman says it's
against her religious beliefs and she's
concerned about her daughter developing autism.
West Virginia Department of Health and Human
Resources attorney Charlene A. Vaughan says the
Mingo County mother's lawsuit essentially asks
the court to order the agency to break the law.
The state law requiring all school children to
be immunized against diphtheria, polio, rubeola,
rubella, tetanus and whooping cough does not
allow for a religious exemption. |
 |
What's Going On? – The Question of Continuing
High Levels of Toxic Metal Excretion - It’s
been said that a parent is only as happy as
their least happy child. That saying should
probably be reworked for autism parents. We will
be obsessed to the degree of impairment of our
least recovered child. I’m fortunate that
my son Ben had a complete recovery with the
quick implementation of the gluten/casein free
diet after his 18 month vaccination, but after
seven years of bio-medical treatments my
daughter Jacqueline is still severely affected
with autism and seizures. It is for her and the
parents of other children like her that I write
this article. |
 |
Worried About Autism? Have Your Child Evaluated
ASAP - A Washington University researcher
finds that autism diagnoses are typically made
when children are about six years old - years
after symptoms appear. According to
the press release: ... |
05-12-2009
 |
A fair chance at life - Kristi Reed loves
her children more than anything in the world.
But she wants to make sure that her youngest son
gets a fair chance at life. Last year,
Griffin Reed was diagnosed with pervasive
developmental disorder, a form of autism. The
10-year-old East Elementary student underwent a
nine- hour test at Riley Hospital in
Indianapolis that led doctors to their
evaluation. |
 |
Autism, anger, and motherly pride - When I
was Tom's age (nearly 13), I got angry a lot.
Between my hormones and my dad's over-reactions,
explosions were a regular event. The truth was,
we were in the midst of a power play. Who would
be in charge of... me? Virtually every
confrontation ended in the same way. I'd run up
to my room, slam the door, and pull out a book.
Dad would take a handful of Tums. And no one
would bother to find out what had started the
battle in the first place. |
 |
CBB Talks to Nicole Ari Parker and Boris Kodjoe
- Parents and actors
Boris Kodjoe
and
Nicole Ari Parker
recently opened up in PEOPLE magazine about
their 4-year-old daughter
Sophie’s
battle with spina bifida, and now the couple has
talked with CBB as well! We spoke to the couple
just before the
R Baby Mother’s Day Run/Walk in Central
Park. |
 |
Junk science has a new cover girl -
Chastising a celebrity is an exercise in
futility. You feel like a
kitten being held by the scruff of its neck,
scrabbling wildly in the air without drawing
blood. Pointless as this may be, though, I will
try to talk some sense into Oprah Winfrey, who
has decided to go into business with vaccine
skeptic Jenny McCarthy. There is abundant
evidence that vaccines don't cause autism. More
than a dozen studies, as well as trend data from
California and other states, show that neither
the mercury-containing preservative thimerosal
nor the measles-mumps-rubella vaccine causes
autism. In March, a federal court dismissed both
of these theories in a most definitive way after
hearing weeks of testimony and gathering
thousands of pages of evidence. |
 |
'One in 10 children overcomes autism', claims
professor - One in 10 children with
autism overcome the disorder by the time they
are nine - often following years of intensive
behavioural therapy, according to a study. Professor
Deborah Fein, of the University of Connecticut,
looked at data on 58 children aged nine to 18,
including 20 who were given a correct diagnosis
initially but years later were no longer
considered autistic. The phenomenon has
been questioned by sceptics, but Professor Fein
is convinced it is real. Previous studies have
suggested between 3% and 25% of autistic
children recover, but Professor Fein said her
studies have shown the range is actually
10%-20%. |
05-11-2009
 |
Analytical approach to a challenge - Emily
Bowman remembers thinking her life was over when
her son, Will, was diagnosed with autistic
spectrum disorder. But after spending time in a
special program for autistic children at
Newmeadow Saratoga School, Will is in a regular
first-grade classroom and Bowman has had the
simple thrill of hearing her son say ''Hi,
Mom.'' |
 |
Autism at the theater - When Tom was tiny,
he had a terrible time managing groups, crowds
or
even sitting still (except for his favorite
videos). By the time he was six or seven,
though, he was able to enjoy events like puppet
shows and children's concerts. Maybe it was the
Floortime (working on symbolic play) - or maybe
it was just Tom - but he was well on his way to
becoming a "patron of the arts." By the time he
was attending puppet shows, Tom (like many kids
with autism) was showing an interest in music.
In particular, he seemed to enjoy classical and
jazz. We tried group "KinderMusik" groups -
which were a bust. But in addition to taking
instrumental lessons, we found that our Tom was
more than capable of sitting through and
enjoying family concerts at the Philadelphia
Orchestra. |
 |
Behind the Scenes at “The Doctors” with Jenny
McCarthy - I’m grateful to the producers of
The
Doctors for running their show on Jenny
McCarthy’s new book
Healing and Preventing Autism and the debate
over vaccines and autism(Details
HERE). It takes courage in today’s media
environment to put a show on national TV like
that – hats off to them. About two weeks
before the show, I had an interview with one of
the producers over the phone. This is a pretty
normal part of preparation for any TV appearance
where you discuss your plans for how to approach
the show and the producers share some guidelines
with you on their goals for the show, etc.
I did my best to explain to the producer that we
would be bringing some serious energy and
knowledge to the show. Specifically, I told her:
“You need to tell your doctors that they better
be prepared and know their stuff. If we show up
and they start making sweeping statement like
‘the science has shown that vaccines don’t cause
autism’ we will kneecap them on their own
stage.” |
 |
Cervarix - An Injection of the Truth ... -
Scenario - young teenage girl with a possible
lowered
immune system and a pre-existing genetic
syndrome which includes a heart condition, has a
vaccine, within hours she falls ill. Over the
next few days she deteriorates, within a week
she is lying in hospital seemingly paralysed.
