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ASPIRES
Recent Media Coverage of AS & Related Articles
We
will list the current media coverage for the last 30 days at the
beginning of this page as well as in our section below. This will be
updated on the first day of every month. A.S.P.I.R.E.S.
does not endorse these articles. We share them with you for
informational purposes only.
01-24-2010
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Age of Autism Comment of the Week: 1/23 - Henderson is our
commenter of the week on the post,
Anne Dachel On The Rising Autism Numbers. A 13-year-old
boy was taken into custody on Tuesday night in connection with the
shooting death of his father in the Town of Delton. Sauk County
investigators said that the boy, identified as Michael Crisafulli,
admitted to shooting his 55-year-old father, Angelo Crisafulli. The
boy is being held on a first-degree homicide charge. |
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Are Today's Kids Damaged? - Recently, a regular commenter
called Barbaraj wrote a long
response to a blog post; in part, this is what she had to say:
These elderly people don't understand, they think we've become lax
in discipline, overused television, in general have been bad
parents, they see more than autism, they see a generation of
behaviorally, socially, strange kids. This is new, don't be fooled
into thinking those NT children we refer to so often are normal,
they aren't, most kids seem somewhat affected. After the autism
count, start counting those that are on various "mind altering
drugs" for their ocd, depression, add, adhd..there are so many
damaged that we should be screaming for answers not infighting over
whether this is a "new" problem. |
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Are You Envisioning Your Autistic Child's Future? - Every
now and then, a therapist or other professional has told me I need a
vision for my son's future. Without such a vision, they say, it's
impossible to set up goals and know if you've reached them. For
example... Will he live at home, in a supported group
home, or independently? |
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Asperger's documentary Feb. 6 at Upstate Films - The
documentary "The Asperger's Difference: For and About Young People
With Asperger's Syndrome" will be featured at 11 a.m. Feb. 6 at
Upstate Films in Rhinebeck — for the second time since its premiere
in November 2009. The screening, which is free and open to the
public, will be followed at 11:30 a.m. by a panel discussion with
the filmmakers and young adults featured in the documentary. "The
Asperger's Difference" debuted at Upstate Films on Nov. 21 to a
sold-out crowd of more than 150 people. |
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Autism: A healing, not a cure - It's a windswept, freezing
January afternoon on a remote beach in Scotland, and I'm watching
four horses, each with a child on its back, plodding across the
pebbles. Eight-year-old Rowan Isaacson is standing beside me on the
beach. Like the other children, he is autistic: unlike them, he can
carry on a conversation, speaks clearly and is toilet-trained – but
only since 2007. According to Rowan's father, Rupert, his
extraordinary "recovery" from some of the most difficult aspects of
autism came about through his love of horses – a love affair
that culminated in a month-long, adventure-packed trip to Mongolia.
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Autism Speaks responds to recent publications citing autism clusters
in California - However, demographic factors, alone, may
not explain the increased numbers of cases in these clusters. The
authors propose that other factors, including environmental
exposures, may play a role but warrant further investigation to
understand their contribution to autism etiology. |
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Author recalls growing up with undiagnosed Asperger's - In
elementary school, he was a film noir and opera buff. By middle
school, he'd written and directed his own films. Before he was a
teen, he was the subject of a documentary, "A Day With Timmy Page."
Growing up in Storrs, Conn., Page consistently flunked math and
science, and never fit in socially. His words were sometimes
accidentally cruel. He didn't understand human social cues. He even
read an Emily Post book to learn why people did what they did — and
how to respond appropriately. "I don't think I ever thought I
was like other kids," Page says. |
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Boy was tangled in web of issues: Family woes led to police
intervention - The 13-year-old boy accused of shooting his
father to death Tuesday was tangled in a web of legal and custody
battles between his parents that at times required police
intervention. Michael A. Crisafulli was 5 years old and the youngest
of seven children when his mother filed for divorce from his father
in September 2002 after 20 years of marriage, according to court
records. Although the divorce was finalized a year later, court
disputes in the family case continued for more than seven years and
often involved the custody of Michael — who is now facing a
first-degree intentional homicide charge as an adult.
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Could We Have Ignored Autism in the Past? - If autism is
on the rise, then there are far more children than adults with the
disorder. If it isn't on the rise, then the numbers should be more
or less consistent over the years. Certainly there are far more
children than adults with the diagnosis. But since the diagnostic
criteria have changed radically since I, at least, was a child, that
information doesn't help us much. And large studies, so far, seem to
suggest that there both ARE and ARE NOT as many adults as kids with
the symptoms of autism spectrum disorders. |
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Profiles in Counter Intuition : Temple Grandin on Working from the
Inside - Temple Grandin's life and her career are
counter intuitive on several levels. First, she is arguably the most
accomplished and well-known adult with autism in the world. She has
a Ph.D. in animal science and is a professor at Colorado State
University. She is the author of the classic memoir Thinking in
Pictures, about to be released as a film starring Claire Danes.
Secondly, as an animal lover, she has carved out a specialty for
herself in the highly oxymoronic field of humane animal death.Today
over half of North America's cattle are handled in systems she
designed. |
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Dealing With the Financial Burden of Autism - WHEN Jeff Sell’s
twin sons were found to have
autism 13 years ago, he, like so many other parents in the same
situation, found himself with a million questions: Will my children
be able to function? What are the best treatments and where do I
find them? How will this affect the rest of my family? And
besides those monumental worries, Mr. Sell kept asking himself
another fundamental question as he began the long string of doctor
and therapist visits with his sons: “How in the world am I going to
pay for all this?”Autism trends, treatments and therapies routinely
make headlines. Often overlooked, though, is the financial burden
for many families with autistic children. |
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Desperate carers failed by system in crisis - HUNDREDS of
disabled and mentally ill Victorians are languishing on
supported-accommodation waiting lists as their desperate carers find
themselves unable to gain access to respite facilities due to huge
funding shortfalls, a parliamentary inquiry has found. The
report paints a picture of a system in crisis, with elderly parents
forced to provide 24-hour care for their adult children because they
cannot find a residential place for them. |
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Discontinued autism therapy prompts California class-action lawsuit
- The Eastern Los Angeles County Regional Center alerted over 100
families that their children were loosing the DIR therapy model,
which stands for “developmental individual difference,
relationship-based”, late last summer. The therapy was cut as a
result of state budget cuts, which now has parents in an uproar. The
California Legislature cut over $300 million in services in
experimental treatments, recreational activities, and nonmedical
therapies for the developmentally disabled. The therapy is part of a
popular treatment called “Floortime,” where a therapist follows a
child’s lead while playing to help to build communication and social
interaction skills. DIR was cut because “it doesn’t meet the rigors
of science.” Even though there are no known controlled scientific
studies on the DIR treatment, in 2001 the National Research Council
determined that the treatment “had enough in common with other
proven methods, which can be considered a valid model for treating
autism.” The lawsuit contends the therapy cut “threatens to condemn
our clients and this group of children to a bleak future under
institutionalized care.” |
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DOJ Joins Whistleblower Lawsuit Against Johnson & Johnson Over
Kickbacks for ... - Federal prosecutors have
intervened in a whistleblower lawsuit against Johnson & Johnson,
accusing the company of paying kickbacks to Omnicare, a nursing home
pharmacy supplier, to push its antipsychotic drug Risperdal onto
elderly patients. |
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Father Develops Autism Software After Son's Diagnosis - It
was nearly 13 years ago when Karl Smith noticed that his
then-2-year-old son had lost his speech and was not learning. After
his son started responding to an intensive, 40-hour-per-week ABA
program for autism, Smith aggressively sought after computer-based
learning programs for his child to learn at least some of what he
needed to know on his own time. Smith attempted to use other
computer learning tools, but found the products to be ineffective in
helping with his son’s behavioral and educational development. As a
result, he put his engineering and artificial intelligence
background to use and developed the DT Trainer and Activity Trainer,
two highly robust special needs software programs for children with
autism and other special needs. |
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I think my child may have an autism spectrum disorder (ASD). What do
I do? - Getting a diagnosis - if indeed a child has an
autism spectrum disorder (ASD) - as early as possible is
important because research shows that early intervention is the best
intervention. Yet, not all pediatricians recognize the early signs
of a possible ASD. Although diagnosis rates of
autism are up, this does not mean that all doctors or medical
professionals are aware of the different signs of autism in
different types of babies and toddlers. A diagnosis is made by
observing the behavioral characteristics in three areas :
communication, social interactions, and imaginative play or thought.
As there are no physical characteristics that are shared by those in
the spectrum, and there is a wide range of abilities and
disabilities - it is not always easy to identify. |
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Is There an Autism Epidemic?
- A couple of slap dash blog pieces appeared today both on the
same subject – the so called autism epidemic. First off is Harold
who writes
about a series of interviews with David Kirby. David says:
It’s crazy that in this debate, we’re still debating whether autism
numbers are actually going up or not, which is insanity to me. It’s
people desperately clinging to this belief that autism is genetic,
that it’s always been with us at this rate, that we’re just better
at counting it, better at diagnosing it. Harold claims David
has ‘hit the nail on the head’ with this quote. I disagree with
Harold and I disagree with David. Its far from insanity to examine a
perfectly valid hypothesis. More later. |
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Judge may be asked to help Bountiful murder suspect become competent
- For possibly the first time in Davis County, a judge may be asked
to order forced medication to restore a defendant to competency.
Jeremy Jacob Hauck, 21, is charged with the first-degree murder of
his mother, Laura Hauck, 51, on Aug. 4, 2006, in Bountiful. Hauck is
accused of shooting his mother twice, slitting her throat and then
putting her body in the freezer, where it was found Aug. 7, 2006.
"We will probably hold another hearing asking the court to force
medication," Deputy Davis County Attorney Steve Major said Thursday
after a review hearing in 2nd District Court. |
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Lack Of Facilities Poses Challenges For Autistic Adults -
The shortage includes everything from daycare to a permanent
residence for adults with autism. "For young kids, there are a lot
of treatments and interventions. For adults, it becomes limited,"
said UPMC's Dr. John McGonigle.
Jeanne Akbay told Wright that her son, who is 6 feet, 2 inches and
254 pounds, is becoming increasingly difficult for the single mother
with health problems to care for. |
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Pseudoscience in the Ascendency, or It's a Lousy Time to Be a Former
Debater - ...For example, the
Los Angeles Times' On
the Media column tells of
the aftermath of Amy Wallace's
article
debunking the idea that autism is caused by childhood vaccinations.
