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Articles
Recent Media Coverage of AS
& Related Articles
We will list the current media coverage for the
last 30 days at the beginning of this page as well as in our section
below. This will be updated on the first day of every
month. A.S.P.I.R.E.S. does not endorse these
articles. We share them with you for informational purposes
only.
04-28-2008
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A voice for autism
- Before autism became the subject of an Oprah TV special,
before it was a "Larry King Live" topic and before actress Jenny
McCarthy wrote a book about it, a local mom was sharing her
story on morning radio. Jenn Jordan has been a mainstay on the
popular Jeff & Jenn show on WKRQ-FM (Q102) for five years. When
her only child, 6-year-old Jakob, was diagnosed with autism in
February 2005, she didn't hesitate to tell her listeners. "It
was completely consuming my life. It's not something you can
leave at home," the 38-year-old Mason resident says after a
recent show. Today she's one of this area's highest-profile
autism advocates. On-air, you might have heard her mentioning
that April is National Autism Awareness Month. Off-air, she's
reaching out to the 3,000 area families whose children have
autism and devoting energy to organizations that serve them.
|
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Answers About Autism Part 1
- One out of every 150 children in America is living with autism
today. That's one and a half million people suffering from the
effects of this illness, an illness doctors say is treatable
through early diagnosis and intervention. It's an illness
that knows no racial, ethnic or social boundaries, and it's
touched the lives of millions including 4 year old Luke Scott.
Tallahassee resident Tracy Stewart first noticed symptoms when
her son was just one. He was not pointing to things or
responding to her voice, Tracy thought he was deaf. But when she
took Luke to his pediatrician she got some devastating news;
Luke was autistic. Tracy Stewart said, "It's literally been the
most trying experience of my life, because I care about him so
much and to watch him struggle not just struggle now but to lose
skills for so long, it's difficult." |
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Book on special needs teaches kids empathy
- MetLife Inc. wants to teach children how to
accept people with disabilities.
Distributed through
MetDesk, its division of estate planning for kids with
disabilities, the company is releasing a workbook called "The
Special Needs Acceptance Book." It was written by Ellen Sabin,
founder of New York-based Watering Can Press, who also wrote
"The Giving Book" and "The Autism Acceptance Book."
|
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Boys being boys
- It’s the universal hope of all expectant parents: a healthy
child, a “normal” child, a child with 10 fingers and 10 toes and
the chance that comes with all this for a life unhindered by
sickness or disability. And for many, it’s a wish that comes
true. But Francie Rau and her husband, Robbie, know how it is
when it doesn’t. They know how it is to discover the tell-tale
creases running straight across a baby’s palms and the roll of
fat at the back of his neck - both indicators of the chromosomal
disorder Down syndrome for which their son, Ryan, tested
positive soon after birth. A few years later, he also was
diagnosed with autism. |
 |
Dunagan gets 10 years in state prison
- Eugene Dunagan, 71, has been sentenced to 10 years in state
prison, with an additional 10 years supervision. On Feb. 21, the
Colfax resident, former teacher and municipal court judge was
found guilty of the second-degree sexual assault of a
mentally-deficient victim, a Class C felony. Prior to handing
down his sentence on Tuesday afternoon, Dunn County Circuit
Court Judge William Stewart stated that he had taken into
consideration the state’s advice, the comments of the witnesses,
and his extensive perspective on the case. “This is a sad day
for everyone in this courtroom today,” the judge said. “No one
is going to leave here happy. The harm done to the victim is
irreparable — and just staggering.” |
 |
Emerging Treatment Could Improve Autistic
Children's Behavior
- With
the number of children diagnosed with autism growing by the
thousands each year, parents are desperate for a proven
treatment. FOX 26's Greg Groogan reports on an emerging
treatment supported by research in this Only on FOX story.
|
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In Depth: Living with Autism; student with
Asperger excels in math ...
- Fascinated with outer space when Levi Johnson was only 3 years
old, he could easily name all the planets in order from the sun.
“I was amazed because I don’t even know all the names and what
order they are in, and we had never taught them to him,” said
Laurie Johnson, Levi’s mother.
See more in Kara Hildreth's Thisweek Live story.
|
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Her Name Is Sabine
- Actress Sandrine Bonnaire makes a moving directorial debut in
this thoughtful documentary about her younger sister, Sabine,
whose autism-related behavioural difficulties went undiagnosed
for the better part of three decades. Winner of the Fipresci
award at Cannes 2007, this is a powerful statement about the
limits of love in the face of chronic debilitating illness.
|
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'Israel must do more to raise awareness about
autism' -
Suzanne Wright talks in numbers. For her, the world is clearly
measured in the percentages of children and adults who suffer
from the neurobiological development disorder known as autism,
and for her those figures speak louder than a thousand words.
"In your [former] country, the UK, the percentage is very high:
One in 80 children is diagnosed with autism," begins Suzanne, as
we sit together in her suite at the David Citadel Hotel in
Jerusalem on Monday. Later on in our interview, she adds
that in her native US, it's one out of every 150 children, with
one in 94 boys being diagnosed - and in Israel, the official
estimate is one in 214. "Its roughly one percent of the
male population globally," continues Suzanne, who together with
her husband Bob founded one of the US's fastest-growing
nonprofit organizations, Autism Speaks, three years ago.
|
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Politics of autism
- State House leaders acknowledged Monday that the state doesn’t
have the money to have Medicaid and Healthy Kids cover all
Florida children with autism. But they still oppose the Senate
plan that would immediately require private health insurers to
cover autism treatment. Instead, the House wants to “put a
mechanism in place” to have autistic kids get coverage through
Healthy Kids whenever the money becomes available. “This bill
will help all the children with autism,” said Rep. Aaron Bean,
the Republican from Fernandina Beach who headed a House task
force on the issue. His bill would only require insurers
to provide autism coverage if the state could not come to an
agreement with insurers in two years on how best to cover the
children. |
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Scientific jobs suit autistic people: Expert
- People born with disorders such as autism and Down syndrome
still have good career opportunities, a psychologist said
Saturday. Child expert Diennayarti Tjokrosuprihatono from
the University of Indonesia said it was time people took a
positive view of autism and Down syndrome. "People should
shine a positive light on what has traditionally been looked at
as a disability and convert it into an ability," she said during
a discussion about child development. |
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Study: Link Between Mercury Exposure And
Autism - A
new study shows a statistically significant link between
industrial release of mercury and increased rates of autism in
children at a time when more Americans are using compact
fluorescent light bulbs that can release mercury if thrown in
the trash instead of being carefully recycled. The study
published in the journal Health & Place by researchers at The
University of Texas Health Science Center at San Antonio, showed
that there is a statistically significant association between
autism risk and the distance from a mercury source. It is the
first time such a link has been published in scientific
literature. Mercury is a neurotoxin, which is a health hazard
especially for children and fetuses. Most people are exposed to
mercury by eating fish contaminated with high levels of mercury
that has gotten into the water. |
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The day I could no longer cope with my autistic
son - When her son Dale
was three, Nuala Gardner contemplated suicide. She reveals the
hidden despair facing full-time carers - and how she kept going.
When Dale was born in 1988, it seemed we had the perfect baby.
He was passive, placid and exceptionally easy to care for. He
slept through the night without a sound, and rarely cried. I
would sometimes wonder if he was unnaturally good. Sometimes the
only indication that he was awake would be him scratching the
sides of the vinyl cover of his pram with his tiny nails. But by
the time he was two, he had become increasingly difficult and
erratic. He would get angry and refuse to move, or snatch a toy
from another child and refuse to give it back. It was clear he
wasn't developing like other children his age. My husband Jamie,
I knew, had been clinging to the belief that Dale's behaviour
was as a result of his premature birth and that things would
improve with time. Somewhere deep within me, however, the
feeling of doom about the future was steadily becoming stronger.
I decided to reduce my shifts, so I would be able to spend more
time with Dale, and got a post as a senior staff nurse, working
two nights a week at Ravenscraig Hospital. |
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The demands of autism
- Ryan Quinlan is a typical teenager in many ways. He likes
learning in school and his favorite subject is biology. He's a
big fan of Weird Al Yankovic and likes to look for clips of him
on YouTube. He loves to use a computer. "He's been a computer
whiz from day one. He knew how to work the computer before we
ever had one," said his mother Katie Hultz. Where Ryan,
16, differs from the typical teenager is that he has autism.
|
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Wales must take care as it leads the way on ASD
- Deputy Minister for Social Services, Gwenda Thomas, outlines
how the Assembly Government is tackling this challenge of
improving the provision for people with Autistic Spectrum
Disorder Autism is a lifelong developmental condition that can
occur in varying degrees of severity resulting in difficulties
with social interaction, communication and imagination.
Thankfully, awareness of ASD in Wales has come on in leaps and
bounds over the past five or six years, but there is still so
much more that we can all do. |
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What We Don't Know Is Harming Our Children
- We all accept that lead harms the brain and that we shouldn't
let our children be exposed to even a speck more than can be
avoided. But what's causing the epidemic of autism? Or ADHD? Or
asthma? "The disease runs in families to some extent, so you
know there’s a genetic component," Dr. Philip Landrigan says of
autism in a must-read interview in Discover. "But then you’ll
have kids with no family background, so clearly environmental
things trigger the disease. We just haven’t been smart enough
yet to recognize them." |
 |
Which clan are you?
- No, this isn't another dumb questionnaire. Bear with me.
Recently I saw an article in which the author attributed the
development of computers to people with Asperger's Syndrome. I
can't seem to find it again, but no matter: I can find lots of
other articles linking Asperger's to hacking and "The
Geek Syndrome". In his 1964 science
fiction novel
Clans of the Alphane Moon,
based on a 1954 short story,
Philip K. Dick writes about a society that has
evolved from a psychiatric institution. The various diagnostic
groups have formed seven clans and taken appropriate roles in
the society: the paranoids are the statesmen; the manics are the
warriors. The obsessive-compulsives are the conservative,
unoriginal clerks; the polymorphic schizophrenics are the
radical, creative members of society. And so on....
Asperger's wasn't really well-known in 1964; neither was
hacking. Phil Dick himself spent time in psychiatric
institutions, and wrote often about altered states: see, for
example, VALIS. If Phil were rewriting Clans today, he might
well add clans for autism and Asperger's: who knows?
|
04-27-2008
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A forceful voice in autism debate
- Kathleen Seidel is not a doctor. She's not a medical
researcher. She's not an educator. She's not a lawyer. But the
52-year old Peterborough woman, armed with a degree in library
science and a healthy sense of outrage, has become one of the
leading voices in the public debate about a possible link
between autism and vaccines. Seidel's website,
www.neurodiversity.com
is a clearinghouse for autism-related literature, and her
attached weblog has become the site of an impassioned and
thoroughly researched campaign against a group of scientists and
lawyers who promote the theory that childhood vaccines cause the
developmental disorder. |
 |
ABC7 Special: Autism Heroes
- April is national Autism Awareness Month, designed to bring
more attention to the neurobiological disorder that now affects
as many as 1 in 150 children in the U.S. and is four times more
likely to strike boys that girls. The signs of autism are
typically noticeable in a child's first years of life.
|
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April is Autism Awareness Month Local parents
discuss challenges, joys
- "I've heard it said, if you know one child with autism, then
you know one child with autism," said Garfield resident Wayne
Bardowell, who works at Integrity House in Secaucus. "Autism is
different for every child with autism, so what applies to one
child doesn't necessarily apply to another child with autism."
|
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Autism by the numbers for family urging lawmakers
to act - Florida
legislators have tried to require insurance companies to cover
autism for almost a decade. But concerns about raising health
insurance premiums for businesses and families have stalled
them. Senate Democratic Leader Steve Geller of Cooper City has
made one such proposal his priority this session -- his last
because of term limits. But it faces opposition from the
powerful insurance industry that contends any health coverage
mandate raises costs by as much as 30%. |
 |
Autistic Mannerisms Reduced By Sensory Treatment
/ Parents of children with autism are increasingly turning to
sensory integration treatment to help their children deal with
the disorder, and they're seeing good results. In 2007, 71
percent of parents who pursued alternatives to traditional
treatment used sensory integration methods, and 91 percent found
these methods helpful. - A new study from Temple University
researchers, presented this month at the American Occupational
Therapy Association's 2008 conference, found that children with
autistic spectrum disorders who underwent sensory integration
therapy exhibited fewer autistic mannerisms compared to children
who received standard treatments. Such mannerisms, including
repetitive hand movements or actions, making noises, jumping or
having highly restricted interests, often interfere with paying
attention and learning. |
 |
Autistic kids improving with ISB buddies
- Fifteen International School Brunei (ISB) students currently
in their IB Diploma Education recently volunteered to lend a
hand to children with autism The community work - which is
part of their pre-university course - will see them working with
several associations here as well as environment conservation
projects such as tree planting. Once weekly, the students lend a
hand to autistic children from the Learning Ladders Society of
Brunei. "The programme - which is held at the ISB library and
playground every Friday from 12.30 to 1.30 pm - allows the
autistic children to enhance their social skills through a
'buddy system' programme in which each student is assigned to
one autistic child in a learning environment of fun and
interactive games and activities," said ISB Director David G
Taylor in an interview. Such activity will also help the
students with the necessary 'life skill' experiences, to prepare
them for university life, apart from spreading awareness on the
subject of autism in the community, he added. |
 |
Boys being boys
- I don’t care if it’s a boy or a girl, as long as it’s
healthy. It’s the universal hope of all expectant parents: a
healthy child, a “normal” child, a child with 10 fingers and 10
toes and the chance that comes with all this for a life
unhindered by sickness or disability. And for many, it’s a wish
that comes true. But Francie Rau and her husband, Robbie, know
how it is when it doesn’t. They know how it is to discover the
tell-tale creases running straight across a baby’s palms and the
roll of fat at the back of his neck — both indicators of the
chromosomal disorder Down syndrome for which their son, Ryan,
tested positive soon after birth. A few years later, he also was
diagnosed with autism. Mrs. Rau knows the cloud of numbness that
descends immediately after diagnosis and the sense of despair
that follows. |
 |
Charlie's world
- Charlie Royal runs a finger across the face in the photograph
his teacher is holding. "Who is that Charlie?" asks Ricky
Lofton, one of the Life Skills instructors at Southern Wayne
High School. "Is that your mom?" The boy grins and nods
his head. He knows it is his mother, Alice. He just
doesn't say so. He has never really said anything. Charlie
stares at the picture for a moment and looks away. He
starts toward the classroom door, then turns around and paces
back -- stopping only when he reaches his teacher's side.
He looks down at the picture and grins again. He curls his
fingers and jumps up and down. But then a stack of puzzle
boxes catches his eye, and he moves on. A few minutes
later, he is staring at the label on a cabinet door.