Tests are carried out but they all come back
negative. The child has one infection after
another and does not improve. The mother wants
answers, she wants to know why this has
happened, she wants to know how this could have
happened and all the while the child's health is
deteriorating. Every time vaccines are mentioned
as a possible cause for the child's health
problem the subject is quickly changed. The days
go on and no answers are found for why the young
girl is so ill and in so much pain. Suddenly,
social services are called in and mother is
accused of abuse, she is told that there is
nothing wrong with her child The social services
say that the abuse is keeping the teenager ill
when there is nothing wrong and she is told she
that her child does not need a wheelchair and
should go home and be encouraged to walk. Mother
is unable to take her child home as there are
steps leading up to the front door and it is not
suitable for a teenager who is not able to walk
up the stairs to the bathroom. |
 |
Computer helps boy with autism learn to speak
- Therapists work with Austin Hodges 40 hours a
week to help him overcome his autism and begin
speaking again. Austin, 9, was diagnosed
with autism more than five years ago. "I
couldn't hear anything else that (the physician)
said. I was just devastated," Liz Hodges said,
recalling the day she received the diagnosis
about her son. Autism is a brain development
disorder that usually manifests itself by age 3.
It is characterized by verbal, social and
emotional impairments that rob children of words
and often render them incapable of interacting
with others. |
 |
Driver Suspended After Leaving Autistic Boy on
Bus - A Box Elder County school bus driver
is on suspension after a five-year-old autistic
boy fell asleep on her bus and was later found
wandering the streets. The boy, Dylan Snow, has
autism spectrum disorder and dozed off as he was
going to the early learning center preschool in
Corinne. The Box Elder County superintendent's
office said when the kids were dropped off at
the school, neither the bus driver or aide
checked to see if everyone got off. "Each time
they exit the bus or each time they conclude a
run they should go to the back of the bus and
just check every seat for this very purpose,"
said Ronald Frandsen of the Box Elder School
District. |
 |
Local autism alliance expands as need rises
- In the year since his autism was diagnosed,
24- year-old
Cody Fuhrman has learned the art of the "social
fake" — pretending to be interested, even when
he's not. The program, which began last year, is
one of several ways the four-year-old Tucson
Alliance for Autism is expanding. As diagnoses
of autism increase and awareness of the brain
disorder continues to grow, the local non-profit
alliance is stepping up with new classes and
campaigns to both help those who are affected
and to educate the public. "You look at the
person and nod," explained Fuhrman, who said his
high-functioning autism had for years been
misdiagnosed as attention-deficit
(hyperactivity) disorder. Though Fuhrman
lives on his own and drives, he's not currently
working or going to school — both goals he's
hoping to reach with the help of a local life
skills program for young adults on the higher
end of the "autism spectrum."
|
 |
New Research Suggests Recovery From Autism Is
Possible - A University of Connecticut
researcher says intensive behavioral therapy can
help a small percentage of kids with autism
recover. - Deborah Fein, who presented a
study at a conference over the weekend, said
approximately 10 percent of children who have
autism can be “cured” with intensive behavioral
therapy. The majority of children with autism
won't recover, said the University of
Connecticut psychology professor, but families
should know it's a possibility. |
 |
Optimism For Bipolar Disorder And Schizophrenia
If Psychiatrists Abandon 19th Century Dogma, UK
- Nineteenth century thinking about
schizophrenia and bipolar disorder must be
abandoned if psychiatry is to progress, said a
leading UK psychiatrist. At a meeting of the
Biochemical Society, Professor Nick Craddock
from Cardiff University urged his profession to
embrace the opportunities offered by new
research methodologies. Advanced
technology and the large sample sizes in
research have led to unprecedented advances in
the identification of specific genetic risk
factors for psychiatric disorders as recently as
the last two years. "For more than 100 years
there has been a widespread assumption that
bipolar disorder (manic depression) and
schizophrenia are completely separate diseases.
Recent evidence, particularly from molecular
genetics, shows the situation is not so simple.
Some of the susceptibility genes are shared," he
said. |
 |
Quakes and Silicon Valley Team Up
With Quakes Players' Wives and Girlfriends for
Walk Now for Autism -
The San Jose Earthquakes
announced today that they have partnered with
the
Soccer
Silicon Valley Community Foundation to
participate in the "Walk Now for Autism Bay
Area" on Saturday, May 30 at History Park at
Kelley Park in San Jose. Earthquakes players'
wives, girlfriends and members of the team's
front office, along with Earthquakes fans will
walk in the event that raises funds and
awareness for autism. On May 30, the "Walk
Now for Autism Bay Area" registration will begin
at 9 a.m. PT, with the walk starting at 10:30
a.m. People interested in walking with the San
Jose Earthquakes team, "Miles for Missy", can
register on-line at www.walknowforautism.org/bayarea/milesformissy.
All participants that sign up for the
Earthquakes Team will receive a commemorative
t-shirt. All funds raised through the "Walk Now
for Autism Bay Area" will go toward autism
research. |
 |
Robot to teach autistic kids interaction -
European researchers have developed a robot with
artificial skin which they believe will help
autistic children learn to socially interact
with others. Autism is characterized by
impaired social interaction, problems with
verbal and nonverbal communication, and unusual,
repetitive, or severely limited activities and
interests. While the main cause of the
condition remains unknown, many believe genetics
and the environment both play a role in the
development of the disease. Researchers
aim to use the tactile sensors in the
child-sized humanoid robot, kasper, to detect
different types of touch autistic children react
to. |
 |
Single Gene May Cause Angelman's Syndrome -
U.S. scientists say impaired brain plasticity
caused by a single gene might be responsible for
learning disabilities associated with
Angelman's syndrome. The researchers at
the University of North Carolina at Chapel Hill
and Duke University said Angelman's syndrome --
often misdiagnosed as cerebral palsy or autism
-- includes characteristics such as intellectual
and developmental delay, severe mental
retardation, lack of speech, seizures and motor
and balance disorders. |
 |
Study: diagnosing autism early makes big
difference - Studies in recent years have
shown consistently that the age of diagnosis and
the services provided early on can make all the
difference when treating children with autism.