For stating what seems to be a common sense proposition, she endured
all manners of threats and name-calling. |
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Raising a Lost Boy - And Girl - from Neverland - I decided
to take a break from my business articles to speak closer to the
heart. You think about a boy that never grows up. I have one
of those. Indeed, I have a girl, as well. In truth, I have six
children. They are all fantastic. But my two youngest are very
unique and deal with autism. As a father, that's where the adventure
really begins. |
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Response to 'Looking in on the autistic brain' - The
Minnesota Daily’s article “Looking in on the autistic brain” barely
covers the issue of vaccines. It merely states that “With scientific
evidence lacking, many parents blame vaccines for their children’s
autism.” Parents may only see this line and turn to other studies.
It would be wise to assure the reader that there is no link. The
claim that vaccines and autism are linked has been thoroughly
refuted by many studies. These have been conducted by multiple
agencies including the FDA. |
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Restraint, Seclusion, and Kids with Autism - In recent
months, more attention has been paid in the media to abusive
practices in special education classrooms. Kids with autism are
especially vulnerable, since they are relatively likely to tantrum
or display aggressive behaviors, and relatively unlikely to
communicate with their parents about abusive treatment.
Disabilityscoop, a blog which reports on topics related to all
sorts of disabilities, urges parents to be alert and aware of their
rights: |
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Scientific Learning's Fast ForWord Software Approved by Australian
Government ... -
Scientific Learning Corp.
(NASDAQ:SCIL) today announced that the Australian Government’s
Department of Families, Housing, Community Services and Indigenous
Affairs has named the
Fast ForWord® family of products as an approved intervention for
children under age six who are diagnosed with Autism Spectrum
Disorders (ASDs). |
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School proves Asperger's syndrome doesn't have to be a life sentence
- Knowing when to laugh, knowing when someone looks angry or sad and
interpreting everyday non-verbal social cues is something that comes
naturally to most people. But to people with Asperger’s
syndrome, a form of autism, that all-important non-verbal
communication is a huge challenge and one that can cripple their
ability to work, pursue higher education, live independently and
have friends. “Often these young adults can be very bright,
but lack street smarts,” said Fred R. Volkmar, director of Yale
Child Study Center and one of the world’s leading experts on
Asperger’s syndrome and other autism spectrum disorders. Volkmar
said some with Asperger’s will do math equations in their head “just
for fun,” but “can’t walk into McDonald’s and order a cheeseburger.”
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Schizophrenia gene may reduce cancer risk - People who
inherit a specific form of a gene that puts them on a road to
schizophrenia may be protected against some forms of cancer, U.S.
researchers say. Researchers at The Feinstein Institute for Medical
Research in Manhasset, N.Y., led by Katherine Burdick, analyzed 21
single-nucleotide polymorphisms for 173 patients and 137 healthy
controls. The study, published in the American Journal of
Psychiatry, said the results add to growing evidence suggesting an
intriguing relationship between cancer-related genes and
schizophrenia susceptibility. |
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SOCIAL MUSIC GROUP CLASSES -
Social Music Group is an interactive class where music is used to
improve the social skills of people diagnosed with intellectual
disabilities. This program is targeted for citizens diagnosed with
intellectual disabilities such as autism, pervasive developmental
disorder, cerebral palsy, and developmental delays. This innovative
program is based on the principles of music therapy, the
evidenced-based use of music to improve a person's skills by a
trained professional. Music has been found to successfully teach a
variety of fundamental social skills because of its ability to
capture attention and motivate. These social skills include
cooperation, sharing, turn-taking, and verbalizing social greetings.
Singing, instrument playing, moving to music and song writing
activities are developed to engage individuals and promote
appropriate social behavior. Musical instruments and props are
adapted so that people with different physical abilities can all be
involved. In addition, members of the group interact with each other
and are a model for appropriate social behavior. Members become a
support for one another by giving encouragement to others in the
group. As a result, social skills are learned enhancing the quality
of life for those participating. |
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Temple Grandin premiers Feb. 6 - On Feb. 6 at 8 p.m., HBO
will premiere an original film based
on the inspirational, true story of Temple Grandin, starring Claire
Danes. Temple Grandin paints a picture of a young woman’s
perseverance and determination while struggling with the isolating
challenges of autism. Grandin became a successful doctor in
animal science through her unique connection to animals and is now a
world-renowned consultant in the field. She is widely recognized
within the animal welfare and livestock-handling industries as a
pioneer in the ethical treatment of animals. Grandin is the
best-selling author of “Thinking in Pictures,” “Animals in
Translation” and “Humane Livestock Handling.” |
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Temple Grandin to Speak at Special Preview of HBO Films' Temple
Grandin - HBO and Barnes & Noble will host a special event
on New York's Upper East Side on January 25, featuring a book
signing and discussion with Temple Grandin, best-selling author,
animal scientist and autism advocate. The event will take place at
1:00 PM at the Upper East Side Barnes & Noble in Manhattan (150 East
86th Street at Lexington Avenue). It will include a preview from HBO
Films' moving biopic Temple Grandin, which is premiering February 6
at 8PM (ET/PT) on HBO. |
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The Cost of Autism - In today’s Patient Money column,
Walecia Konrad focuses on the financial impact autism has on
families. She writes: Autism trends, treatments and therapies
routinely make headlines. Often overlooked, though, is the financial
burden for many families with autistic children.
Treatment is extremely expensive. Direct medical and nonmedical
costs can add up to as much as $72,000 a year for someone with an
extreme case of the disorder, and even $67,000 a year for those on
the lower end of the spectrum, according to a study from the Harvard
School of Public Health. |
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The Effectiveness of Special Diets in Autistic Disorders -
Painful digestive problems can trigger problem behavior in children
with autism, however an expert panel led by Dr. Timothy Buie of the
Harvard Medical School states that there is no evidence that these
digestive problems are more common in children with autism, or that
special diets work. The report is published in the January issue of
Pediatrics. |
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TIME Magazine on Epigenetics and Autism - Our community
rightly spends a good deal of time pointing out errors in media
stories about autism, but it’s so much more enjoyable to write about
mainstream articles which get the scientific issues involved in
autism right. The cover story in TIME magazine last week is
entitled “Why Your DNA Isn’t Your Destiny” (HERE)
by John Cloud. I was amazed at what a great job the writer did with
a very complicated subject. And yes, it touches on autism.
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Why Your DNA Isn't Your Destiny - You have had a
long-standing deal with biology: whatever choices you make during
your life might ruin your short-term memory or make you gain weight
t or could hasten death, but they won't change your
genes
— your actual DNA. The answer lies beyond both nature and
nurture. Bygren's data — along with those of many other scientists
working separately over the past 20 years — have given birth to a
new science called epigenetics. At its most basic, epigenetics is
the study of changes in gene activity that do not involve
alterations to the genetic code but still get passed down to at
least one successive generation. |
01-17-2010
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A new take on genius - Calling someone “a genius” is often
little more than subjective hyperbole, but when it comes to
the likes of Newton, Beethoven, or even Nobel Prize winners like
John Nash, most people would accept that there is also a major
element of objective truth in the claim. Clearly, some people
are
gifted to an extraordinary degree, and calling them geniuses
seems appropriate, however you define the term. Psychologists,
philosophers, and biographers have struggled to offer general
definitions, but until now no one has been able to include genius in
a model of
cognitive development that also embraces normality and
pathology. But however that may be, genius emerges naturally from
and resolves a major paradox in the imprinted
brain theory. You could call Peek a genius, and he certainly was in
certain respects, but savant seems the most accurate term,
implying as it does outstanding knowledge in limited areas, rather
than the broader originality and all-encompassing
creativity that we associate with the true genius of Newton and
Beethoven. In a previous post I have pointed out that, if there are
autistic savants, then the symmetry of the diametric model predicts
that there should also be psychotic savants with the exact opposite
configuration of skills (that is, outstanding mentalism with
mechanistic deficits), the twentieth-century paradigm being
Freud. |
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A New Twist on No Child Left Behind - While debate
continues on the pro’s and con’s of the well
publicized “No child left behind Act”, a small, privately funded
Center for Children has maintained a quiet, unwritten policy that no
child will ever be left behind or turned away because of a family’s
inability to afford tuition. For the past five years the Neuro-Linguistic
Learning Center in El Dorado Hills has been helping children, teens
and adults overcome the effects of ADHD, Autism and other learning
disabilities. While the profound successes of their students have
been well documented, their quiet policy of never turning a child
away solely for financial reasons has remained an important part of
their commitment to the Sacramento Community and to the children and
families they serve. “Says Gerald Hughes, Director of the NLC, “As
the parent of several children who previously struggled with
learning challenges, I feel I have a profound appreciation for the
importance of the work we do. If a family is committed to getting
help or their child, we will do everything we can to assist
them--regardless of their financial situation.” |
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Another chance for the "UFO hacker" - The decision of the
British Ministry of the Interior to "UFO hacker" pass into the hands
of U.S. authorities, will again be reviewed by the court. The
London tribunal, the High Court accepted the application submitted
in this case by Gary McKinnon and his defenders. 43-year-old, who
threatened extradition, so received another chance and some time -
to be heard by the High Court. According to the media coverage it is
expected in April or May this year. A British citizen has the answer
by the U.S. court for breaking into U.S. government computer
systems. |
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Are children with ASDs more likely to have GI problems? -
In 1998 Andrew Wakefield suggested that the measles, mumps, and
rubella (MMR) vaccine produced enterocolitis, injuring the
gastrointestinal lining of children who would subsequently develop
autism. One clear implication of this suggestion was that
children with autism should have more gastrointestinal problems than
children who are typically developing. A recent study strongly
suggests that this is not true. Medical researchers from the Mayo
Clinic have shown that children with autism are no more likely to
have diarrhea, vomiting, gastroesophageal reflux, or
abdominal discomfort than their typically developing peers (Ibrahim
et al., 2009). This finding supports earlier research conducted by
Black, Kaye, and Jick (2002) who found that children with autism
were no more likely to have signs of irritable bowel disorder than
their typically developing peers. |
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Autism Speaks again calls upon the federal government - As
the Journal of the American
Medical Association (JAMA) reports on the actual decline
in U.S. biomedical research funding, Autism Speaks, the nation's
largest autism science and advocacy organization, again called on
the federal government to immediately step up its efforts – and
dramatically increase research funding – to address the growing
national autism public health crisis. The American Medical
Association report, U.S. Funding Biomedical Research, 2003-2008,
reprinted in JAMA, January 13, 2010 finds that overall funding for
biomedical research in 2008 decreased, when adjusted for inflation.