Charlie is constantly looking for stimulation. And when he
finds it, he fixates on its source. |
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Conference sheds light on autism
- Parents of children with autism often feel lost in trying to
fathom the disorder and the social services system that is
legally mandated to provide services for children with
disabilities. A valley advocacy group held its first Autism
Awareness Conference on Saturday to inform parents about the
disorder, proven therapies and treatments, and strategies in
getting special education tailored to their children's needs.
|
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CNN ‘Fighting for Autism’ Max Foster Report on
You Tube - The CNN news
channel recently dedicated several days to mark the first ever
World Autism Awareness Day, declared by the United Nations
General Assembly in New York on the recommendation of the State
of Qatar. WAAD had the full support of the UN
Secretary-General Ban Ki-moon who hailed the courage of children
and families confronted with autism. There are 60 million people
with autism around the world, many suffer without public
services. CNN have now released the ‘Fighting for Autism’ report
by CNN anchor Max Foster on the You Tube Channel. The CNN report
highlighted the work of the UK based Autism Awareness Campaign.
|
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Doctor says finger-pointing isn't an answer to
the 'whys' of autism -
With diagnosed cases of autism on the rise, physicians have to
consider all possibilities when it comes to the most effective
treatments. Dr. Dave Tayloe of Goldsboro Pediatrics has
found himself thrust into the heated battle since becoming
president-elect of the American Academy of Pediatrics, moving
into the top seat in October. In recent months, he has been
traveling the country to discuss the issue in such arenas as the
"Today Show" and "Larry King Live." The biggest challenge
comes from parents and advocacy groups, armed with their own
research and seeking answers. "It's often difficult
because parents desperately want their children to be normal,"
Tayloe said. |
 |
Doctors to parents: Vaccinate babies
- It took a lot of thought and prayers as LeAnn Capener of
Aurora contemplated whether to vaccinate each of her four
children. Capener read articles and books detailing the possible
link between autism and immunizations. And she discussed the
issue with her pediatrician. "In the end," Capener said, "I felt
the risk of disease and infection was greater than the risk of
immunization." Area health departments are reminding parents of
the importance of vaccinating their babies to protect them
against diseases that kill hundreds of thousands of children in
other countries every year. |
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Film Screening: Autism Every Day
- This revealing 44-minute documentary from the nonprofit
organization Autism Speaks shows the daily struggles of families
living with autism. After the film, share your thoughts and ask
questions during a panel discussion featuring The Birchtree
Center’s families and staff. The Birchtree Center is a
not-for-profit organization based in Portsmouth dedicated to
helping children and youth with autism grow and flourish in
their homes, families, and communities. Funding this program was
provided by the Greater Portsmouth Rehabilitation Center Fund of
the New Hampshire Charitable Foundation - Piscataqua Region.
|
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Immunization Hesitation?
- Despite the fact that vaccine preventable diseases are still
present in our population, there's been a noticeable decline in
our immunization rates within Five Hills. Medical Health
Officer Dr. Mark Vooght tells us there are several web sites
that link vaccines to Sudden Infant Death Syndrome, Chron's
Disease, Autism, Diabetes and others. "There's quite a fair
anti-immunization lobby out there. As a result we're constantly
having to discuss the safety and the beneficial effects of
vaccines more and more and in greater details with the moms
bringing their children in". |
 |
Law
Enforcement Gather to Fight Autism
- Today, 1 in 150 individuals are diagnosed with Autism making
it more common than pediatric cancer, diabetes, and AIDS
combined Warner Robins Police gathered with other Middle Georgia
Law officials Saturday to help on of their own battle this
complex disorder. Warner Robins Police Officer, Steven Reslie,
received support from various police departments, to help raise
money so his son Ethan, who is diagnosed with Autism, can
purchase a special needs dog, that can help make life a little
easier. |
 |
Living with autism
/ Ian Rooper, 2, plays with a plastic toy in his living room
while his mother, Terra Rooper, watches. Ian has autism, a
neurological disorder that impedes a person’s social interaction
and communication skills and causes restricted and repetitive
behavior. - It’s like riding a roller coaster. That’s
how some parents describe the ups and downs of raising their
autistic children. Autism is a neurological disorder that
impedes a person’s social interaction and communication skills
and causes restricted and repetitive behavior. It is usually
detected in children before the age of 3. According to the
Autism Society of America, autism is the fastest-growing
developmental disability, affecting one in 150 children in the
United States. And boys are three to four times more
likely to be diagnosed with this illness, experts say.
|
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Search Love & Money for the following word(s):
- On a recent drive home from a party, my wife, Amy, asked our
soon-to-be 5-year-old daughter who she had played with. With
tears in her eyes, our little girl responded that no one had
played with her, because, as she told Amy, "they don't
understand me." That doesn't actually capture the real
conversation. The words my daughter used weren't nearly so
precise. That's because she has a speech disability that impairs
her pronunciation. She understands everything she hears, and she
always has the appropriate response. Her words, though, are
often a challenge to understand. Our daughter has been enrolled
in speech therapy for awhile, but her therapist now wants to
triple the number of sessions, which triples our expenses to
nearly $1,000 a month, a big dent in our wallet. Our insurance
provider won't pay, so all of this is out of our own pocket.
|
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Multiple visits to doctors result in child's
diagnosis - Erika
Miller stares out of the front door window of her home. (Ed
Cope/Herald-Standard) NORMALVILLE - A talking Dora the Explorer
toy wired into a big red button sits before 2-year-old Erika
Miller as her mother watches for her to tap it in response to
the doll's words repeated by her speech therapist. The
button, an adaptive switch for the physically disabled, is the
only means of communication for the brown-haired, blue-eyed
toddler who suffers from Rett syndrome (RTT), a rare
neurological disorder she was diagnosed with in August.
|
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Overcoming the obstacles of autism: Ever since
10-year-old Zachary was diagnosed with autism, the Pripusich
family has fought hard to keep him in their world
- His parents, Renee and Paul, can recall looks and questions
from strangers at Wal-Mart about his errant behavior, the result
of his disorder. The two now carry cards that explain
autism, to help promote awareness. The 10-year-old is
diagnosed as autistic, one of a range of neurological and
behavioral disorders that affects one in 150 children
nationwide. |
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Revenge is a dish best served ... online
- ... a columnist at the Boston Globe who posts on a wide range
of issues including the breakdown of her 15-year marriage and
bringing up a child with autism. ... |
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TCI officer arrested; FdL police investigate
/ Man accused of having inappropriate relationships
with inmates at institution - A 36-year-old male
correctional officer at Taycheedah Correctional Institution was
arrested Friday for alleged inappropriate relationships with
inmates. The investigation into allegations has been ongoing
since officials at TCI alerted the Fond du Lac Police
Department, according to a press release from police. To
maintain the integrity of the investigation, no further details
are being released at this time, police said. |
 |
"Tots need lots of shots"
-
The March 31 article "Tots need lots of shots"
represents the current state of affairs with respect to the
safety of the vaccine schedule. The schedule has never been
subjected to a study to determine its safety. READ MORE: http://www.thenhf.com/vaccinations/vaccinations_177.htm
|
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The burden of autism
/ In Malaysia, awareness of autism has increased in the last
few years but more research is needed to assess the situation
and to draft an efficient support system to address it. - A
MAXIMUM of US$80,000 (RM251,075.12) a year – that’s the cost
estimated by the Autism Society of America (ASA) for the average
parent or family to look after an autistic child in the United
States. Broken down, this amounts to US$6,666.70 per month
(RM20,992.90). This figure covers the cost of “modern”
treatment such as early intervention, physiotherapy, speech
therapy, behavioural therapy and others. It does not include the
family’s other cost of living expenses, such as transport, house
rent or mortgage, food and schooling for their other children.
In Malaysia, the cost of living is much lower but the additional
cost of raising an autistic child is a burden on the average
family, says National Autism Society of Malaysia (Nasom)
chairman Teh Beng Choon. |
 |
The Next Vaccine-Autism Newsmaker: Not Isolated,
Not Unusual
- In
February, I leaked news of the Federal government's admission
that vaccines had triggered autism in a little girl named Hannah
Poling. The stunning revelation, though still reverberating
around the world, was roundly downplayed by US officials, who
insisted that Hannah had an extremely rare, genetic case of
"aggravated" mitochondrial disorder, with zero bearing on other
autism cases. Dr. Julie Gerberding, Director of the US Centers
for Disease Control and Prevention (CDC), rushed to the
airwaves, exhorting parents to adhere to the nation's intensive
and virtually mandatory immunization schedule, and brushing off
their legitimate anxieties by saying: "We've got to set aside
this very isolated, unusual situation." Well, the days of
setting aside are over: Hannah Poling is neither isolated nor
unusual. |
 |
UAE firms give something back
- Corporate social responsibility (CSR) has been gaining
ground in the region as more companies demonstrate their
willingness to give something back to the community. But while
multinationals appear to be leading the way in the UAE, local
companies are catching up and realising its value, not only in
helping others, but also in enhancing credibility among their
peers. |
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Utah doctor on CDC vaccine safety panel
- A Utah doctor is leading a government work group that is
helping the Centers for Disease Control and Prevention identify
its top priorities for its five-year vaccine safety and research
plan. The National Vaccine Advisory Committee's Vaccine Safety
Working Group - which held its first meeting in Washington,
D.C., earlier this month - will look at the overall scientific
system of vaccine safety and which new tools, such as genetics,
could be used to improve it. Andrew Pavia, chief of the Division
of Pediatric Infectious Diseases at the University of Utah, said
yet another important function is to help gather public input
that will be considered by the CDC when setting its scientific
agenda. |
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Vaccine Injury Case Offers a Clue to the Causes of Autism /
Could a group of disorders involving the "power plants of the
cell" explain why some vaccinated children develop autism but
the vast majority don't? - When the parents of Hannah
Poling, a nine-year-old, Athens, Ga., girl who was diagnosed
with autism just after the age of two,
announced that a federal vaccine injury court had awarded
them a settlement, the case reignited a
decade-old debate about whether
vaccines could potentially trigger the disorder. But what
was somewhat lost in much of
the coverage of the case was a little-known condition that
the court said was aggravated by the vaccine, and which gave
Hannah the features of autism. |
4-21-2008
 |
€22m spent on special needs court battles
- MINISTERS spent €22m fighting court battles
against parents demanding educational help for children with
special needs over the past five years, it emerged last night.
Fine Gael accused the Government of wasting resources by trying
to “wrestle to the ground” families of pupils with autism, ADHD
and intellectual, physical and sensory disabilities asking for
their constitutional rights. Campaigners insisted the
stance was a far cry from the 2000 promise by then Education
Minister Michael Woods there would be “virtually an open cheque
book” for disabled pupils following the High Court Sinnott case
which secured the right for such students |
 |
AP misstated mercury in vaccines connection
- I am writing this letter so as to correctly inform the public
of the levels of mercury in vaccines. The Associated Press
article in The Telegraph of March 6 mentioned that since 2001,
thimerosal only has been in the flu shots. This information is
not accurate. The thimerosal was being phased out, but had
not been completely removed starting in 2001. The stocked
shelves of all the doctors' offices still contained vaccines
that had high doses of mercury in them, because the government
never recalled the vaccines. Unless a parent asked to see the
vaccine insert that came with the vaccine that was being
administered to their child, they had no way of knowing if it
contained thimerosal or not. Also, thimerosal is still
being used in the manufacturing process of making the vaccine
and then is supposedly filtered out. |
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A short slide to the mean streets
- "...Pedersen was the youngest of four children of a
Hare Krishna family. His mother had schizophrenia and his father
was declared an unfit parent when Pedersen was only eight years
old. He lived in foster care until be was 19. He also has
Asperger's syndrome, a mild form of autism that gives him an
unusual, halting rhythm when he talks. His hands are chapped
from years of kitchen work. "I'm not the smartest person,
but I try to dress like I am," laughed Pedersen, who is the only
person in the shelter today wearing a blazer jacket. "Everyone
has issues whether they are in a shelter or not, but I've
supported myself for the seven years of my adult life." But
Pedersen's attempt to improve his income resulted in his
termination from Denny's when his hours at Swiss Chalet came
into conflict with his established work schedule. He was later
terminated by Swiss Chalet just before his three-month probation
was up..." |
 |
Autism a learning process for parents as well as
kids - Gov't will ... -
The Department of Correctional Services is exploring the
possibility of establishing a juvenile correctional facility for
girls in the vicinity of Sabina Park, Kingston, according to
Commissioner of Corrections Major Richard Reese. "We are
looking at a facility at South Camp Road, which will accommodate
45 girls," Reese told The Gleaner yesterday. He noted that the
location would be ideal given the proximity of a number of
schools. He added that the girls could attend classes during the
day and return to the facility in the evenings. |
 |
Autistic boys’ mum started her own school
- ANNA KENNEDY knew young son Patrick was an angry lad
when he started blowing up cereal box models of his school
The youngster, who has Asperger’s Syndrome, was being bullied
because of his problems But Anna could not get him or
autistic younger brother Angelo into any of her area’s 26
oversubscribed special needs schools That’s when she and husband
Sean who both come from Middlesbrough, decided to take control
The couple re-mortgaged their London home and borrowed £627,000
from a bank. They leased a building from the council - and
opened the school their boys needed. Now Hillingdon Manor
primary and secondary school has 86 pupils aged from three to 19
and is attracting worldwide praise. Anna, 48, has also written a
book called Not Stupid about raising Patrick, a 19-year-old
college student, and 15-year-old Angelo. |
 |
Biomedical intervention helps moms battle autism
- It’s little wonder that a single puzzle piece is used as the
symbol by most organizations that deal with autism. This
disorder that now affects one in 150 children in this country
involves a puzzling array of symptoms and behaviors. Medical
research accepted by most physicians indicates there is still no
known single cause or cure for autism. However, leading autism
researches and some local moms have joined thousands like them
across the country and have refused to accept there is little or
nothing that can be done to help their children. Having turned
to biomedical interventions in addition to other therapies, they
have experienced varying degrees of success and setbacks.