A newly-released study ranks Illinois 16th in
the nation. The study's author, University of
Pennsylvania researcher David Mandell, said
diagnosing and treating a child with autism even
a few months earlier can make a big difference
later in life. "At the most severe end of
the spectrum, in Rhode Island, the median range
of diagnosis is 55 months. In (Washington) D.C.
it's 74 months," Mandell said. |
 |
The right white stuff - Richard Cornish
investigates why we have lost the taste for real
milk. THE
cream from the milk sat on the coffee in
delicious yellow blobs. The person I made it for
took a sip, paused and spat it on the ground.
Retching, he said "That milk's off! It's
disgusting!" "No," I replied, "it's
unhomogenised." Like most people brought up on
processed milk, he was only accustomed to the
texture of milk that had been homogenised. To
him, milk was pure white, smooth, slightly
creamy and, somewhere in the hazy background, a
cow was involved. Like most people brought
up on processed milk, he was only accustomed to
the texture of milk that had been homogenised.
To him, milk was pure white, smooth, slightly
creamy and, somewhere in the hazy background, a
cow was involved. Over the past 20 years milk
has been marketed as both healthy, because it is
calcium rich, and harmful, because it is fatty.
The message for some is, if you know what's good
for you, you'll choose the low-fat version. As a
result, although we're still all drinking, on
average, about 100 litres of milk a year, the
percentage sales of regular milk in favour of
low-fat milk have dropped 22 per cent since
1989. |
 |
Tool Shows Promise in Identifying Infants With
Autism - Researchers have come up with a
relatively simple tool that could be the answer
to many clinicians' wish for a practical screen
for autism in very young children. Called the
Systematic Observation of Red Flags (SORF), the
instrument distinguishes between 18- to
24-month-olds with autism spectrum disorders (ASDs)
and those with either developmental delays or
who are healthy, normal children. A study
presented here at the 8th Annual International
Meeting for Autism Research indicates that
children who have at least eight of the 20 "red
flags" in SORF have a high probability of having
autism. |
 |
Under Threat Of Lawsuit, Insurer Says It Will
Cover Autism ... - Under threat of a federal
lawsuit, Blue Cross Blue Shield of Michigan
announced Monday that it will begin offering
coverage for autism treatments July 1.
Christopher Johns, whose son has autism, filed
suit earlier this year after Blue Cross denied
claims for applied behavioral analysis (ABA)
because the insurer said the treatment is
experimental. Now Blue Cross says it will offer
autism coverage including up to 60 sessions of
ABA therapy in group plans, pending regulatory
approval. Michigan does not require insurers to
cover autism. |
05-10-2009
 |
Autism often can be diagnosed years earlier
- A Washington University scientist has
published a new study showing that in most cases
the diagnosis of autism occurs when a child is 6
years old — about three to four years after a
determination is possible. Timely identification
and diagnosis of autism can impact the child's
development and is key to opening the door to
needed services and therapies, said Paul
Shattuck, an assistant professor at the George
Warren Brown School of Social Work at Washington
University. Shattuck and study co-authors
looked at health and education records of
8-year-olds with developmental problems from
around the country. Their research appears in
the current issue of the Journal of the American
Academy of Child and Adolescent Psychiatry. |
 |
Blue Cross to offer limited autism coverage
- Blue Cross Blue Shield of Michigan has
reversed its policy and now will offer treatment
coverage for children, mostly preschool age,
diagnosed with autism. The catch is that
Blue Cross is offering the coverage only for
children ages 2 to 5 whose families are insured
under their companies' group policies that offer
mental health coverage. Blue Cross also said it
will market the coverage to self-insured
employers. |
 |
Brain abnormality found in children with autism
- Young children with autism appear more likely
to
have enlarged amygdala - the part of the brain
associated with registering faces and with
expressing key emotions - according to a study.
The study compared the magnetic resonance
imaging (MRI) results of 50 autistic children
and 33 control children. The children’s brain
scans were taken at age two and again at age
four. Compared to the children from a control
group - who did not have autism - the autistic
children were more likely to have enlarged
amygdala. |
 |
Facts" about autism - debunked (part two) -
I spoke with a writer the other day who's
putting together a book for friends of people
whose children have been diagnosed with autism.
Her idea is to provide a sort of "Girlfriend's
Guide" to helping your friend/sister/cousin cope
with autism in the family. Problem is, at least
in my mind, such a book is either very, very
short (ask your friend/sister/cousin what they
need or want, then provide it) or very, very
long (here are the quadrillion different
possible symptoms of autism/reactions to an
autism diagnosis/individual needs, wants and
preferences). |
 |
Family Matters: Explaining Asperger's syndrome
- We are very concerned over a diagnosis a
school team has suggested may be true for our
son. He is in the fourth grade, and we have been
told we should have him tested for Asperger's
syndrome. He is a great student but a different
kind of child. We have been reading things on
the Internet and are scared to death. How do we
get him tested? What can we look for in his
life? Calm down and stop with the fear.