Nowhere is the need for increased research funding more evident than
for those individuals and families whose lives are impacted by
autism. According to the AMA, during the period of 2003-2007,
nation-wide biomedical research funding across the full spectrum of
healthcare needs and diseases, increased 14%, with a
compounded annual growth of 3.4%. In 2007, the highest year of
funding, the US spent approximately 4.5% of its health care
expenditures on funding biomedical research and approximately 0.1%
of the expenditures on health services research with industry
providing the majority of funding (58%), and the government
contributing only one-third of funding (33%). |
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Baby boy takes part in autism study - A baby boy has taken
part in a brain study to help psychologists understand how autism
develops. Four-month-old Matai Reid was monitored by scientists at
Durham University to see how he responded to different moving images
on a television screen. Matai, from Durham, was fitted with a cap
with sensors attached so his brain activity could be recorded. Dr
Vincent Reid, a psychologist at Durham University, said: "We don't
yet know enough about how the brains of very young babies develop
and how they react to things. "It is vital we know more so we can
identify problems and developmental delays much earlier which could
lead to earlier diagnosis of conditions such as autism."
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Blue Brain Project can save the planet - What could become
the world's first fully conscious,
artificial human brain is taking shape in a supercomputer at a Swiss
university - thanks to a pioneering scientist from Kuruman in the
Kalahari. South African Henry Markram has gone from a
childhood in the red dust of the Northern Cape to fame as one of the
foremost neuroscientists in Europe. Now he is leading a
multimillion-dollar race to be the first to build a computer model
of the brain that would revolutionise the treatment of diseases from
autism and Alzheimer's to psychosis and schizophrenia.
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Call to reconsider McKinnon move - Home Secretary Alan Johnson
has been urged to "see the writing on the wall" after computer
hacker Gary McKinnon was granted a judicial review. A High Court
judge is now set to rule on whether Mr Johnson was wrong to allow
the hacker's extradition to the US. Tory David Burrowes (Enfield
Southgate), Mr McKinnon's MP, called for a Government statement on
the decision, saying: "Surely the Home Secretary should see the
writing on the wall of the court's decision - that he was wrong to
ignore the compelling medical evidence and wrong to allow his
extradition given his perilous mental state." Commons Leader Harriet
Harman replied: "I think the situation is that this is now going
forward for judicial review." The exchange took place in the Commons
during questions on upcoming parliamentary business. Mr McKinnon's
lawyer Karen Todner said she was "delighted" there would be a
judicial review of Mr Johnson's decision. A hearing is likely to
take place in April or May. |
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Compulsive Hoarders -
Piles of newspapers stacked in the living room, leaving only a
narrow path to the kitchen. Dozens of cats living in filthy
conditions in a tiny house. Debris spilling out into the yard,
prompting complaints from neighbors. All of these are signs of
compulsive hoarding. Although the
Diagnostic and Statistical Manual of Mental Disorders, Fourth
Edition (DSM-IV) does not list compulsive hoarding as a
disorder, as we've reported in the past, this type of behavior
traditionally has been viewed as a subtype of
obsessive
obsessive-compulsive disorder (OCD). About 25 percent to 30 percent
of patients with OCD—or 0.4 percent of the U.S. population—develop
hoarding behaviors. |
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'Crowd Pleaser -- Autism: The Effect on the Parent': Single Mom
Finds Challenges, Joys in Raising Autistic Son - Faith
Parker initially thought her son, Hunter, was deaf, because, by the
age of 2, he'd not uttered a peep, and failed to respond to her when
she tried to get his attention - instead covering his ears,
screaming. Her dearest friend and confidant, Frank, advised her to
seek professional help. During the summer, Faith painstakingly meets
professionals to collect documentation for Hunter's diagnosis. Fired
from her administrative position for being chronically late and
under-performing, Faith haphazardly finds temporary employment as a
carpenter's assistant, a dog walker, and even the title of landlord.
The evaluation from professionals concludes that Hunter is in the
autistic spectrum. In this dramatic novel of devotion, love and
determination, "Crowd Pleaser -- Autism: The Effect on the Parent"
(published by Trafford Publishing), Veronica Gillotti pens a tender
story of the challenges faced by a single mother who meets the world
of autism spectrum through the eyes of her young boy. Overwhelmed by
the diagnosis, angered by the dog walker, and distressed by her
roommate, Faith searches for Hunter's biological father.
Unfortunately, he is in a supervised time-out. Frank and Faith work
with Hunter on his education and therapy and delight in his progress
learning words and basking in being the center of everyone's
attention in this fun-to-read glimpse into one woman's challenges -
and rewards. |
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Families Sue After Provider Discontinues Autism Therapy -
A group of families is filing a class action lawsuit after a
state-funded services provider in Los Angeles stopped offering an
autism therapy some consider experimental. The Eastern Los Angeles
Regional Center, which provides state-funded autism therapy for
children residing in specific Los Angeles neighborhoods, stopped
offering a therapy known as “DIR” or Developmental, Individual
Difference, Relationship-based treatment last year. The change came
after a California law went into effect last summer barring
state-funded centers from using “experimental treatments.” DIR is
the basis for a technique called Floortime, whereby therapists
follow the child’s lead to encourage socialization through play.
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FDA says it's unable to regulate BPA - U.S. Food and Drug
Administration officials say they are powerless to regulate BPA,
although they have declared the chemical to be a safety concern for
fetuses, babies and young children. A quirk in the rules
allows BPA makers to skirt federal regulation. "We may have to go
after legislation to change it," Joshua Sharfstein, the FDA's
principal deputy director, told the Journal Sentinel. The newspaper
has been investigating the government's lack of regulation regarding
BPA for three years. |
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For a Child with Autism, How Much Help Is Too Much Help? -
I've noticed that when you offer a person constant help and support,
even when he doesn't need it, he will stand back and let you do all
the work. It's just human nature: why work hard when someone else
will do it for you? Of course, kids with autism need more help and
support than the average child - sometimes a LOT more help. But how
do you know when it's time to stand back and let your child (or a
child you're teaching or supporting) stand on his own two legs?
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Forum helps others understand Asperger's -As a child,
Stephen Shore was diagnosed with "atypical development with strong
autistic tendencies." As a kindergartner, he was messy, quiet,
bullied, and a self-described "social and academic disaster."
On Tuesday, this man, who now holds a doctorate in education from
Boston University, drew a crowd of about 80 educators, social
services workers and medical professionals from across the region to
a conference at Cranwell Resort & Spa in Lenox. The
presentation, "Understanding Asperger's Syndrome and Self-Advocacy
and Self-Disclosure," was sponsored by local businesses to benefit
the Student Educational Development Fund. The fund provides
financial aid to the College Internship Program, a Lee-based
national organization designed to support post-secondary students
who are autistic, dyslexic or have other learning differences.
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Give Them What They Need - Like most boys his age,
10-year-old Gabriel likes to ride scooters and tricycles, play
catch, roll things back and forth, even play on his parents'
treadmill. Unlike most children his age, though, he has severe
autism, which has an affect on his verbal skills and his social and
peer interaction. Like most children his age, he simply likes to
play—and more often than not, toys are part of that play.
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Imaging May Help Identify a Biomarker of Autism Study finds autistic
children have delayed responses to auditory frequencies -
Autistic children have right-hemisphere delays in their response to
a range of auditory frequencies, suggesting abnormal maturation of
the auditory system, according to a study published online Jan. 8 in
Autism Research. Timothy P.L. Roberts, Ph.D., from the
Children's Hospital of Philadelphia, and colleagues used
whole-cortex magnetoencephalography to compare the frequency
dependence of superior temporal gyrus 50 msec (M50) and 100 msec
(M100) neuromagnetic auditory evoked field responses in 17
typically-developing children and 25 children with autism spectrum
disorders. |
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McKinnon: The longest ever game of pass the parcel -
Pentagon hacker Gary McKinnon has won breathing space in his
long-running fight against extradition, with news on Wednesday that
judges have granted a further judicial review. This time it is to
consider whether the Home Secretary was right to disregard medical
evidence that he might harm himself or even commit suicide if
extradited to the US. McKinnon's lengthy battle looked to be
entering the endgame when Home Secretary Alan Johnson rejected
psychiatric advice on McKinnon's mental state in allowing
extradition proceedings against the UFO conspiracy theorist to
proceed back in November. The move restarted the clock on
extradition proceedings, sparking fears from the 43-year-old's
family that he might be hauled off to face US trial and likely
imprisonment, possibly even before Christmas. |
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Mining chemical or autism treatment? - An industrial
chemical developed to help separate heavy metals from polluted soil
and mining drainage is being sold as a dietary supplement by a
luminary in the world of alternative autism treatments. Called
OSR#1, the supplement is described on its Web site as an antioxidant
not meant to treat any disease. But the site lists pharmacies and
doctors who sell it to parents of children with autism, and the
compound has been promoted to parents on popular autism Web sites.
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More evidence that autism is a brain 'connectivity' disorder
- New research has added to a
growing body of evidence that autism is a brain ‘connectivity’
disorder. Senior investigator Mustafa Sahin, MD, PhD, of
Children’s Department of Neurology, Boston, and colleagues added to
the findings suggesting rare disorder
tuberous sclerosis complex (TSC),
commonly associated with autism, is linked to defects in axon
guidance. The team gave evidence that mutations in one of the
TSC’s causative genes, known as TSC2, prevent growing nerve fibers
(axons) from finding their proper destinations in the developing
brain. Sahin said: “People have started to look at autism as a
developmental disconnection syndrome – there are either too many
connections or too few connections between different
parts of the brain.