|
 |
Call to remove barriers for the disabled
- Doha • Prominent speakers at the Third International
Forum on Children with Special Needs, which opened at the
Shafallah Center yesterday, called on the international
community to remove all barriers that prevent disabled people
from taking part in sports and leisure activities. The
three-day conference on 'Sports and Ability' was opened by H H
Sheikha Mozah bint Nasser Al Missned. The opening session was
attended by the first lady of Iceland, Dorrit Moussaieff, the
first lady of Panama, Vivan Fernandez, the first lady of Poland,
Maria Kaczynska, the first lady of Bulgaria, Zorka Parranova,
the wife of the Albanian Prime Minister, Liri Berisha and the
wife of the last British premier, Cherie Blair. Bob and Suzanne
Wright of US-based Autism Speaks were among the other
dignitaries. |
 |
Demand high for MU's Asperger program
- When Rebecca Wallen first read about Asperger
Syndrome, she couldn't believe her eyes. "It sounded like they
had written the book about my son," she said. While much remains
to be known about this form of autism, advocates say programs
and services continue to be needed locally. A college program
for students with Asperger syndrome has been available at the
West Virginia Autism Training Center at Marshall University
since 2002, but waiting lists abound. The lists -- which seem to
exist for all programs at the Autism Training Center -- reflect
the dramatic increase in autistic disorder diagnoses nationwide,
according to Barbara Becker-Cottrill, executive director of the
center. |
 |
DVD models behavior for autistic children
- Sometimes it's difficult for children with autism to
catch on to everyday life skills, like how to greet another
person, how to express themselves in appropriate ways and how to
understand others by their body language. To make it a little
easier for them, a Poway couple have produced a DVD geared to
autistic children ages 2 to 7, with an upbeat, positive, musical
message. It's called "Kibbles Rockin' Clubhouse." Scott and Anne
Leslie came up with the idea after their son, Gage, was
diagnosed with autism. According to the Autism Society of
America, autism is a complex developmental disability that
typically appears during the first three years of life. The
result of a neurological disorder, autism affects the brain's
normal development in the areas of social interaction and
communication skills. Children and adults with autism typically
have difficulties in verbal and nonverbal communication, social
interactions, and leisure or play activities. |
 |
GPS Tracking for Autistic Children
- Keeping track of children can be difficult, especially
if you have a child with special needs. That`s why more and more
parents are turning to G-P-S systems to help them keep an on the
whereabouts of their kids. For parents who worry about losing
track of their young children, GPS trackers are available in the
form of watches, keychains, and small boxes that you can slip in
a coat pocket. A Garrison family who has two sons with autism
have been considering the devices because of an incident where
their 7-year-old son roamed away from their home. The police
department searched for him for an hour and a half before he was
found. Tricia Kiefer with the North Dakota Autism Connection
says their story is all too common when it comes to children
with autism... |
 |
Grain-free diet doesn't mean going hungry anymore
- Wheat flour is such a staple ingredient in
Canadian kitchens, when mixing pancakes, thickening stews or
making cookies, I've wondered if I could live without it. If I
had an intolerance to gluten, though, or other condition where
consuming wheat or other gluten-rich grain made me ill, I would
have to do just that. Knowing people in this situation I've
learned that life, without a bag of all-purpose flour in your
pantry, does go on. In fact, it can flourish, so much so that
two Canadian authors, Jodi Bager, president of Grain-free JK
Gourmet, and Jenny Lass, a freelance writer and cooking
instructor, have cooked up their second book on the topic:
Everyday Grain-free Gourmet: Breakfast, Lunch and Dinner
(Whitecap Books, $29.95). |
 |
Grandpa's anger at lack of help
- The grandfather of two disabled Caloundra children has
lashed out at the government spending $2.5 million on the
poisoned “Tree of Knowledge” in Barcaldine while his son’s
desperate pleas for help are ignored. David Graham was
infuriated when he heard of the federal memorial funding at the
same time his son Michael and partner Rosemaree Butler were at
their wit’s end trying to care for their severely disabled
children Chloe, 7, and Johnny, 6. |
 |
First Student Donates $5000 to The Help Group for
Autism Awareness ...
- First Student, the
nation's leader in student transportation, donated $5,000 to The
Help Group of Sherman Oaks, California. A special reception was
held April 9, 2008, in recognition of National Autism Awareness
Month. The reception was hosted by The Help Group and honored
individuals and organizations that have shown a commitment to
the children and families of California who are living with
autism spectrum disorders. Bill Young, First Student region
operations manager for California, and Clay Fauth, First Student
contract manager, attended the reception where First Student was
recognized by The Help Group for the generous contribution
|
 |
Kennedy Krieger roars and rides for autism
research
-
Frankie Waldron, 4, works as hard as he can eight hours
every day — just so his family can understand his simplest
requests. Frankie was diagnosed
with autism at the 18 months.
“You overlook typical milestones in children, because with
Frankie, everything’s such an accomplishment,” said
Peter Waldron, Frankie’s father and a
Lutherville resident. “The other day, Frankie pointed at the
fridge and said, ‘I want ice cream,’ as clear as day. So the
whole family had ice cream at 7 a.m.”
Initially, Waldron and
his wife, Julie, suspected Frankie was just developmentally
delayed. But after he stopped making progress, they took him to
Kennedy Krieger to investigate. The tests indicated autism
and the Waldrons entered Frankie into Kennedy Krieger’s early
intervention program. |
 |
MEN 'TREATED LIKE CHILDREN'
- Young men with learning difficulties were treated like
children at three Plymouth care homes, a city tribunal was told.
Some residents aged 16 to 25 at the homes managed by Surecare
were told that they could not play computer games in their rooms
after a certain time at night. The Commission for Social Care
Inspection said this meant that men living at the homes in
Keyham, Devonport and Pennycomequick were suffering
"institutional abuse". The commission cancelled the company's
registration as a provider of services at the three homes, a
move which effectively closed the homes down. Surecare is
appealing to reverse that decision, leading to yesterday's
hearing in front of the Care Standards Tribunal at the Copthorne
Hotel in Armada Way, Plymouth. The Herald revealed last July how
unannounced CSCI spot-checks at the homes in Kemyell Place,
Mills Road and Amherst Road led to the discovery of what
inspectors claimed was a breach of statutory care regulations.
|
 |
Mom wants to be there to help her son with autism
- "My son was the happiest, silliest, kindest child," says Luann
Brown. "He wouldn't hurt a bug. He'd even ask permission
whenever he wanted a drink." But when Chucky Brongo reached
puberty, he became a different person. Brongo, now 17, has
autism, and between 14 and 15 he became aggressive. "He was
completely out of control," Brown says. "His head was his
weapon. He would smash his head into every doorway" and he often
would head-butt anyone who tried to restrain him. "We'd take him
to the hospital and they'd adjust his medications and send him
home," she says. And within a few days, Chucky would act out
again. |
 |
More funding for study of autism urged
- ONE child is diagnosed with autism every minute
worldwide, but the “fastest-growing serious developmental
disability” does not get the attention it deserves, Autism
Speaks co-founders Bob and Suzanne Wright told Gulf Times
yesterday. Autism Speaks is a New York City-based organisation
seeking to improve public awareness about the disability and
promote research into autism spectrum disorders (ASD). Research
into diseases like leukaemia, paediatric Aids and diabetes gets
millions of dollars worth of funding from governments and
charities, while only 0.3% of the US National Institutes of
Health funds go to autism research, said Suzanne Wright.
|
 |
Preparing tomorrow's autism educators
- Associate Professor of Special Education Pamela Wolfberg has
to keep amending the poster displayed on her office door. The
poster shows the incidence of children identified with autism
spectrum disorder, a figure which has risen from one in 10,000
children in 1998 to one in every 150 at the present time.
As the number of diagnoses creeps up, the supply of qualified
educators isn't keeping pace. "There is a lack of qualified
teachers who are fully credentialed and competent to serve
students with autism," said Wolfberg. There is also a shortage
of teachers from diverse backgrounds and those trained to work
in ethnically, culturally and linguistically diverse
communities. "Bay Area schools are a classic example of these
settings," she said. Autism spectrum disorder (ASD) includes
classic autism, Asperger syndrome and other developmental
disorders. Children with ASD encounter problems with social
interaction and communication and often miss out on peer play
experiences which are a vital part of childhood.
|
 |
Students who turn violent are core of Issaquah
labor dispute -
With shocking speed, a 13-year-old autistic boy in the Issaquah
School District wrapped his teacher in a headlock, punched her
in the head and stomach, and shoved her against cabinets. Two
special-education aides in the room were held at bay as the boy
started to kick at them. It wasn't the first time he had
attacked classroom staff nor would it be the last. The 2006
incident is at the center of a labor dispute between educational
assistants, who want to retain contract language that lets them
opt out of working with students whose behavior poses a safety
threat, and the district, which argues that aides and teachers
can't choose whom they'll work with. |
 |
Teach kids how to interact with autistic peers
- Twelve-year-old Hannah Koller, Appleton, knows what it's like
to interact with an autistic child, as she does daily with her
9-year-old brother, Jacob: "Be patient and don't get frustrated.
And don't do anything that's drastically different from what
they are used to."This was the same advice experts gave when
asked how to interact with a child diagnosed with autism. A
genetic, neurological disorder that affects children differently
over its wide spectrum of symptoms, autism can isolate children
from the people around them. |
 |
The boyz are back in Town
- Once upon a time, a long time ago -- in 1993 -- I remember
sitting
in a bar in
San Francisco with a fella by the name of Bono. He told me
that in
America they tend to think of other people's success as a
good thing. In
Ireland, Bono went on, they kick you harder when you're up
than when you're down. few months later, back in the
oul' sod, Ireland seemed to be getting its sado-masochistic
jollies from kicking five young boys. It was practically a
national pastime to slag off Boyzone. Admittedly, as
guilty pleasures go, they didn't come any more car-wreck
fascinating and unintentionally uproarious than Boyzone's
frenetic performance on the Late Late Show back in 1993.
|
 |
The Means and Methods to your Mind
- A recent article featured on the BBC web page today
concerning "Phorm", a new advertising search engine aimed at
targeting advertisements based on search habits rather than
content raises questions and concerns about internet privacy and
legality. The new service tracks web users searches and targets
advertisements based on interests that they have. It redirects
users through it's service. It's hopes are to compete with
Google, Yahoo and Microsoft. The company says that it allows the
website owner to make more money and enable the smaller websites
to obtain traffic and advertising revenue. The tracking of your
web searching, otherwise known as micro-profiling is being
practiced by all of the large search engines. While larger
companies may balk at this new service, smaller websites caught
in the mire of the massiveness and obscurity created by so many
users of the internet may be a welcome opportunity for those
with niche markets. |
 |
Understanding, treating autism begins with
diagnosis - When Cindi
Meulemans' son Ryan, 9, was 18 months old, she began to notice
that he exhibited aggressive behavior toward other children,
didn't want to share and was overwhelmed or got frustrated
easily. Carol Koller said she noticed her son, Jacob, 9, as a
toddler had speech delay problems and couldn't switch from
focusing on one thing and transitioning to another thing.
|
 |
Vaccine success for teenagers
- There were no deaths last year among under-19s from group C
meningitis thanks to a national immunisation programme, a report
has revealed. Previously, Meningococcal C/meningitis has killed
up to 78 people a year and left serious complications such as
brain damage and amputations in survivors. Overall, the
Government's national immunisation programme has prevented well
over 3,000 cases of death or serious illness, the Director of
Immunisation's report reveals. The report also revealed that
since its introduction in 2006 the pneumococcal conjugate
vaccine (PCV) has prevented an estimated 470 cases of serious
illness or deaths in young children, such as meningitis,
septicaemia and severe pneumonia. |
 |
With all hands on deck, autism can be defeated —
DAIN - ON April
2, 2008, the world marked
the first commemoration of World Autism Awareness Day - an
important initiative spearheaded by the State of Qatar, under
the leadership of Her Highness Sheikha Mozah Bint Nasser Al
Missned, the Consort of His Highness the Emir of Qatar, in
raising awareness about children with developmental
disabilities. It was a day the United Nations reaffirmed its
commitment to the rights and wellbeing of people with
disabilities — a commitment rooted in fundamental principle of
universal human rights for all. Autistic children are sometimes
called children of pain. In some parts of the country they are
often regarded as being “evil” or possessed by animals or
spirits. But this is far from truth even if autism is the
fastest growing serious developmental disability in the world.
|
 |
Women believe they can drink while pregnant - but
one glass of wine could damage your
baby for life -
Like many young women, Julie Gelo liked to drink heavily.
She spent her Friday and Saturday nights with friends, knocking
back vodka and cokes and wine. When her soldier fiance Lynn came
home after serving abroad, she continued to drink with him, too.
She did not realise she was pregnant until several months had
gone by, and by then the damage had been done. In 1972,
Julie's daughter Faith was born with Foetal Alcohol Syndrome, an
incurable disorder that causes behavioural and social problems
as well as learning disabilities. |
04-20-2008
 |
Autistic boys’ mum started her own school
- ANNA KENNEDY knew young son Patrick was an angry lad when he
started blowing up cereal box models of his school. The
youngster, who has Asperger’s Syndrome, was being bullied
because of his problems. But Anna could not get him or autistic
younger brother Angelo into any of her area’s 26 oversubscribed
special needs schools. chat’s when she and husband Sean who both
come from Middlesbrough, decided to take control The couple
re-mortgaged their London home and borrowed £627,000 from a
bank. They leased a building from the council - and opened the
school their boys needed. |
 |
Firefighters turn up the heat - on eachother
- Standing atop a tiny platform on the 37-metre-long
boom of a fire engine, it was easy to see the hive of activity
that the Brisbane Region Firefighter Championships and Safety
Expo has brought to the usually quiet Marchant Park at Chermside.
Despite the unsettled weather, Queensland Fire and Rescue
Service (QRFS) were expecting over 100 people at the
weekend-long event, which has seen firefighters from across the
South-East battling it out through different hose and equipment
drills. |
 |
Judge considers dismissing mother's negligent
death charges - Motions
to drop criminal charges over a Bloomfield woman's role in her
disabled son's death were heard in district court Thursday, but
no ruling was immediately made by a district judge. Sandra
Greenwood, 60, is charged with second-degree neglect of a health
care resident and fourth-degree involuntary manslaughter for the
death of her son, Jared, 26, who was found dead in September
2007 on the bathroom floor of his Bloomfield home, covered in
feces, dirt and garbage.The victim had severe autism and mental
retardation, and was taken care of by his mother, although the
state stopped paying for that care in March 2007 after
disability assistance wasn't requested that year, prosecutors
said in filing the charges. |
 |
Justice
for all
- Dozens of
immigrant residents in Centro Hispano on East Second Street sat
side
by side in rows according to category, eagerly waiting for
advice.
The three categories were immigration, DMV and others. About 10
lawyers, advocates and translators sat around benches Thursday
evening with tiny placards stating their specialties, from
landlord-tenant law to criminal, family and divorce, waiting to
volunteer a few hours to help local residents in need. Jeanie
Cronin, president of Centro Hispano, said the organization has
held free legal clinics for about three years. The purpose is to
help immigrants with legal problems and answer questions, so
they won't have to pay consultation fees, which can cost as much
as $500 or more. "We feel we're helping them," Cronin said.
|
 |
Kennedy Krieger roars and rides for autism
research -
Frankie Waldron, 4, works as hard as he can eight hours
every day — just so his family can understand his simplest
requests. You overlook typical
milestones in children, because with Frankie, everything’s such
an accomplishment,” said
Peter Waldron, Frankie’s father and a
Lutherville resident. “The other day, Frankie pointed at the
fridge and said, ‘I want ice cream,’ as clear as day. So the
whole family had ice cream at 7 a.m.”