You and your son will be fine. Knowledge is
power, so let's begin there. Asperger's syndrome
is named after a German pediatrician, Hans
Asperger. He observed social anomalies and a
kind of rigidity in some of his patients. He
felt they had some traits of autism, but in a
mild form. |
 |
Graduating senior outguns autism
- With thousands of
high-school
and college seniors preparing for graduation in
the coming weeks, many students have had to face
adversity. One Peoria student,
however, faced challenges that most believed he
could not overcome. Greggory Ohannessian,
17, is a senior at Centennial
High
School
and just like others in his class, he's excited
for graduation. He's even more excited for next
year, when he will go to ASU West for college.He
is friendly and offers a firm handshake to
anyone he meets, and he's a whiz at math. He
wants to study business so he can one day open
his own restaurant. However, he isn't much
of a talker and doesn't hold a conversation for
too long. He struggles with forming opinions and
takes time to answer questions. Autism
diagnosis When he was 6 years old, he was
diagnosed with autism, a brain-development
disorder that impairs social interaction and
communication. Despite his autism, he
believes he can succeed. |
 |
Minimize excess stimuli for autistic students
- A child with autism can easily become
overwhelmed as a result of excess stimuli. When
there is too much going on, either visually or
audibly, the student may shut down and resort to
calming techniques including rocking, repeating
the same word or phrase and other behaviors. By
reducing unnecessary stimuli, teachers will help
keep the student engaged and on task while
reducing unnecessary behavior problems at the
same time. |
 |
Molière mores for our times - Is it
depressing that The Would-be Gentleman, a play
by the French satirist Molière, still retains
relevancy today with its observations about
human nature? Or was it merely canny enough to
portray French society in 1670 in a way that
retains so many truisms today? |
 |
One autistic child out of ten may recover -
While many believe autism has no cure, a new
study finds out of every ten autistic child one
can lead a normal life after years of behavioral
therapy. According to a study recently
presented at an autism conference in Chicago, 10
percent of the children diagnosed with autism
test normal on neuropsychological, verbal and
nonverbal exams after a few years of treatment. |
 |
One of a kind - Mother's Day means different
things to different moms. Elissa
Sorrentino, 32, of Barre Mom of twin boys,
who turn 2 later this month When Elissa
Sorrentino found out she was pregnant with
twins, she was a bit surprised. "I figured
something was up," she says of the news that
came 17 weeks into the pregnancy. "I was really,
really sick and I was getting really big, really
fast. … I was completely in shock and awe, super
excited, actually." Surprise soon turned into
elation. As the pregnancy progressed, Sorrentino
says, she was focused on what kind of double
stroller would be needed and cute names. She and
her husband settled on Logan and Lukas. "I was
kind of on a cloud," she recalls. "It would have
been nice if I'd met a mom of twins who could
yank me out of (that)" and back to reality.
Sorrentino worked for Washington County Mental
Health as an autism interventionist before
deciding to stay home to raise her boys. |
 |
Preclinical work shows how one gene causes
severe mental retardation - Researchers at
Duke University Medical Center and the
University of North Carolina have discovered in
mice how a single disrupted gene can cause a
form of severe mental retardation known as
Angelman syndrome. In a study published in
the journal Nature Neuroscience, they found that
the gene, UBE3A, is needed so that neurons in
the brain can form and adjust their connections
to other neurons for storing sensory
information. They also made a promising
discovery: When the mice were deprived of
sensory stimulation, the brain connections could
be recovered, a finding that indicated a
pharmaceutical or behavioral treatment might be
possible in the future. |
 |
Search for missing autistic teenager - A
TEENAGE autistic boy has gone missing from
Chulmleigh This morning, moorland rescue groups
and the police are searching the Eggesford area
for Richard Eckton, aged 17 Richard's autism
makes him very vulnerable and he has difficulty
in communicating He normally carries a blue
folder with pictures to help him and his
condition often makes him attracted to water He
was last seen at about 6.30pm yesterday in the
Eggesford area. |
 |
"Stormy" mother fights for her autistic son
- She was a difficult birth, so it's not
surprising her
mother named her Stormy. "Stormy" also
describes the Concordia woman's temperament --
periods of calm, followed by quiet rumblings
that sometimes turn into thunderous outbursts.
Stormy McCall makes no apology for her
disposition, particularly when it comes to the
welfare of her children -- Matthew, 10, Bethany
6, and Madison, 2. Stormy's "stormy" side
mostly is unleashed when Matthew, who has a form
of autism called Asperger's Syndrome, is
mistreated by those who don't understand his
condition. Asperger's is a developmental
disorder caused by a neurological condition,
according to the National Institute of
Neurological Disorders and Stroke. Symptoms
include impairment in language and communication
skills, repetitive or restrictive patterns of
thought and behavior, obsessiveness, anxiety and
socially and emotionally inappropriate behavior.
|
 |
UK Autism: Twin Brothers Worlds Apart-The Kevin
Healey Story - There are over 60 million
people with autism and Asperger’s Syndrome
around the world. Many have written accounts of
their lives - from the UK comes the story of
Kevin Healey, a young man with Asperger’s
Syndrome, his idential twin, shaun has autism.
‘Twin Brothers Worlds Apart’ is the moving
account of Kevin and Shaun - living in a world
of their own. Kevin Healey is now a leading
advocate for autism and Asperger’s Syndrome in
the United Kingdom. Recently a British autism
charity, the UK Autism Foundation invited him to
join their advisory board. He has been an
Ambassador for Autism and Asperger’s Syndrome
giving talks and lectures around the UK. He has
also led training sessions on autism and
Asperger’s Syndrome. Kevin Healey set up the
Staffordshire Adults Autistic Society many years
ago and he has been a powerful advocate for
autism. The Kevin Healey autobiography,
‘Twin Brothers Worlds Apart,’ is a fascinating
read. It is a moving account of living with
Asperger’s Syndrome. The book is priced at
£12.99 plus a postage cost of £1.50 from the
Staffordshire Adults Autistic Society, Po Box
2977, Newcastle Under Lyme, Staffordshire,ST55
9DN. |
05-09-2009
 |
12 kids is just a start - Some stay-home
moms relish the quiet that blankets a house when
the youngest
children finally head off to school. It
made Christy Obie-Barrett itchy. Seven of
her 12 children still lived at home, so she had
no shortage of laundry, grocery shopping,
cooking, cleaning and carpooling. But once twins
Delaney and Lilly Barrett enrolled in
kindergarten five years ago, Obie-Barrett, who
was 40, remembers wondering, "What do I do with
myself now?"
Write a book about her enormous, eclectic family? Definitely. Start
a nonprofit? Absolutely. Improve Oregon's
foster-care system? She'd met big
challenges before. But reimagining that
underfunded, overworked, steeped-in-bureaucracy
operation into a sleek social machine that
swiftly connects children in need with
permanent, loving homes? That goal was
outlandish for lots of reasons, not the least of
which was that Obie-Barrett didn't know much
about foster care. |
 |
A beautiful mind -
INTERVIEW:
Sanjida O'Connell combines novel writing with a
busy career as a TV presenter. She achieved
academic success as a zoologist, and her new
book is as much about religion as it is about
botany. Is there anything she can't do, asks
LOUISE EAST
. |
 |
Autistic Golfer Helping Kids - After
everything he's been through it's hard to
believe Jarrad Kogos is still playing golf, but
he's not only playing, he's teaching kids too.