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More than therapy - The examples that Fido is man’s best
friend seem endless. There’s Timmy and Lassie, for example, Snoopy
and Charlie Brown, Turner and Hooch. But the bond between
Shakespeare Aristotle — a dachsund-spaniel mix — and 55-year-old
CarolAnn Edscorn of Jaffrey is even deeper. Edscorn grew up without
friends, didn’t read until she was in the 4th grade and didn’t speak
until she was four. In 1994, she was diagnosed with Asperger
Syndrome after her husband read an article about Temple Grandin, an
animal scientist who has autism. Asperger Syndrome is one of several
disorders on the autism spectrum, which also includes classic
autism, Rett syndrome, childhood disintegrative disorder and cases
of “not otherwise specified” pervasive developmental disorders,
according to the National Institutes of Health. |
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Moving day - Equipped
with colorful scarves and a live pianist, students of the special
needs movement class at
the Children’s Dance Foundation gather weekly to tap into their
creativity and self-expression. Whether they’re "freezing" on the
spot in their chosen shape or moving through space, the students
make movement decisions using their own form of creative expression.
Socializing, working in groups and following directions are some of
the skills reiterated in the class. Plus, they just get to be kids.
"He (Parker) is able to be with his peers and be just as successful
as everyone else," Sharon Slay said of her son. Parker has
Asperger’s syndrome, a high-functioning autism, and has attended the
class since June. Parker responds to the music, Slay said. "It calms
him." She even catches him humming the music from class throughout
the week. Often, the children like the rhythm and predictability of
music, teacher Blakely Cottle said. "They can move and have a good
time with it as well." |
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MUM'S MMR JAB VICTORY - A FAMILY has made legal history
after they were awarded government cash to fight for compensation
for their son who it is claimed developed serious brain damage
after the triple MMR jab. The case is expected to open the
doors for hundreds of other parents. Mother-of-three Jackie
Fletcher, 52, has fought for 17 years over her son Robert’s injuries
that developed after a measles, mumps and rubella injection. Until
now it has been virtually impossible to succeed with claims because
parents could not afford legal support. |
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NJ signs autism bill into law - Autistic adults and
children will be protected from discrimination because a bill
championed by Senate Republican Leader Tom Kean of Westfield was
signed into law today. The bill amends the state’s law against
discrimination so that autism disorders are recognized causes of
disabilities. “Autistic residents will now receive the same
protections as other disabled citizens from discrimination in access
to housing, employment and public accommodations such as theaters,
stores and restaurants,” Senator Kean said. |
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Olmsted on Autism: I Know, Michael, Footnotes are No Fun.
- I’ve written a couple of times about Michael Specter’s book,
“Denialism – How Irrational Thinking Hinders Scientific Progress,
Harms the Planet, and Threatens Our Lives.” One chapter makes short
work of people like us, nutcases who simply refuse to bow to
established scientific wisdom that all questions about a link
between vaccines and autism have been “asked and answered.” You’ll
probably recognize that as a Paul-Offitism, both pithy and
profoundly wrong, and one of my points about Specter’s book is that
– inadvertently, I’m sure – he copied a large text block straight
out of Offit’s attack on the Vaccine Court decision in the Poling
Case. |
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Parallel Play: Growing Up with Undiagnosed Asperger's /
New Book -
Tim Page, who splits his time between Los Angeles and Baltimore,
won a Pulitzer Prize in 1997. The Pulitzer board called his work as
classical music critic of the Washington Post “lucid and
illuminating.” Three years later, at age 45, Tim Page was diagnosed
with Asperger’s syndrome, a mild form of autism. He’s written a
personal chronicle of his early life and called it:
Parallel Play: Growing Up with Undiagnosed Asperger’s.
He talks to Sheilah about growing up and finally being diagnosed.
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Play depicts life of autistic 13-year-old boy - The lights
go up and Jacob Huskey, 15, is kneeling
alone
on the stage, meticulously arranging green plastic toy soldiers into
neat rows. He refuses to move until all the soldiers are in their
proper place. Jacob portrays Stephen, a 13-year-old with autism, in
“Window Pains,” presented by the group
Performing Arts in Children’s
Education. The purpose of the play is to spread autism
awareness, said director Angela Howard. Local playwright Hartley
Wright wrote the script. Howard approached the
MU Thompson Center for
Autism and Neurodevelopmental Disorders and asked if anyone
would be willing to read through and correct the script so it would
be an accurate portrayal of autism. Associate Director Stephen Kanne
agreed to help. |
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Robert K. Holliday: A granddad's observations on autism -
Autism is a neurological disorder usually identifiable during the
first three years of life by deficits and abnormalities in
communications and social development. This complex disability
occurs an unbelievable one out of every 110 births nationally and is
four times more frequent in boys than girls. The strict form may
include severe self-injurious, highly unusual and destructive
behavior. Special education programs using behavioral methods have
proven to be the most accommodating treatment. |
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Scientists crack brain's codes for noun meanings - As one
slice of the observed brain image from
a
human participant (left) and the theory (right) shows, the theory
makes precise predictions, particularly about the twoshelter-related
coding areas in this slice (circled), where brighter red indicates
more activation. Credit: CarnegieMellon University Two hundred years
ago, archaeologists used the Rosetta Stone to understand the ancient
Egyptian scrolls. Now, a team of Carnegie Mellon University
scientists has discovered the beginnings of a neural Rosetta Stone.
By combining brain imaging and machine learning techniques,
neuroscientists Marcel Just and Vladimir Cherkassky and computer
scientists Tom Mitchell and Sandesh Aryal determined how the brain
arranges noun representations. Understanding how the brain codes
nouns is important for treating psychiatric and neurological
illnesses. |
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Special Needs Student Allegedly Abused - Marshall County
teacher Pamela Williams has been charged with two counts of battery
after she allegedly physically abused a special needs child at
Sherrard Jr. High School. If convicted, Williams could spend a
year behind bars. Williams, a Cameron resident, appeared Thursday in
Marshall County Magistrate Court for a pretrial hearing on two
counts of battery. The charges stem from an alleged altercation on
Oct. 8 at Sherrard Jr. High School that reportedly involved Williams
and an 11-year-old boy who suffers from autism, Down syndrome and
other developmental disorders. Williams, who was 57 years old at the
time of alleged battery, pleaded innocent to the charges.
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Studies of Internal Brain Connections Point to Cause of Autism
- The underlying physiological
causes of autism continue to remain a mystery, but new research is
helping to narrow down the field. Scientists at Children's Hospital
Boston have been studying the brains of humans and mice with
tuberous sclerosis complex, a rare disorder related to autism, and
have discovered that during axon formation the nerve fibers seem to
have difficulty in finding correct connection points to link to in
the brain. |
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Teenager gets probation for setting fire to local business
- A defence lawyer representing a psychologically troubled youth who
helped to cause a fire that razed a Keswick manufacturing business
told a court his client needs help, not punishment. Judge Julian
Dickson sentenced the 14-year-old Douglas boy Thursday to 24 months
of probation on a Sept. 11 charge of arson. The teen - who can't be
identified as per the provisions of the Youth Criminal Justice Act -
previously pleaded guilty for his role in setting a fire that
destroyed Oak Ridge Manufacturing Inc., a cabinet and countertop
manufacturer. |
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The Hunt for an Autism Drug - The Weakley family lives in
Dover, Pa., about 30 miles south of Harrisburg. Their two-story
house sits on a mostly treeless tract of land, across the road from
a big white barn. Seated at the dining table, Beverly Morgart-Weakley
is describing the recent changes she's seen in her 21-year-old
daughter Jennifer. Once unable to form words, "she keeps saying
'mama', and she's starting to say the beginnings of other words.
You'll hear something that almost sounds like a sentence and you can
figure out what she's trying to tell you." |
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The Tech-Aid Institute Releases HIV/AIDS Prevention Software for
Women with Intellectual Disabilities - The Tech-Aid Institute,
the award-winning software group gaining national recognition for
its unprecedented work, has released another interactive CD-ROM for
people with intellectual disabilities: Live Safe(TM): Preventing
HIV/AIDS for Women with Intellectual Disabilities. With AIDS being
the fifth leading cause of death among people aged 25 - 44 in the
United States, this interactive computer program helps women with
intellectual and learning disabilities, autism, and down syndrome
understand the potentially life threatening dangers of HIV & AIDS as
it reveals the facts and myths about how HIV is transmitted.
Intended for mature viewers because of its frank sexual
discussions, users are also taught the importance of HIV testing,
risks associated with unprotected sex and prevention strategies that
include abstinence. The program also demonstrates proper use and
storage of condoms, and includes a guide with teaching points so
users, parents, and care-givers can follow the program content.
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There's a path to success for people with autism - Thank
you for sharing John Horton's wonderful Heroes 2009 article (Jan. 4)
featuring Patricia Cole, a 24-year-old with Asperger's Syndrome, a
condition under the umbrella of autism spectrum disorders. Cole
shines when working with children, particularly those with
developmental disorders. The article highlights how volunteering
benefits everyone involved: the agency, its clients and the
volunteer. An individual's strengths and interest areas are
strong indicators of a potential employment path. Fostering those
strengths through volunteer and employment opportunities should be
the focus of the transition years for students with disabilities.
Transition planning for life beyond school is required for students
on individual education plans beginning at 14. Parents may be
unaware that their children may be eligible for services from their
public school through 22. They should talk with their child's IEP
team about eligibility. |
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Turning ideas into law - Hello again, everybody! It is two
weeks from the start of the 2010 session of the Oklahoma
Legislature, but we already passed one of the session’s toughest
deadlines. All bills had to be introduced by last Thursday. It
was the culmination of months of work beginning with lawmakers
visiting constituents to learn what issues the people would like to
see addressed. After listening to the people, research begins to
turn ideas into law. If lawmakers agree with an idea and the subject
is one on which the Legislature can have an impact, work begins to
put that idea on paper. |
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Why Would a Principal Call the Police to Arrest a Special Needs 11
Year Old? - Why would an
elementary school Principal call the police to intervene in the case
of a special needs 11 year old boy who was having behavior problems
in school? Why would the police then charge the boy with second
degree battery? (See the arrest report,
HERE.)
Reading, writing and arresting? I have been in contact with
the grandmother of Zakhery Price, of Fort Smith Arkansas. She
explains that Zakhery has a host of diagnoses and that schooling him
has been fraught with difficulty for some time. She, his mother and
step-father are trying to ensure that the child receives a proper
education. We, as parents of children on the spectrum, know all too
well that sometimes families and schools are at loggerheads.