Initially, Waldron and his
wife, Julie, suspected Frankie was just developmentally delayed.
But after he stopped making progress, they took him to
Kennedy Krieger to investigate. The tests indicated autism
and the Waldrons entered Frankie into Kennedy Krieger’s early
intervention program. |
 |
MEDICINE CONCERNS FOR CARE HOME AFTER MAN'S DEATH
- An inspection into a
care home where a resident died after carers failed to
administer his drugs has raised concerns over medication
management. Andrew Turner (29) was found dead at Heath
Farm autism centre at Scopwick, near Lincoln, in 2006 after his
carers failed to give him his epilepsy medication for more than
48 hours. At the end of an inquest into his death in January, a
jury decided Mr Turner died of an epileptic seizure which could
have been prevented if errors had not been made by five senior
staff administering his medication. A new report into an
inspection carried out in The Barn - the home where Mr Turner
lived at Heath Farm - by the Commission for Social Care
Inspection (CSCI) in January has highlighted areas where the
handling of medication could be improved. |
 |
Method rounds autism's words into form
- Logan Booth was 11 years old when he formed his first word,
and he didn't say it. He wrote it. Logan, 14, has autism
and does not talk But he can communicate with about a
half-dozen people who are close to him by reading their written
questions and writing out his answers longhand. He can also
hunt-and-peck his responses onto a computer keyboard.
Because a trusted person's hand must be touching Logan's hand
for the process to work, the communication technique is
controversial. Critics say it isn't Logan who is writing or
typing but the person who is touching him. |
 |
Mother, volunteer aims to conquer autism through
communication and ... -
The annual Autism Walk is scheduled this morning at Jervey Gantt
Park.Close to 100 parents, educators and children are expected
to participate in the one-mile walk to help raise awareness
about autism. Also scheduled to attend is one woman, a single
mother of two boys with severe autism, who's on a mission."I
want to teach [my sons] to live on their own," said 50-year-old
Sylvia Miller. "I don't touch the autism. I don't care about it.
I'm teaching them how to live with it. I'm teaching them how to
live independently, and to understand why others do what they
do." |
 |
Raising awareness of autism
- For families who learn their child has autism Mike
Gowan wants them to know there is help. There is information and
support which families with autistic children can access in
Niagara. That support is important, Gowan says. The Pelham
man is president of the Niagara chapter of Autism Ontario, and
knows firsthand how challenging it can be to raise an autistic
child. When his son Spencer was diagnosed, the incidence
rate was one in 10,000. Now it is one in about 165. Gowan is
sure part of the explanation lies in the fact that many who had
autism spectrum disorders in the past went undiagnosed. But he
has little doubt the incidence of autism is on the rise.
|
 |
Ready to tell my secret
- I'm not
really sure how to start this, because the title makes it sound
so Jerry Springer-something-I've-been-ashamed-of and it is not.
It is something that I have spoken only to my family and closest
friends about in the two plus years it's been part of my life. I
have been in shock and in mourning. I have been too consumed
finding a way to do what needed to be done; to be a voice to
help the thousands of other moms and dads out there that are
reeling from the same word: Autism. One of my precious boys has
Autism, and ever since the diagnosis was given, we've been
fighting to get our Jack back. |
 |
Support for those touched by autism
- Those whose lives are affected by autism will have a place to
call "home" now. A group of Flushing mothers of children
with autism have developed a nonprofit organization that soon
will open Kathleen's House. The house, at 2235 Monaco St. in
Flint Township, will be a place for families, educators, medical
professionals and others who work with children with autism to
educate themselves with a library of resources and have fun in
activities including art or sign language sessions.
|
 |
The Vaccine Debate
- The 'vaccine debate' about whether vaccines are safe or could
be causing autism has been in the news a lot in the last few
years. There is no real debate about vaccines from either side
of the issue though. People who are against vaccines, including
parents who believe that vaccines have harmed their children,
aren't likely to listen to health experts who talk about how
important vaccines are, how many lives they have saved, and how
the benefits of vaccines far outweigh the possible risks of
vaccines, especially those that are unproved. |
04-16-2008
 |
Autistic and uncovered
- Molly Schad and her husband, Steve, refinanced their home
several
times, saved nothing for their children's education, borrowed
from her parents and even considered selling her engagement ring
to pay the bills. The Schads aren't challenged by the lousy
economy or the housing slump. The Schads have a child with
autism. Despite having health insurance, the Schads have spent
about $60,000 on various treatments for their son Harry, 7,
since his diagnosis five years ago. They ceased some of those
treatments last year because the cost became too great.
|
 |
Autistic children enjoy movie
- The nearly 100 families that came to Corning's Palace Theatre
Wednesday had at least one thing in common: a child with autism.
"I'm going to see a movie with my autistic brother Eddie," said
James Vandright. Was Eddie excited? "Yes," said
Eddie Vandright. Organizers treated autistic kids and
teens to "Happy Feet" and "Horton Hears a Who." With tickets and
snacks, it was a complete moviegoing experience. |
 |
Autism Awareness at the Movies
- More than eighty families packed the Palace Theater in Corning
Wednesday to help promote autism awareness. Event organizers
aimed to make the movie experience more familiar and comfortable
for children with autism. Families chose between 'Horton Hears a
Who' and 'Happy Feet'. The movie volume and theater lighting
were also modified to make everyone more comfortable and less
scared. “It just makes it easier because there's somewhere
to go, because he doesn't sit. An hour and a half is a long time
to sit,” says Kim Schultz, a Horseheads parent. |
 |
Autism myth lives on
- As the brother of an autistic person and a brain scientist, I
have been hoping that the increased focus on autism in the news
would lead to a greater public understanding of this disorder.
Instead, I am angry that this coverage is spreading dangerous
myths. My sister, Karen, is autistic. In the 1970s, my parents
wondered why she behaved so differently. At the time, a
prevalent idea
was that an emotionally distant mother could somehow prevent a
child from understanding emotions or relating normally to
others. Our parents had a simpler idea, that they might have
hurt Karen's head during a bath. |
 |
Genes may link autism and muscle-weakening
disease - U.S.
researchers have found a genetic link between autism and a
muscle-weakening disorder known as mitochondrial disease, they
said on Sunday, in a finding that may open new avenues of
research into the causes of autism. "Recent studies have
suggested that as many 20 percent of patients with autism have
markers for mitochondrial disease,"" said Dr. John Shoffner, a
neurologist and geneticist at Medical Neurogenetics in Atlanta,
who presented his findings at the American Academy of Neurology
meeting in Chicago. "There has really not been much work
done so far to push that issue,"" Shoffner said in a telephone
interview. Mitochondrial diseases are a set of genetic
disorders in which energy-producing structures in cells are
impaired. The disease is often triggered by an illness, such as
a high fever, which can result in severe muscle weakening.
|
 |
Having a big brain may protect you
from memory loss - The
bigger your brain is, the lesser you are prone to
memory
loss, says a new
study stating that people having a larger hippocampus, a part of
the brain, have sharp memories despite having
Alzheimers
plaques. Autopsies have proved that some people die with sharp
minds and perfect memories, even though their brains showed
large traces of plaques of
Alzheimers
disease, but now
researchers have said that it is all because of the large
hippocampus in these people. This larger hippocampus may
protect these people from the effects of Alzheimers
disease-related brain changes. Hopefully this will lead us
eventually to prevention strategies, said study author Deniz
Erten-Lyons, MD, with Oregon
Health and
Science University in Portland, and member of the American
Academy of Neurology. |
 |
Kennedy says his recovery helps in
mental health care fight
- Representative Patrick Kennedy
says his personal struggles to recover from depression,
alcoholism and substance abuse make him a compelling advocate in
Congress for improved mental health care coverage. The
Rhode Island Democrat played a leading role last month in
passing a House bill that expands coverage for people needing
mental health and addiction treatment. Kennedy says speaking
about his own struggles helped move the bill forward.
Kennedy has battled addiction since high school. He crashed his
car into a Capitol barricade nearly two years ago, and agreed to
a plea deal on a charge of driving under the influence of
prescription drugs. |
 |
Lawsuit On Behalf Of Boy With Autism
- The state Department of Health and Human Services has been
sued in federal court because of alleged cuts in mental health
programs. The News & Observer of Raleigh reported Tuesday
that Legal Services of Southern Piedmont in Charlotte and the
National Health Law Program are suing for a 12-year-old boy with
an inherited condition that can cause learning and behavioral
problems. The lawsuit says Devon Tyler McCartney of
Robeson County is autistic and epileptic. The lawsuit says his
time with a mental health worker paid by Medicaid were cut last
year from 28 hours a week to 21 hours a week until he lost
services in January. |
 |
Measles or autism? Not a choice
- Public discussion of childhood immunizations has been set of
late by their opponents. They contend, extremely vehemently,
that the vaccinations can cause autism. The risk of childhood
disease, many of these critics say, is a small one compared to
the risk of autism. Now one of the diseases behind those
vaccinations has struck close to home, with the
L.A. Times reporting Monday that a local child has been
hospitalized with measles. Arizona and Wisconsin have reported
outbreaks as well. And the
CDC recently urged measles vaccinations for unimmunized
travelers to Israel, site of a recent 900-case outbreak.
|
 |
Sword And Screen
- It's not unusual to read about tight security on a film set,
but how many directors get to attack persistent onlookers with a
sword? Belgian filmmaker Nic Balthazar wielded such power while
making of Ben X; specifically, during the parts that were shot
in an online role-playing game called ArchLord. Rest assured, no
real heads were severed from bodies, although the director may
have left some angry gamers in his wake. Ben X is a
Flemish-language film about a teenager who suffers from Asperger
syndrome (a form of autism) and from incessant bullying at
school. Like many youth, he spends part of each day immersed in
an online universe, and Balthazar decided to show this second
life by actually filming it inside a game. The concept is not
new -- it even has a name, machinima, a portmanteau of machine
cinema -- but Balthazar's may be the first mainstream film to
make extensive use of the technique. |
 |
The Trouble With Genius
- Students diagnosed with Asperger’s syndrome, a mild form of
autism, perform as well as or better than their peers
academically but, despite their large vocabularies, struggle
with social interaction. The University of California, Santa
Barbara’s Koegel Autism Center, long a world leader on autism
research, hopes to teach the students the art of conversation.
In many ways, Paul Griffin is typical of a talented college
freshman. A gifted artist, perceptive reader and nimble
athlete who jumps horses competitively, Paul graduated from high
school with a 3.8 grade-point average. He wants to join a
fraternity and relishes — only half-jokingly — the thought of
“girls and beer.” Yet, if you talk to him for less than a
minute, you realize something is amiss. Paul is one of eight
freshmen at the University of California, Santa Barbara who has
been diagnosed with Asperger’s syndrome, a mild form of autism
characterized by difficulties in social communication.
|
 |
The tyranny of cool
- "...Around the same time as the book deal came through, the
story of a
young man who threw himself from the Gravensteen Castle in Ghent
caused a furor in the papers. The teen suffered from a mild form
of autism, and when it was revealed how much he suffered at the
hands of his peers, Belgian society was ready to take a long
look at how open it was to difference. The initial project ended
up as a book titled What I Should Have Said Was Nothing. The
book was then translated to the stage, where it was a smash
success. Ben X - the movie - was the next logical step. "One of
the bigger problems we discovered was how bullying is perceived
as taboo. It's frowned upon, and yet everyone has done it.
People don't want to admit to themselves they've bullied someone
- but they know it's true,'' he says. The other half of that
equation is the victim. Balthazar says even those hurt most by
bullying are often afraid to speak out against it because it's
perceived as a sign of weakness." |
 |
Understanding autism
- Each year in April, we pay special attention to a group of
disorders first described by Leo Kanner in 1943. Autism spectrum
disorders are challenging neurodevelopmental disorders that can
be difficult to diagnose and even more difficult to explain. The
key signs of autism are failure to develop language, unusual
language, lack of social interest, and challenging behaviors
(DSM-IV). Early signs are present in most (failure to point at 9
months, failure to speak or coo, disinterest in socializing).
However, some children appear to be developing more typically
and then regress. To further complicate the picture, many on
that spectrum have different abilities and disabilities. In
other words, knowing an individual has autism does not mean you
know that unique individual. |
 |
Video production to be viewed nationally
- Robert Moran of Pomona is one of four Cal State Fullerton
students who will share a $20,000 prize and be honored on
national television later this month for winning a collegiate
video competition. Moran, with Carla Franco, Sabrina
Johnson and Peter Martinez, produced a news feature, "SoCal
Immigration: Law, Labor, Liberty," that won the Fox News
Channel's College Challenge national video news competition.
The group will be featured on Fox and Friends on the evening of
April 25. They will be flown to New York City with faculty
adviser Brent M. Foster to appear on the program. The
video program featured an interview with co-founder of the
Minuteman Project, James Gilchrist, conducted by Moran and
Martinez, as well as interviews with educators and various
immigrants. "I felt that we were working on the project
everything came together like magic, said Moran. The
30-year-old Pomonan noted that he has Asperger's syndrome, which
is a mild form of autism, which can challenge someone conducting
such an interview. "For me, having Asperger's syndrome
made this award extra special because it's proof that any
obstacle can be overcome." |
 |
Why living with autism is a daily
challenge - Karen
Robson, disability service manager at the University of Wales
Institute, Cardiff (Uwic), explains why more must be done to
support adults with autism FEELING a sense of belonging is
something that many of us take for granted. Adults with autism,
however, see life differently, leading to isolation and being
routinely ignored as a report, titled I Exist, published by The
National Autistic Society Cymru (NAS Cymru) recently
highlighted. As a campaigner for disability rights for over 11
years, I am all too familiar with the struggle faced every day
by thousands of disabled people in Wales to lead independent
lives and participate in society. For those with autism
(including Asperger syndrome) access and equity are frequently
denied to them due to a lack of essential support to meet their
needs. |
04-14-2007
 |
A mother explains Asperger syndrome
- As a parent of two children with Asperger syndrome,
Susan Fontaine of Erwin believes that spreading awareness is the
best way for people to learn more about this milder form of
autism. Fontaine said her daughter, Andrea, a 15-year-old
freshman at Corning West High School, learned to walk and talk
early, and had an impressive vocabulary for her age. However, in
preschool, teachers noticed that Andrea was not interacting very
much with other students and they encouraged Fontaine to see a
physician about that behavior. |
 |
Autism on the rise
- When Cara Culver suspected her 2-year-old daughter
Judith might have autism, she didn't listen to the advice of the
first doctor she visited. Culver, who lived in Valencia, Spain,
at the time with Judith, her husband Alex and their son Marc,
now 5, said the number of children diagnosed with autism, a
neurological disorder that impairs social and language
development, is not as high in Spain as it is in the United
States. "Over there, the doctors are reluctant to make a
diagnosis of autism until a child is 6 years old and by then
it's too late," Culver said. "The doctors over here were saying
to do everything now." |
 |
Comedians get serious in fundraising for autism
- Superstar comedians joined forces Sunday night for
a cause that was anything but funny Adam Sandler, Tina Fey,
Sarah Silverman, Conan O'Brien, Ben Stiller, Chris Rock, Will
Arnett and Amy Poehler were among celebrities taking part in
Night of Too Many Stars: An Overbooked Concert for Autism
Education, hosted by The Daily Show's Jon Stewart at the Beacon
Theatre. The show was broadcast live on Comedy Central.