Kogos has autism and then four years ago he was
diagnosed with a brain tumor. After all his
treatments and operations golf helped him cope
and get his strength back. Now he's starting his
own golf clinic to share what helped him with
other kids with autism. "I realized how hard it
is for someone like me by themselves who doesn't
know these golf connections to get out to the
golf course and be able to play," says Kogos.
Donations from The Players and a grant from
local autism awareness group HEAL, made the
clinics a reality. |
 |
Autism epidemic in Sri Lanka? / Well, that’s
what you might read if/when some other blogs see
this new study:Screening of 18-24-Month-Old
Children for Autism in a Semi-Urban Community in
Sri Lanka. Soon to come out in the Journal
of Tropical Pediatrics. - All children aged
18-24 months in a defined geographical area were
initially screened for autism, using ‘Red Flag’
criteria. All the children with one or more
positive ‘Red Flag’ signs were further screened
using Modified Checklist for Autism in Toddlers
(M-CHAT) translated to Sinhala, followed by a
comprehensive clinical assessment. Of a sample
of 374 children, ‘Red Flag’ signs were positive
in 28 (7.4%). Four children received a diagnosis
of autism on clinical assessment giving a
prevalence of 1.07% or 1 per 93 in the
18-24-month age group. Sensitivity of M-CHAT was
only 25%, and specificity 70%. The high
prevalence detected strongly justifies early
community-based screening, but a culturally
sensitive screening tool needs to be developed
for Sri Lanka. |
 |
Autism is not socially exclusive - FRIENDS:
Re letter from Jeffri Klamp ('Social networking
no use for people with autism, The Sentinel, May
7). Some people with autism may have
narrow interests, but this does not apply to all
the autistic community. We have over 130
autistic adult members who love socialising,
such as attending our discos, going bowling, to
the cinema, ice skating, paint balling,
swimming, and to the theatre. We, as a charity,
help people with autism attend outings and
events at their own free will. |
 |
Eagle Mountain autistic boy found abandoned
- Police found a six year old with autism
wandering the streets of Eagle Mountain
Saturday. He was wearing nothing but a soiled
diaper. The child’s mother is going to spend her
Mother’s Day without her five kids. They were
taken away by child protective services. When
police entered the home, they found 37 year old
Jennifer Empey, who they say was unresponsive
and appeared to be unconscious. Police say Empey
and three of her children were lying on trash
strewn around the apartment, like underwear,
rotting food, and feces. |
 |
House calls: Don't let autism scare stop
vaccines - If you are a parent of a young
child and are concerned about the possibility
that vaccinations could cause your child to
develop autism, you are not alone. Last week I
revisited the issue of whether vaccines might
cause autism, a severe childhood disorder
characterized by delayed verbal and
socialization skills. I won't be able, in this
short column, to allay all your fears or provide
absolute answers. But I hope that by sharing
some of my conclusions, you will have a better
grasp of the issue. |
 |
IMFAR- Where Autism Science Stands Still -
IMFAR may never promote or support any
innovative work in autism research, but they do
deserve credit for one remarkable discovery: a
time machine! Yes, IMFAR organizers and
scientists have trumped modern science by
inventing a time machine that can take autism
research far, far, far into the past. You
thought it was 2009? Wrong, as far as autism
research goes! IMFAR has turned the clocks back
10 years! |
 |
In Defense of the "Autism Diet" - The GFCFSF
diet, known as the “Autism Diet” has been
around for many years and has helped many people
with ASD improve their lives,
health and functioning. The following are my
reasons to defend the diet.
The diet has
proof to back it up -
Research by Dr. Harumi Jyonouchi shows that
91% of people with ASD who were put on a strict
GFCFSF diet improved. Jyonouchi’s papers say
that ASD
children have an aberrant immune response to
the dietary proteins found in gluten, casein and
soy. This peer-reviewed research merely backs up
what parents have been saying for more than 10
years. Countless parents report that the diet is
dramatically beneficial for their child. The
most common comment we hear from parents is that
their child “came out of the fog” when we
started the diet. Many parents report that their
children began to talk or increased their speech
with the diet as well. Although this is
anecdotal evidence, the preponderance of is it
massive and consistent, and deserves a trial by
families. |
 |
Judge Boots McDonald's Class Action on
Ingredients of Fries - deceived the public
about
allergens in its potato products. U.S. District
Judge Elaine Bucklo called the proposed class
"too broad" and "unmanageable." The
putative class claimed that McDonald's failed to
properly list allergen information for its
french fries and hash browns until February
2006, when it adjusted the nutritional facts to
reflect that the products were partially fried
by the supplier in an oil containing small
amounts of wheat bran and casein. McDonald's had
previously stated that the products were gluten-
and dairy-free Judge Bucklo wrote that the
proposed class was "over-inclusive:" anyone who
purchased the fried potatoes from McDonald's
between Feb. 27, 2002 and Feb. 7, 2006, and who
had been diagnosed with "celiac disease,
galactosemia, autism and/or wheat, gluten or
dairy allergies," regardless of whether they
bought the products in the belief that they were
allergen-free. |
 |
Lack of Food Variety Puts Kids with Autism at
Risk for Poor Nutrition - Two Studies at PAS
Suggest Food Variety and Cognition-Related Fatty
Acid are Important to Well Being of Affected
Children. The strong preference kids with
autism have for certain foods places them at
risk for nutritional deficiencies because their
diets lack sufficient variety, according to
research from Cincinnati Children’s Hospital
Medical Center at this year’s Pediatric Academic
Societies meeting in Baltimore. Presenting their
findings May 4, the researchers said screening
children for the amount of variety of food in
their diets may be a good clinical marker to
predict which children might be at risk for
nutrition problems. Kids with low food variety
scores who are at risk could then be referred to
dieticians or therapists to help them expand
food choices and improve nutrition, said
Michelle Zimmer, M.D., lead investigator and a
pediatrician in the division of Developmental
and Behavioral Pediatrics at Cincinnati
Children’s. |
 |
Law officials to meet with parents of autistic
children - The Hench autism studies program
at Defiance College will hold a parents' meeting
on May 21 from 7-8:30 p.m. in room 106 of
Schauffler Hall. The meeting will focus on