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01-09-2009
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A Mom's Wish for Inclusion and Understanding - My wish for
the New Year: I never have been a
person to write Christmas letters telling what my family did this
year. I have decided, however, to ask that you help me make my New
Years Wish for 2010 come true. You see, it will take many people
changing their mindset for this to happen. There are many
theories about Autism-what causes it, how it is viewed, how best to
treat it, and so on. No one, including myself, has these answers.
What I know for sure, though, is that Autism is a disability, and a
disability, and having a disability makes you different form the
rest of society. I have found, when looking back over my life, that
I have learned the most from the people who were the least like me.
So far, the people who top that list are the people I know with
disabilities. They, as well as their parents, are faced with
fighting for things that the rest of society takes for granted.
Attending their home school right down the street, receiving a free
and appropriate education-these are things that are not taken for
granted and are not a given. |
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Age of Autism Comment of the Week: 1/9/10 - Dr. Caroline
Traa is our winner for her comment on the post, Polly
Tommey on Dr. Wakefield in Autism File Magazine: "Fantastic
piece Polly! Your courage, integrity and truthfulness say what so
many people want to have heard.... Yesterday I had to clear out my
daughters bowel. I do this almost every month. Why? Because it
doesn't work properly. It works a whole lot better now than it used
to, thanks to Andy Wakefield and his courageous colleagues at the
Royal Free before they were silenced..... We are the 'lucky' ones!
To get a diagnosis of bowel disease we had to come to the States
from Scotland, thank you Arthur Krigsman.... She is 12 years old and
at 3 am I was changing nappies, dealing with diarrhoea sprayed all
over her bedroom carpet, and lying awake all night beside her. For
those of you that believe bowel disease doesn't exist, come spend a
weekend in my home. Our family owe a debt of gratitude to Andy and
all the other Autism parents, practitioners, advocates, too many to
mention. We won't shut up because it all happens to be true and we
really don't want another generation of children, and their
families, to suffer like ours have. Truth can never be silenced.
Fight on.... All Our Love Caroline, Harry, Rebecca & Cameron Traa
Scotland xx." |
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College-educated parents likely to have autistic kids -
Washington, Jan 9 : Highly educated parents are more likely to have
autistic kids, finds a new study. While analysing data on about 2.5
million births in California in a five-year period, researchers
identified 10 autism clusters, or geographical areas in which there
was a higher than usual incidence of children diagnosed with the
neurodevelopmental disability that's marked by impaired social and
communication skills, and repetitive behaviors. |
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Father running two marathons in two days to battle autism
- When Sam Felsenfeld runs in the BankTrust First Light Marathon
Sunday, it will be his third marathon this year. As incredible
as it seems, it's even more incredible when you consider he plans on
doing 60 marathons this year to raise funds for Train 4 Autism
through a charity he created -- Operation Jack -- named for his
6-year-old son, Jack, who was diagnosed with severe autism at age 3.
|
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Independent Minds: Temple Grandin = Unable to speak until
age four and diagnosed with autism in the 1950s, Temple Grandin went
on to defy expectations, becoming a renowned author, activist and
expert in humane livestock design. Join host David D'Arcy on a
journey into the mind of this self-described 'anthropologist on
Mars.' Examine the world from a perspective that was once thought
impossible. |
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'Mom or dad cannot fix this' - Connor Coulter is curious,
fearless and energetic. One minute he's chatting, the next
he's running in 10 different directions. About a year ago, the
six-year-old was diagnosed with autism, a brain development disorder
characterized by impaired social interaction and communication, and
by restricted and repetitive behaviour. For Connor's parents,
Perry and Kim Coulter, of Richards Landing near Sault Ste. Marie,
Ont., the diagnosis began a roller-coaster of emotions. At
first we were told there is no rhyme or reason why Connor, and not
Faith (his twin sister), has autism, nor why autism strikes four
times more boys than girls," Kim said. Autism in a twin is
unusual." |
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Monthly Sensory Friendly Films made for kids with autism -
I had every intention of heading to a
Sensory Friendly Film screening of “Alvin and the Chipmunks: The
Squeakquel” this morning, but woke up feeling crummy and like
hanging out in a movie theater could end badly for me and all the
kids there. The good news is that my colleague, Jill Vejnoska, wrote
last year about these screenings. I couldn’t find the story on
AJC.com, so it’s republished below. The screenings were designed for
families with children who have autism. The lights stay up a bit,
the sound is turned down and the ads are cut out. More importantly,
nobody is annoyed or unkind if a kid starts to sing or walk around.
|
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New Tool For Diagnosing Autism - New research shows a
brain imaging technique may help doctors diagnose kids with autism.
Doctors at the Children's Hospital Of Philadelphia had more than
forty kids undergo this scan called magnetoencephalography or "meg"
for short. It's non-invasive and can detect the magnetic field
associated with brain activity. Researchers found kids with autism
had an average delay of eleven milliseconds in their brain responses
to sound.
They think spotting this delay could become a standard for
diagnosing autism. The findings appear in the journal "Autism
Research." The researchers believe the delay suggests autistic
childrens hearing may be slower to develop and mature compared to
others. |
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Scientists Learn Why Fido Circles the Bowl - Ever wonder
why your Doberman circles five times
before sitting down or eating? So did the researchers at Tufts and
UMass. Obsessive compulsive disorder is characterized by time
consuming, repetitive behaviors, and it affects about 2 percent of
humans. You may not even be aware that your dogs actions could be
governed by a similar disorder, the equally distressing canine
equivalent "canine compulsive disorder," or CCD. The
corollary: You also may not care about the disease, which target
certain dog breeds, especially Dobermans and Bull Terriers. But
scientists at the Tufts and the University of Massachusetts were
willing to spend a whopping $70,000 of their universities' general
funds to learn more about the bothersome plague that's sweeping
through our nation's pets -- well, 2 to 5 percent of our pets.
|
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Unusually High Autism Rates in Some Areas Not Tied to Environmental
Causes - Researchers have found clusters of autism in 10
areas around California -- but with no suggestion of a link to local
pollution or other environmental exposures, they said.
Researchers have found clusters of autism in 10 areas around
California -- but with no suggestion of a link to local pollution or
other environmental exposures, they said. |
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What's ahead in health? Longer lives, focus on obesity. -
You might call Dr. Axel Meisen a fortune teller. As the chairman of
foresight with the Alberta Research Council, he has the task of
predicting issues of importance to the province 20 to 30 years down
the road. And when it comes to medicine, Meisen sees changes ahead.
Here he lists the 10 health trends we're most likely to see by the
end of 2019. "This all sounds really magical and (like) far-out
medicine," Meisen says, "but I think it's coming and is within
reach." |
01-08-2010
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Another study finds no MMR-autism link - A new study
provides further evidence that the measles-mumps-rubella vaccine is
not associated with an increased risk of autism.
Concerns that the MMR shot could cause autism were first raised a
decade ago by British physician Andrew Wakefield, who, based on a
study of 12 children, proposed that there was a link between the
vaccine and bowel disease and autism. |
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Apple of knowledge - Teachers and administrators from districts
near and far can come to a local
district to see how technology can create a modern learning
environment for students of all abilities.
Kaitlynne Knapp, a senior at Dana L. West High School in Port Byron,
works on a project during a Photoshop class Monday afternoon. Port
Byron Central School District was recently designated as an Apple
Exemplary Program for its use of Apple Inc. computer products in its
schools. Apple Inc. chose the Port Byron Central School District as
an Apple Exemplary Program for the 2009-2010 school year. This means
the district will need to have its doors open to representatives
from other districts interested in seeing Apple products used in the
classroom setting. This recognition is reserved for school districts
that have used Apple products to “illustrate 'best practice'
qualities of a 21st century learning environment,” according to a
letter to Superintendent Neil O'Brien from John Couch, vice
president of education at Apple. |
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Book Review: Skating Forward by Joanne Vassallo Jamrosz -
Skating Forward is not only a
delightful book to read; it is also uplifting and inspirational as
well. Author Joanne Vassallo Jamrosz has collected tales from 16
amazing young women who used their electrifying feats on ice to
overcome great physical and psychological setbacks. Their courage to
persevere through personal tragedies will inspire readers to do
likewise. There is 16-year-old Molly who knows her father has
Muscular Dystrophy. Molly has a 50/50 chance of developing this
disorder in late adolescence and adulthood. MD results in a
degeneration of the muscles in the lower arms and legs, and the
muscles of the neck and diaphragm. After visits to orthopedists and
podiatrists resulting in months of frustration, Amanda White finally
receives a diagnosis for the crippling pains in her wrists, knees,
and feet. She must battle rheumatoid arthritis. |
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Brain Imaging Technique May Help Diagnose Autism -
Researchers at The Children’s Hospital of Philadelphia report that a
brain imaging technique may help in the diagnosis of autism. The
reason this is possible is that children with autism spectrum
disorders (ASDs) process language and sound a fraction of a second
slower than children who do not have autism, and
magnetoencephalography (MEG) allows clinicians to detect this
difference. There has been a flurry of news recently about autism
spectrum disorders, and among the reports are those indicating that
the neurodevelopmental disorders are more common than originally
thought. A study published in the November 2009 issue of Pediatrics,
for example, notes that among children ages 3 to 17, slightly more
than 1 percent have autism or a related disorder, which is
significantly more than the one in 150 statistic that experts have
been using since 2003. More recently, researchers found a cluster of
higher autism prevalence in California that has yet to be explained.
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Brain Scan Could Allow Autism Diagnosis In Infancy - Brain
scans detecting a sound processing delay common in children with
autism could lead to earlier diagnosis of the developmental
disorder, researchers said Friday. In a study of children with and
without autism, researchers monitored brain activity while the
children listened to various sounds. They found that it took
children with autism an average of 11 milliseconds longer for their
brains to respond, researchers report online Friday in the journal
Autism Research. “This delayed response suggests that the auditory
system may be slower to develop and mature in children with ASDs,”
said study leader Timothy Roberts of Children’s Hospital of
Philadelphia. “An 11-millisecond delay is brief, but it means, for
instance, that a child with ASD, on hearing the word ‘elephant’ is
still processing the ‘el’ sound while other children have moved on.”