Comedians who couldn't appear in person, such as Stephen
Colbert, Steve Carell and Will Ferrell (as President Bush),
participated via satellite. But it was one big party for the
crew at the Beacon. "It's fun to be here," said actor Matthew
Broderick. "I'm a fan of 94% of the performers. I'm always a
little nervous. I hope it goes well. But that's not really the
point." Another famous big-screen star on the carpet, Susan
Sarandon, was ready for duty. "I don't have too much to do," she
said before the show. "I'm in the opening number, and then I'm
answering phones." |
 |
GOOD JOKES
- Tonight & Comedy Central special, "Night of Too Many Stars: An
Overbooked
Concert for Autism Education," is truly packed with so many
stars - including Tina Fey, Stephen Colbert, Will Ferrell, Ben
Stiller, Steve Carell and host Jon Stewart - that we asked
someone deeply involved in the production for his perspective on
the night's star-studded roster: Triumph, the Insult Comic
Dog. |
 |
Kids With Autism May Have Gene That Causes Muscle
Weakness -
Some kids with autism
may have a genetic defect that affects the muscles, according to
new research. The study looked at 37 children with autism
spectrum disorders who were evaluated for mitochondrial disease,
which causes muscle weakness and prevents a child from being
able to participate in physical activities and sports.
Mitochondrial disease occurs when genetic mutations affect the
mitochondria, or the part of the cell that releases energy. A
total of 24 of the children, or 65 percent, had defects in the
process by which cells produce and synthesize energy in the
muscles, or oxidative phosphorylation defects in the skeletal
muscles. |
 |
Therapy Dogs
- As autism gets an increasing amount of public
attention, people are finding
new ways to communicate with the estimated one in 150 affected
children.
Man's best friend is the latest ally reaching out to young
people with autism. Su, an Alaskan malamute, works with trainers
Lela and Harry Schlitz as a therapy dog. The couple says Su
helps normally withdrawn children open up. "A lot of time
socializing with humans is very difficult," said Lela Schlitz.
"If they start off with a dog, we work with one little boy and
when Su comes in the room, he just lights up." |
 |
US Court supports Teva on schizophrenia treatment
- Teva
Pharmaceutical Industries Ltd. - reported that the US
District Court for the District of Columbia has granted a
request of a Teva subsidiary - Teva Pharmaceuticals USA - that
the US Food and Drug Administration grant Teva a 180-day
exclusivity for a generic version of Janssen Pharmaceutical’s
Risperdal Tablets. Teva expects final approval with exclusivity
on June 29, 2008. |
04-12-2008
 |
Autism and Synethesia: Strange Confluence of Sight, Sound, and
Mind
– This is just so freaky and amazing, I have to share it. After
reading a few lines in a book about something called synethesia,
I got interested. Apparently, quite a few people have an odd
brain wiring such that letters, numbers, and/or musical notes
are linked with colors. When they see a letter or number, and/or
hear a musical note, they "see" a particular color in their
minds. Apparently, this odd quality is particularly common
among people with autism.
|
 |
Autistic boy gets attacked
- Hanford mother, Jennifer Holiday, tries to shed light on
Autism after an incident in "Freedom Park. Holiday says a lack
of awareness led to violence against her autistic son. With
this month being national "Autism Awareness Month", the Holidays
say what happened to their son is just one example of how
unaware and intolerant the world is about autism; a condition
that now effects 1 in every 150 kids.
|
 |
'Don't give up hope'
- Hunter Wallace was a typical baby, probably even a little
ahead of the game in some areas of learning and development.
But about 15 months old, he began to gradually regress, said his
mom, Amy Wallace. Wallace and her husband, Jay, turned to
Hunter's pediatrician with their concerns -- which the doctor
dismissed, Amy Wallace said. "It's like gaining 50 pounds. The
first 5 you don't realize," the Springetttsbury Township
resident said. "You don't always notice . . . and suddenly he
doesn't respond to his name."
|
 |
Jon Stewart Hosts Autism
Benefit -
"Night of Too Many Stars: An Overbooked Benefit for Autism
Education" will feature comedy's best this weekend in an effort
to raise money for autism education. Funny Dad Jon Stewart will
be teaming up with Will Ferrell, Steve Carell, Tina Fey and
Stephen Colbert on a live Comedy Central special at 8 p.m. on
April 13.
|
 |
Obama, Clinton & McCain Must
Meet Families With Autism
- When Autism News on Blogger News Network requested the
candidates for the Presidential Elections - Senator Barack Obama,
Senator Hillary Clinton who are going for the Democratic
nomination and Senator John McCain the Presidential Candidate
for the Republican Party to speak out on autism to mark the
first ever United Nations World Autism Awareness Day declared by
the UN General Assembly and held on Wednesday 2nd April 2008 -
two of the three candidates responded by issuing statements -
but these statements were not well publicised in the national
and international media. Although it was good to see plans for
autism from the candidates we now urge Senators Obama, Clinton
and McCain to show their committment to parents, carers,
children and adults with autism and Asperger’s Syndrome by
organising meetings with families with autism - on the campaign
trail. There is nothing like the connection with voters - one to
one connections. Autism is a serious education and health issue
in the United States. According to the CDC 1 in 150 children is
on autism spectrum and numbers are rising. The next President of
the United States must show his or her commitment to parents,
carers and people with autism by coming up with detailed and
specific plans for autism.
|
 |
OPINION SHAPER: What do we do
with handicapped children?
- In memory of their mentally handicapped sister, John and Ted
Kennedy lobbied for a more inclusive participation for
handicapped children in public education. That effort
culminated in the Individuals with Disabilities Education Act
(IDEA) in 1975. This law required public schools to put
handicapped children in "the least restrictive environment" and
give each handicapped child "an opportunity to achieve his full
potential." Now, these precious children are pawns caught in
crossfire between two powerful forces: a consortium of state
legislators, parents and private schools pitted against
teachers, school administrators and public schools advocates.At
the center of this rift is a series of bills in the Missouri
Legislature. All of these bills would establish tax deductions
for contributions to "scholarships" for qualifying handicapped
children to attend private schools.
|
 |
Mapping Genetic Abnormalities
in Autism
-
A new project to
study the brains of people with autism in unprecedented detail
could finally pinpoint subtle neurological changes that underlie
the disorder. Researchers will use an innovative set of tools
developed to study gene expression to analyze exactly where
early brain development goes awry. "The technology now exists
to be able to examine in fine detail the organization of brain
cells--for example, whether brain cells have their proper number
and position," says
Eric Courchesne, a neuroscientist at the University of
California, San Diego, who is leading the project. "This could
provide a major insight into the cause of autism."
|
 |
Senate
Minute: Autism health insurance bill and ‘Steffanie’s Law ...
- Hello again, everybody! With half the session gone, the
seeming inability for a number of issues to cross the partisan
divide is troubling. My bill requiring health insurance coverage
for autism diagnosis and treatment and another called
“Steffanie’s Law”– requiring insurance companies to continue
covering patients participating in clinical trials – ran into
partisan roadblocks in the House of Representatives. In other
states, both measures were enacted with bipartisan support. In
the Oklahoma Senate – which is divided evenly between Democrats
and Republicans – both bills enjoyed bipartisan support. Only
when they arrive in the Republican-controlled House of
Representatives do they fall victim to partisan politics.
Certainly, there are differences between the parties. Political
campaigns are where those differences are and should be
discussed. When campaign season is over, and it comes time to
govern, the responsibility should shift away from winning
elections and toward finding those areas of agreement on issues
that affect us all.
|
 |
Treat mentally ill
- It is a shame that the
state and others care so little about the mental and physical
states of our prison population. I have had three relatives
affected by the lack of health care. One, my brother-in-law, we
had to attend the funeral. Another, my older brother, who is,
according to the professionals, retarded and schizophrenic and
with severe attention deficit disorder and possible autism, I
have heard the state where he lives refused to medicate. He was
found several times to be swallowing razor blades. They both
needed proper hospitalization by licensed medical professionals.
|
 |
Vaccine Safety Panel to
Include the Public in Setting Priorities
- The government began an unprecedented effort Friday to give
vaccine critics a say in shaping how the nation researches
immunization safety questions. The meeting, the first of more to
be set, came amid new controversy about vaccines and autism —
and a fledgling theory that vaccinations might worsen a rare
condition called mitochondrial dysfunction that sets off certain
forms of autism. Federal health officials said the work was not
in response to that controversy and included many more questions
than autism, including rare side effects of the new shingles
vaccine.
|
 |
Will a 9-Year-Old Change the
Vaccine Debate?
- There’s no question that the case of 9-year-old Hannah Poling
of Athens, Ga., has fueled the controversy about childhood
vaccines. But what’s less clear is whether it will help unlock
the mysteries of autism. Hannah was 19 months old and
developing normally until 2000, when she received five shots
against nine infectious diseases. She became sick and later was
given a diagnosis of autism. |
04-07-2008
 |
إدمان ألعاب
الكمبيوتر
- Welcome to BBC Xtra English.
In today's programme Louay and John are
talking about computer games. A new study has look at
the personality traits shown by people who are addicted
to playing certain computer games, such as role-playing
games. The study discovered that they shared some
of the same personality traits as people with Aspergers.
This is a variety of autism where sufferers find it hard
to interact and empathise with other people. One
of the conclusions is that addicted gamers find it
easier to relate to computers than to other people.
Other personality traits that were identified included
being neurotic, being introverted, being emotionally
unstable and having low self-esteem. |
 |
Autism Diagnosis Runs In Families
- While researchers still know very little about autism
and its causes, they do know there seems to be a genetic
link. In the April issue of
O, The Oprah Magazine, a story on The
Children of Sperm Donor "X". The national
Donor Sibling Registry has determined that in seven
families in five states, donor "X" has fathered 11
children, all believed on some end of the autism
spectrum. "We have a few families who have more than one
child diagnosed on the autism spectrum," said Dr.
Catherine Tripani, PH.D., Education Director at the
Marcus Institute in Decatur, which treats children
with developmental disorders such as autism.
|
 |
Autistic genius Stephen Wiltshire draws
an extraordinary view of of London from memory ...
- The quite remarkable talents of the London-born
artist Stephen Wiltshire, who was awarded an MBE for his
"services to art" two years ago, are to be celebrated
this week in a television documentary about
extraordinary people. In particular, the Channel
Five programme shows the young black artist, 34 later
this month, drawing a 13ft long panorama in pen, ink and
pencil of a seven mile stretch of the London skyline
after just one brief helicopter trip along the Thames -
and doing so in just five days. In the huge
curving canvas, which was completed at the Mayor of
London's office, almost every major building in the city
is drawn to scale - from the Swiss Re Tower (better
known as the Gherkin) to the high rises of Canary Wharf
- with the number of floors and architectural features
all recaptured in precise detail. |
 |
Autism: Looking for Clues in the Brain
- Karen Pierce at the University of California
Autism Center are looking for abnormalities in the
brains of young infants who develop autism. Dr.
Courchesne says, "This region of the brain here..the
frontal lobes is larger than a typical child his age."
Autism is a developmental disability that causes
impairment of social behavior and communication and can
include unusual behaviors and interests. |
 |
Barnes & Noble Speaks for Autism
- Barnes & Noble kicked off its support of Autism
Awareness Month on April 2 with celebrity storytime
events in Los Angeles, Dallas, New York and Chicago
stores. Partnering with New York-based nonprofit Autism
Speaks, the retailer will host events in children's
departments at 500 locations throughout the month. The
events include a reading of Awaken Specialty Press'
Since We're Friends, a book explaining the disorder.
Representatives from Autism Speaks will be present at
most events to promote the organization's various
functions and hand out information. An endcap at the
entrance of the children's department merchandises Since
We're Friends and other relevant books for kids, while a
table display near store entrances merchandises titles
for adults. A stanchion sign bearing the Autism Speaks
and Barnes & Noble logos introduces the events as "A
Special Storytime supporting Autism Awareness Month."
|
 |
Children's Hospital Contributes Genotype
Data to Enhance Autism ...
- The Children's Hospital of Philadelphia has
contributed a large genotype dataset to the Autism
Genetic Resource Exchange (AGRE), a scientific program
of the organization Autism Speaks, dedicated to
advancing genetic research in autism. This large genetic
dataset will now be broadly accessible to autism
researchers worldwide. The Center for Applied Genomics
at Children's Hospital employs highly automated
microarray technology to perform high-speed genome
analysis. The center's HumanHap550 system, manufactured
by Illumina, Inc., analyzed 4,500 DNA blood samples
gathered by AGRE and generated genotypes -- a
compilation of 550,000 genetic markers for each person.
Children's Hospital then contributed the genotyped data
to AGRE. / Release |
 |
Coping with autism, family by family
- 'A Pokémon can't be a Pokémon master! No way!"
"Quiet human! From now on, I am the one who makes the
rules " All the other sixth-grade students chatter among
themselves, working together on some assignment. But
there he is, at his desk. Alone. He is talking to
himself, reciting lines from "Star Wars" and "Pokémon."
Interacting with his peers and being social is hard for
him. It seems all he wants to talk about are his current
obsessions - the main one being "Pokémon." The simplest
of homework assignments can be a multi-hour nightmare.
His learning patterns aren't consistent either.
Sometimes he gets it, but other times it can take
forever just to get his mind to grasp a simple concept.
Usually it's the latter. Some of his peers notice
the differences between him and themselves and aren't
afraid to point them out. Usually, it isn't in the
nicest of ways. Once a student threw soap at him.
Another time, it was gravel. But it isn't always
physical. He's been teased relentlessly. |
 |
Fear over child tranquilliser use
- UK children are being prescribed unlicensed
anti-psychotic
drugs, research suggests. The drugs are used to
treat a range of conditions, from hyperactivity to
autism, the study, to be published in Pediatrics found.