risk management with a discussion about what
families can do to help law enforcement
officers, firefighters and emergency personnel
(first responders). Guest speaker Carol Armitage
of the Defiance County e-911 system will speak
about what steps can be taken to be prepared for
emergency situations. |
 |
Lawyer, wife push for gains on autism - Did
you grow up in St. Louis? — No, I grew up in
Waterloo, Iowa. We moved here when I was 15 and,
yes, it was traumatic. How long did it
take you to feel like you fit in? — About a
year. We moved here in May, so that first summer
I didn't know anyone and really couldn't meet
anyone. But when school started, I started
making friends and it got better. How did you
meet Patricia? — I say I met Tricia when her
brother and I got to be friends in 1986. She was
dating another friend's brother, and I met her
at a party. I told her brother that I thought
she was a knockout and he sort of said, "Hey,
that's my sister!" |
 |
Mother jailed after police remove kids from
filthy home - A mother is in jail after
officers removed five children, including a
child with autism, from an Eagle Mountain home
covered in rotting food, garbage and human and
animal feces. Utah County officers got a call
Thursday from a neighbor who noticed a small
child, dirty and bruised, wandering around the
street wearing only a soiled diaper, according
to a police affidavit filed in 4th District
Court. |
 |
North Ogden mom organizes social group for
children with autism - Jolaine Garner's
13-year-old son has trouble fitting in at
school. Joseph's phone doesn't ring after school
and the house isn't abuzz with the sounds of
teenage boys laughing and joking around. Garner
misses the noises. Joseph has Asperger's
syndrome, a condition related to autism, so he
has different needs, but still knows he doesn't
have friends. He realizes kids his age don't
understand the way he thinks and learns. |
 |
One in 10 children with autism overcome
condition by age nine ... - Some of the
children in the study, which is still ongoing,
were diagnosed by an autism specialist before
the age of five but no longer meet the
diagnostic criteria for autism. The findings,
presented by University of Connecticut
psychology professor Deborah Fein, suggest the
children recovered after undergoing years of
intensive behavioural therapy. |
 |
Parents want to set autism record straight -
As the parents who have been at the forefront in
trying to obtain health care coverage for the
6500-plus children in our state with autism and
who helped write Nick’s Law, we would like to
set the record straight on this legislation.
Autism is a medical condition. It not only
affects the child’s ability to speak, socialize
and process information, but in many children,
severe gastrointestinal issues, the central
nervous system and the immune system are
compromised. Autism’s symptoms can be very
mild to very severe. |
 |
Single mom in Pasco is honored by Working Mother
magazine - When Seven Oaks Elementary
School needed a playground for its special needs
students, it brought in the tween idols Jonas
Brothers for a benefit concert. They raised
$15,000. A good start, but not enough.
Meanwhile, a single mom worked quietly behind
the scenes. One day, out of the blue, Theresa
"Terri" Heaney came to principal B.J. Smith and
said she had $9,000. "She was so incredible at
keeping the secret," Smith recalled. |
 |
Somebody has to do it - My mother didn't
learn to drive until she was 48. And when she
did, it
wasn't her choice. One day, there was a
four-year-old 1961 Chevy Envoy parked in our
driveway and someone had to back it out.
My father, who had polio, couldn't. My older
sister, Renee, who'd just got her driver's
licence and for whom the car was purchased,
wouldn't. She learned on an automatic and the
boxy little lemon my father bought for her
without her consent or knowledge was a manual.
She wasn't ungrateful, just unprepared. So my
mother took lessons. She wasn't a good driver
and knew it. During her road test, the
instructor at the licence bureau scolded her for
not being able to parallel park. "Fail me, pass
me, do what you want," she said. "But don't
shout at me. I'm doing the best I can." He
passed her. She never learned to parallel park. |
 |
- Danny Lawley is one of the lucky
ones. At 49, the man with developmental
disabilities lives semi-independently with a
roommate at an apartment complex in Fort Myers.
Through the week, Grace, his supported living
aid, drops by to help with bills or coupon
clipping. When the need arises, she helps him to
doctor's appointments or other errands. He
also spends a lot of time just living his life
the same as anyone else. "I like it here,"
he said. "It's close to things. I can play
tennis. I like to go bowling with my friend
Robert. I like to go swimming." Lawley was born
in Wachula and lived in group homes for most of
his life. The experience, he said, is not
something he would like to repeat. "They were
too bossy," he said. |
 |
Strength of a mother's love - THESE women
are mothers of autistic children who are
celebrating
Mother's Day by raising awareness of the
condition. They are confident, articulate
and successful women determined not to let
autism - which effects about one in 166
Australian children - define their families.
Autism is a complex condition. It covers a
spectrum of developmental disorders that affect
communication and social skills. Worldwide it is
on the increase. Researchers recently warned
that as many as one in 60 British children had
some form of autism and that had serious
implications for planning, diagnostic, social
and health services. In March, US
President Barack Obama invested in a
multi-million-dollar research program to
investigate the causes and provide more
assistance to families. |
 |
Study Indicates Some Autistic Children May
Recover - A small research study published
recently indicates that more than 10 percent of
children born with autism are able to overcome
the disorder by the age of 9, usually through of
years of intensive behavioral therapy. A number
of critics have voiced skepticism about the
study, but Deborah Fein of the University of
Connecticut is convinced that the phenomenon of
recovery represents a real breakthrough in the
field of autism research. At a conference on
autism held in Chicago last week, Fein presented
the results of her research in which she had
examined 58 children of which 20 had been
diagnosed as autistic at a young age but were no
longer considered to have the disorder several
years later. |
 |
US education secretary mum on Strickland's
school plan - After U.S. Sen. Sherrod Brown,
D-Ohio, and more than half a dozen other
speakers whooped it up for Gov. Ted Strickland’s
plan to overhaul education and school funding,
U.S. Education Secretary Arne Duncan had his
chance. Duncan didn’t say a word about it to the
crowd gathered outside the Schottenstein Center
at the Ohio State University on Friday, May 8.