The finding is significant because it could lead to a single,
measurable tool for diagnosing autism as early as infancy,
researchers say. Currently autism is diagnosed using clinical
observation and the disorder can take years to manifest. If
diagnosed at younger ages, experts say treatment could be more
effective. |
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Brain Imaging May Help Diagnose Autism - Researchers at
The Children's Hospital of Philadelphia report their findings in an
online article in the journal Autism Research, published January 8.
"More work needs to be done before this can become a standard tool,
but this pattern of delayed brain response may be refined into the
first imaging biomarker for autism," said study leader Timothy P.L.
Roberts, Ph.D., vice chair of Radiology Research at Children's
Hospital. ASDs are a group of childhood neurodevelopmental disorders
that cause impairments in verbal communication, social interaction
and behavior. ASDs are currently estimated to affect as many as one
percent of U.S. children, according to a recent CDC report.
|
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Clinic uses stem cells to relieve joint pain - There seems
to be no end to projected stem-cell therapies today, with reports of
cures for conditions ranging from diabetes and autism to heart and
Alzheimer's disease. But for common orthopedic conditions the
leap from study to practice has arrived. "It's a valid medical
procedure right now," said Dr. Christopher J. Centeno, medical
director of the Centeno-Schultz Integrative Pain Management Clinic,
403 Summit Blvd. in Broomfield. Though, "We still accept some
patients to research various methods - something you may want to
tweak this way or that way." |
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Defining "Real" Autism - Throughout the time that I've
been the About.com Guide to Autism, this question has arisen again
and again: what is "real" autism? There are, of course, many ways to
answer the question. There are historic answers, philosophical
answers, pragmatic answers. Often, people disagree vehemently on the
definition of "real" autism, leading to major splits within an
already disparate community. To get an answer to the question "what
is real autism," I went to a top autism diagnostician, Dr. Susan
Levy. Dr. Levy is Director of the Regional Autism Center, Childrens
Hospital of Philadelphia, and a prolific researcher, writer and
speaker. |
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First responders to learn more about people with autism -
Work is quickly proceeding on a plan to better train first
responders so they have the knowledge they need when they come into
contact with someone with autism. “We have a three-prong strategy
that we’re pursuing now with the municipality and a committee I sit
on provincially,” Michelle Gardiner, executive director of the
Autism Society of Cape Breton, said Thursday, after a meeting with
Chief Myles Burke of Cape Breton Regional Police. The move comes in
the wake of the recent death of James Delorey. Search and rescue
teams spent two days in early December searching the woods in South
Bar for the seven-year-old, who had autism and could not speak. He
was found huddled in the fetal position in brush about one kilometre
from home on Dec. 7, but he died of hypothermia several hours later
at the IWK Health Centre in Halifax. |
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Lawsuits Allege Antipsychotic Medications Caused Noticeable Breast
Growth in Men - According to 10 lawsuits recently filed in
the Philadelphia Court of Common Pleas, boys and young men who took
the antipsychotic drugs
Risperdal and Invega suffered from serious side effects
including rapid weight gain and the
growth of large breasts up to a size 38D. The attorney,
Mr. Stephen Sheller, who filed the suits stated that he plans to
file at least 20 to 30 similar cases in Philadelphia in the next two
months against Janssen, a division of the Ortho-McNeil-Janssen
pharmaceutical company, which is also affiliated with Johnson &
Johnson. Sheller also alleges that doctors may not have taken some
of his clients seriously when they complained of their breast growth
because of simultaneous weight gain. |
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Lawsuits Target Makers Of Risperdal, Invega Over Extreme Side
Effects - The makers of antipsychotic drugs Risperdal and
Invega are facing a series of lawsuits after boys taking the drugs
grew breasts as large as ‘D’ cups. The patients who were prescribed
the antipsychotics for conditions ranging from attention deficit
disorder to Tourette syndrome and disruptive behavior, experienced
quick weight gain and breast growth to the tune of a size 38D, in
some cases, the lawsuits say. |
 |
'Mom or dad cannot fix this' - Connor Coulter is curious,
fearless and energetic. One minute he's chatting, the next he's
running in 10 different directions. About one year ago, the
six-year-old was diagnosed with autism, a brain development disorder
characterized by impaired social interaction and communication, and
by restricted and repetitive behaviour. For Connor's parents, Perry
and Kim Coulter, of Richards Landing, the diagnoses began a
roller-coaster of emotions, with countless thoughts and questions
for which there were no answers or blame. What causes autism? What
does the future hold? |
 |
Movie Review | The Horse Boy Equine interest prompts journey
- What do you do when your
autistic son is unresponsive to treatment yet inexplicably soothed
by the proximity of horses? If you are Rupert Isaacson and his wife,
Kristin Neff, you take him to a country where horses are as
essential as water: Mongolia. The Horse Boy is a record of that
extraordinary journey, a grueling weeks-long trek across the plains
of Mongolia in search of shamanic help for Rowan, their 5-year-old
son. Plagued by inconsolable tantrums, chronic incontinence and
severe dissociation, the boy is no one's idea of a congenial
traveling companion. |
 |
Mysteries of Autism Clusters - Although children of highly
educated parents are no more likely than other children to develop
an autism spectrum disorder, they are much more likely to be
diagnosed. Ten locations in California have been identified
where the incidence of autism is higher than surrounding areas in
the same region. Most of the areas, or clusters, are in locations
where parents have higher-than-average levels of education. The
other clusters are located close to major autism treatment centers.
|
 |
Public urged to mark Autism Consciousness Week - THE
Autism Society of the Philippines (ASP), in coordination with the
Department of Social Welfare and Development (DSWD), is inviting the
public to participate in the observance of 14th Autism Consciousness
Week, which is celebrated every third week of January. The theme for
this year’s celebration, “Giant Leaps….Transcending Boundaries,”
focuses on promoting awareness about the problems of autistic
persons. Presidential Decree 711 stipulates that every child with
autism should be provided with appropriate education, health and
social services as well as equal opportunities and adequate
protection to prepare him for his role in community development.
|
 |
Research and Markets: Transdermal CNS Therapeutics: Indications,
Demand Factors, Strategies and Forecasts Report Features Transdermal
CNS Drug Product Demand To 2012 - Unlike
several other disease segments, progress toward curative medicine
for neurological and related central nervous system disorders has
remained elusive. The result is a therapeutic segment that relies
heavily on control of symptoms and palliative care. This
disappointing picture is being exacerbated by disease trends that
are increasing the morbidity and mortality associated with CNS
ailments in the general population. These trends include the growing
incidence of neurological disorders associated with longevity and
aging, and significant increases in the number of children diagnosed
with autism. Because diseases of the central nervous system often
result in compromised cognitive and/or motor skills that can
increase the level of involuntary non-compliance with therapeutic
protocols, transdermal delivery of drugs targeting CNS disorders is
generally viewed as a method that can increase patient safety and
improve outcomes. In addition to the handful of FDA-approved
transdermal CNS products, more than a dozen companies are currently
pursuing a range of APIs in transdermal delivery systems that target
neurological and CNS conditions. |
 |
Solving the Autism: Rising Numbers Point to the Growing Problem of
Environmental Toxicity - As many as one in 90 children are today
being diagnosed with autism--and autism research continues to focus
almost exclusively on genetics. In its January/February 2010 issue
(posted now at: www.emagazine.com), E-The Environmental Magazine
looks at another factor that may be driving up autism
rates--environmental toxicity. Richard Lathe, Ph.D., a molecular
biologist who wrote Autism, Brain, and Environment says that since
the 1980s, autism rates "have gone up at least tenfold. It indicates
that it can't just be genetic--it must be environmental."
|
 |
Sometimes it Doesn't Matter What the Data Says - Recently
I found myself in a disagreement with a Special Ed teacher whom I
like and respect. I had trained one of the aides in her classroom
(as a consultant to her school system, this is one of the things I
am asked to do) to not forcefully turn an autistic child's head when
he does not respond to a request for eye contact. "But then we are
training kids to ignore us," she said, passionately. "The data
doesn't support what you are saying." But in truth, both of our
points are secondary. There is a something that is much greater than
getting eye contact/interaction from a child with
autism: building a relationship based on trust and
predictability. It is from this relationship that eye contact,
listening, communication, physical contact all emanate fromI
responded by talking about requesting eye contact when the child is
motivated so he will be more likely to look when asked. She had to
get back to her class, so the disagreement ended there.
|
 |
Steven Higgs Interviews David Kirby for The Bloomington Alternative
- Two days before the Centers for Disease Control and Prevention
(CDC) released its newest data on U.S. autism rates, author David
Kirby consented to a two-hour, videotaped interview in his
street-level brownstone apartment in the Park Slope section of
Brooklyn. The government, the former New York Times reporter said,
always drops its worst news late on Fridays, assuming the
attention-addled mainstream media will forget it by Monday, when
people actually pay some attention. |
 |
US Mom Janice Cox highlights Autism Sunday on American Television
- Autism Sunday was mentioned on primetime television news in
Massachusetts when campaigning Mom Janice Cox was recently
interviewed by 22 News.Autism Sunday is on 14th February 2010 and
churches around the world are marking what has become a key autism
date in the year. Janice Cox told the media that she wanted to focus
on Autism Sunday - the International Day of Prayer for Autism and
Asperger’s Syndrome - she had also written a poem detailing the
struggles and the joy of looking after her 7 year old son with
autism. Parents, carers and people with autism and Asperger’s
Syndrome are using Autism Sunday to campaign at local and national
levels. |
01-07-2010
 |
Autism numbers go up, autistic children grow up - The
image of autism is changing. Autism is no longer depicted by the
adorable curly haired toddler sitting quietly in the corner,
stacking blocks in perfect order, while his peers engage with each
other in a whirlwind of interaction and activity. Unfortunately,
now, it’s time to put a few more toddlers in the corner. The U.S.