But the long-term safety of using them for children has
not been established. The numbers remain small,
but grew from 0.39 per 1,000 under-18s in 1992 to 0.77
per 1,000 in 2005. The largest increase was seen
among the seven to 12 age group. We do not know
the long-term consequences - especially their impact on
a young, developing brain. A number of short
trials have suggested that drugs such as ripseridone for
instance can be very effective in calming children with
autism and some behavioural problems. |
 |
Doctors 'missed autism in thousands of
children'
- Thousands of adults classed as having
language disorders in childhood may be autistic,
research suggests. Re-examination of young men and
women with severe language disorders showed up to a
quarter fitted the current criteria for autism.
The Oxford University findings suggest many would have
received more appropriate care had they been been
treated for autism. The study - published in the
journal Developmental Medicine & Child Neurology -
suggests rising rates of autism may be partially
explained by a widening of the diagnostic criteria over
the past 20 years. More than one child in 100
children have autism or a related condition - a ten-fold
increase on 30 years ago. |
 |
Hollywood's doors opening for actors with
disabilities
/ Nick Daley, who has Prader-Willi
Syndrome, guest starred on 'Saving Grace.' Blair
Williamson, who has Down syndrome, got a nose job on
'Nip/Tuck.' They're among those with developmental
disabilities who want to be stars — and are getting a
shot at acting. - NICK DALEY, 28, has Prader-Willi
Syndrome, a genetic disorder characterized by short
stature, low muscle tone and mild retardation. He's also
been in 17 films and 11 television shows, including a
guest-starring role in last season's TNT series "Saving
Grace." "If I were a star, I would be on all over the
world," he says. "I would be mobbed by fans. People
would see my name and get my autograph." Blair
Williamson, 28, is an actor with Down syndrome. He has
been in clothing commercials for Macy's, was once
murdered in a "CSI" episode and had a nose job on a
"Nip/Tuck" episode. "I love being an actor," he says.
"It makes me feel good inside me." Daley and Williamson
are among a growing number of people with developmental
disabilities -- including Down syndrome, autism spectrum
disorders, mild retardation and seizure disorders -- who
want to be in the movies, or on TV. They want to make
records, or be in commercials. They want what a lot of
people in this town want: to be stars. And some of them
are getting close. |
 |
How do you spell success? Ask them . . .
- Today's youth Last week, we noted a plethora of
positive news in our community. This week, we're
highlighting three local young people for applause.
Zenon Gillis - Zenon is a fourth-grader at Fairfield's
Rolling Hills Elementary School who stole the show at
Wed-nesday night's Solano County Spelling Bee. After
many rounds, the 9-year-old won first place when he
spelled "Valenciennes" correctly. (The word can be
defined as a region in France or a type of lace.)
But the annual spelling bee is not just about how well
kids spell. Such academic contests help students master
the English language, and also teach them study skills,
discipline, the joy of competition, and how to think
clearly under pressure. Contestants spend countless
hours memorizing words, looking up their meanings,
practicing reciting them, and in a nutshell, stretching
their brains. This year, participants did so well,
the final showdown took more than three hours, when
Zenon nailed the final word. Congratulations to him,
Joshua Tupufia of Suisun City's Root Elementary School,
who took second, and Savanna Paragan of Vallejo's
Catherine of Siena School, who placed third. Also to the
other 33 fourth-, fifth- and sixth-graders who competed.
Kevin Hatch - Only |
 |
Is Our Children Learning?
- As a public-school teacher, Wayne Brightly had
an above-average salary of $59,000 per year. He worked
for one of the worst school districts in New York—one
where good teachers were desperately needed. When the
school system announced a mandatory test for teachers
(equivalent to an eighth-grade exit exam), Brightly took
the test several times, failing each time—miserably.
Finally, with one chance left to pass the test, Brightly
decided not to risk failing again. To ensure success, he
hired Rubin Leitner, a homeless man with Asperger
Syndrome (a mild form of autism), to take the test for
him. Leitner did so well that school administrators
suspected Brightly of cheating. |
 |
Jenny McCarthy and the Autism Dilemma
- When I watch Jenny McCarthy on CNN or when I
read the blogs (and comments) on autism, I keep
wondering: What is this debate about? Yes, the parents
of autistic kids are more "emotional" than the aloof
doctors before them. But why are they met with anger,
rather than compassion? If their concerns are heard, how
does that harm other citizens? As a health journalist,
and recent newcomer to this issue, I'm trying to
understand the passion on the "pro-vaccination" side.
The underlying fear and anger towards these parents
suggests that it's somehow heretical to question any
proffering of scientific "proof" even when it squares
off with experience--in this case, parents' tragic and
oft repeated experience of watching hundreds of
thousands of children immediately deteriorate upon
vaccination. |
 |
Living with autism
- Back then, information on autism was scarce. Like many
other parents of children with the disorder, Haddaway
did not understand what was happening with her son
Marlon, a healthy child who seemed normal, but started
showing signs of ASD as a toddler. Haddaway had to
rely on an encyclopaedia to understand what was wrong
with Marlon after enduring a long struggle for a proper
diagnosis. Though many strides have been made in autism
spectrum there are still more questions than answers
about this complex disorder. Several films have
clearly defined the multifaceted spectrum of autism. For
example, the 1990 hit movie Mercury Rising, staring
Bruce Willis and Michael Baldwin featured a
nine-year-old autistic boy who was able to tap into a
cryptographic code so complex that its creators believed
no computer on earth could decipher it. The 1988
classic, Rain Man, starring Tom Cruise and Dustin
Hoffman tells a story about a rich professional, played
by Cruise, who discovers that his father has left all of
his multimillion-dollar estate to his autistic brother,
played by Dustin Hoffman. .. |
 |
More on Autism
- A Canadian study revealed a possible link between
premature birth and autism in one out of four toddlers.
Researchers stressed that the results do not imply that
extreme prematurity causes autism, but it might be a
contributing factor. The American Academy of Pediatrics
says that autism screenings should be performed by a
child’s second birthday. There is no cure for autism,
but early detection can lead to behavior therapy, which
can help lessen its effect. The study was
published in the April issue of the journal Pediatrics. |
 |
Mum's anger over autistic son's cash blow
- A COLLEGE has apologised for causing distress to an
autistic teenager after his learning allowance was
stopped when he was diagnosed with cancer. Anthony
Lodi, 19, of Foleshill, was receiving £30 a week in the
form of an educational maintenance allowance (EMA) for
attending Moreton Morrell College. But the payment was
cancelled at the end of February just weeks after
doctors discovered Anthony has Hodgkinson's Lymphoma and
needs chemotherapy. Mum-of-two Sylvia, who is Anthony's
full-time carer, was so upset by the situation that she
wrote to prime minister Gordon Brown. The
41-year-old said: "Anthony is absolutely devastated
about what has happened. He has always loved going to
school, he loves seeing his friends and learning and he
never likes to have any time off. Even now he has
started to have chemo he still wants to go to college
the next day and he looks forward to receiving the £30
because it is his reward. He had a 100 percent
attendance before he was poorly. |
 |
Police ask for public's help in finding
missing autistic man
- After disappearing on Friday, 30- year-old
Micah Anderson returned safely to his home on Sunday
afternoon. He told family and police that he had been
camping in the woods for several days. He returned home
in good condition. Anderson has mental health
issues and had not taken his medication for several days
prior to his disappearance. Anderson's family
reported him missing after he failed to return to his
home on Friday evening. Detectives from the
Portland Police Department said Micah Aaron Anderson’s
mother told them she last saw her son at his home around
7:30 p.m. on Friday night. She reported him
missing when he could not be located on Saturday.
Anderson lives on his own at a semi-assisted care
facility on SE 106 th Avenue and has the mental capacity
of a 10-12 year old. |
 |
Premature babies and autism
- “One in four premature babies ‘faces the risk of
autism’,”
reports the Daily Mail today. The Daily
Express also covers the story, saying that those
who are the smallest at birth are the most vulnerable.
Both newspapers go on to say that this could explain the
rise in the number of children with autism in recent
years. They add that the estimated amount of children
with autism has risen concurrently with the numbers of
babies born prematurely who survive into adulthood and
attribute these higher survival rates to advances in
medicine. The Daily Mail also says there are more
preterm births as there is a “trend for older women, for
whom premature babies are more likely, to give birth”. |
 |
Program Could Track Autistic People Who
Wander -
Michael Shimek is fascinated with the color red and with
Santa Claus. He is autistic, and before he discovered
Santa, he couldn't communicate. Now, he says "Ho, ho,
ho" for Santa and "Up, up and away" for the reindeer.
Those are some of just a handful of words in his
vocabulary. Even so, Michael's mom Julie says he's a
genius at picking locks. "I go to bed every night, and
when I lay down on that pillow, the last thought on my
mind is, 'Will tonight be the night?'" said Julie
Jurgens-Shimek, meaning the night he gets out and
wanders. "It will come with no warning. He will at some
point escape, disappear. I absolutely believe it." |
 |
Second chances hard to give, but worth it
- Second chances are hard to come by these days.
It seems that we’re a little less forgiving, whether of
politicians, bosses or employees, or even family and
friends. If someone screws up, blows it or lets us down,
we don’t seem very willing to let things go. Maybe
it’s always been this way, because people have certainly
been messing up as long as we’ve been around as a
species (look at what Adam and Eve did in that garden).
But there seems to be a lack of forgiveness in
contemporary society that wasn’t quite as pointed when
more people were worried about the state of their
immortal souls, and a little less about their
checkbooks. |
 |
US Physicians Buffer Effect of MMR
Vaccine-Autism Debate
- American physicians may have been initially seduced by
a 1998 British report linking vaccines and the risk of
autism, but once the report was refuted doctors quickly
closed ranks and defended immunization's value
effectively. Action Points Explain to interested
patients that the study found that despite a continuing
controversy American doctors appeared to reassure
patients effectively that there is no good evidence that
autism is linked to any childhood vaccine. Note that
this study suggests that doctors initially were
concerned about the possibility when a British study --
later discredited -- appeared in 1998 and may have been
briefly reluctant to use the vaccine. Add that such
reluctance may explain a short-lived drop in use of the
vaccine reported in 2000, despite a lack of large-scale
public awareness of the issue in the U.S.
At first, the issue got little or no media attention in
the U.S., found an analysis of how the flawed study
affected the use of measles-mumps-rubella vaccine in
this country, reported Michael J. Smith, M.D., of
Children's Hospital of Philadelphia, and colleagues,
online in Pediatrics. Dr. Smith is now at the University
of Louisville. |
 |
Violent Video Games Relax You, Game
Addiction Compared to Autism
/ New studies on video game players dispel the
violence connection but find neuroticism and lack of
extraversion in game addicts. - One new study suggests
video game players are less aggressive and even calmer
after playing violent online video games. The British
Psychological Society presented Middlesex University's
findings on video game research this week at their
Dublin-based symposium. This is an interesting finding
that contradicts the limited studies already conducted.
The University study questioned players before and after
hostile game play. Most studies in this field are
conducted through questionnaires that measure a player's
level of aggressiveness before and after playing video
games. The new study found that "There were actually
higher levels of relaxation before and after playing the
[violent] game as opposed to experiencing anger but this
did very much depend on personality type." The
researchers also hope this study will pave the way to
finding the "personality type" that is more likely to
"transfer their online aggression into everyday life."
Their aim is a public health policy that addresses
troubled young people, not video game players at large. |
 |
Warning: Baby at Work
/ Does bringing babies to work help or hinder
productivity? We asked one Mom who's done it to weigh
in. Mom•Logic: How did you work with a baby in the
office? Emily: I was able to have her on the floor
playing as I worked. I could take her into meetings or
breastfeed her in my office. You could hear her cooing
on my outgoing voicemail message. Many parents often
miss out on bonding with their babies when they return
to work, unless they are stay-at-home moms. |
 |
What recession? Technology innovators
keep the faith at CTIA
- Signs of a U.S. recession seem to be cropping up
everywhere, but many at the CTIA Wireless 2008 trade
show last week were full of optimism about the economy
and the value of technology in general. The show was
attended by 40,000 visitors and hundreds of vendors,
including a wide variety of small companies, some with
only a handful of employees who were showing products or
prototypes with ambitious prospects. Among them was a
vendor who promised ways to improve mental health, while
another was devoted to saving consumers a bundle on
long-distance calling from home. |
04-06-2008
 |
Armed with a knowledge of
autism
- Ten hours later, police
confront the boy near a bus stop. Unable to understand
their commands, the teen flees, and Orange County
sheriff's deputies shoot him twice with a Taser.
In West Bloomfield, a father of two teenagers is
arrested on suspicion of sexual torture after an aide to
a nonverbal autistic 14-year-old "facilitates" the
typing of a description of horrific abuse. The girl's
mildly autistic brother, 13, is grilled by detectives
until he confirms the allegations - which turn out to be
false. In Ormand Beach, Fla., on Friday, a
20-year-old autistic man dies in a mobile home fire,
while his mother and her boyfriend escape unharmed. And
in Bay County, sheriff's deputy Adam Brown is doing his
part to prevent such tragedies from happening here. |
 |
April is Autism Awareness
Month -
According to the centers for disease control and
prevention one in 150 children are diagnosed with
autism. It's a neurological condition that impairs
social skills, communication and behavior. There is no
cause or cure, but experts agree early intervention is
crucial. Ben Mohler loves playtime. But the 5 year
old has trouble tolerating certain noises. The sound of
this toy sends him into stimming. The shaking is a sign
often seen in people with autism. Ben's mother noticed
something was wrong when he was 15 months old. He made
odd sounds. He didn't like hugs. The tantrums seemed
endless.
Selinda Mohler, Ben's Mother: "Simple things that normal
families are able to do together we couldn't go out to
dinner." |
 |
Autism Experts Agree: Your
Child's Behavioral Therapy Should Take Take Place In The
Real World -
It's still possible to find behavioral therapists
sitting children in chairs for forty hours a week. Over
and over again, the therapists hold out a spoon, or a
fork, or a cup, or a plate, and ask for the proper word.
When they get the response they're looking for, they
give the child a "reinforcer" - often a small piece of
candy. This form of therapy, which comes out of the
behavioral tradition, is called
"discrete trials." It's a very clearly defined
technique, and because it has extremely concrete goals
(learn to say "spoon" when you see a spoon) it is easy
to see and report on progress. |
 |
Beauty is in eye of
autistic youth
- At 25, Ian learned only
last month how to “point and shoot” with a digital
camera, yet he has amazed many with the images he has
captured through his lens—and through the invisible wall
that stands between his world and theirs. It’s like
something “clicked” the moment Ian, who has Autism
Spectrum Disorder (ASD), began taking snapshots like a
boy who had found a new toy. Ian’s pictures, according
to Philippine Daily Inquirer chief photographer Ernie
Sarmiento, suggest “a natural eye for composition and
detail.” |
 |
Children With Autism Learn
To Surf A Wave
- Surf's up, and so are spirits at South Pointe Park
Beach. Autistic children hit the waves for the very
first time. The new program is a cooperation between the
City of Miami Beach, and the Center for Autism and
Related Disabilities at University of Miami and Nova
Southeastern. "I think everybody should get a chance to
surf. It's an amazing sport and it's very fun," said
10-year-old Ryan Martinez to CBS4 Dr. Sean Kenniff.