“It’s not really my job to endorse...,” Duncan
told reporters after the rally after what
Strickland aides had billed as a “rally for
education reform.” |
05-08-2009
 |
A Mother's Love: Coping With Mental Illness
- Parenting a child with mental illness can be a
daunting and lonely job. I met a Tri-State mom
who works hard to advocate for her son, and who
can teach us all a lesson in determination and
love. As soon as 8-year-old Max gets off the
school bus in Oakley, he's off and running. When
you first meet Max he seems like a typical boy,
but life with Max is not typical. Max's mom,
Melissa Schlagheck, said he put holes in the
wall that were 5 to 6 feet in diameter. She had
to remove all of his furniture from his room. He
broke the windows so she had to put Plexiglass
in them. |
 |
Aging With Autism - The state of Utah has
one of the highest rates of autism in the
country. In fact, the numbers show, one out of
every 133 children has the disorder. But often
what we don’t report is the challenges that
families with adult autistic children face.
For the past 44-years, Mary Paulsen has done,
what any good mother would do, with great love.
She has taken good care of her son Philip. He is
a grown man who enjoys simple tasks and lives
every day of his life, with autism. |
 |
Analyst charged with abuse of teen - A
behavioral analyst at Our Lady of Peace
psychiatric hospital is facing a felony criminal
abuse charge a year after he allegedly allowed a
17-year-old girl to beat her head on a floor
more than 120 times while trying to determine
the cause of the teen's self-injury behavior.
Jeffrey E. Dillen, 28, "wantonly abused" a
"physically or mentally helpless" teen on May
13, 2008, by placing her in a situation that may
have caused her serious physical injury, torture
or cruel confinement, according to an indictment
handed up yesterday by a Jefferson County grand
jury. |
 |
Depression, Schizophrenia, Obsessive Compulsive
Disorders, Anxiety ... - EmpowHer, the home
of women's health online, and NARSAD, the
world's leading charity dedicated to mental
health research, are working together in a
formal collaboration to spread awareness of the
importance of funding brain and behavior
disorder research. Through an innovative online
partnership, EmpowHer and NARSAD will work
together to provide the public with essential
information and resources on the many
psychiatric brain disorders that impact much of
our population, from patients to caregivers.
Together, the two health organizations will
provide state-of-the-art multimedia content that
includes articles and videos of experts
discussing the latest in brain research and
treatments. The health conditions covered in
this partnership include
anxiety, mental health, obsessive compulsive
disorders, posttraumatic stress disorder,
schizophrenia and social phobias. |
 |
Doing 'it' the right way - People with
learning disabilities are very vulnerable to
sexual abuse and
lost in regards to sexuality. Still, many are
denied empowerment through education. IT was
only last month when an elderly man was caught
raping his 14-year-old mentally disabled
neighbour for four months in Pekan Nenas. In an
earlier case a week earlier, it was the other
way round when a Form Three boy was caught
raping a rubber tapper's mentally-challenged
wife. Would they have had a chance to escape if
they knew how to refuse and speak up for
themselves? An even bigger question is whether
they knew what sex and ethics are about to
recognise they have been abused - highly
unlikely, thanks to societal fears of that three
letter word, which represses the rights of the
learning disabled. |
 |
Eden Autism Services - Eden Autism Services
has launched the public phase of its $7 million
"Nurturing Today, Embracing Tomorrow"
fundraising effort. The capital campaign
will help pay for a new state-of-the art school
for people with autism, which will be located in
Princeton Forrestal Village, and establish an
endowment fund to supplement money received from
the state for autism care. To date, more
than $2.5 million has been raised, organizers
said in a release this week. The
fundraiser launch was held at the Westin
Princeton at Forrestal Village in Plainsboro,
where nearly 150 supporters joined Eden's CEO
Tom McCool and campaign co-chairs Marie and Jeff
Gary, Bob Humes and Ed and Marge Schwallie.
|
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Family Says Autistic Child Abused At School
- The family of an autistic boy told WAPT that
he
was abused at school and they want someone held
accountable. “We noticed bruising by his
left eye socket down on his cheekbone and
scratches on his neck,” Bill Wilkinson said of
his son Samuel. Wilkinson said Samuel was
held down and beaten by teachers after the boy
had a tantrum. “My son can't talk but he's
smarter than everyone else in this room,”
Wilkinson said. |
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Former social worker sentenced to jail for
indecent liberties - A former social worker
who counseled children with autism was ordered
to spend five months in jail and given a
two-year suspended sentence on Friday after
pleading guilty to sex crimes involving a
15-year-old male client. Thomas A. Gill, 63, was
charged last year with indecent liberties and
communication with a minor for immoral purposes
after he and an autistic teen client were found
naked in Gill's Mercer Island home. The state
Department of Health issued an emergency
suspension of Gill's social-work license after
the charges were filed. According to court
records, Gill had been counseling the
15-year-old for three years and occasionally
also provided "respite care" for the boy that
involved having the boy spend the night at
Gill's home. |
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Gene Variants Linked to Autism Spectrum
Disorders Variants in ... - Variants of
neuronal cell- adhesion
molecules are associated with autism spectrum
disorders, according to two studies published
online April 28 in Nature. In the first study,
Kai Wang, Ph.D., from the Children's Hospital of
Philadelphia, and colleagues performed a
genome-wide association study in two groups, one
comprising 780 families with 3,101 children
affected with autism spectrum disorders, and
another comprising 1,204 affected individuals
and 6,491 unaffected individuals. They found
that single nucleotide polymorphisms of the
CDH10 and CDH9 genes were significantly
associated with the disorder and were replicated
in two independent groups. |
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Health Matters: Diagnosing Autism Early is
Critical - New research says kids with
autism aren't be diagnosed early enough.
The Washington University in Saint Louis study
also found female cases are identified later
than males. Researchers looked at data
from thirteen cites collecting health records on
kids with developmental problems. They
found the average age of an autism diagnosis is
nearly six years old -- three to four years
after a diagnosis is possible. Researchers say
nailing down an autism diagnosis early on is key
to helping the child with services and
therapies. The study appears in the Journal of
the American Academy of Child and Adolescent
Psychiatry. |
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If these walls could speak - Aradale has
opened its doors to the public. Sandy Guy takes
a tour of the former asylum built in 1863.