Centers for Disease Control and Prevention (CDC) newest numbers
released in December reflect one in 110 children have been diagnosed
with autism, including one in 70 boys. The figures also represent a
startling 57 percent increase in the rate of diagnosis from a
four-year study (conducted from 2002 to 2006), and a whopping 600
percent increase in the rate of diagnosis in the past 20 years.
|
 |
First responders to learn more about people with autism -
Work is quickly proceeding on a plan to better train first
responders so they have the knowledge they need when they come into
contact with someone with autism. “We have a three-prong strategy
that we’re pursuing now with the municipality and a committee I sit
on provincially,” Michelle Gardiner, executive director of the
Autism Society of Cape Breton, said Thursday, after a meeting with
Chief Myles Burke of Cape Breton Regional Police. |
 |
Musings on the intersection of science, medicine, and culture -
As we mentioned earlier, Barbara
Loe Fisher, founder of the infectious disease promotion group NVIC,
is
suing a bunch of people for "defaming" her. Today she posted a
piece at Age of Autism entitled,
"2010 Needs A Fearless Conversation About Vaccination." She is
suing a nationally-known vaccine expert, the reporter who
interviewed him, and the magazine which ran the story about
vaccination. |
 |
Reel or real? - Bollywood has begun to go beyond the
surface of plastic love made in synthetic designer bedrooms, exotic
locales and simulated action scenes. With their eyes firmly fixed on
the ticket counters at the multiplexes and single-screen theatres,
the filmmakers have decided to poke into minds that matter. Is this
a healthy sign? TWF correspondent Shoma A. Chatterji takes a look.
The media is awash with stories and
pre-release
promos of Shahrukh Khan’s
new film My
Name is Khan. Other than its backdrop of terrorism set
in the US and the love story of a Muslim boy and a Hindu girl,
another point of emphasis
the film
zeroes in on is that the hero, Rizwan Khan, portrayed by
Shahrukh, suffers from
Asperger syndrome.
|
 |
SON WHO PLOTTED TO MURDER HIS DOTING PARENTS IS JAILED - A
SPOILT son was detained indefinitely yesterday after recruiting an
assassin to murder his doting parents to stop them pampering him.
Computer geek Christopher Monks, 25, felt “trapped in a cage” by his
parents’ fussing over his personal life and wanted them dead. ...At
Preston Crown Court yesterday, Monks, who suffers from Asperger’s
Syndrome, a form of autism, was imprisoned under a hospital order
while Skarnes, now 20, was given an indeterminate sentence for
public protection. Both were found guilty of conspiracy to murder by
a jury. |
01-04-2010
 |
Accommodating Autism - All the glassware in the Alpine
Suite at the Clinton Inn Hotel in Tenafly is unbreakable - the wine
glasses, the water tumblers, even the glass in the cabinet doors.
The furniture has rounded corners with soft bumpers. A round table
has replaced a square one. Flower vases and other decor have been
glued down. The iron is stored behind a safety lock and the windows
are locked. The television is fixed securely to the wall, instead of
sitting on a credenza, as in other guest rooms. Everything in the
suite has been designed to give peace of mind to guests who have
children with autism. |
 |
Behavior-Proof Hotel Room Puts Special Needs Parents At Ease
- In what is believed to be a first-of-its kind hospitality
experience, a New Jersey hotel is offering guests an autism-friendly
suite. The so-called Alpine Suite at the Clinton Inn Hotel in
Tenafly, N.J. features unbreakable glassware, furniture with rounded
edges and a door with a high lock that beeps when it unlatches.
What’s more the television is secured to the wall, the windows are
locked and the room’s iron is tucked away. A private dining room is
also available for guests of the special suite. |
 |
Demand Now That IOM Includes Autism As Adverse Vaccine Event
- Please email IOM demanding
that autism is included in the list of adverse vaccine events,
otherwise, it is likely to be left out. Submit your comment to the
project e-mail at
vaccinesafety@nas.edu.
Review of Adverse Effects of Vaccines. Click
(HERE) to review the complete info at the Institute of
Medicine (IOM) website about this request for comments.
|
 |
Editorial: Autism report shows there's no substitute for science
- The call for reason, and to look for reasonable science, was made
stronger this week with news of a report that special diets appear
to have no effect on the cause or treatment of autism. In the
medical journal Pediatrics, a consortium of researchers agreed there
is no reliable evidence showing that autistic children have any
special gastric maladies, or that special diets affect their gastric
health or the autism itself. The notion that autistic children
suffer from so-called “leaky gut” syndrome was created by a
discredited report by British doctor Andrew Wakefield. In his
report, Wakefield tied some forms of autism and gastric maladies to
a combined measles vaccine. |
 |
Five key facts every parent should know about MMR - With
the numbers of measles cases on the
rise, it's vital parents and carers have all the information to make
an informed choice. In the early 2000's, media reports led to
widespread public concern over the safety of the MMR vaccine.
Parents were understandably worried, but with the number of children
catching measles on the rise, it's crucial to make an informed
choice. |
 |
Journal Says No Proof Special Diets Help Autistic Children
- New research was released today about children with autism, and
it’s sparking a fresh round of intense debate. The report from a
panel of experts finds no scientific proof that digestive problems
are more common in children with autism and no evidence that special
diets work. The research, published in the journal Pediatrics, has
been met with controversy -- many parents say that restrictive diets
have helped their children by combating symptoms and behavior
problems of autistic children. Actress and activist Jenny McCarthy’s
son was diagnosed with autism, and tonight she tells ABC News that
she and many others have seen positive effects from wheat and
dairy-free diets. |
 |
Katie Wright: About that CDC Autism Press Conference Right Before
Christmas - It felt strange googling my doppelganger. My
real name is Catherine Wright. However, my doorman knows to accept
any deliveries for Katie Wright, Cathy White or Catherine Rice. I
answer to all of them. In a city with hundreds of different
languages, I’m not going to split hairs with my pizza delivery guy.
Like many of you I listened to Dr. Catherine Rice’s ridiculous
Centers for Disease Control (CDC) press conference on the FRIDAY
AFTERNOON BEFORE CHRISTMAS about the dramatic rise from 1 in 150 to
1 in 100 American children affected by autism. This devastating
information was read like a product warranty- laboriously and
without interest. And what is with the timing of CDC/ autism press
conferences? Always a Friday afternoon…hmmm…I wonder why? And the
length of the question period is absurdly brief. About 4 members of
the public are allowed ask questions during the Q &A. While Dr. Rice
spends an inordinate amount of time talking, the question asker has
no time to respond and then whoosh- time’s up and she HAS to go.
|
 |
More Toddlers, Young Children Given Antipsychotics - The
rate of children aged 2 to 5 who are given antipsychotic medications
has doubled in recent years, a new study has found. Yet little is
known about either the effectiveness or the safety of these powerful
psychiatric medications in children this age, said researchers from
Columbia University and Rutgers University, who looked at data on
more than 1 million children with private health insurance. "It is a
worrisome trend, partly because very little is known about the
short-term, let alone the long-term, safety of these drugs in this
age group," said study author Dr. Mark Olfson, a professor of
clinical psychiatry at Columbia University in New York City.
|
 |
MMR: a mother's story - As a journalist,
Jo Payton knows the power
of a good headline. But when
the time came to have her son Eliott vaccinated, she couldn't blame
other mothers for feeling apprehensive. Like epidurals, breast
feeding and controlled crying, I didn't give much thought to the MMR
debate until I got pregnant. In 2001, when Dr Andrew Wakefield
questioned the safety of the immunisation programme, I was three
years away from motherhood. I read the reports, but the constant,
nagging fears that accompany parenthood weren't yet on my radar. I
put it down to media hype and imagined the storm would calm by the
time I had my own child to immunise. |
 |
Paul Offit, Amy Wallace, and Conde Nast being sued by anti-vaccinationist
- Thanks to the always vigilant eyes of Liz Ditz,
Ratbags.com is reporting
that pediatric immunologist and vaccine developer Dr. Paul Offit,
writer Amy Wallace, and Condé Nast (publisher of Wired magazine) are
being sued for libel in US District Court by Barbara Loe Fisher,
founder and acting president of the so-called National Vaccine
Information Center. Readers will recall that
Wallace's article on
Dr. Offit and the fear and misinformation propagated by anti-vaccinationists
was the centerpiece of a feature in Wired magazine aptly titled,
"Epidemic of Fear." |
 |
Pediatrics GI recommendations -- first step to guidelines for
children with autism - Autism Speaks applauds the
consensus statement and recommendations for the evaluation,
diagnosis, and treatment of gastrointestinal (GI) disorders in
children with autism spectrum disorders (ASD) released online in
Pediatrics as one step in advancing physician awareness of
unique challenges in the medical management of children with autism.
"We are pleased to see the publication of these consensus
recommendations. Autism Speaks' current efforts will take this
further by creating evidence-based guidelines for physicians. The
goal is to develop a comprehensive care model that will guide
physicians in addressing a wide range of medical issues, including
GI problems, that many individuals with autism suffer from,
"commented Geraldine Dawson, Ph.D., Autism Speaks chief science
officer. |
 |
Study
finds no MMR-autism connection - In the early 2000s, the
media reported wildly on a British
study finding a link between autism and the measles-mumps-rubella
(MMR) vaccine. Ever since some parents have hesitated to get their
children the MMR jab. A few even forgo the vaccination altogether.
The majority of experts have since widely disagreed with this
study's claims, and questioned its methods. The study led by Andrew
Wakefield was based on only 12 children, and didn't have a control
group. |
 |
Study Identifies Autism Clusters In California - UC Davis
researchers have identified 10 locations in California where autism
has been found to occur at a higher rate than in the
region's surrounding areas. Most of the areas, or clusters, are in
locations where parents have higher-than-average levels of
education. For more on the findings
click here. |
 |
The Search for Autism's Missing Piece - Autism cases are
on the rise. Or so the most recent data
would have us believe. The Centers for Disease Control and
Prevention (CDC) found that 1 in 100 children in the U.S. have been
diagnosed with autism spectrum disorder (ASD)—up from 1 in 150 in
2007. A study in the journal Pediatrics in October 2009 revealed
similar numbers—parents of 1 in 90 children reported that their
child had ASD. With boys, the rate of ASD was 1 in 58. Without a
doubt, autism is the country’s fastest-growing developmental
disability, affecting more children than cancer, diabetes and AIDS
combined. Still, in dealing with a childhood disorder that ranges
from “highly functioning” to uncommunicative, and such a long list
of potential triggers and treatments, even the numbers themselves
are subject to questioning. |
01-03-2010
 |
Asperger syndrome and criminal behaviour - The importance
of considering antisocial behaviour among people with
autism-spectrum disorders is apparent from the significant
number of case reports and case series describing criminal
behaviour of people with a diagnosis of Asperger
syndrome. The evidence so far does not support a specific
association between the syndrome and criminal offending.