"When you see a child do something you know they
wouldn't be able to do, it's priceless," added Julio
Magrisso of the City of Miami Beach. Riding on a wave of
enthusiasm, the kids learned how to "hang ten" or
"hi-five" as proud parents cheered them on from the
shore. It was clear the boards were boosting confidence
and building social skills. |
 |
Family wins race vs.
itself
/ Marathon quest helps couple find better way to
deal with kids'
developmental disorders - When Marlin Keesler
decided to run his first marathon, he saw it more as
another life goal to check off his list than the start
of any kind of longer commitment. The Streamwood man
didn't expect it to turn into a quest to run 50
marathons in 50 states -- a feat rarer, he says, than
climbing Mount Everest. The bigger surprise was what he
got out of the pursuit that can't be quantified by miles
run or states visited: a deeper, more intimate bond with
his wife Jeanne and children Austin and Erin. Theirs was
a family nearly torn apart over the stresses of dealing
with the children's developmental, physical and social
challenges that in some cases took years for doctors to
explain and, in others, are still not fully understood. |
 |
Go deeper on exploring
autism - April
is Autism Awareness Month. And while talk of the
neurological disorder has become fairly prevalent, the
exact cause remains unknown. Families are searching for
clear answers where none yet exists. How diet and
childhood vaccinations play a role in autism are often
discussed. And while environmental factors can't be
ruled out, they don't offer a full picture. The focus
should be placed on two key areas: early diagnosis and
genetic research. The first has made considerable
strides over the years, but disparities still exist in
areas across the country. |
 |
Jenny McCarthy's son
recovering from autism
-
On
April 3, CNN published an article by Jenny McCarthy and
Kim Carrey about McCarthy's son, vaccines and
autism,
telling the readers that vaccines caused autism in her
son, they believe children are given too many vaccines
and her son is recovering from autism by following a
healthy diet and taking a vitamin therapy. Autism, a
once-rare disorder, now affects one in every 150
children in the United States and is more common than
pediatric cancer, diabetes and AIDS combined. |
 |
Jon
Stewart hosts Autism benefit 'Night of Too Many Stars'
- Too, too many stars
will assemble to use humor to raise money and awareness
for Autism, a neurological disorder that afflicts
children in different degrees worldwide.
Appearances by Will Arnett, Matthew Broderick, Steve
Carell, Stephen Colbert, Susie Essman, Will Ferrell,
Tina Fey, Jonah Hill, Kevin James, Conan O'Brien, Rosie
O'Donnell, Amy Poehler, Adam Sandler, Sarah Silverman,
Triumph The Insult Comic Dog and many more will join
host Jon Stewart. |
 |
Larry King Live shines
light on autistic girl's love for dog
- Creating awareness of autism brought the producers of
Larry King Live all the way to Medicine Hat, where an
autistic girl's life has been bettered through the
kindness of a four-legged friend. Six-year-old
Emily Ainsworth and her service dog Levi shared their
story in a clip that aired Wednesday on the venerable
CNN personality's broadcast marking the inaugural World
Autism Awareness Day, an episode which also featured
actress Jenny McCarthy, whose son is autistic.
|
 |
Patient's killing shocks state hospital
/rAleady under pressure to make reforms,
the
Atascadero facility is now dealing with the death of
Lawrence Paul Rael. Another patient has been charged
with murder. - When Lawrence Paul Rael was
involuntarily committed to Atascadero State Hospital 10
years ago, his parents considered the placement
appropriate. Born prematurely and with a severe
hearing loss, Rael had been in and out of mental health
facilities from the time he was a child, with a
tentative diagnosis of autism. At 18, he molested two
boys and was sent to prison and then to Atascadero. "We
were comfortable with the fact that he was somewhere
where he was watched," said Rael's father, Lorenzo, of
Rancho Cucamonga. "He was supposedly in a hospital. We
thought at least that he wouldn't get hurt." But early
Sunday morning, the slight 37-year-old man was found
dead in his bed with a towel around his neck -- the
victim of the first homicide in the Central Coast
facility's 54-year history. |
 |
Parents warned over
measles outbreak
- Parents are being warned
to immunise their children following a measles outbreak
in Lewisham. Lewisham Primary Care Trust director of
public health Dr Chris Watts said one school has had 30
probable cases and six confirmed recently. He said: "We
have a major problem with measles in Lewisham. "We have
also had several cases in another school and in the
community more widely." Dr Watts said there had also
been an outbreak in Lewisham Hospital's children's ward
and all the hospital's staff were being checked and
immunised Symptoms of the illness include a fever,
cough, red and painful eyes, swollen glands and a loss
of appetite, with sufferers usually developing a rash
three to four days afterwards. The PCT is advising
parents at the school about what to do if their child
develops signs of the illness and emphasising the
importance and safety of the MMR vaccination. |
 |
Programs for Adults with
Autism - Many
local programs are designed to help children with
autism, but families will tell you there aren't many
places in the Valley geared towards 'autistic adults'.
In tonight's Children First preview, we look at one
center that's a perfect fit for a young man who thrives
on creativity. Jason Irwin has fun in his puppetry
class. The 29-year-old is autistic but he also has a
sense of humor. Jason shows off one of his puppets, "My
name is danielle. And what do you do danielle? Danielle
keep biting people with a puppet?" Jason is a
student at UCP of Central California. The Fresno center
serves 250 adults with physical or mental disabilities.
"We modeled our program after the semester system at a
community college campus where electives are changed
every semester," said UCP Executive Director Jamie
Marrash, "they would prefer to be called students rather
than clients or recipients." |
 |
Special love for special
people
- Special love for special people was the message
heard at an
autism awareness forum held in Malta this afternoon. The
event was hosted by Assemblymen Roy McDonald and George
Amedore, in effort to raise the awareness of autism and
similar disabilities. The forum included a panel of
experts and advocates who discussed the disorder's
impact and local services available to help parents.
"Well, it touches my heart for a number of reasons. One
is the sheer numbers. One out of 150 people being born
are diagnosed with autism and that number is lowering as
we speak. That is amazing the number of people. My
family is no exception. I have two grandsons, 3 and 5
and they both have been diagnosed with autism,” said
Assemblyman Roy McDonald. |
 |
Stroke Recovery Improves
with Music
- Stroke victims face a long and difficult road to
recovery,
and many of them suffer from irreparable residual
effects. Researchers around the globe are searching for
treatment options that improve recovery in stroke
patients, but to date no magic bullet has arrived.
Currently, patients are treated with a multimodal
approach, including physical therapy, occupational
therapy and counseling as needed. One simple thing that
may aid in the recovery of mental function following
stroke is listening to music. According to a recent
study, stroke victims who listened to music for 1 to 2
hours daily showed significant improvement in certain
mental functions than those that did not. |
 |
Thanks to the kindness of
a stranger -
Roxana Ioannoni was looking for an angel, although she
wasn't sure how to find one since she rarely leaves her
home. Ioannoni has had to use a wheelchair or walker
nearly 10 years after falling into a hole and
dislocating several disks in her back. Now, she leaves
her home only for doctor's appointments. Still, she
believed that if she prayed hard enough God would answer
her prayers. But she wasn't expecting her wish to be
granted through the World Wide Web. Several weeks ago,
Ioannoni, 51, used Google to search the Internet for a
"handyman," hoping to find someone who could fix her
front steps, which are uneven and have a wobbly railing.
Repairing those defects, would make it easier for
Ioannoni to leave and enter her dwelling. |
 |
Time to think differently
- As an adult with autism, I
am very worried about the lack of help available to me
and others with the disability. Autism is a lifelong
condition, yet as "I Exist", the new report from The
National Autistic Society has found, many adults with
the disability struggle to get the help they need.
Many feel isolated and ignored and are entirely
dependent on their families for support. I want to see
the right services and support in place so people with
autism in Stanmore can reach their true potential - the
right help at the right time can have a profound effect.
That is why I'm supporting the NAS "think differently
about autism" campaign. I urge people in Stanmore to
visit
www.think-differently.org.uk and help put
pressure on local and national government to do more to
transform the lives of adults with autism. |
 |
The World Is Big Enough
for Autism -
Maybe the grocery store isn't the best place for a child
with autism Perhaps the typical classroom isn't an
ideal setting. Soccer may not be her sport.
In America, these three settings feel like they're the
world. If your kid can't handle the grocery store,
school, or team sports - they've pretty much run out of
options. In fact, though, the world is much, much bigger
than that. And your child with autism is very likely to
find many, many places where he can be just as
successful (or even more successful!) than the average
child. Where your child is successful, you can relax,
enjoy, and even take pride in your child's
accomplishments. |
04-05-2008
 |
April is Autism Awareness Month
-
According to the centers for disease control and
prevention one in 150 children are diagnosed with
autism. It's a neurological condition that impairs
social skills, communication and behavior. There is no
cause or cure, but experts agree early intervention is
crucial. Ben Mohler loves playtime. But the 5 year old
has trouble tolerating certain noises. The sound of this
toy sends him into stimming. The shaking is a sign often
seen in people with autism. Ben's mother noticed
something was wrong when he was 15 months old. He made
odd sounds. He didn't like hugs. The tantrums seemed
endless.
Selinda Mohler, Ben's Mother: "Simple things that normal
families are able to do together we couldn't go out to
dinner." |
 |
Are we over-stressed or over-diagnosed?
- The United
States has reached a point where
almost half its population is described as being in some
way mentally ill, and nearly a quarter of its
citizens--67.5 million--have taken antidepressants.
Studies indicate that 40 percent of all patients fall
short of the diagnoses that doctors and psychiatrists
give them, yet 200 million prescriptions are still
written annually in the U.S. to treat depression and
anxiety. Those who defend such widespread use of
prescription drugs insist that a significant part of the
population is under-treated and, by inference,
under-medicated. Those opposed to such rampant use of
drugs note that diagnostic rates for bipolar disorder,
in particular, have skyrocketed by 4,000 percent and
that overmedication is impossible without
over-diagnosis. |
 |
Jenny McCarthy's son recovering from autism
-
On April 3, CNN published an article by Jenny McCarthy
and Kim Carrey about McCarthy's son, vaccines and
autism, telling the readers that vaccines caused autism
in her son, they believe children are given too many
vaccines and her son is recovering from autism by
following a healthy diet and taking a vitamin therapy.
Autism, a once-rare disorder, now affects one in every
150 children in the United States and is more common
than pediatric cancer, diabetes and AIDS combined.
McCarthy said she met some patients whose children had
recovered from autism or vaccine injury as they called
it and started a regimen in her son Evan including "a
gluten-free, casein-free
diet, vitamin supplementation, detox
of metals, and anti-fungals for yeast overgrowth that
plagued his intestines". She attributed her son's
recovery to these "unapproved" medical treatments. |
 |
Local doctors don't show much interest in autism
- My family was happy to see that The Pantagraph had a
blurb about the upcoming discussion regarding early
identification of autism and autism awareness sponsored
by the Autism Spectrum Institute, Autism Clinic at
Illinois State University, the Autism Society of McLean
Cunty, SPICE, Marcfirst and Child and Families
Connection 16 at Ewing Manor on April 3. I was looking
forward in hearing what Dr. Charles Morton had to
discuss and to pass on to the local physicians - the
target audience. When I phoned the Autism Clinic at ISU
on Tuesday to inquire if this was open to the public,
the clinic informed me that, due to low physician
response/interest, they were canceling the presentation. |
 |
Love and Asperger's - He's gentle, unworldly, highly
attentive and charmingly old-fashioned. The catch? The
very things that make Keith so attractive to Sarah are
symptoms of Asperger's. Anna Moore meets the couples
living with this surprisingly common condition
Sarah Hendrickx and Keith Newton sit tilted towards one
other, laughing a lot and disappearing down the
occasional alley of in-jokes, as couples do when they're
still in that early, besotted stage. |
 |
Mentally disabled population growth worries advocates
- Two years ago, after the U.S. Justice Department
investigated the Lubbock State School and the 12 other
facilities in the state system for the deaths of 186
patients over an 18-month period, almost everyone blamed
the massive budget cutbacks caused by the $10 billion
shortfall the Legislature faced in 2003. But there
was another equally important but overlooked factor. For
nearly two decades, the mentally retarded population,
like the general population, has grown faster than
anyone had projected. And though such growth has not
been reflected in the state schools - the number of
patients has actually declined slightly this decade - it
is the growing number of young patients that has
advocates for the mentally disabled worried. |
 |
Maia Chung-Smith Battling autism
- Too
long in her cocooning chrysalis, Maia Chung-Smith was
recently
forced by the needs of her autistic son and the
pain
of parents in a similar position
to spread her wings. Now, less like a butterfly and more
like an angel, Chung-Smith recently created Jamaica's
first
Autism
Foundation in collaboration
with a coalition of professional volunteers. |
 |
On autism, the political is also the personal
- The aides for autistic people need to be better
trained to understand their patients' needs, according
to parents at a Saturday forum that drew local
politicians, experts and care providers. "I've had to
rescue my son twice from aides who just didn't know what
they were doing," said Marcia Roth of Delmar during a
panel discussion on autism at Saratoga Bridges in Malta.
Roth, an audience member at the forum, told the panel
that care providers should be given training that helps
them understand the individual needs of their patients.
They should also be paid better, she said. "I can get a
certified health-care provider," Roth said. "But I can't
get someone to understand his autism." The event
included Saratoga County Administrator David Wickerham,
Assemblyman Roy McDonald, R-Saratoga, and autism experts
from the University at Albany and Living Resources, an
Albany-based nonprofit organization for people with
developmental disabilities. |
 |
Savant artists in New York - an interview with curator
and autism ...
- I recently
met Rosa Martinez when she purchased some of my artworks
and invited me to join other savant artists with autism
in a series of New York exhibitions. She´s dedicated her
life to working with people with autism and channeled
some of this into her deep love of art. Here´s our
interview.
04-04-2008
|
 |
Blogger ensnared in hotly
contested autism-vaccinne lawsuit
- There are a number of
cases where public controversies remain in areas where
the scientific community considers the existing body of
evidence conclusive. One such topic, which Ars has
experience with, is the proposal that mercury-containing
vaccines play a causative role in the development of
autism. Despite the fact that all evidence points
against the existence of a link, some parents of
autistic children have pursued both "cures" for mercury
poisoning and lawsuits against vaccine manufacturers.