Local legend has it that an Ararat
businessman running late for a Christmas concert
arrived at the formidable gates of the Aradale
Mental Hospital to find them locked. A man on
the other side, a patient, pulled some wire from
his pocket, unlocked the gates with it, let the
latecomer in and relocked them. The tale of the
gates is just one of countless stories about the
thousands of people confined at Aradale,
originally called the Ararat Lunatic Asylum,
since it was built in 1863. |
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Lawyer, wife push for gains on autism - Did
you grow up in St. Louis? — No, I grew up in
Waterloo, Iowa. We moved here when I was 15 and,
yes, it was traumatic. How long did it
take you to feel like you fit in? — About a
year. We moved here in May, so that first summer
I didn't know anyone and really couldn't meet
anyone. But when school started, I started
making friends and it got better. How did you
meet Patricia? — I say I met Tricia when her
brother and I got to be friends in 1986. She was
dating another friend's brother, and I met her
at a party. I told her brother that I thought
she was a knockout and he sort of said, "Hey,
that's my sister!" |
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Mass mugging gang locked up - BRITAIN’S most
vicious gang of street muggers were jailed
yesterday for 170 robberies, including one where
they nearly killed a woman by stamping on her
throat. Babyfaced G-Block crew members —
some as young as 13 — donned “Scream” masks
while brandishing knives, hammers and baseball
bats to terrorise commuters on their way home.
Most victims were professional women aged 20 to
40 targeted in so-called “sucking season” raids
for their mobiles, iPods, cash, laptops and
credit cards. ...Akheem Gray, 16, from Tulse
Hill, who suffers from epilepsy and high
functioning autism, similar to Asperger’s
Syndrome, was given four years detention. His
brother Ameel Gray, 15, from Streatham, got
three and a half years. |
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Missing Vancouver teen found in Tacoma -
Police say 16-year-old girl from Vancouver,
Wash., was found safe Thursday in Tacoma afer
the girl went missing Wednesday afternoon.
Authorities were concerned because the girl has
Asperger's syndrome, a form of autism.
Authorities say Carisa E. Tuck was picked up by
law enforcement and was in good condition. She
will receive a medical evaluation due the fact
she didn't have access to her medication. She
will be on her way home soon. |
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Mother's Day Wishes for Autism Moms - Autism
moms are among the hardest working people in the
world. They advocate, teach, study, research,
manage - and that's just for starters. Some
autism moms are raising multiple kids with
disabilities; others are taking on entire school
districts, building non-profits, or leading
social skills group. Do you know an autism
mom who deserves special Mother's Day wishes?
Let everyone know - right here! |
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Mother Says Special Diet Helped Son With Autism
- There is no cure for autism, but plenty of
parents said they have found therapies and
strategies that are helping their children live
better lives. Susan Delaine is one of those
parents. Delaine's 8-year-old son Justin suffers
from autism. About six years ago, Delaine
decided to try changing Justin's diet by
eliminating gluten and all milk products. "His
language skyrocketed, his digestion completely
improved. He was able to focus a whole lot
better in school and able to express himself,"
said Delaine. Experts said following a
gluten-free diet is not easy. |
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Northwoods' woman says risperidone killed her
father - That's the very simple,
straightforward message one Northwoods' woman
wants to spread to the world, and especially to
Wisconsin residents: Risperdal kills, and
Rhinelander resident Lisa MaKarrall says she
knows because it killed her father. One of the
world's best-selling drugs, Risperdal, a highly
controversial antipsychotic medication
manufactured by Janssen Pharmaceutica, and its
generic formulation have for years been popular
among the medical establishment, used not only
for FDA-approved treatments of schizophrenia,
bipolar disorder and irritability associated
with autism in children but for a broad array of
"off-label" diagnoses such as
deficit-hyperactivity disorder (ADHD),
depression, anxiety, mood disorder, and
aggression associated with late-onset dementia. |
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Officers remove children from feces-covered home
- A mother is in jail after officers removed
five children, including a child with autism,
from an Eagle Mountain home covered in rotting
food, garbage and human and animal feces. Utah
County officers got a call Thursday from a
neighbor who noticed a small child, dirty and
bruised, wandering around the street wearing
only a soiled diaper, according to a police
affidavit filed in 4th District Court. |
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Police back autism card - THREE police
forces have joined a scheme to help safeguard
autistic people living in their counties.
Cambridgeshire, Hertfordshire and Bedfordshire
police launched an Autism Alert Card at an event
attended by some of the country's leading autism
charities and professionals. Carers of people
with autism can now apply, free of charge, for a
card which will be carried by the autistic
family member. The card tells people that this
person has an autism spectrum condition and
explains that they have social communication
difficulties. |
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Recipe for a successful life - For more than
a decade, Memphis Beat The Odds (MBTO)
founder, Dr. Theresa Okwumabua has been
recognizing young people who triumph over
disabilities and obstacles and the champions who
help them to find their way. Dr. Theresa
Okwumabua is the founder of Memphis Beat the
odds which focuses on “uplifting the quality of
life in our community by telling the community,
particularly the youth, that they can beat the
odds, too.” (Photo by Greg Russell) On
Thursday, May 14, MBTO Foundation will host its
15th Annual Memphis Beat the Odds Banquet
recognizing six special young people with the
MBTO Student and Youth Award and two adults with
its Cathryn Rivers Johnson Award. |
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Reigate boy, 4, on life-changing diet -
Chuckling as he raced around the wisteria with
his watering can, four-year-old Hugo Lewis
beamed with life. As his proud parents
looked on, their chirpy little lad proudly posed
as his two brothers wondered what all the fuss
was about.
Just six months ago he couldn't read, could
barely speak and was in a school for disabled
children due to a condition causing brain
tumours and epilepsy. Suffering with
Tuberous Sclerosis, little Hugo faced up to 40
fits a day, some serious enough to put him in
hospital for a week. |
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Research suggests children can recover from
autism - Leo Lytel was diagnosed with autism
as
a
toddler. But by age 9 he had overcome the
disorder. His progress is part of a growing body
of rese | | |