However, a small yet significant number of offenders with
autism who engage in illegal behaviour find themselves
socially excluded or detained in secure provisions for
prolonged periods. This article gives an overview of the
scant empirical evidence relating to criminality within the
context of Asperger syndrome, and offers suggestions for
managing the syndrome in mentally disordered offenders.
|
 |
Autism Exploited: WTF, Spectrum Magazine? -
Recently, Spectrum Magazine attempted to gain
publicity in what is now being viewed by many as too desperate of an
attempt. The popular autism info magazine published a photo of a
cell phone screen that boasted a common and easily offensive
acronym. Many are left to wonder, “was that really necessary?”
|
 |
Autism in fiction and autobiography - Many
memorable characters in Western culture could be viewed
as having features of autism or Asperger syndrome. In spite
of the familiarity of autistic stereotypes such as Star
Trek’s Mr Spock, more completely described characters
with autism are still unusual. In recent years there has
been a growing interest in autism, mirrored by an
increase in depictions of autism in popular works of
fiction and autobiography. In this article I will outline
the issues that have preoccupied writers and the
techniques they have used to demonstrate autistic difference.
Some writers have illuminated aspects of the autistic triad
of social impairment, abnormalities of language and need for
sameness. Other writers have opened our eyes to the autistic
world view in its strangeness and richness. Still more have
started to examine prejudice, disability rights and the
implications of an international autism community. As in
other areas of mental health, literature can help inform,
entertain and question our attitudes and values.
|
 |
Autism increase may reflect greater awareness - When
developmental and behavioral pediatrician Raun Melmed, MD, started
in the field 25 years ago, autism was a relatively unusual
diagnosis. Today, his Scottsdale, Ariz., practice sees two to three
new cases of autism spectrum disorder each week. Like many
physicians, Dr. Melmed isn't sure what has driven that rate upward.
But he thinks broadening the definition of autism "accounts for at
least half of new cases identified, and maybe more."
|
 |
Autism is a MIND Matter - For the more than half a
million Filipino families dealing with autism, imagine the following
scenario happening in the Philippines: ... |
 |
Autism Resolutions: New Routine, Path & Hope - It’s
the last day of our Christmas holiday. Ronan is sucking on his RevitaPop
while playing with his new Leap Frog toy. The baby is entertaining
herself with a stacking game while three heads are huddled around
the first video game we’ve ever had in the house. We’re about to
start our new year with new routines and new paths of hope. Am I
ready? |
 |
Evidence lacking for special diets in autism - An
expert panel says there's no rigorous evidence that digestive
problems are more common in children with autism compared to other
children, or that special diets work, contrary to claims by
celebrities and vaccine naysayers. The report's lead author, Dr.
Timothy Buie of Harvard Medical School, said pain or discomfort
because of bloating or stomach cramps can set off problem behavior,
further complicating diagnosis, especially if the child has trouble
communicating — as is the case for children with autism.
|
 |
'Evidence of Harm' revisited, Part 1 - Two days before the
Centers for Disease Control and Prevention (CDC) released its newest
data on U.S. autism rates, author David Kirby consented to a
two-hour, videotaped interview in his street-level brownstone
apartment in the Park Slope section of Brooklyn. The government, the
former New York Times reporter said, always drops its worst
news late on Fridays, assuming the attention-addled mainstream media
will forget it by Monday, when people actually pay some attention.
|
 |
Nearly 1 percent of US children have autism – report -
Roughly one of every 110 children in the United States has been
diagnosed with autism, with boys at least four times more likely
than girls to suffer from the developmental disorder, according to a
federal study released yesterday that served as a rallying cry for
scientists and activists. The new estimates from the US Centers for
Disease Control and Prevention were based on a painstaking review of
the 2006 medical and educational records of eight-year-olds in parts
of 11 states and produced the most comprehensive portrait of the
disease’s impact. |
 |
PBS Presents "This Emotional Life." Asperger's Segment Included.
- This Emotional
Life airs January 4 - 6 on PBS. Check your local listings. From
PBS: How can we all lead more emotionally healthy and
fulfilling lives? What’s the secret – and is there a secret – to
emotional and mental well-being, and happiness, according to those
who study it and those who experience it? It turns out that
connecting with others may be a huge part of it. But for many
children and adults who have been diagnosed with Autism Spectrum
Disorders – including Asperger’s syndrome – connecting with others
can be a constant challenge. |
 |
'These amazing people ... I love them' / "You're
happiest while you're making the greatest contribution." -- Robert
F. Kennedy - I hadn't met Tera Evans before our interview, but
she reads me and noted my obsessive if not hackneyed penchant for
including famous quotes or lyrics from songs at the beginning of
each column. She had RFK's above quote all picked out for me.
Evans, 37, is a graduate of Griffith High School. She lives in
Valparaiso with her husband, Alex Evans. They've been married for
two years. Both work for Opportunity Enterprises in Valparaiso.
|
 |
They call this grad 'Mr. Information' - Just call Adam
Robertson “Mr. Information.” Robertson, 21, of Murfreesboro, was one
of nine graduates in computer information systems last month from
the Tennessee Technology Center’s Information Technology Program
where he achieved Microsoft certification. The graduates implement
networks that make businesses operate. But what gave Robertson the
title was his ability to answer any question about any
computer-related topic, said instructor Stan Dribble, who has been
in the computer information systems business for 47 years. “He’s
helped me come up with answers I couldn’t find,” Dribble admitted.
Dribble is especially proud of Robertson who was diagnosed with
Asperger’s Syndrome, which is high functioning on the autism
spectrum. Asperger’s Syndrome is described as a neurobiological
difference in how the brain processes information. |
01-02-2010
 |
Age of Autism Award Child of the Year: Sam Debold - On
this New Year's Day, we invite you to take a look at autism
recovery. Sam Debold performed for us last May at
Autism One. Sam, you're our
"Child of the Year." Thanks for the beautiful music. Below is the
post we ran about Sam's performance after the conference, including
Vicky Debold's explanation of her son's experience. Happy New Year,
everyone. |
 |
Age of Autism Award Couple of the Year: Ed and Teri Arranga
- We'd like to honor Ed and Teri Arranga as our couple of the year.
Ed and Teri run Autism One. Sounds
simple enough, until you delve into everything Autism One offers
families facing the challenges of autism from an online community,
to blogs, to resources. Plus there's
Autism
One Radio and the
Conference held each
year in Chicago. This year the conference is called The
AutismOne & Generation Rescue - Autism Redefined 2010 Conference
and takes place Monday, May 24 – Sunday, May 30 at the Westin O’Hare
Hotel, Chicago, Illinois. In addition, Teri is on
Voice America and is USA Editor for
Autism File magazine.
|
 |
Autism Activists and Science Denialism - In waging war
against disease, modern medicine augments the
evolutionarily derived defenses of the human immune system and saves
millions of lives. Despite this fact, medical science continues to
be plagued by denalism, particularly in regards to the condition
known as autism. Through hundreds of millions of years the process
of biological evolution has, through trial and error, refined the
vertebrate immune system to an astonishing degree. However, despite
these great successes, humans continue to be susceptible to the
attacks of bacteria and viruses, as well as to assaults from
blunders in our own internal physiological processes. Luckily,
through the process of science, which includes clinical evaluation
and peer-review, modern medicine augments the natural fortifications
of the human immune system as it opposes illness. In the
evolutionary arms race against disease, medicine is an essential
armament and doctors are very much needed arms dealers.
Unfortunately for those on the front lines, not all arms dealers are
equally sound. |
 |
Autism Clusters Found: areas with high incidence of autistic
children - Researchers at the
U.C. Davis
MIND Institute has discovered regions
in the state of California that have notably higher autism
incidence. But the story is more complicated, and more sad, than one
might think at first. Instead of indications of an “autism
epidemic”, these clusters point to the fact that minority and poor
children are much less likely to receive autism diagnoses.
|
 |
Autistic brothers go the distance - Asked to spell their
last name, Jerome Hopkins IV and younger brother Jerome “BJ” Hopkins
V take turns, each saying every other letter. They do that sort of
thing a lot, said John Kaup, a teacher and coach at their school,
Nathan Hale Middle School. The boys, both autistic, like to dress
alike and always call each other “bro.” When they were young, they
often communicated in a language no one else could understand. Now,
when they play video games, it’s two against the computer or game
console. Their father, Jerome Hopkins III, recalled that when his
sons were diagnosed with autism, “We were told all of this stuff
they can’t do.” |
 |
Mormon grandma: Special kids = special photos - When Heidi
Lewis tried years ago to get a portrait of her 1-year-old
baby, she was disappointed when the photographer was put off by her
son's physical condition. He had a rare tissue disorder that made it
so he couldn't sit up. Some joints were fused. His eyes were sunken
in his very round little face, and patches of hair covered his
scalp. The photographer's reaction, and Lewis' distress, led to the
creation of a non-profit organization that trains photographers to
take good pictures of special needs children. "She didn't want to
take the time with us that was needed," Lewis said. "It was
traumatic because we had really made a lot of progress during that
year and we wanted to celebrate that progress with a picture.
|
 |
New Year, New Laws - Well, so much for a happy new year. As the
year 2010 rush in, so did numerous laws took effect. There are
40,697 new legislatures passed by the 50 US states, the District of
Columbia, Guam, the Virgin Islands and Puerto Rico. Some went in
effect during New Year’s Day, January 1, in about 30 states.
Some of the laws are serious while some are open for
“interpretations”. Here are some samples: |
 |
Rain Man left a legacy - This is to commemorate the life
of Kim Peek, the inspiration for the character in the movie Rain Man
who died at age 58 in Salt Lake City on Dec. 19. Apparently
NASA scientists had been studying him to somehow understand his
mental genius. So NASA must be thrilled to know that autism, which
was once one in 10,000, has increased in some areas of the world to
1 in 67. There should be plenty of vaccine-damaged savants in the
world for them to carry on, and perhaps they'll figure out while
they are at it why we allow such inhumane damage in the first place.
|
 |
When Your Child Was Diagnosed with Autism: Share Your Story
- About.com recently launched a new tool to enhance community
involvement on this site. It's called "Show and Tell," and its
purpose is to provide readers with the opportunity to share
experiences, insights, hints and tips. For the autism community,
Show and Tell promises to be a great asset: once you tell your story
and it's approved, your story becomes a permanent part of the
Autism.About.Com website. |

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