One of those lawsuits has now embroiled an autism
blogger, Kathleen Seidel, and her attempts to stay out
of it may wind up testing constitutional issues and the
role of citizen-journalists. The diagnosis of childhood
autism typically coincides with the recommended time for
childhood vaccines, leading many to speculate that there
is a connection between the two. One guess was the
mercury used as a preservative in many vaccines. Several
countries have since discontinued the use of mercury in
vaccines, however, and it has had zero impact on the
rate of autism; that, combined with the lack of a
plausible biological mechanism, has caused the
scientific community to reject this proposal and move
on. |
 |
CDC Has Lost Control of
the Autism Argument
- Like this story? Get Alerts of big news events.
Enter your email address On Wednesday, CNN's Larry
King hosted Jenny McCarthy, myself, and several others
to discuss the growing evidence of a link between
childhood vaccines and autism. The CDC refused to send
someone to appear on the show. Instead, on Thursday, the
agency issued a statement meant to reassure the American
public that all vaccines are safe for all kids. But the
CDC statement only served to show how out of touch the
administration of George (really? gas costs 4 dollars?)
Bush really is. |
 |
Commentary: Celebrities
bring attention where ordinary people can't
- have a secret wish I've told very few people. It
might seem cruel, but as the mother of a physically
disabled son, with a rare disease, I will admit it has
crossed my mind.
You're probably thinking that my secret wish is that my son wasn't
disabled. It would surprise you how often people
ask me, "I bet you wish Dan wasn't handicapped" or
"Don't you wish your life was different?"
|
 |
CNN's Autism Day
Scores....Online
- CNN's coverage of World
Autism Day Wednesday paid off for CNN.com and
iReport.com. CNN.com received more than 6 million page
views of the content related to the medical team's
autism coverage. iReport.com, meanwhile, received nearly
450 contributions from people who shared personal
stories about living with autism. This is the first
major health initiative on the new iReport.com which
launched in February. Insiders tell TVNewser, previous
day-long coverage for events, including World Aids Day
and World Refugee Day, scored well but nothing to the
extent Autism Day did. As for the cable
contribution, viewers were not as tuned in to the
coverage. CNN averaged 122K A25-54 viewers during the
day and 196K in prime time. That's the lowest demo
viewership for CNN in total day, this year. By
comparison on Wednesday, FNC had 230K total day and 396K
demo viewers in the prime time; MSNBC had 156K total day
and 315K in prime. |
 |
David's story: Autism
before the Internet
- When David was diagnosed with autism, he had already
been in speech, sensory integration and occupational
therapy for several months. He was in a preschool class
for kids with developmental delays. By the time his
diagnosis was official, the word “autism” was no longer
scary. It was merely shorter and easier to say then
“developmentally disabled.” But getting information
wasn’t as easy as googling “autism.” The Internet
existed in 1988 and 1989, but it looked very different
from the Internet of today and there wasn’t a computer
in almost every home least of all mine. Very few people
who weren’t in technical careers had ready access to the
Internet. I did research by driving to the public
library and looking at books. And there were so many
fewer books about autism then. |
 |
Drug Prevents
Abnormalities That Lead To Seizures, Mouse Study Shows
- Now scientists at Washington University School of
Medicine in St. Louis have taken the first step toward
developing another option. They've used a drug to
prevent the brain abnormalities that lead to seizures in
mice with an inherited form of epilepsy. Working in a
mouse model of tuberous sclerosis, an inherited human
condition that causes seizures, researchers showed that
regular doses of the drug rapamycin prevented the mice
from seizing. The treatment also blocked the development
of structural abnormalities in the brain and extended
lifespan. |
 |
Emotions video for
autistic kids
- Children with autism can
learn to read the emotions of others by watching
animated vehicle characters with human expressions,
research has shown. The Transporters is an animation
series designed by experts at Cambridge University to
reach out to autistic children. Thousands of copies of
the video were distributed to families in an initiative
commissioned by the Government. |
 |
Inside Autism: Mother
clings to hope to hear her son communicate
- Basic
communication with a child is something many parents
take for granted. However, for parents of autistic
children, a basic phrase can be gratifying, or in this
case, a moving experience. Becky Harrell, the mother of
a fouryear- old autistic boy, could only wipe away tears
when sharing the story of her son saying one simple
phrase, “Hello, Mommy.” Henry, who attends a preschool
class in the Pikeville Independent school system, was
diagnosed with Pervasive Developmental Delay Not
Otherwise Specified (PDD-NOS) in 2007, following a
series of tests at the Cincinnati Children’s Hospital.
“It wasn’t easy to take, but I was confident that we
finally had a hold on the problem,” Henry’s father,
Adrian, said. |
 |
Jenny McCarthy's Austistic
Son Likened Himself To Cartoon ...
- Ellen DeGeneres became
teary-eyed during an episode of her daytime talk show
when comedienne Jenny McCarthy told her about her
autistic son. McCarthy, 35, told the host she was
taken back when one day her 5-year-old son Evan likened
himself to "Finding Nemo" character Dory, an animated
fish with a short-term memory loss DeGeneres gave voice
to The former Playmate of the Year said, "Evan has
come such a long way. That kid has come such a long way
to get to where he is." "He said, 'Mom, you know I used
to be a lot like Dory.' I literally pulled over and
looked and turned around and I started crying, because
of what he meant." |
 |
Luck turns for family
- Thieves stole her car, leaving her disabled brother
housebound. Huen Sutcliffe, 15, was left stranded
after his sister and carer Chantelle Murray, 19, had her
car stolen from outside their Northlakes home on
Thursday morning. But Ms Murray is now the proud owner
of a new Kia Rio after a generous local businessman
offered to pay for the car. The businessman, who wanted
to remain anonymous, contacted the Northern Territory
News after reading the family's story. |
 |
McElwain’s story inspires
everyone affected by Autism
- In compiling research for a series of articles to help
promote Autism Awareness Month, I came across a story
that may have been lost in the archives of miraculous
stories of courage, hope and perseverance. It’s
the 2006 tale of young Jason McElwain’s morph from an
unknown student manager of a Rochester, N.Y. high school
basketball team to a pillar of inspiration across the
nation. For four minutes, McElwain escaped a world of
boundaries and used basketball as his escape. This 5-
foot-6 kid, in his first appearance in a high school
basketball game, captured the hearts and minds of a
nation by scoring 20 points, including six 3-pointers,
in the game A grainy clip of his accomplishment
started to surface on Web sites like “You Tube.” He
became an instant celebrity and, perhaps, the most
powerful spokesperson for this broad disease. |
 |
On the Autism Warpath
- Sex symbol, comedic actress, best-selling
author--Jenny McCarthy
was a multi-hyphenate before the term came into vogue.
From her stint as a Playboy Playmate to hosting MTV’s
"Singled Out," to appearing in films like "Scream 3" and
the newly released
comedy
"Witless Protection," McCarthy is an expert at doing
anything for a laugh. But her life changed radically
when her son Evan was diagnosed with autism just as
McCarthy was launching the press tour for her second
book, "Baby Laughs: The Naked Truth About the First Year
of Mommyhood." While promoting the book nationwide,
McCarthy waged a fierce battle at home to pull Evan out
of autism, a complex developmental disability affecting
one out of 150 children. She chronicles her struggles in
her latest book, "Louder Than Words: A Mother's Journey
in Healing Autism," and spoke with Beliefnet on dealing
with guilt, having faith in recovery, and praying for
her son to do "what typical kids do when they're
older...go out with his friends and make out with his
girlfriend." |
 |
Portland is spotlight for
National Autism Awareness in April
- The Autism Society of
Oregon and its national organization, the Autism Society
of America, are bringing the national autism awareness
spotlight to the Portland area with "Celebrate Autism"
activities April 11 and 13. On April 11, the
Autism Society of America, the nation's leading
grassroots autism organization, the Autism Society of
Oregon (ASA's state chapter), and Pump It Up, the
nation's largest and fastest-growing franchise of giant
indoor inflatable playgrounds for private parties, host
"Bounce for Autism" from 4 to 6:30 p.m. at 9665 SW Allen
Blvd. #110, Beaverton. Bounce for Autism is a new
nationwide, community-based fundraising event that
combines family fun with raising awareness and support
for autism in locations that welcome children on the
autism spectrum. Each event - happening at six
nationwide locations throughout April - groups teams
together to raise funds, then gives them a chance to
bounce at a Pump It Up location. |
 |
Story ideas from Molecular
and Cellular Proteomics
- This month, Molecular & Cellular Proteomics will
highlight some of the research presented at the 8th
International Symposium on Mass Spectrometry in the
Health and Life Sciences, held this past August in San
Francisco. This Symposium described how recent advances
in mass spectrometry have expanded our current knowledge
about the vast protein networks inside cells and how
they are regulated. Mass spectrometry, an analytical
technique that measures molecules on the basis of
mass-to-charge ratio, has been gaining popularity in the
biological arena. And with the power to analyze large
samples on the order of several thousand molecules and
the ability to distinguish various chemical signatures
like phosphorylation, this technology has found a
perfect home in the field of proteomics. |
 |
The Lanterman Act changed
life for people with developmental ...
/ It's a cultural shift: Since the '70s, people with
autism, cerebral palsy and the like now have access to
centers that help them learn skills and, if possible,
get and hold jobs. - In the last century, people who are
mentally disabled have gone from family attics, to
institutions, to day centers, to finally mingling with "normaloids,"
a term used by Mike Danneker, executive director of the
Westside Regional
Center, part of the state system that funds programs
for adults with autism, cerebral palsy and mental
disabilities. "Professionals in the business used
to pat them on the head, plug them into institutions and
programs and have them do things no one would otherwise
ever do," he says. "We would have them string beads, or
put pegs in holes, and then tell them to tear it apart
and do it all over again." Then came the Lanterman Act,
passed in California in 1973 and revised in 1977. It
gave people with developmental disabilities the same
rights and responsibilities guaranteed for everyone, and
set up a statewide system of regional centers to
advocate for and protect those rights. Among them is the
right to live and work in the least restrictive
environment possible. |
 |
UN World Autism Day:
Baroness Uddin YouTube Film and Song
- Media Eye Productions in London have released a film
to mark the first ever United Nations World Autism
Awareness Day. WAAD held on Wednesday 2nd April was a
huge success - events were held all over the world. The
leading peer from the House of Lords, in the Palace of
Westminster, Baroness Uddin is in conversation with Ivan
Corea, head of the Autism Awareness Campaign UK in the
film. Baroness Uddin congratulated UN Secretary-General
Ban Ki-moon and Qatar for spearheading the first ever
World Autism Awareness Day declared by the United
Nations General Assembly in New York. |
 |
Understanding Autism
Spectrum Disorder Grows As Americans Mark ...
/
CARF standards cover scope
of services to support persons with Autism and their
families - "Medical, educational, behavioral health and
community provider systems worldwide are beginning to
respond to the expectations and desires of persons with
autism spectrum disorder (ASD) and their families," said
Brian J. Boon, Ph.D., president/CEO of CARF
International. Recognizing that April is Autism
Awareness Month, Boon added, "Increased understanding of
ASD can lead to earlier interventions and better service
options for consumers and their families." Growing
awareness and advocacy prompted Arizona to pass
legislation last month requiring state insurance
companies to provide coverage for autism treatment.
ASD is a series of lifelong developmental disorders that
begin in infancy or childhood and cause substantial
impairments in social interaction and communication and
the presence of unusual behaviors and interests,
according to the Centers for Disease Control and
Prevention (CDC). The CDC reported last year that one in
150 children is diagnosed with autism, and the Autism
Society of America estimates that 1.5 million Americans
live with the effects of ASD. The Autism Research
Institute adds that, since the early 1990s, the rate of
autism has increased exponentially around the world.
|
 |
Will Rape Shut the Shock
School? - When
I wrote recently about the Judge Rotenberg Center -- the
facility for autistic kids and other children with
"behavior problems" that uses electric shock to gain
compliance -- I
asked rhetorically what it might take to shut it
down. If the latest incident doesn't do it, I simply
cannot imagine what would. Of course, you would
think exposure of its methods would be enough.
Especially given our increasing knowledge about
oversensitivity in autism and the fact that many
"inappropriate behaviors" are actually attempts by
people with autism to soothe themselves when
overwhelmed. Brilliant treatment, this is: take a kid
who is distressed and trying to soothe herself-- and
punish her with more distress to try to make her stop. |
04-03-2008
 |
Disorders pose challenge
for Wendell family
- Two years ago, they'd have
been surrounded by the busy, urban environment of
Seattle. But on this day, Eamon, Meara and Alayna Lynch
play within eyesight of miles of farmland. The three
seem like any other family as they play basketball in
Wendell's McGinnis Park. And like any family, they have
their own unique quirks.
Eamon, 12, was diagnosed at age 3 with sensory
processing disorder, a complex brain condition that
leads people to misinterpret everyday touch, sound and
other sensory information. Meara, 11, has Asperger's
disorder, a milder variant of autism that can cause
social and behavioral issues. |
 |
Game Addicts are Autistic
- This year's British
Psychological Society Annual Conference is shaping up to
be a battle royale of contesting parties screaming the
head-smackingly self-evident. Following yesterday's
chin-felling revelation that games are relaxing, a
separate study has staked its flag atop the peaks of
Mount Obvious, discovering that videogame addicts
display behavioral traits similar to that seen in
Asperger's sufferers. Research, carried out by Ian
Danforth of the American Whitman College and Dr John
Charlton of the University of Bolton, took a
predominantly male group of 391 gamers. Findings showde
that players edging closer to addiction displayed traits
commonly associated with Aperger's, including
introversion, neuroticism and a lack of agreeableness.
|
 |
Sex
and Drugs and Singing Mice
- Mice can whistle and chirp
like birds--and researchers now say their songs seem to
be happy ones. New experiments associate the rodents'
ultrasonic chatter with the brain's dopamine-based
reward system, and investigators hope that studying the
songs may eventually point toward genes behind human
emotional disorders such as schizophrenia and autism.
Researchers have known for nearly 50 years that rodents
produce ultrasonic calls. In 2005, they discovered that
mice even sing complex songs (ScienceNOW,
1 November 2005). Their sparrowlike
whistles and twitters are a couple of octaves
too high for human ears to hear. No one knew exactly why
mice sing, but rats make similar calls during sex,
pleasant brain stimulation, and drug use, so
psychologists thought the songs might be a sign of
happiness. If this held true in mice, then powerful
genetic tools available only in mouse studies could help
researchers discover new genes that affect emotion and
pleasure. |
|
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